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  • Cath thanks user 'Jodie' in the forum message ' Looking for a doctor'.
  • Jodie replied to the topic 'Looking for a doctor' in the forum.

    Hi Cath

    These have been recommended in the past

    I haven't seen any of...

  • Cath created a new topic ' Looking for a doctor' in the forum.

    I have been suffering with worsening MCS symptoms over the last year. I am a cook, and spend a lot of time baking cakes. For around three years I inhaled pretty huge amounts of flour and icing...

  • NJ Safe Housing in the US
    12 hours 13 minutes ago

    I live in the north and cannot find a heating system that does not trigger severe MCS symptoms, I have tried radiant heating but both Pex and Onyx tubing affect me when heated. I am considering hot air with an air exchange. Has anyone had any good, or bad, results with this type or other heating systems? I feel like I just keep throwing money at this problem!

  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Anyone who wants to keep up with research on MCAD/S could check the research group on Facebook-

    Also this group is extremely busy,...

  • Maff mikeg_373
    2 days ago

    Hi Mike. I know you're interested in sulfur metabolism. If you use the Google search box (very top right) to search for keywords including sulfur/sulphur and sulfites/sulphites you will find a number of articles on how the two forms can affect the body, both negatively and positively. Additionally, I recommend Dr. Amy Yasko's work on variations in genes controlling enzymes like sulfite oxidase.

  • Maff replied to the topic 'Severe MCS symptoms after giving birth' in the forum.

    You're welcome Marie, sorry for taking a while to reply again.

    A lot of people seem to think MCS is permanent and I feel spreading this message can be very damaging as it takes away hope from people...

  • mikeg_373 is friends with Maff
  • Marie replied to the topic 'Severe MCS symptoms after giving birth' in the forum.

    Thank you for your comment Maff.
    You say you have recovered from MCS. I didnt think that was possible. Did you go from being reactive to chemicals, to completely symptom-free. Can you now do all the...

  • Maff cpafsn
    7 days ago

    Hi Aaron and welcome. It's great to meet others who despite suffering from fibromyalgia, ME/CFS and other multi-system illnesses are able to take a proactive approach and setup groups to support others in a similar situation. I try to do the same here with EiR despite having been diagnosed with ME/CFS aged 11/12 and then developed and overcome all sorts of related complications!

  • Jodie replied to the topic 'Wooden flooring with MCS' in the forum.

    Not yet no, in the middle of painting a small room ready to do tester wooden floor. White paint over original bright blue, 4th coat coming up :-/

  • Lilies32 replied to the topic 'Wooden flooring with MCS' in the forum.

    Have you had any fitted?
    What about vinyl flooring?

  • Lilies32 replied to the topic 'Doctor in London familiar with MCAD' in the forum.

    yes he is at Guys and St Thomas for NHS referrals.
    Privately there is also Dr Seneviratne at St Marys

  • Maff added a new comment in How I Healed Myself from Fibromyalgia
    1 week ago

    Hi All, I first want to reply to Julia (rather belated!) as I was introduced serendipitously to the same Buddhist mantra when I was at my lowest suffering from multiple chemical sensitivity (MCS), chronic fatigue syndrome (ME/CFS) and all manner of

  • Maff replied to the topic 'Meditation/Relaxation turns 100s of genes on & off' in the forum.

    Great post as usual Jodie! Ties in well with my own experience as I'd been meditating for 30 minutes twice daily for a couple of years before I recovered from MCS and I felt the difference in my...

  • Maff thanks user 'Sheila Powers' in the forum message ' Severe MCS symptoms after giving birth'.
  • Maff replied to the topic 'Severe MCS symptoms after giving birth' in the forum.

    Hi All,

    Obviously I can't comment through experience regarding pregnancy and menopause but I am certain there is a hormonal connection to multiple chemical sensitivity (MCS).

    I wanted to comment to...

  • Jodie created a new topic ' is WiFi making your child ill?' in the forum.

    "We are currently living in an environment estimated to contain more than 10 billion times more RF...

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