Causes and Treatment of Fibromyalgia Print E-mail

 

by Dr. Rodger Murphree
www.treatingandbeating.com

 

 

What Causes Fibromyalgia?

 

Research suggests fibromyalgia may be the result of:

  • Trauma, especially whiplash injuries.
  • Hypothalamus-pituitary-adrenal axis (HPA) dysfunction.
  • Emotional/physical/mental stress.
  • Low thyroid function.
  • Low serotonin states.
  • Adrenal dysfunction.
  • Chronic viral, mycoplasma, and or bacterial infections.
  • Endocrine disorders.
  • Sleep disorders.

The truth is we really don’t know for sure what causes fibromyalgia.

 

 

What We Do Know

 

Fibromyalgia is now thought to arise from a miscommunication between the nerve impulses of the central nervous system. The neurons, which supply the brain, become more excitable, exaggerating the pain sensation. This over-amplification of pain is referred to as "central sensitization." Fibromyalgia patients have a reduction in their pain threshold (allodynia), an increased response to painful stimuli (hyperalgesia) and an increase in the duration of pain after nociceptor stimulation (persistent pain). Individuals with fibromyalgia syndrome have low levels of serotonin, a 4-fold increase in nerve growth factor, and elevated levels of substance P. Nerve growth factor (NGF) is a member of a family of peptides known as the neurotrophins. The exposure of nociceptive sensory neurons to NGF leads to up-regulation of substance P in sensory neurons. Substance P, the neuropeptide in spinal fluid, is a neurotransmitter that is released when axons are stimulated. Increased levels of substance P increase the sensitivity of nerves to pain or heighten awareness of pain. Although it’s not fully understood, fibromyalgia patients have an imbalance of the hypothalamus-pituitary-adrenal (HPA) axis. This imbalance creates hormonal inconsistencies, which disrupt the body’s ability to maintain homeostasis.

 

Many of the most common fibromyalgia symptoms including widespread muscle pain, fatigue, poor sleep, gastrointestinal problems, and depression regularly occur in people with various neuroendocrine disorders, including those manifested by HPA dysfunction. Researchers believe suppression of the HPA (quite likely from chronic stress), which results in lowering human growth hormone (HGH), dehydroepiandrosterone (DHEA), cortisol, and other hormones, is aggravated by the chronic pain and poor sleep associated with fibromyalgia.

 

 

Hypothalamus-Pituitary-Adrenal Axis (HPA) Dysfunction

 

The main function of the hypothalamus is homeostasis, or maintaining the body's status quo. The hypothalamus receives and transmits messages from the nervous system and hormonally through the circulatory system. Because of its broad sphere of influence, the hypothalamus could be considered the body’s master computer. The hypothalamus receives continuous input about the state of the body and must be able to initiate compensatory changes if anything drifts out of line.

 

The Hypothalamus regulates such bodily functions as:

  1. Blood pressure - is often low in those with fibromyalgia.
  2. Digestion - bloating, gas, indigestion, and reflux are common in FMS patients.
  3. Circadian rhythms (sleep/wake cycle) - which is consistently disrupted in FMS.
  4. Sex drive - loss of libido is a common complaint for FMS patients.
  5. Body temperature - is often low in FMS patients.
  6. Balance and coordination- FMS patients have balance and coordination problems.
  7. Heart rate - mitral valve prolapse (MVP) and heart arrhythmias are a common finding in FMS patients.
  8. Sweating - it’s not unusual for FMS patients to experience excessive sweating.
  9. Adrenal hormones - are consistently low in FMS patients.
  10. Thyroid hormones and metabolism-hypothyroid is a common finding in FMS patients.

Recent studies show that over 43% of FMS patients have low thyroid function. It's estimated that those with FMS are 10 to 250,000 times more likely to suffer from thyroid dysfunction.

 

 

A Vicious Cycle

  1. Chronic stress disrupts HPA homeostasis, leading to allodynia.
  2. Chronic pain disrupts the circadian rhythm.
  3. Dysfunction in the circadian rhythm results in poor sleep.
  4. Poor sleep reduces growth hormone production, leading to poor repair of damaged muscle fibers, poor memory, fatigue, suppressed immune function, and more pain.
  5. Increased pain further disrupts sleep and leads to depletion of stress coping chemicals including serotonin.
  6. A reduction in serotonin causes an increase in the neurotransmitter, substance P. Substance P enhances pain receptors, creating even more pain.
  7. Poor sleep and ongoing stress lead to fatigue, mood disorders, IBS and may cause thyroid dysfunction.
  8. Chronic stress contributes to adrenal fatigue, decreased DHEA, and lowered resistance to stress. Decreased stress coping abilities then lead to lowered immune function.
  9. Lowered blood volume from adrenal dysfunction (and resultant hypo-tension) leads to further fatigue.

 

 

Stress and Fibromyalgia

 

A survey by The Fibromyalgia Network reports that 62% of their respondents list physical or emotional stress as the initiating factor in their acquiring fibromyalgia. I believe chronic stress is the underlying catalyst for the onset of HPA dysfunction and fibromyalgia. Several studies have demonstrated how chronic stress undermines the normal hypothalamic-pituitary-adrenal axis (HPA) function.

 

 

The Importance of a Good Night’s Sleep

 

Studies have shown that individuals who were prevented from going into deep sleep for a period of a week develop the same symptoms associated with FMS and CFS; diffuse pain, fatigue, depression, anxiety, irritability, stomach disturbances, and headaches. Sleep deprivation markedly increases inflammatory cytokines (pain causing chemicals)—by a whopping 40%.

 

Therefore, restoring deep restorative sleep is one of the most important steps in beating fibromyalgia, if not the most important step of all.

 

 

Serotonin

 

Serotonin helps regulate sleep, digestion, pain, mood, and mental clarity. Serotonin helps:

  1. Raise the pain threshold (have less pain), by blocking substance P.
  2. You fall asleep and stay asleep through the night.
  3. Regulate moods. “The happy hormone” reduces anxiety and reduces depression.
  4. Reduce sugar cravings and over-eating.
  5. Increase a person’s mental abilities.
  6. Regulate normal gut motility (transportation of food-stuff) and reverse irritable bowel syndrome (IBS).

Surveys have shown that as many as 73% of FMS patients have irritable bowel syndrome. You have more serotonin receptors in your intestinal tract than you do in your brain. Emotionally stressful situations cause the body to release adrenaline, cortisol and insulin. These stress hormones stimulate the brain to secrete serotonin. Long term stress and poor dietary habits can deplete the body’s serotonin stores.

 

 

Tryptophan, 5 Hydroxytryptophan (5HTP) and Serotonin

 

Tryptophan is one of eight essential amino acids. Tryptophan is absorbed from the gut into the bloodstream and then dispersed throughout the body. Ninety percent of tryptophan is used for protein synthesis, one percent is converted to serotonin, and the balance is used to make niacin. In the formation of serotonin, tryptophan is hydroxylated to 5-hydroxy-tryptophan (5HTP) by tryptophan hydroxylase. 5HTP is converted to serotonin by the decarboxylase enzyme, which is vitamin B6 dependent. Tryptophan is transported across the blood-brain barrier via a transport molecule, which also carries leucine, isoleucine, and valine, and prefers leucine. However, 5HTP easily crosses the blood-brain barrier and does not utilize this transport mechanism; thus, it does not compete for passage through the blood-brain barrier with these amino acids. And, unlike tryptophan, which is made from bacterial fermentation (and hence subject to contamination), 5HTP is derived from the West African plant Grifonia simplicifolia. In the body, 5HTP is converted directly in to serotonin. It is not broken down by tryptophan pyrrolase, and does not have to compete for transport across the blood-brain barrier. Individuals with fibromyalgia have low levels of tryptophan, serotonin, and 5-HTP. Studies show that fibromyalgia patients have higher levels of metabolites in the kynurenine pathway, which diverts tryptophan away from serotonin production.

 

 

Selective Serotonin Reuptake Inhibitor (SSRI) Medications

 

Prescription antidepressants can be helpful. However, antidepressant drugs have potential side effects including anxiety, depression, fatigue, decreased sex drive, and disruption of normal circadian rhythms. SSRI’s are supposed to help a patient hang onto and use their naturally occurring stores of the brain chemical serotonin. It’s like using a gasoline additive to help increase the efficiency of your cars fuel. Most of the patients I see with fibromyalgia are running on fumes and a gasoline additive won’t help. Please keep in mind that several studies show that between 19-70% of those taking antidepressant medications do just as well by taking a placebo or sugar pill. I recommend my patients boost their serotonin levels by taking 5HTP.

 

 

5HTP and Depression

 

Studies (including double-blind) comparing SSRI and tricyclic antidepressants to 5HTP have consistently shown that 5HTP is as good if not better than prescription medications in treating mood disorders. Furthermore, 5HTP doesn’t have some of the more troubling side effects associated with prescription medications.

 

 

5HTP and Sleep

 

5HTP has been shown to be beneficial in treating insomnia, especially in improving sleep quality by increasing REM sleep and increasing the body’s production of melatonin by 200%.

 

 

5HTP and Fibromyalgia

Double-blind, placebo-controlled trials have shown that patients with FMS were able to see the following benefits from taking 5HTP:

  • decreased pain.
  • improved sleep.
  • less tender points.
  • less morning stiffness.
  • less anxiety.
  • improved moods in general, including in those with clinical depression.
  • increased energy.

 

 

Irritable Bowel Syndrome, 5HTP, and Serotonin

 

There are more serotonin receptors in the intestinal tract than there are in the brain. This is one reason people get butterflies in their stomach when they get nervous. The brain and gut are connected through the neuroreceptors 5-hydroxytriptamine-3 (5-HT3) and 5-hydroxytriptamine-4 (5-HT4). These serotonin receptors regulate the perception of visceral pain and the gastrointestinal (GI) motility. Serotonin controls how fast or how slow food moves through the intestinal tract. It’s common for the symptoms associated with IBS, diarrhea and constipation, to disappear within 1–2 weeks once serotonin levels are normalized with 5HTP replacement therapy.

 

 

Restoring Normal Adrenal Function

 

Adrenal Fatigue

 

The adrenals are a pair of pea-sized glands located atop each kidney. The adrenal gland consists of two sections: the medulla (inner portion) and the cortex (outer portion). The adrenal glands release certain hormones that allow us to be able to deal with immediate and long-term stress. These glands, and the hormones they release, allow us to be resilient to day-to-day stress.

 

Under-active adrenal glands are evident in about two-thirds of CFS patients. The majority of patients I see for chronic illnesses, including FMS and CFS, are suffering from it. They have literally burned their stress-coping organ out. Amid years of poor sleep, unrelenting fatigue, chronic pain, excessive stimulants, poor diet, and relying on a plethora of prescription medications, the adrenal glands and the hormones they release have been used up. Once adrenal exhaustion sets in, it’s not long before the body begins to break down. Getting “stressed out” and staying “stressed out” is the beginning of chronic illness for most, if not all, of the FMS and CFS patients I evaluate.

 

An altered or dysfunctional cortisol control system may be THE cause of FMS/CFS.

 

We do know that adrenal fatigue is known to cause many of the same problems associated with CFS and FMS:

  • hypoglycemia (low blood sugar)
  • hypo-tension(low blood pressure)
  • neural mediated hypo-tension (become dizzy when stand up)
  • fatigue
  • decreased mental acuity
  • low body temperature (a sign of low thyroid function)
  • decreased metabolism
  • a compromised immune system
  • decreased sense of well-being (depression)
  • weight loss
  • hyper-pigmentation (excess skin color changes)
  • loss of scalp hair
  • excess facial or body hair
  • vitiligo (changes in skin color)
  • auricular calcification (little calcium deposits in the ear lobe)
  • GI disturbances
  • nausea
  • vomiting
  • constipation
  • abdominal pain
  • diarrhea
  • crave salty foods
  • muscle or joint pains

Individuals with FMS and CFS who suffer from adrenal fatigue (99%) will find that their stress-coping abilities are shot. They don’t handle stress very well. They will try to avoid stressful situations. Stress will make their symptoms worse and cause them to have flare-ups. If they have a day when they feel good they may over do it (clean the house, paint the playroom, grocery shopping, etc.). Then, they usually crash the next day.

 

Therefore, restoring proper adrenal function is a crucial step in peeling away the layers of dysfunction associated with FMS and CFS. I believe that adrenal fatigue is a major contributory factor to the symptoms associated with FMS and CFS.

 

 

The Cortex

 

The adrenal cortex is primarily associated with response to chronic stress (infections, prolonged exertion, prolonged mental, emotional, chemical, or physical stress). The hormones of the cortex are steroids. The main steroid is cortisol. Chronic over secretion of cortisol leads to adrenal exhaustion, which accelerates the downward spiral towards chronic poor health. Once in adrenal exhaustion your body can’t release enough cortisol to keep up with the daily demands. Eventually you become deficient in cortisol and then DHEA.

 

Chronic headaches, nausea, allergies, nagging injuries, fatigue, dizziness, hypo-tension, low body temperature, depression, low sex drive, chronic infections, and cold hands and feet are just some of the symptoms that occur with adrenal cortex exhaustion.

 

 

Not Enough DHEA

 

The adrenal cortex, when healthy, produces adequate levels of dehydroepiandrosterone (DHEA). DHEA boosts:

  • energy
  • sex drive
  • resistance to stress
  • self-defense mechanisms (immune system)
  • general well-being, and helps to raise:
  • cortisol levels
  • overall adrenal function
  • mood
  • cellular energy
  • mental acuity
  • muscle strength
  • stamina

 

 

DHEA and immune function

 

The decrease in DHEA levels correlates with the general decline of cell-mediated immunity and increased incidence of cancer. DHEA protects the thymus gland, a major player in immune function. My fibromyalgia patient's usually take a special adrenal cortex glandular supplement

 

 

DHEA

 

is notoriously low in FMS and CFS patients. Chronic stress initially causes the adrenals to release extra cortisol. Continuous stress raises cortisol to abnormally high levels. Then, the adrenal glands get to where they can’t keep up with the demand for more cortisol. As the cortisol levels continue to become depleted from on-going stress, the body attempts to counter this by releasing more DHEA. Eventually they can’t produce enough cortisol or DHEA. Aging makes holding on to DHEA even tougher. Even in healthy individuals, DHEA levels begin to drop after the age of 30. By age 70, they are at about 20% of their peak levels.

 

 

Stress and DHEA

 

DHEA helps prevent the destruction of tryptophan (5HTP), which increases the production of serotonin. This helps provide added protection from chronic stress. Studies continue to show low DHEA to be a biological indicator of stress, aging, and age-related diseases including neurosis, depression, peptic ulcer, IBS, and others.

 

 

Digestive Enzymes

 

Most individuals with fibromyalgia will complain of bloating, gas, and indigestion. Many of these folks will be placed on acid blocking prescription drugs for heartburn or reflux. However, these drugs can cause nutritional deficiencies since they prevent the absorption of certain essential vitamins and minerals. This may lead to symptoms of fatigue, increased pain, anxiety, and depression.

 

Most digestion and absorption takes place in the small intestine and is regulated by pancreatic enzymes and bile. The pancreas aids in digestion by releasing proteolytic enzymes, which help break down proteins into amino acids. It’s these amino acids which make the brain chemicals including serotonin, dopamine, and epinephrine.

 

These enzymes break down food-stuff and allow the smaller molecules and nutrients to be absorbed into the bloodstream. The enzymes may become deficient for a variety of reasons, including advancing age, excess sugar, deficient essential fatty acids, excessive trans-fatty acids, and overeating. Eating processed food also depletes normal pancreatic enzymes.

 

I also recommend that all of my fibromyalgia patients take a digestive enzyme with each meal.

 

 

Vitamin and Mineral Supplements

 

Dr. Janet Travell, White House physician for Presidents John F. Kennedy and Lyndon B. Johnson, and Professor Emeritus of Internal Medicine at George Washington University cowrote Myofascial Pain and Dysfunction: The Trigger Point Manual, which is acknowledged as the authoritative work on muscle pain.

 

In one chapter alone, Dr. Travell and co-author, Dr. David Simons, referenced 317 studies showing that problems such as hormonal, vitamin, and mineral deficiencies can contribute to muscle pain and soreness.

 

There are numerous studies which show that individuals with fibromyalgia benefit from taking certain vitamins, minerals and fatty acids. The mineral magnesium, which acts as a natural muscle relaxant, is especially helpful in relieving many of the symptoms associated with fibromyalgia. Malic acid, derived from apples, has been shown to reduce the chronic pain associated with fibromyalgia. Vitamins B6, B3, and B2 are needed to make the brain chemicals, including serotonin. Essential fatty acids (EFAs) help reduce inflammation, boost mood, and optimize the immune system. I’ve developed a special vitamin/mineral formula for my fibromyalgia patients. I have a special "jumpstart" package which contains the Fibromyalgia/Chronic Fatigue Formula, the Adrenal Cortex Formula, the Digestive Enzymes, and the 5HTP formula. These are the nutritional supplements that I recommend for 98% of the patients I see with FMS and CFS, all in one money saving package.

 

For more information about my protocols please read my books, Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome, and The Patient’s Self-Help Manual for Beating Fibromyalgia and CFS. I have a SUPER JUMPSTART PACKAGE that includes everything in the regular jumpstart package (FMS/CFS formula, Adrenal Cortex Formula, Digestive Enzymes, and 5HTP, PLUS both of the books I just mentioned containing over 500 pages of my protocols and information on treating and beating FMS and CFS - and, for a short time only, I'm adding my one hour cassette tape for free.

 

 

Traditional Drug Therapy for Fibromyalgia

 

Unfortunately the traditional medical treatments for fibromyalgia have not been very effective. The traditional drugs of choice including , NSAIDS, antidepressants, muscle relaxants, tranquilizers, and pain medications may provide short-term relief, yet their results are often fleeting and their side-effects may cause more symptoms than they help. Conventional medical treatments for FMS and CFS is a controversial topic. Consider the following statements from The American College of Rheumatology:

 

Conventional medical therapies are ineffective and no better than a sugar pill for the treatment of Fibromyalgia.

 

“On tricyclic medications Amitriptyline (Elavil): Four controlled trials have evaluated the efficacy of Amitriptyline in Fibromyalgia… the longest trial showed NO benefit when compared to placebo. Furthermore, the overall degree of benefit was found to be relatively small in relevant outcomes such as improvement in pain, fatigue, and sleep.”

 

Of note, 95% of Amitriptyline (Elavil) treated patients experienced side-effects.

 

“Furthermore, use of anti-anxiety medications Benzodiazepines (Klonopin, Xanax etc.), corticosteroids (medrol dose packs, prednisone, etc.), and nonsteroidal anti-inflammatory agents (Mobic, Celebrex, Vioxx, Bextra, etc.), and pain medications have been shown to be ineffective and should be generally avoided.”

 

“And our best therapies Amitriptyline (Elavil) and Cyclobenzaprine (Flexeril) could not be distinguished from placebo after three months of therapy. Long-term, follow-up observations indicated that clinical findings for patients with FMS did not change appreciably after 15 years.”

 

WARNING - Consult your doctor before discontinuing any medications.

 

 

Nonsteroidal Anti-inflammatory Drugs (NSAIDs) –Vioxx, Celebrex, Bextra, ETC.

 

NSAIDs can be helpful, especially when used for inflammation that comes from traumatic injuries (sprains, strains, accidents, etc.). They can be effective in relieving pain and inflammation associated with chronic pain syndromes, including all forms of arthritis and for some who suffer from FMS. However, long term use of these medications can cause a host of unwanted side effects. None of these medications actually correct the cause of pain. In fact, they can accelerate joint destruction and cause intestinal permeability (which leads to more inflammation). Nonsteroidal anti-inflammatories (NSAIDs) such as Bextra, Mobic, Ibuprofen, Daypro, Naprosyn, Celebrex, and Vioxx, can cause intestinal permeability. They cover up the symptoms but do not address the cause, and they can actually cause further joint destruction. Medication monitoring services from Millennium Labs can predict how patients react to medication on a case by case basis, helping to ensure the patient receives the proper care they need.Internal memos show disagreement within the F.D.A. over a study by one of its own scientists, Dr. David Graham, who estimated Vioxx had been associated with more than 27,000 heart attacks or deaths linked to cardiac problems.

 

 

NSAIDs causes 10,000-20,000 Deaths a Year. A person taking NSAIDS is seven times more likely to be hospitalized for gastrointestinal adverse effects. The FDA estimates that 200,000 cases of gastric bleeding occur annually and that this leads to 10,000 to 20,000 deaths each year.

 

 

High Blood Pressure

 

NSAIDs can cause high blood pressure. In one study, 41% of those who had recently started on medication to lower their blood pressure were also taking NSAIDs. NSAIDs more than double a person’s risk of developing high blood pressure.

 

 

Sleep Medications - Ambien, Elavil, Flexeril, Trazadone, Restoril, Klonopin, Xanax, Ativan, and Sonata

 

Ambien

 

(zolpidem) is a short-acting drug that usually lasts for four–six hours. If a patient takes a half dose before bed, then he can take an additional half dose if needed four–six hours later. Even though the literature on Ambien suggests patients don't build up a tolerance, many do. Some patient's do well on Ambien; some build up a tolerance over a period of time needing higher and higher doses until the medicine no longer works. Does promote deep restorative sleep.

 

Side Effects: Short term memory loss, fuzzy thinking, sedation or next day hang over, mood disorders (anxiety and depression), flu-like symptoms, muscle aches, and in-coordination. This drug, like most drugs, is processed by the liver, so those with sluggish liver function should use this medication with caution. Most common side effects include dizziness and diarrhea. Some patients complain of loss of coordination or concentration. Ambien has caused amnesia (short-term memory loss), but this happens mostly at doses exceeding 10 mg. Patients are cautioned against abruptly stopping the medicine, since withdrawal symptoms commonly occur. Ambien may cause fatigue, headache, anxiety, difficulty sleeping, and memory loss. Long-term use can result in back pain, flu-like symptoms, depression, constipation, upset stomach, joint pain, URI, sore throat, urinary infection, and heart palpitations.

 

Trazadone

 

(desyrel) is an antidepressant that increases a person’s ability to hang on to serotonin. It reduces anxiety, and promotes deep sleep. I’ve found this drug to be quite helpful when 5HTP or melatonin doesn’t work. It can cause early morning hangover. Does promote deep restorative sleep.

 

Side Effects: Common side effects include upset stomach, constipation, bad taste in the mouth, heartburn, diarrhea, rash, rapid heartbeat, mental confusion, hostility, swelling in the arms or legs, dizziness, nightmares, drowsiness, and fatigue.

 

Elavil

 

(amitriptyline) is an antidepressant that has become synonymous with treating FMS. It was one of the first drugs to be studied in the treatment of FMS. It can be very helpful in reducing the pain associated with FMS, but it has several potential side effects. It is also prone to lose its effectiveness over time. It does promote deep restorative sleep.

 

Side Effects: Elavil may cause weight gain, early morning hangover, neurally mediated hypo-tension (low blood pressure), depression, poor sleep, anxiety, and irregular heartbeat.

 

Flexeril

 

(cyclobenzaprine) is a muscle relaxant chemically similar to the antidepressant Elavil. It is sometimes used as a sleep aid. Unlike many of the prescription medications for sleep, Flexeril does allow the patient to go into deep stage four (restorative) sleep. It is quite sedating. It does promote deep restorative sleep.

 

Side Effects: Side effects, including gastritis and a feeling of being hung-over or “out of touch,” prevent most patients from remaining on this drug for very long.

 

Baclofen

 

(lioresal) is a muscle relaxant similar to the natural neurotransmitter GABA. Side effects include fatigue, drowsiness, low blood pressure, weakness, dizziness, nausea, headache, depression, weight gain, and insomnia. Baclofen does not promote deep, restorative sleep.

 

Sonata

 

(zaleplon) is designed to last for only four hours; this helps prevent morning hangover. I’ve not found it to be very effective, though, since most of my patients have trouble sleeping through the night, not just with getting to sleep.

 

Zanaflex

 

(tizanidine) is a muscle relaxant that has gained some popularity among physicians treating FMS. It is sedating and, like other muscle relaxers, can help with insomnia. But it doesn’t produce deep, restorative (delta-wave) sleep. It doesn’t help increase serotonin levels; it only tranquilizes the nervous system. For this reason alone it should be avoided.

 

Side Effects: Zanaflex is associated with numerous side-effects, including liver failure (at least three individuals have died from taking this medication), asthenia (weakness), somnolence (prolonged drowsiness or a trance-like condition that may continue for a number of days), dizziness, UTI (urinary tract infection), constipation, liver injury, elevated liver enzymes, vomiting, speech disorder, blurred vision, nervousness, hypo-tension, psychosis/hallucinations, bradycardia (slow heart action), pharyngitis (sore throat), and dykiensia (defect in voluntary movements). This stuff is poison!

 

 

Anti-anxiety medication or Benzodiazepines - Xanax, Klonopin, Ativan, Restoril, Busbar, Tranxene, Serax, Librium, Tegretol, Valium, Trileptal, Seraquel, Risperdal, and Symbax

 

These medications are usually used as anti-anxiety medication. They’re addictive and patients build up a tolerance so that the drug eventually loses it's effectiveness as a sleep aid.

 

These medications are loaded with side effects that cause further health problems (depression, fatigue, memory loss, "fibro fog" etc.) yet don’t promote deep, restorative sleep. Side effects associated with these medications include sleep disturbances (poor sleep), seizures, neuropsychiatric disturbances (mania, depression, suicide, etc.) tinnitus (ringing in the ears), transient memory loss (amnesia), dizziness, agitation (anxiety), disorientation, hypotension (low blood pressure), nausea, edema (fluid retention), ataxia (muscular in-coordination), tremors, sexual dysfunction (decreased desire and performance), asthenia (weakness), somnolence (prolonged drowsiness or a trance-like condition that may continue for a number of days), and headaches.

 

 

Neurontin, Gabitril and Lyrica

 

GABA inhibitors such as Gabitril (tiagabine) and Neurontin (gabapentin) are anticonvulsant medications originally used to control seizures. They are now being used to block nerve-related pain (neuralgia) including pain caused by herpes zoster. These medications are also being prescribed for chronic headaches (with some success). I’ve not found them to be helpful for the diffuse extremity pains associated with FMS. They don’t promote deep, restorative sleep and can cause many of the same symptoms associated with CFS and FMS, including fatigue, muscle aches, poor mental clarity (“fibro fog”), and mood disorders. Most patients can wean off these medications with no problems.

 

Side-Effects: There are several side effects associated with their use, including somnolence (prolonged drowsiness or a trance-like condition that may continue for a number of days), dizziness, weakness, fatigue, double vision, edema (fluid retention), ataxia (muscular in-coordination), thought disorder, possible long-term ophthalmic problems (abnormal eyeball movements and disorders), tremors, weight gain, back pain, constipation, muscle aches, memory loss, asthenia (weakness), depression, abnormal thinking, itching, involuntary muscle twitching, serious rash, and runny nose.

 

Don’t these side-effects sound like some of the symptoms associated with FMS and CFS?

 

 

Topamax

 

(topiramate) is used primarily for adjunctive therapy tonoclonic seizures. It is also used for anxiety disorders. Side Effects: The side effects associated with this drug, especially the fatigue and low blood pressure, prevent patients from having any extra energy. Note: this exert from a letter from the manufacturers of Topamax (Ortho-McNeil Pharmaceutical, Inc.) to doctors: “Topamax: drug used to control epilepsy, off-label drug for anxiety or insomnia—may cause serious eye damage and/or blindness. As of August 17, 2001 there have been 23 reported cases: 22 in adults and one in pediatric patients. It is generally recognized that post-marketing data are subject to substantial under reporting.”

 

 

Beta Blockers - Inderal, Lorpressor, Tenormin, Torprol, Etc.

 

Beta blockers, such as Inderal (propanol), Lorpressor (metoprlol), Tenormin (atenolol), and Torprol (metoprolol) are used for long-term management of angina (chest pain), mitral valve prolapse (MVP), heart arrhythmia (irregular heart beats), and hypertension (high blood pressure). Beta-blockers slow the heart rate, which reduces cardiac output. This leads to low blood pressure and fatigue. The brain and muscles aren’t getting enough blood and oxygen. This can lead to fuzzy thinking, poor memory, depression, anxiety, and physical fatigue.

 

Side Effects: According to Mark Houston, MD, associate clinical professor of medicine at Vanderbilt School of Medicine, side effects associated with beta-blockers include congestive heart failure (CHF), reduced cardiac output, fatigue, heart block, dizziness, depression, bradycardia (decreased heart beat and function), cold extremities, parathesia (a feeling of “pins and needles”), dyspnea (shortness of breath), drowsiness, lethargy, insomnia, headaches, poor memory, nausea, diarrhea, constipation, colitis, wheezing, bronchospasm, Raynaud’s Syndrome (burning, tingling, pain, numbness, or poor circulation in the hands and feet), claudication, hyperkalemia (muscle cramps), muscle fatigue, lowered libido, impotence, postural hypotension, raised triglycerides, lowered HDL, raised LDL, and hyperglycemia. Dr. Houston recommends Hawthorne berry as a natural beta-blocker alternative. Hawthorne berry is an ACE inhibitor; it works by inhibiting (blocking) the angiotensin-converting enzyme. This enzyme is what causes the constriction of arteries (raises blood pressure and heart contraction/rate). Recommended dose of Hawthorne berry is 160–900 mg. of standardized extract daily.

 

I have found that most people can wean off beta-blockers and other high blood-pressure medications by increasing their omega 3 (fish oil 6-9 grams ) and magnesium (700mg a day or up to bowel tolerance). Some individuals will also need to take timed release niacin (B3) at rather high doses. More about treating high blood pressure and mitral valve prolapse here.

 

 

Stimulants - Adderall, Concerta, Cylert, Etc

 

Stimulants such as Adderall (amphetamine), Concerta (methylphenidate), Cylert (pemoline), Dexedrine (dextroamphetamine sulfate), Focalin (dexmethylphenidate HCL), Metadate (methylphenidate), and Ritalin (methylphenidate) are use to increase adrenalin. They can be very helpful in increasing a person’s energy. But you may remember the saying “speed kills.” With the exception of Provigil, these medications are nothing more than various forms of amphetamines (“speed”). These drugs are incredibly hard on the adrenal glands (stress coping glands). Long-term use can cause adrenal fatigue or burnout at least and full blown Addison’s Disease (adrenal failure) at worst. The narcolepsy drug Provigil is being recommend for the fatigue associated with FMS and CFS. This medication is designed to keep a person from going to sleep. Yes, it can help wake you up in the morning and make you more alert. However, the reason you’re tired is because you’re not going into deep restorative sleep each night. However, this medication will interfere with your normal circadian rhythm (sleep wake cycle). The worse thing you can do is take a medication that interferes with your circadian rhythm. Anything that may disrupt your ability to go into deep sleep each night, should be avoided.

 

Side Effects: Side effects include: insomnia (big problem), Tourette’s syndrome (movement disorder consisting of grimaces, ticks, and involuntary outbursts), nervousness, unstable mood (anxiety, mania, depression, irritability, aggression, etc) tachycardia (rapid heartbeat), hypertension (high blood pressure), tics (abnormal muscle movements), psychosis (abnormal behavior), headaches, seizures, visual disturbances, anorexia (unwanted weight loss), aplastic anemia (arrested development of bone marrow), liver dysfunction, and blood dyscrasias (disease).

 

 

Antidepressants Prozac, Zoloft, Celexa, Paxil, Etc.

 

Selective Serotonin Re-Uptake Inhibitors (SSRIs). SSRIs work by increasing the brain’s use of the neurotransmitter serotonin. Serotonin deficiency is linked to depression, lowered pain tolerance, poor sleep, and mental fatigue. All SSRIs are partially or wholly broken down in the liver. This can create liver dysfunction in some patients, so patients with a sluggish liver should be cautious in taking these medications.

 

Side Effects: Common side effects include headache, muscle pain, chest pain, anxiety, nervousness, sleeplessness, drowsiness, weakness, changes in sex drive, tremors, dry mouth, irritated stomach, loss of appetite, dizziness, nausea, rash, itching, weight gain, diarrhea, impotence, hair loss, dry skin, chest pain, bronchitis, abnormal heart beat, twitching, anemia, low blood sugar, and low thyroid.

 

Examples of SSRIs include Zoloft (sertraline), Paxil (paroxetine HCL), Celexa (citalopram), Prozac (fluoxetine), Luvox (fluvoxamine), etc.

 

 

Other Side Effects Noted for Antidepressants

 

Harvard Medical School's Dr. Joseph Glenmullen recently reported on the many dreadful side effects associated with conventional anti-depressant medications. These include neurological disorders, sexual dysfunction (in up to 60% of users), debilitating withdrawal symptoms (including hallucinations, electric shock–like sensations, dizziness, nausea, and anxiety), and decreased effectiveness in about 35% of long-term users.

 

 

Tricyclic Antidepressants Elavil, Pamelor, Doxepin, Etc

 

Tricyclic antidepressants block the hormones serotonin and norepinephrine. This produces a sedative effect. They also reduce the effects of the hormone acetylcholine. Like other antidepressant medications, these drugs are processed by the liver and can cause liver toxicity.

 

Side Effects: Common side effects include sedation, confusion, blurred vision, muscle spasms or tremors, dry mouth, convulsions, constipation, difficulty in urinating, and sensitivity to light. Examples of tricyclic antidepressants include Pamelor (nortriptyline) and Elavil (amitriptyline). Elavil is an antidepressant now synonymous with treating FMS. It was one of the first drugs to be studied in the treatment of FMS. It can be very helpful in reducing pain, but it has several potential unwanted side effects: weight gain, early morning hangover, neurally mediated hypotension (low blood pressure), and irregular heartbeat.

 

 

Prescription Medications Offer Little Hope

 

A study conducted by the Mayo Foundation for Medical Education and Research demonstrates the need for FMS and CFS treatment beyond drug therapy. Thirty-nine patients with FMS were interviewed about their symptoms. Twenty-nine were interviewed again 10 years later. Of these 29 (mean age 55 at second interview), all had persistence of the same FMS symptoms. Moderate to severe pain or stiffness was reported in 55% of patients, moderate to a great deal of sleep difficulty was noted in 48%, and moderate to extreme fatigue was noted in 59%. These symptoms showed little change from earlier surveys. The surprising finding was that 79% of the patients were still taking medications to control symptoms. We can conclude that the medications weren’t making a significant impact.

 

I believe that an integrative approach which combines the judicious use of prescription drugs along with nutritional therapy offers the best hope for beating fibromyalgia syndrome.

 

 

 

 

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  • Guest - paula m h c

    This was a very interesting write up send my a fibro/dog loving friend of mine. It was nice finding out that a lot of my medical issues are related to my fibro and not in my head. My biggest suggestion to you all is to KEEP MOVING! I am allergic to anti-inflammatorilory so there for I am kind of screwed for pain relief. SO I just keep pushing along and the move active I can stay the better. A nature anti-inflammatory that helps is Tart Cherry juice. I buy a concentrate. Kings Orchards brand. You can take a few table spoons straight or make a drink with it.Thanks and good luck to all.

    Like 0 Short URL:
  • Guest - Sevvysgirl

    I have been ill for nearly 30 years now (started when 17/18 - I'm now 48) with a complicated illness that has mystified both conventional & alternative doctors alike. The most recent 'label' they've slapped on me (&, as an 'umbrella' title, seems to cover most things) is 'fibromyalgia'. (In the past I've been told ME, CFS etc. - all similar really.) However, the main & most distressing symptom is EXTREME tinnitus - 24/7, 365 days a year for 30 years - gradually getting worse & worse!!
    The list of problems/symptoms could go on forever really, but the most worrying is that my body literally buzzes all day - like with extreme 'electricity' (the only way I can describe the intensity of the tingling/rushing through my body) & tinnitus. The 'white noise' of the tinnitus is so loud that it's almost like having a steel rod passed through my head the whole time. It is almost impossible to sleep - it's poor quality sleep anyway due to the fibromyalgia - meaning I wake up with a sudden start each morning, totally un-refreshed, with a blinding headache/aching body, and feeling like I've been run over by ten trucks!! The whole of my left side feels weak & my heart rate feels like a speeding train most of the time & flutters like a trapped bird when lying on that side. I also have balance problems, migraines (currently being helped by betablockers), horrendous sinusitis (nose/head blocked & unable to breath properly - with suspected nasal polyps/cyst currently under investigation.) I also have digestive disorders (IBS, hiatus hernia) which means my stomach is constantly 'upset' with daily diarrhoea/frequent/urgent loose stools, left-side sore abdominal pain, bloating, cramps, gas etc., sometimes so bad that I can only rest up. I have hormonal problems too & get exhausted easily - this last year or so seeing me gradually able to do less & less & I have visual disturbances on top of my already bad myopia. All in all, life is HELL - but my doctor is at a loss & all avenues we pursue end up blocked. I write in desperation now, following yet another session in bed where I want to scream due to the extremes of 'electricity' running through my body/intensity of head noise.
    I cannot possibly expect you to answer re ALL these symptoms but, my main concern, is for the debilitating body 'electricity'/juddering etc. & extreme tinnitus. Thyroid has been suspected but never proven but it's in my family (late father/aunt & suspected with my sister) & I feel sure this is some, if not all, the cause but tests constantly come back negative. You also need to know that I was diagnosed with TMJ some years ago (compacted wisdom teeth extraction caused chaos when aged 20/1 & I've had a few minor head injuries too.)
    PLEASE, PLEASE HELP ME - I have a family to look after & almost no quality of life, my GP has given up on me & is simply out of her depth (as were her predecessors.) Meantime, I am utterly desperate & at the end of my well-bitten tether!
    Anything you can help with would be so much appreciated.
    Thank you SO much! :-)

    Like 0 Short URL:
  • Guest - vintagesg

    Hello Sevvysgirl,
    I suggest you look into doing a Fructose Malabsorption diet for a couple of weeks to see if it changes things. Google it. There is a lot of info on the web. Healthhype.com has a good list of foods to avoid/eat. Best of luck to you!

    Like 0 Short URL:
  • Guest - rob

    Hey Savvysgirl,

    I feel for you and unfortuntely I don't have all the answers because I can relate to a lot of what you said. Just because an endocrinologist or another doctor tells you your thyroid is normal does not make them correct, especially if they take a tsh test. I rather not get into it here in why that type of test is not always accurate, unlike what they use to use, many, many years ago which was the trh test. Anyway, check out Mary Shomon's site or her books and find a alternative doc who specializes in the thyroid or endocrine system through her site, who can help you. Good luck.

    Rob

    Like 0 Short URL:
  • Guest - Subhas Chandra Hord

    How do I get the medicine

    Like 0 Short URL:
  • Guest - Subhas Chandra Hord

    Ya I have been sufurring from above description and have interest to purchase the medicine how do I get the medicine?

    Like 0 Short URL:
  • Guest - Sevvysgirl

    Thanks for your reply, Rob - I've only just come across it (& also thanks to Vintagesg.) You are right - conventional doctors never diagnose a thyroid problem - but alternative practitioners (& I've literally seen hundreds now) do! The problem is, conventional GPs don't believe/won't accept alternative doctors recommendations - unless TSH levels are raised (the only test the convenionals will accept.) Without this 'evidence' no one here in the UK can get thyroxine - the *only* treatment available & acknowledged for thyroid conditions. It's a ridiculous 'catch 22' situation. There have been campaigns to try & change the ruling around thyroid testing but the NHS just won't listen - bottom line is, it would cost them too much to find out and treat the true amount of patients with thyroid disorders I suspect. ):

    Like 0 Short URL:
  • Guest - Sheila

    I have had fibromyalgia for over 25 years. I know that people w/fibro have high amounts of yeast/candida in their bodies. This can cause many of the symptoms of so-called fibromyalgia. The pain and suffering is almost unbearable and doctors will not admit, acknowledge or treat it. I've found goldenseal helpful but it has not cured it. it is difficult to obtain the medication for candida and it is expensive also. I have received no help from doctors at all. The pain meds all make me sick and I cannot take them or they cause side effects that I cannot tolerate. Herbs are the best and the safest I believe.

    Like 0 Short URL:
  • Guest - Arkansas Kim

    I was diagnosed with Fibro in 1998. My best years have been when I have been a stay at home mom with lots of chances to rest. Now I am back to work part time. Tried Mobic but made my heart race. I have used Dr. Nautra's colon cleanse and completely normalized my gut but sleep patterns are still crazy. About to try a 5 day juice fast after watching Fat, Sick and Nearly Dead on Netflix. He doesn't target any one disease but how food restores and heals. I am out of options so going to start there. If fiber helped one system so much, food is bound to help the rest.

    Like 0 Short URL:
  • Guest - Musso

    thanks to all for your comments. have tried all but the DHEA. will order and try it. I just received an adrenel gland complex that is supposed to help with pain and swelling. for anyone who has not experienced years of fibro then you are truly blessed. it is completely comparable to the first few days of having the flu. friends and family do not understand and seem truly hurt as I withdraw to myself to cope.

    again, thanks to all

    Like 0 Short URL:
Comments (18)Add Comment
0
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written by mich , July 27, 2009
thanks printed it off read later.if anyone out there
has any ideas please let me know i would like to take
any vitamin supplements if i knew which ones.im becoming
confused with all the info im reading can anyone
email michbroad@googlemail.com with any help at all on
fibromyalgia thanks
Maff
...
written by Matthew Hogg, July 27, 2009
Hi Mich, if you post your question in the forum I'd be happy to offer some suggestions. I don't have time to reply to everyone individually so if you post in the forums others can benefit from my reply and those of other visitors who might have some good ideas as well smilies/wink.gif
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written by Angel, August 06, 2010
Hi, I have adrenal fatigue, resulting in Fybromyalgia and I also have breast cancer, which I am sure is a direct result of stress to the adrenals. I want to know if it is ok to take 5HTP and DHEA together? I need to get things right, and balance my adrenals. Kind regards to you, Angel
Maff
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written by Matthew Hogg, August 06, 2010
Hi Angel,

Sorry to read about your health problems. Normally I would say there are no serious interactions between 5HTP and DHEA that I know of...although research on DHEA and its mechanisms of action are still quite limited. However, DHEA can be converted to testosterone and oestrogen in the body (particularly in women it seems) and since breast cancer growth is known to be sensitive to oestrogen I would seriously advise you to steer clear of DHEA for now. As it is a steroid hormone I would advise anyone to at least speak to their doctor about using it. Yes, it can be very beneficial (I have had good resulkts with it myself for adrenal fatigue) but it should be used cautiously. You may wish to try herbs known as adaptogens as an alternative to DHEA for adrenal fatigue at this stage - these include licorice, ginseng and rhodiola.

The only thing you need to worry about with 5HTP is not to take it if you are also taking antidepressant medication as this can (theoretically) result in what is known as 'Serotonin Syndrome' which results from levels of serotonin becoming too high with potentially serious consequences. Other than this interaction 5HTP is generally considered safe but I would still recommend you talk to your doctors.

If your regular doctor and oncologist are not able to advise you with regards to supplements I would suggest working with a naturopathic doctor who can take your various illnesses into consideration when recommending supplements.

I hope this helps and wish you all the best,

Maff
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written by linda smith, September 02, 2010
i have fybomyalga for ten year also back pain due to disc hernie i am 60yrs old and just had complex opp on knee 5 weeks on and i feel as if i am 80 i am limmping very bad and in pain my hip back and lower abdimon hurt like hell in the morning i have cut down my lyrica to 75mg morning and night due to puting on wieght also i have trapped nerve in back giving me lost sensatasion in lower leg also carpel tunnel also dvt and high blood presure i am just at my wit end
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written by Val, September 09, 2010
I found this site very helpful as I am currently experiencing nearly all the symptoms of adrenal fatigue and CFS. I am 42 and have been tired of feeling exhausted all the time since I was maybe 25. Recently the exhaustion has become debilitating. About a year ago I relocated and was without transportation so began riding a bike. It was my sole form of transportation for over a year and I rode a minimum of 6 miles a day. At first I felt healthier, then my legs began falling apart and I had to wear metal supported knee braces on both legs to ride or walk. During the last 3 months I have deteriorated to the point of not being able to ride at all (my normal 3 mile 15 minute bike ride became a 45 minute struggle and I was barely able to move the pedals). I have been going to doctors and they are still checking my heart for problems (so far none), but I have had shortness of breath, constant exhaustion (no more than 10 to 20 minutes of activity then I collapse or must sit down again), low BP (85/55 pulse 50s), dizziness (feels like constant motion sickness), difficulty thinking, trouble sleeping, cramped muscles, etc. The list goes on. I have had to use the electric carts to get through grocery stores now. I managed to get a car, but have had no improvement in my condition. Although I am still waiting on some tests the doctors are running, I am going to try the DHEA and 5HTP to see if there is any improvement. Worthy note, I was under extreme stress up until 3 months ago, it was when the extreme stress ended that the symptoms began to show. I will keep my fingers crossed that the supplements help. Otherwise I feel like I have literally fallen apart at the seems.
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written by Laura Johnson, October 20, 2010
Dear Val,
I had CFS for 10+ years then weaned off all Rx medication and was fine until I had to have back surgery for a freak accident moving furniture to where I herniated 2 lower lumber disks. Now a year later I am in ER from feeling faint, fatigued etc. Dr. ran tests and Na (sodium level) was 122 normal values are 135 so was delusional also. They admitted me given my history and did a cortisol test and it was neg. 0.8 (none detected) so stayed another 6 days more tests and find I have secondary adrenal insufficiency ie; Addison's disease. It's been 2.5 months now living with this and have been back in ER5x and admitted once again for extreme high blood pressure 201/188 and I'm 5'6 125, it is the medication hydrocortisone that I now have to take for the rest of my life. it is a steroid that mimics what my adrenal glands would produce (cortisol) but it's my brian the pituitary/hypothalamus that does not produce the ACTH to trigger the response to the adrenal glands to produce cortisol. It's also causes hypoglycemia and an array of symptoms. Sleep is almost impossible with the steroid as it keeps you wired. It is also a life-threatening disease in case I were to have a seizure /coma due to not enough of the hydrocortisone as that is what keeps people w/Addison's alive.
There are good days and bad days, kinda like CFS, but this is much more scary and a have to see an Endo specialist who treats Adrenal Insufficiency as it only affects 1/100,000 annually. It is rare, but think more people are just misdiagnosed. You have to wear a medic-alert ID bracelet or necklace telling of your condition in case you are found unconscious, also carry an injectable form of 100mg. of cortisone to inject yourself if you feel a crisis coming or have someone else if unable, before 911 comes. Yes there is also joint pain. It's like CFS/fibro/adrenal exhaustion all into one. Sorry for the depressing news to any who read this but I feel it necessary to tell my story so if any have symptoms severe don't hesitate, get help, it saved my life as I was in a "adrenal crisis" I hope in time the right dose of medication will make my symptoms lessen as overall I'm very healthy, liver, kidney, heart (minus MVP) so read up online about Addison's disease/now basically referred to as AI (adrenal insufficiency) there is primary and secondary. Hope this lengthy novel was of any help to any of you. Best of health to us all!
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written by Lizzie, July 18, 2011
Hi, this info on this site is very interesting, but I have aproblem. 5HTP makes me go into hypo mania and then full blown mania. So does taking ssri's. I am currently off all medication bar cod liver oil, vitamin A and D and a small tablet of vitmain B complex each day, but feel no better for it. Any suggestions would be very much apprecited. I have a Pdoc appointment to be put on lithium, but am unsure whether to go on it or not. So bi polar with Fibro, apparently very common in bi polar women. Cheers in advance.
0
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written by paula m h c, August 10, 2011
This was a very interesting write up send my a fibro/dog loving friend of mine. It was nice finding out that a lot of my medical issues are related to my fibro and not in my head. My biggest suggestion to you all is to KEEP MOVING! I am allergic to anti-inflammatorilory so there for I am kind of screwed for pain relief. SO I just keep pushing along and the move active I can stay the better. A nature anti-inflammatory that helps is Tart Cherry juice. I buy a concentrate. Kings Orchards brand. You can take a few table spoons straight or make a drink with it.Thanks and good luck to all.
0
...
written by Sevvysgirl, August 30, 2011
I have been ill for nearly 30 years now (started when 17/18 - I'm now 4smilies/cool.gif with a complicated illness that has mystified both conventional & alternative doctors alike. The most recent 'label' they've slapped on me (&, as an 'umbrella' title, seems to cover most things) is 'fibromyalgia'. (In the past I've been told ME, CFS etc. - all similar really.) However, the main & most distressing symptom is EXTREME tinnitus - 24/7, 365 days a year for 30 years - gradually getting worse & worse!!
The list of problems/symptoms could go on forever really, but the most worrying is that my body literally buzzes all day - like with extreme 'electricity' (the only way I can describe the intensity of the tingling/rushing through my body) & tinnitus. The 'white noise' of the tinnitus is so loud that it's almost like having a steel rod passed through my head the whole time. It is almost impossible to sleep - it's poor quality sleep anyway due to the fibromyalgia - meaning I wake up with a sudden start each morning, totally un-refreshed, with a blinding headache/aching body, and feeling like I've been run over by ten trucks!! The whole of my left side feels weak & my heart rate feels like a speeding train most of the time & flutters like a trapped bird when lying on that side. I also have balance problems, migraines (currently being helped by betablockers), horrendous sinusitis (nose/head blocked & unable to breath properly - with suspected nasal polyps/cyst currently under investigation.) I also have digestive disorders (IBS, hiatus hernia) which means my stomach is constantly 'upset' with daily diarrhoea/frequent/urgent loose stools, left-side sore abdominal pain, bloating, cramps, gas etc., sometimes so bad that I can only rest up. I have hormonal problems too & get exhausted easily - this last year or so seeing me gradually able to do less & less & I have visual disturbances on top of my already bad myopia. All in all, life is HELL - but my doctor is at a loss & all avenues we pursue end up blocked. I write in desperation now, following yet another session in bed where I want to scream due to the extremes of 'electricity' running through my body/intensity of head noise.
I cannot possibly expect you to answer re ALL these symptoms but, my main concern, is for the debilitating body 'electricity'/juddering etc. & extreme tinnitus. Thyroid has been suspected but never proven but it's in my family (late father/aunt & suspected with my sister) & I feel sure this is some, if not all, the cause but tests constantly come back negative. You also need to know that I was diagnosed with TMJ some years ago (compacted wisdom teeth extraction caused chaos when aged 20/1 & I've had a few minor head injuries too.)
PLEASE, PLEASE HELP ME - I have a family to look after & almost no quality of life, my GP has given up on me & is simply out of her depth (as were her predecessors.) Meantime, I am utterly desperate & at the end of my well-bitten tether!
Anything you can help with would be so much appreciated.
Thank you SO much! :-)
0
...
written by vintagesg, September 18, 2011
Hello Sevvysgirl,
I suggest you look into doing a Fructose Malabsorption diet for a couple of weeks to see if it changes things. Google it. There is a lot of info on the web. Healthhype.com has a good list of foods to avoid/eat. Best of luck to you!
0
...
written by rob, November 10, 2011
Hey Savvysgirl,

I feel for you and unfortuntely I don't have all the answers because I can relate to a lot of what you said. Just because an endocrinologist or another doctor tells you your thyroid is normal does not make them correct, especially if they take a tsh test. I rather not get into it here in why that type of test is not always accurate, unlike what they use to use, many, many years ago which was the trh test. Anyway, check out Mary Shomon's site or her books and find a alternative doc who specializes in the thyroid or endocrine system through her site, who can help you. Good luck.

Rob
0
...
written by Subhas Chandra Hord, November 23, 2011
How do I get the medicine
0
...
written by Subhas Chandra Hord, November 23, 2011
Ya I have been sufurring from above description and have interest to purchase the medicine how do I get the medicine?
0
...
written by Sevvysgirl, November 25, 2011
Thanks for your reply, Rob - I've only just come across it (& also thanks to Vintagesg.) You are right - conventional doctors never diagnose a thyroid problem - but alternative practitioners (& I've literally seen hundreds now) do! The problem is, conventional GPs don't believe/won't accept alternative doctors recommendations - unless TSH levels are raised (the only test the convenionals will accept.) Without this 'evidence' no one here in the UK can get thyroxine - the *only* treatment available & acknowledged for thyroid conditions. It's a ridiculous 'catch 22' situation. There have been campaigns to try & change the ruling around thyroid testing but the NHS just won't listen - bottom line is, it would cost them too much to find out and treat the true amount of patients with thyroid disorders I suspect. ):
0
...
written by Sheila, December 03, 2011
I have had fibromyalgia for over 25 years. I know that people w/fibro have high amounts of yeast/candida in their bodies. This can cause many of the symptoms of so-called fibromyalgia. The pain and suffering is almost unbearable and doctors will not admit, acknowledge or treat it. I've found goldenseal helpful but it has not cured it. it is difficult to obtain the medication for candida and it is expensive also. I have received no help from doctors at all. The pain meds all make me sick and I cannot take them or they cause side effects that I cannot tolerate. Herbs are the best and the safest I believe.

0
...
written by Arkansas Kim, December 30, 2011
I was diagnosed with Fibro in 1998. My best years have been when I have been a stay at home mom with lots of chances to rest. Now I am back to work part time. Tried Mobic but made my heart race. I have used Dr. Nautra's colon cleanse and completely normalized my gut but sleep patterns are still crazy. About to try a 5 day juice fast after watching Fat, Sick and Nearly Dead on Netflix. He doesn't target any one disease but how food restores and heals. I am out of options so going to start there. If fiber helped one system so much, food is bound to help the rest.
0
...
written by Musso, August 09, 2012
thanks to all for your comments. have tried all but the DHEA. will order and try it. I just received an adrenel gland complex that is supposed to help with pain and swelling. for anyone who has not experienced years of fibro then you are truly blessed. it is completely comparable to the first few days of having the flu. friends and family do not understand and seem truly hurt as I withdraw to myself to cope.

again, thanks to all

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Last Updated on Tuesday, 14 January 2014 15:15
 

 

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