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16
Jan

SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient Brain

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Hi everyone, my name is Jason and I am a multiple chemical sensitivity (MCS) sufferer. Like anyone who has MCS I have had a hard time convincing anyone (friends, family, doctors) that I am actually sick. Recently I managed to get a SPECT scan of my brain carried out which has given me visible proof that I am actually sick. I thought many of you here would be interested to see the scans so wanted to post this blog. 

Just so you understand the scan more clearly- it is the scan and function of 'my' brain overlapping the 'Normal' healthy functioning image of an adult brain.  I try to point out the graphing system used on the side with my finger.  If my scan was functioning within the normal range there wouldn't be any color deviation away from the color 'gray'.  Where it is gray colored is where my brain's functioning (cerebral blood flow) is within the normal range expected.  However where it is any other color but gray is where the function of my brain is outside what has been deemed healthy and normal.  As you can see what prompted a diagnosis of a 'Neuroimmunological' process is due to the fact that in many places the function and blood flow of my brain is far below average.  Showing signs of inflammation possibly caused by a virus, toxic exposure, lack of oxygen, or all the above.  I've had varying degrees of difficulty my whole life- but it became disabiling after I got a bad virus in 2002.  I'm on disability now.  My ability to handle certain foods, chemicals, fumes, pollution, etc., is extremely low now.

Apologies for the poor image quality (they were done with a camera phone) but here are the images of my scans:

 

1. The SPECT Images

 

SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient Brain

 

 

2. Findings - 'Probable Diffuse Neuronal Injury/Dysfunction'

 

 

 

3. Recommendations

 

 

SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient BrainDynamic Neural Retraining Program (DNRS)

 

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  • Hello- this is 'my' scan posted online. For ONLY those seeking more information, you may contact me, otherwise, NO commercial content contacts allowed.

    I noticed that John1009 asked for further information- I apologize for never realizing the request.

    Send me a personal email on this site- and I will give you further information on how to get ahold of me. The owner of the site is a great guy, I've talked with him before- you can also contact him and have him contact me as well.

    Thanks,

    Jason

    Comment last edited on about 4 years ago by Maff
  • Has anyone heard of any specialist doing the
    SPECT scans in Canada? I am very interested in this test, also saw Dr. Amen speak on it, and as 95% of my MCS symptoms are neuro in nature ever since my exposure to the hospital workplace cleaners.

    Comment last edited on about 4 years ago by Maff
  • Sure I'm delighted to give you that information...

    But there is more to it than you think...

    Actually I read the book titled "Change your Brain change your life." by Dr. Amen... that is where I first learned about SPECT scans.

    Then I came across later on two places that are not a part of Dr. Amen's clinics, but I personally see greater validity in.
    WWW.BrainMatters.com which last I knew has two locations in America, one in Denver, Colorado, and the other in southern California. They might have more locations I'm not sure...

    I went to the one in southern California. It was actually part of UCLA, and they explained that the clinicians do blind evaluations of the scans to try to be more objective.

    First I didn't need a doctor's referral to get the scan done. I had no idea I had MCS or anything- all I knew was I felt horrible and maybe had Chronic Fatigue.

    They do the scans- two of them, one at baseline not concentrating, and the other concentrating.

    The total cost is about $3,500 last I knew- but they might take insurance also... in my case I had no insurance so a great friend ended up covering the costs as he could see how I was suffering for years on end.

    They gave me the results, they give you a binder with all the scans and information.

    They suggested possibly seeing a guy in southern california whom specialized in Neuroimmune illnesses. There are VERY, VERY few in the United States. I waited a YEAR to get into him, and never did... I lived in southern california, but I ended up flying out to Texas and seeing a doctor named Dr. Bruce Russell... the other doctor in southern california is Dr. Goldberg... www.neuroimmunedr.com

    HOWEVER I want to point out they didn't realize specialize in MCS- just immune brain and immune mediated illnesses. Such as Autism.
    They suggest finding out things you are allergic to- and in the long process I began to realize that it was cleaning products, laundry soap, exhaust, etc. that made me feel ill.

    I mentioned it to my doctor- he wasn't opposed to the idea, but didn't fully embrace it. However he had read Dr. Martin Pall's book, "Explaining unexplained illnesses."

    Now that it has been some time and he has seen me continual explain how I feel when I'm around solvents, chemicals, etc.... and away from them. I believe he believes me much more now.

    Before they weren't sure if my illness was caused by a virus, bacteria. Problem was, I became really ill with a virus infection and never got well.... HOWEVER my job at the time was also cleaning a school with all sorts of cleaning products, day in, and day out. So it is hard to tell what caused it

    Initially they did blood tests and checked for active infections all over the board.... and nothing came out TOO extreme... they did put me on valtrex for over a year as well as some antifungals, and even some antibiotics. I can't say that they helped too much.

    On top of that then my appendix ruptured, and was ruptured for about two days!!! Believe it or not the doctors couldn't figure out what was wrong with me!!! So I got very ill... almost died, went into septic shock... THEN had complications and had three abcess infections in my abdomen that they had to insert a metal tube into and drain one with a catheter for two weeks, and put me on heavy antibiotics.


    So sorry for the long story...


    You don't need doctor's referral.

    Look into Brain Matters online.

    Insurance 'might' cover some- maybe not.

    Based upon findings they might give you some suggestions and possibly suggest a specialist that might be able to help you.

    I suggest contacting Dr. Bruce Russell in Texas- he does phone consults after the first meeting. The number is 361-749-1930... You can say that Jason Firkins referred you to him.

    Hope that helps-

    Jason

    Comment last edited on about 4 years ago by Maff
  • hi Jason,

    if you don't mind, I'd like to know how you got this test? did you have to pay for it yourself and, if so, do you mind sharing the cost?

    I also wondered if the test itself caused any reactions for you and whether any injections or drugs were involved.

    thanks so much and thank you for sharing it!
    I, too, would love to hear what they recommend as treatment

    Liberty

    Comment last edited on about 4 years ago by Maff
  • Hi Jason, now that you have had an informative SPECT scan, I would be interested in the treatment proposed for you. One of my Doctors is a Nutrition and Environmental Specialist. He has me on glycene/glutamine/systeplus powder and a range of other vitamins and minerals. I am fairly well now but am unsure exactly what has helped what ,as I have CFS/Fibro/IBS/Leaky gut/Chronic systemic candida etc. I am fairly well at present so I still go day to day, enjoying the good days. Good luck Jason, G

  • Good grief Jason, you must be feeling fairly darn ordinary at times!
    Jason get rid of those toxins and heavy metals - some of us just get over loaded with them due the condition of our bodies.
    Google 'deficiencies in Glutathione' (and Carnisine) in regards to illness and heavy metal toxitiy - you will be amazed.
    I have helped many people with these issues by using Energy patches and YAGE (Glutathione) - sometimes people get relief quickly and for others it takes longer. I wish I could attach testimonials on here written by people who we have helped with the patches. Perhaps I can send them to who ever is interested, or leave an email address on here so's you can contact me. Cheers

    Comment last edited on about 4 years ago by Maff

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