The Number One Community and Information Resource for Survivors of Environmental and Invisible Illnesses.

  • Maff replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Hi Bruce and Jodie!

    My thoughts as someone who suffered severe MCS for approximately 5 years (housebound, wearing carbon filter masks even indoors) but managed to recover through very strict...
    Read More...

  • Jodie
    4 days ago

    Hi folks - the gremlins have been shut back in their box for now, hopefully everyone can now add posts + reply to posts. If anyone has any probs pls message myself or Maff - the messaging system still seemed to work fine even when the posting system didn't!
    Have a good day! xJodie

  • Sandra Rae
    5 days ago

    Has anyone reacted to revolution dog medicine ? Its the liguid you put on the dog's neck to clear them of fleas. parasites & heartworm, that stays in their system for 4 to 5 weeks. I didn't put it on her myself, my husband did, but I have been reacting quite badly ever since. I have been checking into it from every angle I can think of. The company that makes it assured me that I couldn't be...

    Jodie Hi Sandra,

    There's info here you can read thru on Allergies www.ei-resource.org/illness-information/environmental-illnesses/allergy-and-allergies/ and MCS www.ei-resource.org/illness-information/environmental-illnesses/multiple-chemical-sensitivity/

    Your doc will probably do some tests - patch tests, blood tests, prick tests. It's a long time since I had mine done so I'm not so up on current tests, but those should show whether you have 'classic' allergies, those are usually IGE mediated - your doc should be able to tell you if you have high IGE antibody count. Mine came up with nothing unusual there. I was also tested for Porphyria, Mastocytosis, & various endocrinology probs (thyroid, liver etc), all negative, so I put myself under the MCS heading. However antihistamines work on many of my symptoms & I now have a diagnosis of Mast Cell Activation Disorder, mainly based on 17 years of symptoms & tests ruling out everything else. Mast cells are the little b#ggers that explode releasing histamine and a lot of other nasties whether you have classic allergies or a Mast Cell disorder. So most ppl use a combination of avoidance of triggers, meds (antihistamines & mast cell stabilisers) sometimes diet as well (e.g. low histamine foods) to stay out of trouble. Note you can also have a combination of classic allergies + MCS or other stuff going on, it is not necessarily either/or. Good luck with the doc ! let's hope he's one of the sensible ones, but if not go find another..don't be fobbed off!
    4 days ago 1
  • Bell shared a photo in Supporting The Methylation Cycle

    My single nucleotide polymorphism (SNP) results that relate to methylation cycle dysfunction/blocks.
    Maff Was there another image with your SNP results Bell? This just seems to be a comparison of ancestry genotyping companies...
    3 days ago
  • Jodie replied to the topic 'Re-cleaning Carpet Via Hypo Allergenic Methods?' in the forum.

    Bumping this up as having to look again at carpet cleaning. This is a system I have not come across before but might be worth a try - it's a dry cleaning system involving tiny sponges. There's some...
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  • Jodie replied to the topic 'Carpeting with MCS' in the forum.

    Moving onto the living room - this carpeting just might be feasible. It's expensive but you don't need underlay even on a concrete floor, which cuts the cost, so it's probably about the same £'s as...
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  • Jodie
    1 week ago

    Hi folks, it seems some people are having trouble posting/ replying to posts - we are trying to sort this out .. please bear with us! Jodie

  • Jodie created a new topic ' Recommendations for Masks?' in the forum.

    I tried the I Can Breathe mask, apart from being comfortable I found it to be useless for more than one wear, as even your own breath makes it smelly after a couple of hours , and yes I brush, floss &...
    Read More...

  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    LOL sorry Bruce, it was the first thing that came into my head :D

    A question which is puzzling me tho which you might be able to answer - What is the difference between MCAS and MCAD?

    I also...
    Read More...

  • Bruce Hart is friends with Jodie
  • Bruce Hart replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Thanks Jodie for sharing my MCAD website. :) Sorry for taking so long to reply on here.

    Hmmm... "a guy from Planet Thrive" lol That may mislead people's impression of me a bit since I'm a black...
    Read More...

  • fluffette is friends with Jodie
  • CazNZ Ashok Gupta's Amygdala Retraining
    2 weeks ago

    I see there are two others who have joined this group. I just wanted to say that the Gupta Programme was the best $200 I've spent on getting myself well. I still do the techniques. I do have mild after reactions but as each month passes my health improves just that little bit more.

  • FloxieHope added a new comment in Increase Glutathione: 5 ways to restore this major antioxidant and detoxifier to healthy levels
    4 weeks ago

    Excellent article - thanks for the great info! It should be noted that fluoroquinolone antibiotics - cipro, levaquin, avelox and floxin - have been found to severely deplete glutathione. Here is an article about it - http://www.ncbi.nlm.nih.gov/pmc

  • FloxieHope uploaded a new avatar.
  • Gayl H
    4 weeks ago

    Was the protocol page taken down?

  • marcus replied to Cures for MCS
    4 weeks ago
    http://www.evolutionorganics.co.uk/altrient-livon-labs/altrient-natural-liposomal-gsh-glutathione-sachets?source=pla&gclid=CKnbv4rBq8ACFfSWtAodQgsAkw...
  • Jodie replied to Cures for MCS
    4 weeks ago
    Thanks Marcus. What brand of Liposomal Glutathione would you recommend? I tried Glutathione cream once as I don't tolerate oral supplements well....
  • marcus posted a new discussion

    4 weeks ago

    Cures for MCS

    Ok, so there is no such thing as a cure, just remedial actions we can take. Having suffered from MCS 15 years, all I care about is a CURE though!...

    Surviving Multiple Chemical Sensitivity!
  • SMELLEZE uploaded a new avatar.
  • jazzpollard created a new blog post, Natural Home Remedies For Taking Care Of Your Skin

    It's spring, finally--Goodbye icy mornings and hello sunshine! Spring though may not sound all that fun when your skin is dull, dry or, breaking out from the frost.  Skin problems in spring get worse because many of us falsely ...

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