Discussions from Home Fecal Transplants
fyi - Mikrobex has changed its name to "Rebiotix" on March 5, 213
Obviously this is an area where only a medical professional can give you valid advice on. That being said, I think you really only have a few options. 1) You can do FMT again 2) you can take antibiotics to "reset" yourself or 3) wait it out and hope it's a flare... I'd like to know what you end up doing, so keep us updated!
Hi all! Just thought i'd share this link with you about a Doctor discussing Fecal Transplantation for C-Dificile http://www.medscape.com/viewarticle/779307?src=emailthis
If anyone is in the UK then you can have FMT done by a clinic that does colonic irrigation and have now decided to specialise in FMT. Here is the link to my thread on this site http://www.ei-resource.org/community/groups/viewdiscussion/92-clinic-in-uk-now-doing-faecal-microbiota-transplantation-fmt?groupid=1
Thanks for the feedback idkwia, that is encouraging to know. Maybe the increase in my brain fog and feeling of being "drunk" since the FMT was bound to happen either way and was only coincidental? I dont know. Maybe i will never know. All i know is that i am tired of ME/CFS and IBS. I really dont know how to heal my gut so i can recover from this illness. Ive done the FMT. Theres nothing left to do! But theres always hope!
Doorie, I believe my gut issues also arose (or were at least significantly worsened) by repeated prescribing of broad spectrum antibiotics for superficial infections of the ENT variety. I obtained my full medical records a few years back and learned that I had been given 6 courses in the 8 months leading up to my development of M.E./Chronic Fatigue Syndrome. I had pre-existing and frequent gut symptoms and these only worsened after developing ME/CFS. I believe antibiotics are partially responsible for both. I have spoken to many enlightened doctors and gastroenterologists since who have all baulked at the thought of a child being given so many courses of antibiotics as the immune system is still developing. Thanks for the extra information about the Dutch study. It's a shame in a way that it was cut short as 120 participants is usually enough to achieve statistically significant results. It looks like a quality study so the researchers no doubt used a 'Power Calculation' during the study design to make sure this was the case. On the other hand the reason for the study being cut short is very positive indeed in terms of the efficacy of the FMT treatment! It will be interesting to see the results that come out of the Canadian study. Their use of participants own fecal matter for FMT as a placebo in the control group is an excellent methodology. Let's wait and see!
Wendy, In Sky Curtis's book she describes side effects that may occur. Her son was cured of crohn's/colitis using FMT, however, it took many months of FMT transfusions for this to occur. In the intro to her book, she states: "Side effects of infusions can include night sweats, fevers, random bouts of blood or diarrhea after there has been none for weeks, incredibly stinky gas, and various types of poo, ranging from liquid to wormies, to rabbit raisons. Sometimes a person who has been free from pain suddenly experiences a sudden bout of pain. All of these events can convince a person they are not becoming well, when in fact, each one of these symptoms can be a very positive indication that the new bacteria is very busily reproducing and recolonizing an ill person’s intestines. " Good luck to you. Cheers,
Matt, It's really been gaining steam over the last few months. A recent reuters article mentioned it becoming standard treatment for C Diff. An excerpt from the article "For patients hit hardest by the bacterium Clostridium difficile, getting a "stool transplant" could become a standard treatment within just a few years. Just as blood banks and sperm banks are now commonplace, stool banks may soon dot the landscape." The full article is here: Title: Human stool treatment upends race to treat colon germ Link: http://www.reuters.com/article/2012/11/30/us-bacteria-stool-treatment-idUSBRE8AT09D20121130 I also read somewhere, although I can not find the article, that billing codes for insurers in the US for this procedure are expected to become available in the first half of 2013. The FDA gave stool "investigational drug" status, which allows billing codes for the procedure to be created. That should go a long way in making the procedure more available in the US.
here more from the popular media http://www.sciencedaily.com/releases/2012/10/121025174629.htm http://www.medicalnewstoday.com/articles/252027.php http://www.bbc.co.uk/news/health-20081895?utm_source
Wendy 1234. Have a look at the the thread that I started, I have today added a post to it, I would suggest you take my advice from there and see how you get on. Here is a link to the other thread http://www.ei-resource.org/community/groups/viewdiscussion/92-clinic-in-uk-now-doing-faecal-microbiota-transplantation-fmt?groupid=1
Doorie, this is a great link, thanks for posting. I for one will be awaiting the study results with a great amount of anticipation. I suspect the differences will be large. I also believe differences could account for differences in disease patterns between African nations and the Western world. Interesting stuff!
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