The Number One Community and Information Resource for Survivors of Environmental and Invisible Illnesses.

  • BA Nut thanks user 'Jodie' in the forum message ' House maintenance HELP please'.
    yesterday
  • BA Nut replied to the topic 'House maintenance HELP please' in the forum.
    yesterday

    Thank you Jodie, I'll phone the company tomorrow, it looks like the bath sealing may be ok.
    Now to find damp proof paint!
    Read More...

  • Jodie replied to the topic 'House maintenance HELP please' in the forum.
    yesterday

    Hi BA, don't know about safe damp treatment, you'd have to google it.  There is info on here on a bath sealant I found safe...
    Read More...

  • BA Nut created a new topic ' House maintenance HELP please' in the forum.
    2 days ago

    I am currently renting a house. I have received a phone call today, Sunday, from a maintenance company to arrange to come on Wednesday to seal the bath and fix a damp area in the bathroom. This...
    Read More...

  • BA Nut thanks user 'Jodie' in the forum message ' Medical Mysteries TV Documentary'.
    2 days ago
  • Cath thanks user 'Jodie' in the forum message ' Air filters for MCS'.
    1 week ago
  • Jodie replied to the topic 'Air filters for MCS' in the forum.
    1 week ago

    Hi Cath, I'm not that familiar with air filters but I've heard bad things about Austin over the years. It would pay to do some research on air filters and how they work so you know what you're...
    Read More...

  • Cath created a new topic ' Air filters for MCS' in the forum.
    1 week ago

    Does anyone find using an air filter at home helpful? I've seen some mixed reviews about people's experiences with them, but I'm thinking that anything that helps to reduce my chemical load at home...
    Read More...

  • Cath replied to the topic 'Looking for a doctor' in the forum.
    1 week ago

    Thanks Maff. Dr Pouria sounds worth finding out more about. Dr Myhill isn't taking any new patients, or I would try her.
    Read More...

  • Cath replied to the topic 'Looking for a doctor' in the forum.
    1 week ago

    Thanks Maff. Dr Pouria sounds worth finding out more about.
    Read More...

  • Jodie replied to the topic 'Medical Mysteries TV Documentary' in the forum.
    1 week ago

    Good to know Maff :) seems they are scouting around, I put this up on the MCAD Facebook forum & one girl replied "I spoke to them last week, sent photos. They need to speak with my consultant first...
    Read More...

  • Maff replied to the topic 'Looking for a doctor' in the forum.
    1 week ago

    Hi Cath,

    Along with Dr. Myhill who has been my main go to doctor for 20 years, Dr. Pouria at The Burghwood Clinic in Surrey seems to come highly recommended by many. If you have the time you might...
    Read More...

  • Cath replied to the topic 'Looking for a doctor' in the forum.
    2 weeks ago

    Thanks.

    Has anyone seen Dr. Damien Downing and if so, what was their experience?
    Read More...

  • Maff replied to the topic 'Medical Mysteries TV Documentary' in the forum.
    2 weeks ago

    Most definitely! I should have mentioned that as I'll make sure anyone else who wants to take part is happy with what they're being asked to do and contracts are signed before filming as well.

    I'm in...
    Read More...

  • Jodie replied to the topic 'Medical Mysteries TV Documentary' in the forum.
    2 weeks ago

    I hope you're setting the T&Cs this time Maffles, & make them sign it in blood :side:
    Read More...

  • Maff created a new topic ' Medical Mysteries TV Documentary' in the forum.
    2 weeks ago

    Hi All,

    I've been contacted by a Tigress Productions here in the UK. They are making a 6 to 8 episode documentary series named 'Medical Mysteries' for Channel 5 about illnesses like those we all...
    Read More...

  • Cath thanks user 'Jodie' in the forum message ' Looking for a doctor'.
    2 weeks ago
  • Jodie replied to the topic 'Looking for a doctor' in the forum.
    2 weeks ago

    Hi Cath

    These have been recommended in the past

    doctormyhill.co.uk/wiki/Main_Page

    breakspearmedical.com

    www.allergy-clinic.co.uk/about-dr-a-morris/

    I haven't seen any of...
    Read More...

  • Cath created a new topic ' Looking for a doctor' in the forum.
    2 weeks ago

    I have been suffering with worsening MCS symptoms over the last year. I am a cook, and spend a lot of time baking cakes. For around three years I inhaled pretty huge amounts of flour and icing...
    Read More...

  • NJ Safe Housing in the US
    2 weeks ago

    I live in the north and cannot find a heating system that does not trigger severe MCS symptoms, I have tried radiant heating but both Pex and Onyx tubing affect me when heated. I am considering hot air with an air exchange. Has anyone had any good, or bad, results with this type or other heating systems? I feel like I just keep throwing money at this problem!

    Maff Hi NJ, being a Brit I can't say I'm an expert in US heating systems but an air exchange (which I assume is like a ducted air system?) seems risky given you'll be breathing in everything that comes through it. Perhaps with the right filters in place though...
    Are there any Americans from northern States who've found a suitable solution? I hope you solve the problem soon NJ without spending a fortune.
    2 weeks ago
  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.
    2 weeks ago

    Anyone who wants to keep up with research on MCAD/S could check the research group on Facebook-

    www.facebook.com/groups/1489732487968980/

    Also this group is extremely busy,...
    Read More...

  • Maff mikeg_373
    2 weeks ago

    Hi Mike. I know you're interested in sulfur metabolism. If you use the Google search box (very top right) to search for keywords including sulfur/sulphur and sulfites/sulphites you will find a number of articles on how the two forms can affect the body, both negatively and positively. Additionally, I recommend Dr. Amy Yasko's work on variations in genes controlling enzymes like sulfite oxidase.

  • Maff replied to the topic 'Severe MCS symptoms after giving birth' in the forum.
    2 weeks ago

    You're welcome Marie, sorry for taking a while to reply again.

    A lot of people seem to think MCS is permanent and I feel spreading this message can be very damaging as it takes away hope from people...
    Read More...

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