The Number One Community and Information Resource for Survivors of Environmental and Invisible Illnesses.

  • Kyz replied to the topic 'Has anyone permanently cured themselves?' in the forum.

    Among the chronic fatigue and fibromyalgia circles methylation dysfunction and cellular glutathione deficiency is proposed as a disease model. In my own experience all forms of glutathione,...
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  • Jodie replied to the topic 'Re-cleaning Carpet Via Hypo Allergenic Methods?' in the forum.

    In the meantime - after a vast amount of googling I discovered this little trick for a VAX type carpet cleaner which won't take foamy liquids -

    Use any detergent you can tolerate - dishwashing...
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  • Jodie replied to the topic 'Re-cleaning Carpet Via Hypo Allergenic Methods?' in the forum.

    Well the HOST system gave me the itches unfortunately but others might find it works for them, I know one girl with hypersensitivity issues who it's ok for, so as usual it's an individual thing.
    The...
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  • george8141 replied to the topic 'Re-cleaning Carpet Via Hypo Allergenic Methods?' in the forum.

    I found that the products from odorklenz work very well in getting rid of odors and fragrances from clothes and belongings. I use them for my laundry and I use the cleaner to clean my rugs once a...
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  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    I remember wanting to put "possible cause of MCS " in the title but there was't enough space :)
    I agree Mike, I think it's a given that this stuff is not simple, biology is mindblowingly complex.  ...
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  • BruceHart2 replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Hi, Mike. People seem to keep assuming that I'm saying MCAD is definitely the only cause of MCS. I never mean to imply this, and even explicitly stated otherwise many times. I just say that MCAD often...
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  • Mike Badolato replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Hello there, I always say this - but does anybody believeit? Mast cell activation is not "cause" of MCS. Mast cells are activated as part of the overall inflammatory response. To separate one thing...
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  • Jodie replied to the topic 'Restoring leather furniture.' in the forum.

    Well that lasted about 4 months ... :pinch:
    I've since found this stuff which is doing better - Leather Re-Colouring Balm - just rub it on like polish www.furnitureclinic.co.uk
    Don't have a...
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  • Mathieu uploaded a new avatar.
  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Thanks so much for that Bruce - it's given me (and I'm sure anyone else who's interested ) plenty to think about. I'm always amazed at how you (and Maff) can deal with all this hard science at the...
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  • BruceHart2 replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Sorry for the delayed reply. I've had severe brain fog and mental fatigue along with a bug with my first account not allowing me to post. So I just created another account.

    @Jodie:

    MCAD...
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  • BruceHart2 uploaded a new avatar.
  • Maff is friends with Bruce Hart
  • Maff replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Hi Bruce and Jodie!

    My thoughts as someone who suffered severe MCS for approximately 5 years (housebound, wearing carbon filter masks even indoors) but managed to recover through very strict...
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  • Jodie
    2 weeks ago

    Hi folks - the gremlins have been shut back in their box for now, hopefully everyone can now add posts + reply to posts. If anyone has any probs pls message myself or Maff - the messaging system still seemed to work fine even when the posting system didn't!
    Have a good day! xJodie

  • Sandra Rae
    2 weeks ago

    Has anyone reacted to revolution dog medicine ? Its the liguid you put on the dog's neck to clear them of fleas. parasites & heartworm, that stays in their system for 4 to 5 weeks. I didn't put it on her myself, my husband did, but I have been reacting quite badly ever since. I have been checking into it from every angle I can think of. The company that makes it assured me that I couldn't be...

    Jodie Hi Sandra,

    There's info here you can read thru on Allergies www.ei-resource.org/illness-information/environmental-illnesses/allergy-and-allergies/ and MCS www.ei-resource.org/illness-information/environmental-illnesses/multiple-chemical-sensitivity/

    Your doc will probably do some tests - patch tests, blood tests, prick tests. It's a long time since I had mine done so I'm not so up on current tests, but those should show whether you have 'classic' allergies, those are usually IGE mediated - your doc should be able to tell you if you have high IGE antibody count. Mine came up with nothing unusual there. I was also tested for Porphyria, Mastocytosis, & various endocrinology probs (thyroid, liver etc), all negative, so I put myself under the MCS heading. However antihistamines work on many of my symptoms & I now have a diagnosis of Mast Cell Activation Disorder, mainly based on 17 years of symptoms & tests ruling out everything else. Mast cells are the little b#ggers that explode releasing histamine and a lot of other nasties whether you have classic allergies or a Mast Cell disorder. So most ppl use a combination of avoidance of triggers, meds (antihistamines & mast cell stabilisers) sometimes diet as well (e.g. low histamine foods) to stay out of trouble. Note you can also have a combination of classic allergies + MCS or other stuff going on, it is not necessarily either/or. Good luck with the doc ! let's hope he's one of the sensible ones, but if not go find another..don't be fobbed off!
    2 weeks ago 1
  • Bell shared a photo in Supporting The Methylation Cycle

    My single nucleotide polymorphism (SNP) results that relate to methylation cycle dysfunction/blocks.
    Maff Was there another image with your SNP results Bell? This just seems to be a comparison of ancestry genotyping companies...
    2 weeks ago
  • Jodie replied to the topic 'Re-cleaning Carpet Via Hypo Allergenic Methods?' in the forum.

    Bumping this up as having to look again at carpet cleaning. This is a system I have not come across before but might be worth a try - it's a dry cleaning system involving tiny sponges. There's some...
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  • Jodie replied to the topic 'Carpeting with MCS' in the forum.

    Moving onto the living room - this carpeting just might be feasible. It's expensive but you don't need underlay even on a concrete floor, which cuts the cost, so it's probably about the same £'s as...
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  • Jodie
    3 weeks ago

    Hi folks, it seems some people are having trouble posting/ replying to posts - we are trying to sort this out .. please bear with us! Jodie

  • Jodie created a new topic ' Recommendations for Masks?' in the forum.

    I tried the I Can Breathe mask, apart from being comfortable I found it to be useless for more than one wear, as even your own breath makes it smelly after a couple of hours , and yes I brush, floss &...
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  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    LOL sorry Bruce, it was the first thing that came into my head :D

    A question which is puzzling me tho which you might be able to answer - What is the difference between MCAS and MCAD?

    I also...
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  • Bruce Hart is friends with Jodie

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