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TOPIC: To Maff - SCNM and all

To Maff - SCNM and all 9 years 1 week ago #1

  • Dechen
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Hi Maff,

Sorry I don't come here often - not being sick anymore... Am also super busy, a good sign, means I have tons of energy.

So I will try to reply to your two posts adressed to me in one.

First of all, sorry I didn't mean to antagonize you or compete in sickness when I said I was sicker than you. It was just to emphasize the fact that the SCNM doctors have brought me back from the brinks of death - and also I was not functional, not able to work, etc. And the fact is, had I not come here, I would be dead - not chronically ill, but dead or almost dead. Also, sorry again, I didn't mean to hurt your feelings when I said no need to suffer needlessly. Of course, all sufferings can help to grow and learn. I just meant there is a solution out there.

The only thing more I can say about SCNM is that - they will get to the bottom of your problems and they will sort you out. Am sure of that 100%. My resident doctor once told me \"No one doesn't get better here\". And at the time, I felt a little better, but I thought, \"We shall see\". Now I do believe him. I never thought myself I could get sooo much better; I was so far gone, I thought I would always be more or less sickly and I couldn't hope for much.

These doctors are so caring, so loving, listen I get hugs from the doctors. I think they are taught to show affection and caring as it is a part of the healing process. You will be simply amazed. People in Arizona are really friendly and warm. A very different experience from the Northern countries.

I had forgotten - you do have a very precise diagnosis. I am very surprised however that you seemed to have stumped very excellent specialists. But the fact is, at SCNM, you get a team on your case. When you go for the student shifts, of course, you have two students on your case. Then you can consult more than one doctor - they have different specialities. At one point, I had three. When the appointments (on student shifts) are 35$, you can afford to do that. One student had to review my whole file!!! (poor guy) and present it at a kind of group consultation. I wonder what they said.

You just have to chose one doctor from the list of specialists on the website.

But they say I made the most progress in the shortest time. Of course, I participated and worked hard - with coffee enema, drinking loads of water, doing chigong.

I think they will establish a diagnosis for themselves there; so initially you would have more costs from testing. But I think heavy metal detox is one of the fundamentals of naturopathic treatments here in Arizona. It benefits everyone! So they may not address your dysbiosis directly.

In any case, I am sure that in three months treatment there, you'd see enough progress to be encouraged to continue. Maybe you could get in contact with some doctors there see how they can orient you.

Finding a room here also is the easiest thing, with the American economy down, lots of people are looking to share - check out Craigslist.com. (equivalent to Gumtree); the clinic will be moving to Tempe - a university town and loads of offers for shares. I myself may even be looking for a roommate as I may rent a two bedroom flat next month. In Tempe, there are cheap shares.

You did the Tijuana trip; it was a daring move. For myself, I knew I needed more than three weeks stint. So this was really the right decision. And it comes to cheaper.

I do hope you would come. I am sure you won't regret it. If I had money, I would even bet you a refund of your treatments, am so sure!

Actually I hope these dialogues of ours are helpful for people in general. But if you need, I'll send you my email adress. That may be easier. Jump I say.
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Re:To Maff - SCNM and all 9 years 1 week ago #2

  • Dechen
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By the way, I can ask around at the clinic what kind of treatment plan they would have for you; it may be multifaceted.

I don't know all doctors, I know some of them are specialized in gastro-intestinal ailments, others in environmental medicine, others in mind-body medicine, etc.

So your diagnosis is fungal and bacterial dysbiosis; chronic fatigue. What else?
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Re:To Maff - SCNM and all 9 years 1 week ago #3

  • Maff
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Hi Dechen,

Thanks for your detailed and enthusiastic response! No need to apologise for being busy because you're feeling better and enjoying your new found energy - I am delighted for you :)

Also, don't feel you upset me with your previous messages. I mainly gave the reply I did for the benefit of everyone who visits as comparing how severely ill we are doesn't really do anyone any good. I know it wasn't your intention to start a competition though!

SCNM does sound like it may be the right place to go at some point. At the moment it is difficult with my university studies and the clinical training to become a nutritionist that I will be commencing this autumn. My current plan is to explore the best options in the UK and if that fails to help me much then I would definitely be ready to give SCNM a try. To this point my main problem in getting the appropriate testing and treatment has been financial. I have therefore had to do things the hard way and build this website and train as a nutritionist so I can not only help others but also have the finances to help myself...

The doctors, students and general way things work at SCNM sounds brilliant! I would love to experience it in a professional capacity as well as being a patient. I'm sure I would learn a lot there that I could use with my own future patients.

I am coming round to thinking that attacking my fungal dysbiosis problem diretly is going to be impossible so trying to stimulate my own immune response by detoxing heavy metals and other pollutants could be a key step. I am going to have the heavy metal provocation testing done here in the UK in the autumn hopefully.

I have stumped the doctors I have seen because the fungal dysbiosis is now central to my continuing illness and symptoms but I cannot tolerate any of the usual methods of treatment. I have so far however only seen individual doctors which is why SCNM does make a great deal of sense - I need a lot of heads working together to figure something out ;)

It would be great if you could talk to your doctors about me. Basically I was diagnosed with CFS aged 12 following recurrent viral infection, a couple of years later it is now obvious that gut dysbiosis (both fungal and bacterial - SIBO) became a major issue and this was diagnosed later. Around the same time I developed hayfever which I previously hadn't had and signs of food sensitivities, particularly to gluten and dairy. Again lab evidence of this came later. At age 16 I developed adrenal fatigue and mood disorders - depression, anxiety, insomnia, SAD etc. My school performance also dropped from top flight student to mediocre. At 19 - 22 I was bedridden until I developed MCS which forced me to live alone and I became slightly more functional for the sole reason that I was more stressed and living on adrenaline - which is how things have been since. Luckily I have managed to overcome MCS but all other issues still remain.

Sorry, that got a bit lengthy. I didn't mean to write an autobiography but the more information doctors have the more they can do ;)

Thanks again and have a great week. I look forward to your next visit to the site when you are not out enjoying yourself and getting on with life :)<br /><br />Post edited by: Maff, at: 2010/06/08 14:33
If you are going through hell, keep going - Winston Churchill
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Re:To Maff - SCNM and all 8 years 11 months ago #4

  • Dechen
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Hi Maff,

Don't despair, I haven't forgotten you and have spoken to my doctor about you; the answers were very clear.

Simply, I've been insanely busy and stressed out - moving out of Phoenix, selling my scooter, getting another one, etc...

So in a couple days, when I get again internet, I'll get back to you...

Love,
Dechen
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Re:To Maff - SCNM and all 8 years 11 months ago #5

  • Maff
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Hey Dechen,

Thanks for taking the time to leave me a quick message and thank you for discussing my issues with your doctors.

It sounds like you're very busy at the moment! I hope everything works out and the stress doesn't set you back with your progress towards good health.

I have just finally completed my degree so am heading to Turkey for a well deserved holiday/vacation on Tuesday. I'll be away for 2 weeks but will be checking up on the site from internet cafes so if you leave another message you can be sure I will read it even if I don't get the time to reply for a little while.

Thanks again and take care,

Maff
If you are going through hell, keep going - Winston Churchill
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Re:To Maff - SCNM and all 8 years 11 months ago #6

  • Sammy
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Hey Maff Dechen ;)

I am so glad to hear your feeling better Dechen :thumpsup:

Havent been here for while, dealing with a few things atm

Take care guys,

Sammy
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