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  • Cath thanks user 'Jodie' in the forum message ' Air filters for MCS'.
  • Jodie replied to the topic 'Air filters for MCS' in the forum.

    Hi Cath, I'm not that familiar with air filters but I've heard bad things about Austin over the years. It would pay to do some research on air filters and how they work so you know what you're...
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  • Cath created a new topic ' Air filters for MCS' in the forum.

    Does anyone find using an air filter at home helpful? I've seen some mixed reviews about people's experiences with them, but I'm thinking that anything that helps to reduce my chemical load at home...
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  • Cath replied to the topic 'Looking for a doctor' in the forum.

    Thanks Maff. Dr Pouria sounds worth finding out more about. Dr Myhill isn't taking any new patients, or I would try her.
    Read More...

  • Cath replied to the topic 'Looking for a doctor' in the forum.

    Thanks Maff. Dr Pouria sounds worth finding out more about.
    Read More...

  • Jodie replied to the topic 'Medical Mysteries TV Documentary' in the forum.

    Good to know Maff :) seems they are scouting around, I put this up on the MCAD Facebook forum & one girl replied "I spoke to them last week, sent photos. They need to speak with my consultant first...
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  • Maff replied to the topic 'Looking for a doctor' in the forum.

    Hi Cath,

    Along with Dr. Myhill who has been my main go to doctor for 20 years, Dr. Pouria at The Burghwood Clinic in Surrey seems to come highly recommended by many. If you have the time you might...
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  • Cath replied to the topic 'Looking for a doctor' in the forum.

    Thanks.

    Has anyone seen Dr. Damien Downing and if so, what was their experience?
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  • Maff replied to the topic 'Medical Mysteries TV Documentary' in the forum.

    Most definitely! I should have mentioned that as I'll make sure anyone else who wants to take part is happy with what they're being asked to do and contracts are signed before filming as well.

    I'm in...
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  • Jodie replied to the topic 'Medical Mysteries TV Documentary' in the forum.

    I hope you're setting the T&Cs this time Maffles, & make them sign it in blood :side:
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  • Maff created a new topic ' Medical Mysteries TV Documentary' in the forum.

    Hi All,

    I've been contacted by a Tigress Productions here in the UK. They are making a 6 to 8 episode documentary series named 'Medical Mysteries' for Channel 5 about illnesses like those we all...
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  • Cath thanks user 'Jodie' in the forum message ' Looking for a doctor'.
  • Jodie replied to the topic 'Looking for a doctor' in the forum.

    Hi Cath

    These have been recommended in the past

    doctormyhill.co.uk/wiki/Main_Page

    breakspearmedical.com

    www.allergy-clinic.co.uk/about-dr-a-morris/

    I haven't seen any of...
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  • Cath created a new topic ' Looking for a doctor' in the forum.

    I have been suffering with worsening MCS symptoms over the last year. I am a cook, and spend a lot of time baking cakes. For around three years I inhaled pretty huge amounts of flour and icing...
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  • NJ Safe Housing in the US
    5 days ago

    I live in the north and cannot find a heating system that does not trigger severe MCS symptoms, I have tried radiant heating but both Pex and Onyx tubing affect me when heated. I am considering hot air with an air exchange. Has anyone had any good, or bad, results with this type or other heating systems? I feel like I just keep throwing money at this problem!

    Maff Hi NJ, being a Brit I can't say I'm an expert in US heating systems but an air exchange (which I assume is like a ducted air system?) seems risky given you'll be breathing in everything that comes through it. Perhaps with the right filters in place though...
    Are there any Americans from northern States who've found a suitable solution? I hope you solve the problem soon NJ without spending a fortune.
    5 days ago
  • Jodie replied to the topic 'Mast Cell Activation Disorder as cause of MCS' in the forum.

    Anyone who wants to keep up with research on MCAD/S could check the research group on Facebook-

    www.facebook.com/groups/1489732487968980/

    Also this group is extremely busy,...
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  • Maff mikeg_373
    7 days ago

    Hi Mike. I know you're interested in sulfur metabolism. If you use the Google search box (very top right) to search for keywords including sulfur/sulphur and sulfites/sulphites you will find a number of articles on how the two forms can affect the body, both negatively and positively. Additionally, I recommend Dr. Amy Yasko's work on variations in genes controlling enzymes like sulfite oxidase.

  • Maff replied to the topic 'Severe MCS symptoms after giving birth' in the forum.

    You're welcome Marie, sorry for taking a while to reply again.

    A lot of people seem to think MCS is permanent and I feel spreading this message can be very damaging as it takes away hope from people...
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  • mikeg_373 is friends with Maff
  • Marie replied to the topic 'Severe MCS symptoms after giving birth' in the forum.

    Thank you for your comment Maff.
    You say you have recovered from MCS. I didnt think that was possible. Did you go from being reactive to chemicals, to completely symptom-free. Can you now do all the...
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  • Maff cpafsn
    2 weeks ago

    Hi Aaron and welcome. It's great to meet others who despite suffering from fibromyalgia, ME/CFS and other multi-system illnesses are able to take a proactive approach and setup groups to support others in a similar situation. I try to do the same here with EiR despite having been diagnosed with ME/CFS aged 11/12 and then developed and overcome all sorts of related complications!

  • Jodie replied to the topic 'Wooden flooring with MCS' in the forum.

    Not yet no, in the middle of painting a small room ready to do tester wooden floor. White paint over original bright blue, 4th coat coming up :-/
    Read More...

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