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A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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Subscribe to this list via RSS Blog posts tagged in MECFS
08
Oct
1
Posted by Posted on in EirBlog
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Do You Know How Toxic Your Life Is?

Do You Know How Toxic Your Life Is?
Intentionality in changing our buying and cleaning habits is vital for protecting our well-being. In order to be stronger and live longer, we must choose to create a healing habitat that effectively eliminates toxins in our bodies and reduces the source of toxins in our environment so that restoration of optimum health can occur.   These check-points will alert you to some of the ways to improve your health through behavioral changes:   1. Check in your sink and under it   Dishwashing liquid residue is left on dishes and eaten, use a non-toxic alternative such as Seventh Generation Free & Clear Laundry Liquid Clean your sponge; studies have shown that the degree of contamination of sponges of a hundred million to one billion microorganisms of any kind per sponge. Wash your sponge (put it in your dishwasher even). Toxic chemical arsenal under the sick! Yes, most of us are...
Tagged in: CFS Lyme Disease MCS ME MECFS
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  • adminv15
    adminv15 says #
    I’ve been a regular face at the hospital to get treatment for my condition. After a very long time, I kind of almost gave up. Th
12
May
7
Posted by Posted on in EirBlog
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Chronic Fatigue Syndrome, Environmental Illness, and Low White Blood Cell Count

White Blood Cells
 I feel I must apologise for my recent lack of blogging activity but I'm sure when I explain why you'll understand - plus the reason has given me the inspiration for this post! As regulars will be aware I have suffered from Chronic Fatigue Syndrome (ME/CFS) for a long time - since I was 11, so 20 years now. Like many ME/CFS sufferers I am also burdened by adrenal fatigue, low thyroid function, hypoglycaemia, Candida and Small Intestinal Bacterial Overgrowth (SIBO) amongst other things. I also suffered from severe Multiple Chemical Sensitivity for a number of years in my early 20s but thankfully was able overcome it (touch wood)! Like most suffering from environmental illnesses (or more appropriately here 'invisible illnesses') I have been constantly frustrated by the absence of any abnormal findings on conventional medical tests over the years. After all, if the standard lab tests are normal there can't possibly be anything wrong...
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  • adminv15
    adminv15 says #
    Hi stumbled across this site when trying to get answers for CFS. In September I had cystitus and required three doses of antibiot
  • adminv15
    adminv15 says #
    Hi there.. stumbled on your blog because recently I had a lab test come back with a really low neutrophil count and the doctor is
  • adminv15
    adminv15 says #
    Hey maff, I have been suffering with bacterial overgrowth issues for the last five years. The Antibiotics and the anti acid treatm
26
Jun
1
Posted by Posted on in EirBlog
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Detoxification Profile Results - The Pathological Detoxifier and Chronic Illness

Detoxification Profile Results - Pathological Detoxifier
Following on from my blog - Pathological Detoxifiers and Environmental Illness which explained the process of detoxification in the liver and when someone might be termed a 'pathologicial detoxifier' - I wanted to share the results of my own Detoxification Profile and explain how the results related to my illness at the time and subsequent developments. The Detoxification Profile uses caffeine, paracetamol, and aspirin, to determine how well phase1 and some of the most important phase 2 liver detoxification pathways are functioning.   My Detoxification Profile Results     Interpretation As you can see, although my phase 1 is within the reference range, it is towards the upper end of normal. In combination with this my phase 2 glutathione conjugation is borderline low. The other phase 2 pathways are all what Genova ,I believe, now classes as high and indicates increased toxic exposure.  Other testing revealed my d-glucaric acid was high...
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  • adminv15
    adminv15 says #
    Hey Matt. I'm in a terrible situation - I've almost died a few times in the last 1.5 years from such severe CFS/MCS etc, which the
  • Maff
    Maff says #
    Hi Rick, Sorry to hear about your poor health. I can certainly sympathise with the frustration of needing expensive medical tests
  • adminv15
    adminv15 says #
    I need help with liver detoxification. Everytime I take any liver detoxing herbs or eat any liver detoxing foods I get a very bad
21
Nov
0
Posted by Posted on in EirBlog
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Stress Management & Pacing Yourself When You Have Chronic Fatigue Syndrome

As someone who became ill with chronic fatigue syndrome at the age of 11 I have spent my entire adolescence and adult life struggling with the condition. My personality is one that could be classed as predominantly type A and I like to "burn the candle at both ends" as the saying goes. After being diagnosed with ME/CFS and discovering there was no treatment or cure available this led me to ignore my illness and push even harder during my teens. I continued full-time at school, took part in physical education (P.E.) classes, played soccer with my friends after school and went to parties. For a while this seemed to work as I was very happy which obviously makes you feel better anyway. Inevitably however things began to go down hill in my late teens and my life eventually came to an abrupt halt after a two semesters of university. I was then virtually bedridden...
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23
May
0
Posted by Posted on in EirBlog
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Chronic Fatigue Syndrome Fair Name Campaign Moves Ahead at Pace

Campaign for a Fair Name - ME/CFS
 Back in November of last year I reported on the efforts of the Fair Name Campaign which has the aim of promoting a name which truly represents the medical and patient reality of the illness currently known as Chronic Fatigue Syndrome in the United States and elsewhere. The majority of patients, as well as some in the medical community (doctors, researchers etc), have felt that the name Chronic Fatigue Syndrome (CFS) trivializes what is a very serious and disabling illness. Not only that but it is medically inaccurate and does nothing to confer the fact that it is an organic illness. This has understandably contributed to much of the public, and to the chagrin of sufferers doctors as well, dismissing the condition as "all in the head". The weight of evidence conclusively demonstrates that CFS is not a psychological illness. Patients, backed by knowledgeable doctors and researchers, have now decided that the...
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