The Number One Community and Information Resource for Survivors of Environmental and Invisible Illnesses.

  • Jodie created a new topic ' Wooden flooring..' in the forum.

    We are considering putting this on concrete living room floor in in a few months's time, will keep you posted on any issues in case anyone's thinking of doing the same. Tho advice seems to vary from...
    Read More...

  • Kiahjo replied to What is the Best Natural Dog Food?
    22 hours 32 minutes ago
    http://members.petfinder.com/~ME44/approvedfood.pdf Hi Maff, Whole Dog Journal puts out a list each year of the best dry foods. Hope the link...
  • Kiahjo replied to the topic 'Survey of MCS' in the forum.

    Re: your question regarding other illnesses: I think it's complicated and I certainly don't profess to know the complexities. I suffered severe asthma as a child and young adult. To this day, I'm 100%...
    Read More...

  • Jodie created a new topic ' Be aware of bedding treated with chems..' in the forum.

    This seems to be becoming ubiquitous, so watch out for dust mite & antibacterial treatments on bedding - these come under the name of UltraFresh/ Microban & several others - if there's a treatment...
    Read More...

  • Maff replied to the topic 'Probiotics' in the forum.

    Hi Jodie, thanks for posting for Lily (I will look into why you can't post yourself Lily!)

    Sorry that my advice wasn't much good as you've already tried my suggestions. I don't really know dairy-free...
    Read More...

  • Jodie replied to the topic 'Probiotics' in the forum.

    Maff, Lily has asked me to post this reply as the system won't let her post atm:

    "Thanks for the advice Maff. I have tried Kefir and it was
    given to me by Dr Myhill. However it is an acquired taste...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    The other point I was trying to get across I guess is that if there is physical damage (i.e. in my case mast cells are apparently damaged and with Mastocytosis there is a proliferation of mast cells)...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    Yup ... and all the above would be helped along *enormously* if MCS were properly acknowledged as a disorder. The EU has tried to get WHO to do this & failed, tho I hear they will keep trying..at...
    Read More...

  • Maff replied to the topic 'Survey of MCS' in the forum.

    A good point Jodie, being labelled as 'crazy' does tend to have a fair few negative consequences in life! I actually took the decision to allow myself to be diagnosed with depression / anxiety purely...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    *have to say I'm surprised you haven't been offered CBT or referral to a psychologist who might use relaxation techniques, meditation or mindfulness-based cognitive behavioural therapy (MCBT).**<<<...
    Read More...

  • Maff thanks user 'Kiahjo' in the forum message ' Survey of MCS'.
  • Maff replied to the topic 'Survey of MCS' in the forum.

    Thank you for joining in the discussion Kiahjo, it's great to have someone so qualified contributing. You're doing fantastically well to live with MCS and ES while being employed at such a prestigious...
    Read More...

  • Maff replied to the topic 'Survey of MCS' in the forum.

    Definitely agree that in the world of conventional medicine as a whole mind and body are still seen and treated as separate Jodie but I've seen this begin to change and it is gathering momentum. An...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    Hi Kiahjo - would that mean that others with chronic debilitating illnesses which are somewhat unpredictable / affected by environment & can be devastating (- eg asthma, dangerous allergies,...
    Read More...

  • Kiahjo thanks user 'Maff' in the forum message ' Survey of MCS'.
  • Kiahjo replied to the topic 'Survey of MCS' in the forum.

    Good discussion here. I'm a psychotherapist with Mayo Clinic. I have MCS and ES. I share Jodie's concerns and believe they are accurate. Like the history of tobacco, I think the truth will eventually...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    So true they are not separate entities, yet the received opinion still seems to be that they are don't you think? Which is why the chemical giants can put about that it's all in your head. I don't...
    Read More...

  • Maff replied to the topic 'Survey of MCS' in the forum.

    Oh yeah, the chemical giants have been at that for years, using propaganda under the guise of science to underplay MCS and the effects their products have on the health of the public at large. You're...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    Yes, I know it works for some, (tho didn't do anything for me). I also know a lot of folks with MCS feel there's a serious push - especially in the US - for the chemical manufacturing giants to put...
    Read More...

  • Maff replied to the topic 'Probiotics' in the forum.

    Have you thought about culturing your own dairy-free probiotic yoghurt or kefir Lily? You can buy start kits online and then once you get it going you just keep topping up with your dairy-free base...
    Read More...

  • Maff replied to the topic 'Survey of MCS' in the forum.

    Thanks for posting Jodie!

    I see your point about the focus on Gupta Amygdala Retraining - but then it does seem to have genuinely helped a LOT of MCSers. Research in social sciences and law does tend...
    Read More...

  • Jodie replied to the topic 'Survey of MCS' in the forum.

    hmmm.. I went thru that, slightly concerned it kept going on and on and on about Gupta brain retraining. And v vague questioning which would elicit answers which will wander all over the place... I'd...
    Read More...

  • Jodie created a new topic ' Survey of MCS' in the forum.

    ...an email from Planet Thrive about a survey of MCS and the use of forums as below.

    Hello Planet Thrivers!
    I was recently contacted by Dr. Tarryn Phillips, an academic in legal studies at La Trobe...
    Read More...

Community Search

Currently Online

Community Statistics

Statistics
Total Members: 2979
Total Groups: 34
Total Discussion: 121
Total Photos: 80
Total Videos: 110
Total Activities: 3149
Total Events: 2
Total Males: 384
Total Females: 735