Effective Treatment for Neuropathic Pain Print E-mail

 

 

 
Dr. Jacob Teitelbaum

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Jacob Teitelbaum MD is Medical Director of the Fibromyalgia and Fatigue Centers
( www.fibroandfatigue.com ). Senior author of the landmark studies "Effective Treatment of Chronic Fatigue Syndrome and Fibromyalgia -- a Placebo-controlled Study" & “Effective Treatment of CFS & Fibromyalgia with D-Ribose”. Author of the best-selling book” From Fatigued to Fantastic!”(3rd ed-Penguin/Avery Oct 4, 2007) , " Three Steps to Happiness! Healing through Joy", and “Pain Free 1-2-3- A Proven Program to Get YOU Pain Free! “(McGraw Hill, 2006). He does numerous media appearances, including CNN and FOX National News and is a frequent guest on Oprah and Friends with Dr. Oz.. He lives in Kona, Hawaii. Visit his web site at www.Vitality101.com

 

 

You can benefit from Dr. Teitelbaum's wisdom and experience by visiting us at The Environmental Illness Resource regularly to read articles from his latest newsletter!

 

 

 

Monday, May 19th, 2008:

 

Effective Treatment for Neuropathic (Nerve) Pain

 

by Jacob Teitelbaum MD

 

Used with permission from Pain Free 1-2-3 (McGraw Hill 2006) by Jacob Teitelbaum, M.D.

 

 

Summary:

 

One of the more difficult and uncomfortable types of pain comes from nerve pain (called Neuropathic Pain or Neuropathies). Whether the pain comes from diabetes, shingles, fibromyalgia, chemotherapy, or a host of other causes, this searing, burning, electric shock kind of pain can leave you miserable. Unfortunately, most physicians are still not trained in treating nerve pain, and give anti-inflammatory medications like Motrin (which are not effective) or narcotics, which are modestly effective.

 

The good news is that NERVE PAIN IS VERY TREATABLE. Many studies have shown that using nutritional support with lipoic acid 300 mg 2x day, Acetyl L-Carnitine 500-1,500 mg 2x day, Inositol (500-1,000 mg a day), and Vitamins B6 (50-100 mg a day) and B12 (500-5,000 mcg a day—both B vitamins and Inositol are in the Energy Revitalization System vitamin powder) can actually help heal the nerves and decrease or eliminate the pain. Nerves take time to heal, so natural remedies need to be taken for 3-12 months. In the interim, Holistic Pharmacies can make powerful creams combining multiple medications effective against nerve pain (available by prescription from ITC Pharmacy 303-663-4224). These are rubbed over the painful areas, and can be very effective after 1-2 weeks of use. Being rubbed on the skin though, the total dose to the rest of your body is very low, making it largely side effect free! Other medications can also be VERY effective.

 

Just because doctors are not trained in pain management does not mean you have to be in pain. Want to make your nerve pain go away? You can!

 

 

What is Nerve Pain?

 

The term "neuropathic pain," or nerve pain, refers to a wide range of problems that cause diseases of, or injury to, the nervous system. It is a category of pain syndromes and not a single problem. Neuropathic pain can come from malfunction of nerves or the brain associated with illness (e.g., diabetes, low thyroid, etc.), infections (e.g., shingles), pinched nerves, nutritional deficiencies (e.g., vitamin B6 and B12), injury (e.g., stroke, tumors, spinal cord injury, and multiple sclerosis), and medication/treatment side effects (e.g., radiation and chemotherapy, AIDS drugs, Flagyl®). It is estimated that 50 to 80 percent of diabetics will develop some nerve injury with 30 to 40 percent of these having painful diabetic neuropathy unless preventive measures are taken such as nutritional support. Neuropathic pain affects approximately 0.6 to 1.5 percent of the US population and 25 to 40 percent of cancer patients.1 This represents over two million Americans.

 

Neuropathies are characterized by pain that is burning, shooting (often to distant areas), or stabbing. It also has an "electric" quality about it. "Tingling or numbness" (paresthesias) and increased sensitivity with normal touch being painful (allodynia) are also commonly seen. Ongoing pain is often continually present regardless of what the patient does or does not do. In some cases, pain comes in sudden attacks without any apparent trigger. Diagnosis is made predominantly by history and physical examination, as testing often offers little benefit clinically unless the testing is looking for a treatable cause.

 

As with other pain problems, neuropathies are both expensive and poorly treated.

 

In one study of 55,686 patients with neuropathic pain, health care charges were three-fold higher than they were in the overall population ($17,355 vs. $5,715 per year, respectively). Use of relatively ineffective therapies such as NSAIDs (e.g. Motrin®) and opioids was widespread, while relatively few received anti-epileptic drugs, tricyclic anti-depressants, or any of the many other medications that are often much more effective in relieving neuropathic pain.2

 

In the presence of nerve pain, it is especially important to look for treatable causes. Lab testing should include:

 

1. A blood count (CBC) and an inflammation/sedimentation rate (ESR).

2. Thyroid testing with a Free T4 and TSH.

3. Vitamin B12 level.

4. Screening for diabetes with a morning fasting blood sugar and a glycosylated hemoglobin (HgBA1C).

The medical history should be assessed for excess alcohol use, vitamin deficiencies, hereditary factors, or treatment with medications that can cause nerve injury. A neurological examination may also give an indication of the cause.

 

Nerve pain is often associated with a process called pain Central Sensitization. The nerves and brain are like wires that carry information. When they become over-stimulated with chronic pain, it may make the whole system over-excitable. In these situations normal touch and other usually comfortable contact can be painful. This is called allodynia. Medications that stimulate the "calming (GABA) receptors" in the brain, such as a number of anti-seizure medications (see below), can help settle the system and decrease pain.

 

 

Postherpetic Neuralgia (PHN)

 

Postherpetic Neuralgia follows a rash called herpes zoster. Often called shingles, it is caused by the same virus that causes chickenpox. The first time you get chickenpox, the virus remains in your nerve endings even after the chickenpox is gone. This usually causes no problems. If the virus re-activates in one of the nerve endings, however, it causes a rash all along the distribution of the nerve. The rash of herpes zoster is characterized by being painful and being in a line totally on one side of the body. If it extends past the midline of your body, the rash is probably coming from something else. If the pain persists after the rash is gone, continuing for weeks to years (over one year in half of elderly patients), it is called Postherpetic Neuralgia (PHN). The pain tends to be burning, electric, or deep and aching. PHN affects between 500,000 and 1 million Americans—most of which are elderly. It can severely disrupt one's life, but fortunately can now be effectively treated in most cases.3

 

 

Painful Diabetic Neuropathy (PDN)

 

This is the most common cause of neuropathy in U. S. Alterations in sensation are common, and the feet, which are most often affected, may feel both numb and painful at the same time. There are many factors contributing to nerve injury in diabetes, including decreased circulation, accumulation of toxic byproducts, damage from elevated sugars, and nutritional deficiencies. There are also changes in NMDA and opiate receptors.3

 

Research has shown that many people who are labeled as having diabetic neuropathy actually experience neuropathic pain caused by vitamin B6 or B12 deficiency. In addition, the nutrients inositol has been shown to improve nerve function. The nutrients lipoic acid and Acetyl L-Carnitine have also been shown to be very helpful for diabetic nerve pain, but it can take 3-12 months to begin nerve healing. So give them time to work.

 

 

Nutritional Deficiencies

 

Neuropathic pain can also be caused by deficiencies of vitamins B12, B1, B6, D, E and zinc (all are present in the Energy revitalization System). A number of studies have shown that different kinds of nerve pain can improve by supplementation with high dose B vitamins. Excess vitamin B6 (over 500 mg a day for years), however, can also cause neuropathy. Vitamin D 2,000 units a day was also shown to decrease diabetic neuropathy pain by 47% after 3 months.

 

In patients with long-standing shingles pain, one study showed that taking 1,600 units of vitamin E (use the natural form) daily before a meal for 6 months was markedly helpful in eliminating the pain.4 Another study showed that taking lower doses for less than 6 months was not effective.5

 

 

Hormonal Deficiencies

 

Hormonal deficiencies, especially an under-active thyroid, can also cause neuropathic as well as muscular pain. A therapeutic trial of thyroid hormone is reasonable for anybody who has the symptoms of low thyroid including fatigue, cold intolerance, achiness, having low body temperatures, or unexplained inappropriate weight gain.

 

 

Nerve Entrapments

 

A pinched nerve can cause nerve pain in many places in the body. Two of the more common ones are low back pain from sciatica and pains in the hand and sometimes wrist from carpal tunnel syndrome. Sciatica usually goes away without surgery by using intravenous colchicine (see Chapter 14 of Pain Free 1-2-3), and carpal tunnel syndrome usually resolves after 6 to 12 weeks with vitamin B6 (250 mg a day), thyroid hormone, and wrist splints (see Chapter 19).

 

 

Reflex Sympathetic Dystrophy (CRPS)

 

This usually manifests as horribly severe pain in one hand or foot but can certainly spread elsewhere. See the end of this chapter in the Pain Free 1-2-3 book for a detailed discussion on effective treatment.

 

 

How Can I Make the Neuropathic Pain Go Away?

 

Neuropathic pain occurs biochemically, making it a very fluid system that can often be quickly modified, resulting in pain relief. Many different chemicals (neurotransmitters) in your body may be involved in your pain, and therefore it is worth trying different types of medications to see which ones work best in your case. For many, treating the nutritional and thyroid deficiencies and eliminating the muscle spasms, which are compressing your nerves, may be enough to eliminate your pain. Others may need to take medications to suppress the pain while we look for ways to eliminate the underlying cause. The best way to tell which chemicals are involved in your nerve pain is to simply try different medications (individually and, if needed, in combination) to see what eases your pain. Basically, it is like trying on different shoes to see what fits best. The good news is that we have a large assortment of "shoes" that you can try on and that are likely to help you.

 

It is, of course, critical to begin by eliminating the underlying causes of neuropathy and giving the nerves what they need to heal. This includes the nutritional support we've discussed. In addition, the involvement of free radicals in nerve excitation was found in 1995, supporting the use of antioxidants in nerve pain.8 Since that time, the antioxidant lipoic acid (300 mg 2 times a day) has been shown to be helpful in diabetic neuropathy and should be tried in other neuropathies as well. You will be amazed at how much benefit you may get over time simply from optimizing nutritional support.

 

In addition, if you are tired, cold intolerant, experience achiness, have low body temperatures, or have weight gain I think it is reasonable to consider a therapeutic trial of natural thyroid hormone regardless of your blood levels. It may take 3 to 6 months for the thyroid and/or nutritional therapies to begin working, but regardless of the cause of your neuropathy, this treatment may result in nerve healing. It is reasonable to begin medications along with the nutritional support so that you can get pain relief as quickly as possible. If only a small area is involved, it makes sense to begin with a Lidocaine® patch (called Lidoderm). Otherwise, I prefer to begin with Neurontin® and/or tricyclic anti-depressants. All of the recommended oral nutrients discussed in this chapter, except lipoic acid, Acetyl L-Carnitine, and the 1,600 unit mega dose of vitamin E, are contained in the Energy Revitalization System vitamin powder and B-complex. For carpal tunnel syndrome, add 200 mg of B6 to the powder.

 

Below are just some of the different categories of treatments that can be helpful for nerve pain. They (along with the natural treatments) are discussed in more detail in my book Pain Free 1-2-3. Begin with the nutritional and thyroid support as noted above. You can then add the medications below as needed in the order that they're listed.

 

1. Lidocaine® patch, 5 percent. This Novocain®-like patch is applied directly over the area of maximum pain. It can be cut to fit the area, and up to four patches can be used at a time (although the package insert says only three). It is left on for 12 hours and then removed for 12 hours each day, although recent reports have suggested that the patch can be left on up to 18 hours and still be safe and effective.3 Results will usually be seen within two weeks. Because the effect is local, side effects are minimal. The most common side effect is a mild skin rash from the patch. It should not be used if you have an allergy to Novocain/lidocaine.
The patches are most likely to be helpful if the pain is localized to a moderately-sized area. Even in a large area, however, patches can be used on the most uncomfortable spots. The main downside of the patches is that they are expensive. If you have prescription insurance, however, they will usually be covered.

2. Neurontin® and other seizure medications. Newer anti-seizure medications, and some of the older ones, can also be very helpful for neuropathic pain. Neurontin has been shown to be helpful for both shingles and diabetes pain.9-11 Common side effects include sedation, dizziness, and sometimes mild swelling in the ankles when first starting therapy. These side effects can often be avoided by starting with a low dose and raising the dose slowly. A common total dose for Neurotonin is 600 mg, 3 to 4 times a day.

3. Tricyclic anti-depressants. These include medications such as Elavil®, Tofranil®, nortriptyline or doxepin.

4. Topical Gels. A wonderful new addition to the treatment of pain in general, and especially nerve pain, is the use of prescription topical gels. New gels have been developed that markedly increase the absorption of medications through the skin. By using a low dose of many different medications in the cream, one can get a powerful effect locally with minimal side effects. It is best to have a knowledgeable compounding pharmacist (e.g., ITC Pharmacy 303-663-4224) guide you and your physician in the prescribing of these creams and gels.

 

To explore an example of how to treat with these creams combined with nutritional support, let's use the example of diabetic neuropathy. One must, of course, begin with proper control of the elevated blood sugars. Nutritional support with high levels of vitamin B12, B6, and inositol are also important in diabetic nerve pain as are many other nutrients, such as vitamins C and E, magnesium, antioxidants and bioflavonoids (all in the Energy Revitalization System). In addition, lipoic acid 300 mg 2 times a day has been shown to be helpful for diabetic neuropathy. A compounded gel containing (as one of many possible mixes) Ketamine 10 percent, Neurontin® 6 percent, clonidine 0.2 percent, and nifedipine should be added to painful areas (apply 1 g 3 times a day as needed). The nutritional support can actually make the pain go away over time, while the cream/gel can add symptomatic relief. Other medications discussed in this chapter can then be added as needed to assist in the neuropathic pain.

5. Anti-depressants such as Effexor or Cymbalta.

6. Ultram (Tramadol®). This is an interesting medication that works on many areas of pain and in many different types of pain. It has been shown to be effective for nerve pain in a placebo-controlled study after four weeks.20

7. Topamax (Topiramate®).

8. Lamictal (Lamotrigine®).

9. Lyrica (Pregabalin) or Gabitril (Tiagabine®).

10. Keppra®.

11. Trileptal® (oxcarbazepine).

12. Dilantin®.

13. Capsaicin®.

14. Narcotics. Narcotics are only modestly helpful but are considered an accepted treatment for neuropathic pain.

15. Benadryl® (diphenhydramine). Sometimes we get help from unexpected places. Studies have shown in both humans and animals that antihistamines can help pain—in spite of our not knowing why this works. It has even been found to be helpful in patients who failed treatment with heavy narcotics. It is recommended that you start with 25 mg every 6 to 8 hours and adjust the dose to the optimum effect.29A

 

 

Most people find that long term the nutritional and topical therapies will eliminate or at least give marked relief from their nerve pain. For immediate control, 1-2 medications by mouth are usually enough, but I give this long list (and more treatments are discussed in my book) so that you know that you have options and can get pain free. To find a physician who knows how to treat pain, see the American Academy of Pain Management website.

 

 

 

 


 

Used with permission from Dr Jacob Teitelbaum's free newsletters-available at www.Vitality101.com

 

 

Learn more from Dr. Teitelbaum's books:

 

 

From Fatigued To Fantastic

 

From Fatigued to Fantastic!: A Proven Program to Regain Vibrant Health, Based on a New Scientific Study Showing Effective Treatment for Chronic Fatigue and Fibromyalgia


Buy from Amazon.com

Buy From Amazon.co.ukEffective Treatment for Neuropathic Pain

Pain Free 1-2-3

 

Pain Free 1-2-3: A Proven Program for Eliminating Chronic Pain Now!


Buy from Amazon.com

Buy From Amazon.co.ukEffective Treatment for Neuropathic Pain

 

 

 

{mos_sb_discuss:21}

 

 

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  • Guest - Linda Roberts

    Someone please help, even a short comment would help.

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  • Hi Linda, I know it's hard when you are suffering but please be patient. This site does not focus on neuropathic pain so it may take time for someone who can help you to reply. Perhaps you could search for specific neuropathic pain support sites in the meantime...

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  • Guest - carole Ranken

    Hello Linda
    I have just read your notes on your neuropathic pain and really feel for you. I too suffer very badly since having had a hernia op last year im left with awful neuropathic pain.Thought i was going mad. night time is always the bad time and i get electric shocks deep inside my torso and burning heat sensations and some nights sweats.I have had this for almost a year now and find that stress and thinking about the pain DO make it worse. Swimming and stretching help a lot, read as much as you can about the condition it is a comfort to find others with the same prob- i thought i had something real serious like cancer at first- the pain was so engulfing but i am learning to manage it now-a bit better not so panicky.i promise you are not alone there is a lot of us out there good luck hope this helps.

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  • Guest - COLIN FOWLER

    HELLO LINDA, IF I TELL YOU THAT IN NINE YEARS OF BEING REGARDED AS ONE OF THE SEVEN MOST SEVERE CASES OF NEUROPATHIC PAIN IN THE UK, I HAVE NEVER UNTIL THIS VERY MINUTE HAD ANY DIALOGUE WITH ANOTHER SINGLE SUFFERER, WOULD THAT SURPRISE YOU? IT'S THE TRUTH. I HAVE THE PAIN AROUND MY PROSTATE, WHICH DEFERS TO THE WHOLE AREA, I HAVE BECOME REMARKABLY TOLERENT TO MY MEDS, MAINLY OXYCONTIN, I TAKE ELEVEN DIFFERENT DRUGS, OXY AT MORE THAN THE MAXIMUM PRESCRIBABLE DOSE, ABOUT 600MG A DAY. THIS HAS CAUSED ME TO HAVE 3 LAPEROTOMYS IN 3 YEARS, BUT I HAVE FOUND ONE DRUG TO BE IMMENSLY HELPFUL, AND IT ISN'T EVEN A PAIN DRUG, ZOPICLONE, BUT MOST PECULIARLY ONLY THE "ZIMOVANE" BRAND, WHICH IS BAFFLING, BUT IT REALLY MAXIMISES THE PAIN RELIEF. YOU MUST TRY THIS, EXACTLY THIS, IT WILL HELP. TAKE IT IN COMBINATION WITH YOUR OTHER MEDS. THERE ISN'T ENOUGH SPACE HERE TO SAY EVERYTHING, SO I WILL DO SOMETHING UNUSUAL, I WILL WRITE MY EMAIL ADDRESS SO THAT ANY OTHER SUFFERER OF THIS BITCHING ILLNESS CAN WRITE TO ME: devastation.angel@googlemail.com. (THIS IS AN ARTIST NAME) I HAVE MUCH TO SHARE AND HOPEFULLY TO LEARN ALSO BECAUSE TO BE PERFECTLY HONEST, I AM NOW ANTICIPATING A VERY EARLY DEATH, I'VE HAD NO PROGRESS IN NINE YEARS, HALF OF THE "DOCTORS" WHO I'VE SEEN SIMPLY DON'T APPEAR TO CARE ENOUGH TO DO ANYTHING. I DEVELOPED NEUROPATHIC PAIN DISORDER BY THE WILLFUL, EVEN HATEFUL NEGLIGENCE OF A CONSULTANT UROLOGIST, MR IAN CARTLEDGE AT ST JAMES' HOSPITAL LEEDS, ENGLAND, FOR THE CRIME OF HAVING QUESTIONED HIS DIAGNOSIS, I WAS IN AGONY, I PRAYED FOR DEATH, HE GAVE ME A NUISANCE TAG ON THE HOSPITAL COMPUTER SYSTEM WHICH READ: "IF THIS MAN TURNS UP AT A&E ASKING FOR PAIN RELIEF HE IS TO BE GIVEN NOTHING MORE THAN A VOLTOROL INJECTION AND IS TO BE SENT HOME IMMEDIATELY". ONE NIGHT I ATTENDED AND BEGGED FOR HELP, HE WAS THE UROLOGIST ON CALL, WHEN HE FOUND OUT IT WAS ME HE DIDN'T EVEN BOTHER TO COME OUT TO SEE ME, HE LEFT ME TO NOT SLEEP ON A HOSPITAL TROLLEY ALL NIGHT, AND WHEN HE CAME TO SEE ME IN THE MORNING HE ACTUALLY ABUSED ME BY STABBING HIS MIDDLE FINGER WITH ALL HIS MIGHT, INTO MY PROSTATE WHILST "EXAMINING" IT, IT FELT LIKE FRESH CIGARRETTE BURNS BEFORE THIS, OF COURSE I YELPED LIKE A DOG, AND TURNED AROUND IN A FLASH TO FACE HIM AND SAW A LOOK OF EXHILIRATED HATRED IN HIS EYES, I ACCUSED HIM FIVE MINUTES LATER, HAVING STOPPED CRYING, IN FRONT OF MANY OTHER DOCTORS, NURSES AND PATIENTS AND HE DIDN'T EVEN BOTHER TO DENY IT, HE JUST STOOD THERE BRIGHT RED IN THE FACE, ABSOLUTELY SILENT, BUT NOTHING WAS DONE, THIS HAD HAPPENED AT THE END OF THREE YRS IN BUILDING COLLEGE, I QUALIFIED AS A PLUMBER AFTER COMPLETING MY FINAL ASSESSMENT IN A STATE OF PURE AGONY, I NEVER DID A SINGLE WEEK'S WORK AS A PLUMBER, MY LOST EARNINGS ARE APPROXIMATELY £700,000 AFTER ALMOST TEN YRS OF NOT BEING ABLE TO WORK. I CANNOT SIT IN A CHAIR, I CAN'T HAVE A RELATIONSHIP, YOU'VE PROBABLY FOUND THAT MOST OF YOUR FRIENDS DESERT YOU, MINE DID, I HAVE NOBODY, AND AM NOW AT A DESPERATE STATE ONCE AGAIN, I REALLY DON'T KNOW WHAT I'M GOING TO DO, AND I'M GETTING WEARY OF THE STRUGGLE. I'M A COMPOSER AND PRODUCER, I HAVE A NICE LITTLE STUDIO WHICH IS BASICALLY MY LIVING ROOM, AND THIS IS MY REASON FOR LIVING, MY LEGACY IS ALMOST COMPLETE NOW. I DO KNOW A GREAT DEAL ABOUT THIS DISEASE, AND HOW TO MEDICATE IT THOUGH. ANY ONE OF YOU IS WELCOME TO EMAIL ME.MY NAME IS COLIN.

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  • is gabitril safe to take if you dont ever get seizures

    Like 0 Short URL:
  • Hi Howard.

    If you overdose on gabitril, yes you may develop seizures and related symptoms. However milder side effects are likely to be sedation and confusion which would be considered the opposite of a seizure. In recommended doses gabitril appears to be very safe however and does not have the potential for addiction like benzodiazepines (e.g. valium) which are often used in similar circumstances.

    You emailed mentioning that you use gabitril for sleep and restless legs syndrome (RLS). Gabitril works by enhancing the activity of the body's major INHIBITORY neurotransmitter - GABA. It is actually thought to work Like the antidepressant SSRI medications such as Prozac but on GABA instead of serotonin. In very simple terms more serotonin makes depressed people happier while more GABA is calming and hence reduces seizures.

    While gabitril is officially prescribed for partial seizures it is used by many people for sleep problems and RLS as you do. You may be interested in these links:

    [url]http://www.rxlist.com/gabitril-drug.htm[/url]

    [url]http://www.revolutionhealth.com/drugs-treatments/rating/gabitril-for-insomnia[/url]

    Like 0 Short URL:
  • Guest - Folole 'Aholelei

    Please help me for I take hypretension drugs for the last few wks,but I still have this symptoms:head-ache/vertigo/dizzyness/ringing ears/back-pain//shoulder pain with some others.
    I will wait for your help please. Flo. :)

    Like 0 Short URL:
  • Guest - I J Jani

    Sir,
    After undergoing spinal surgery in June 2008, I developed severe pain in the big toe and fingers of my right foot.Almost two years have passed and yet there is no improvement at all. I consulted number of neuro surgeons / physicians, however, there is no improvement. There is constant pain in the toe and fingers for 24 hours. The nerves stretch causing lot of pain and burning . Nights are horrible as I dont get sleep due to this problem. Cab anyone suggest a remedy / an expert doctor who can solve my problem.I am based in Bharuch, Gujarat My EMAIL is: ijjani@gnfc.in

    Like 0 Short URL:
  • Guest - manish

    I know of a physiotherapist who has treatment for neuropathic nerve which leads to burning and excruciating pain in limbs, back and thighs. he is punjab based if interested i can provide his tel. no.

    Like 0 Short URL:
  • Guest - Ty

    despite what this article says - no one cares about the tons of people burning and being electrocuted by their own bodies. Easily treatable? BS!


    From Big Jolts in Van BC

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Comments (13)Add Comment
0
...
written by June Russell , August 02, 2008
Since you have written your books and website, are there any newer pain medications that would help with the pain when it gets so severe. I have tried many and they either don't help or have too many side effects. If they don't seem to help could the dose be doubled? It seems to me physicians are too reluctant to treat the pain enough to cause a level of comfort. For example: How about Tramadol - (50 mg.) one not effective. Can I try 2?
June Russell - russells@embarqmail.com
434-974-6595
www.jrussellshealth.org
*I am working with many healing modalities,family physician & Nutritionist, homeopathy, massage, healers, etc. None seem as knowledgeable as you, and I keep referring to your books! I am glad you are out there with books, a website, e-mail, etc. so we can bring issues to out care-givers that may help.

0
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written by FAITH AIELLO, February 22, 2009
I HAVE NEUROPATHIC NERVE BURNING AND PYSCHOGENIC TREMORS I NEED HELP AND DON'T GET NO WHERE. I HAVE SEEN SO MANY NEUROGOLISTS AND I AM JUST RECOMMENDED TO PYSCH DR FOR TREATMENT. I LIVE ONE DAY NOT KNOWING IF I GOING TO BURN ALL DAY OR HAVE TREMORS FROM ONE DAY TO THE NEXT PLEASE HELP IF YOU CAN
FAITH AIELLO
0
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written by Linda Roberts, June 23, 2009
I have just been diagnosed with neruothic pain. This blogg has been so helpful and I certainly don't feel alone in my pain. Please, someone tell me. . . do you have burning heat senations with pain? Does it wake you at night? What about sweats. . . . i find myself sleeping with a towel just to wipe down the areas that mike make you comfortable. I slept with a full towel last night. Help me to feel like I'm not going crazy and I appreciate all of the support. Help me, please. Help me. Others may vary and look at other sites and I am appreciative of that as well.All I want right now is a solid nights' sleep.


0
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written by Linda Roberts, June 23, 2009
Someone please help, even a short comment would help.
Maff
...
written by Matthew Hogg, June 23, 2009
Hi Linda, I know it's hard when you are suffering but please be patient. This site does not focus on neuropathic pain so it may take time for someone who can help you to reply. Perhaps you could search for specific neuropathic pain support sites in the meantime...
0
...
written by carole Ranken, September 10, 2009
Hello Linda
I have just read your notes on your neuropathic pain and really feel for you. I too suffer very badly since having had a hernia op last year im left with awful neuropathic pain.Thought i was going mad. night time is always the bad time and i get electric shocks deep inside my torso and burning heat sensations and some nights sweats.I have had this for almost a year now and find that stress and thinking about the pain DO make it worse. Swimming and stretching help a lot, read as much as you can about the condition it is a comfort to find others with the same prob- i thought i had something real serious like cancer at first- the pain was so engulfing but i am learning to manage it now-a bit better not so panicky.i promise you are not alone there is a lot of us out there good luck hope this helps.
0
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written by COLIN FOWLER, September 28, 2009
HELLO LINDA, IF I TELL YOU THAT IN NINE YEARS OF BEING REGARDED AS ONE OF THE SEVEN MOST SEVERE CASES OF NEUROPATHIC PAIN IN THE UK, I HAVE NEVER UNTIL THIS VERY MINUTE HAD ANY DIALOGUE WITH ANOTHER SINGLE SUFFERER, WOULD THAT SURPRISE YOU? IT'S THE TRUTH. I HAVE THE PAIN AROUND MY PROSTATE, WHICH DEFERS TO THE WHOLE AREA, I HAVE BECOME REMARKABLY TOLERENT TO MY MEDS, MAINLY OXYCONTIN, I TAKE ELEVEN DIFFERENT DRUGS, OXY AT MORE THAN THE MAXIMUM PRESCRIBABLE DOSE, ABOUT 600MG A DAY. THIS HAS CAUSED ME TO HAVE 3 LAPEROTOMYS IN 3 YEARS, BUT I HAVE FOUND ONE DRUG TO BE IMMENSLY HELPFUL, AND IT ISN'T EVEN A PAIN DRUG, ZOPICLONE, BUT MOST PECULIARLY ONLY THE "ZIMOVANE" BRAND, WHICH IS BAFFLING, BUT IT REALLY MAXIMISES THE PAIN RELIEF. YOU MUST TRY THIS, EXACTLY THIS, IT WILL HELP. TAKE IT IN COMBINATION WITH YOUR OTHER MEDS. THERE ISN'T ENOUGH SPACE HERE TO SAY EVERYTHING, SO I WILL DO SOMETHING UNUSUAL, I WILL WRITE MY EMAIL ADDRESS SO THAT ANY OTHER SUFFERER OF THIS BITCHING ILLNESS CAN WRITE TO ME: devastation.angel@googlemail.com. (THIS IS AN ARTIST NAME) I HAVE MUCH TO SHARE AND HOPEFULLY TO LEARN ALSO BECAUSE TO BE PERFECTLY HONEST, I AM NOW ANTICIPATING A VERY EARLY DEATH, I'VE HAD NO PROGRESS IN NINE YEARS, HALF OF THE "DOCTORS" WHO I'VE SEEN SIMPLY DON'T APPEAR TO CARE ENOUGH TO DO ANYTHING. I DEVELOPED NEUROPATHIC PAIN DISORDER BY THE WILLFUL, EVEN HATEFUL NEGLIGENCE OF A CONSULTANT UROLOGIST, MR IAN CARTLEDGE AT ST JAMES' HOSPITAL LEEDS, ENGLAND, FOR THE CRIME OF HAVING QUESTIONED HIS DIAGNOSIS, I WAS IN AGONY, I PRAYED FOR DEATH, HE GAVE ME A NUISANCE TAG ON THE HOSPITAL COMPUTER SYSTEM WHICH READ: "IF THIS MAN TURNS UP AT A&E ASKING FOR PAIN RELIEF HE IS TO BE GIVEN NOTHING MORE THAN A VOLTOROL INJECTION AND IS TO BE SENT HOME IMMEDIATELY". ONE NIGHT I ATTENDED AND BEGGED FOR HELP, HE WAS THE UROLOGIST ON CALL, WHEN HE FOUND OUT IT WAS ME HE DIDN'T EVEN BOTHER TO COME OUT TO SEE ME, HE LEFT ME TO NOT SLEEP ON A HOSPITAL TROLLEY ALL NIGHT, AND WHEN HE CAME TO SEE ME IN THE MORNING HE ACTUALLY ABUSED ME BY STABBING HIS MIDDLE FINGER WITH ALL HIS MIGHT, INTO MY PROSTATE WHILST "EXAMINING" IT, IT FELT LIKE FRESH CIGARRETTE BURNS BEFORE THIS, OF COURSE I YELPED LIKE A DOG, AND TURNED AROUND IN A FLASH TO FACE HIM AND SAW A LOOK OF EXHILIRATED HATRED IN HIS EYES, I ACCUSED HIM FIVE MINUTES LATER, HAVING STOPPED CRYING, IN FRONT OF MANY OTHER DOCTORS, NURSES AND PATIENTS AND HE DIDN'T EVEN BOTHER TO DENY IT, HE JUST STOOD THERE BRIGHT RED IN THE FACE, ABSOLUTELY SILENT, BUT NOTHING WAS DONE, THIS HAD HAPPENED AT THE END OF THREE YRS IN BUILDING COLLEGE, I QUALIFIED AS A PLUMBER AFTER COMPLETING MY FINAL ASSESSMENT IN A STATE OF PURE AGONY, I NEVER DID A SINGLE WEEK'S WORK AS A PLUMBER, MY LOST EARNINGS ARE APPROXIMATELY £700,000 AFTER ALMOST TEN YRS OF NOT BEING ABLE TO WORK. I CANNOT SIT IN A CHAIR, I CAN'T HAVE A RELATIONSHIP, YOU'VE PROBABLY FOUND THAT MOST OF YOUR FRIENDS DESERT YOU, MINE DID, I HAVE NOBODY, AND AM NOW AT A DESPERATE STATE ONCE AGAIN, I REALLY DON'T KNOW WHAT I'M GOING TO DO, AND I'M GETTING WEARY OF THE STRUGGLE. I'M A COMPOSER AND PRODUCER, I HAVE A NICE LITTLE STUDIO WHICH IS BASICALLY MY LIVING ROOM, AND THIS IS MY REASON FOR LIVING, MY LEGACY IS ALMOST COMPLETE NOW. I DO KNOW A GREAT DEAL ABOUT THIS DISEASE, AND HOW TO MEDICATE IT THOUGH. ANY ONE OF YOU IS WELCOME TO EMAIL ME.MY NAME IS COLIN.
howard
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written by howard rockitter, December 06, 2009
is gabitril safe to take if you dont ever get seizures
Maff
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written by Matthew Hogg, December 07, 2009
Hi Howard.

If you overdose on gabitril, yes you may develop seizures and related symptoms. However milder side effects are likely to be sedation and confusion which would be considered the opposite of a seizure. In recommended doses gabitril appears to be very safe however and does not have the potential for addiction like benzodiazepines (e.g. valium) which are often used in similar circumstances.

You emailed mentioning that you use gabitril for sleep and restless legs syndrome (RLS). Gabitril works by enhancing the activity of the body's major INHIBITORY neurotransmitter - GABA. It is actually thought to work Like the antidepressant SSRI medications such as Prozac but on GABA instead of serotonin. In very simple terms more serotonin makes depressed people happier while more GABA is calming and hence reduces seizures.

While gabitril is officially prescribed for partial seizures it is used by many people for sleep problems and RLS as you do. You may be interested in these links:

http://www.rxlist.com/gabitril-drug.htm

http://www.revolutionhealth.co...r-insomnia

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written by Folole 'Aholelei, March 04, 2010
Please help me for I take hypretension drugs for the last few wks,but I still have this symptoms:head-ache/vertigo/dizzyness/ringing ears/back-pain//shoulder pain with some others.
I will wait for your help please. Flo. smilies/smiley.gif
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written by I J Jani, March 24, 2010
Sir,
After undergoing spinal surgery in June 2008, I developed severe pain in the big toe and fingers of my right foot.Almost two years have passed and yet there is no improvement at all. I consulted number of neuro surgeons / physicians, however, there is no improvement. There is constant pain in the toe and fingers for 24 hours. The nerves stretch causing lot of pain and burning . Nights are horrible as I dont get sleep due to this problem. Cab anyone suggest a remedy / an expert doctor who can solve my problem.I am based in Bharuch, Gujarat My EMAIL is: ijjani@gnfc.in
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written by manish, June 03, 2010
I know of a physiotherapist who has treatment for neuropathic nerve which leads to burning and excruciating pain in limbs, back and thighs. he is punjab based if interested i can provide his tel. no.
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written by Ty, August 19, 2012
despite what this article says - no one cares about the tons of people burning and being electrocuted by their own bodies. Easily treatable? BS!


From Big Jolts in Van BC


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Last Updated on Wednesday, 02 March 2011 18:40
 

 

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