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TOPIC: I need someone's help

Re: I need someone's help 8 years 7 months ago #7

  • Maff
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Hi Trish,

As Empowering Organics suggests it is best if you could see a naturopath or maybe a nutritionist who practices privately and works based on the principles of functional medicine. I believe in the US the nest type of nutritionist to see is one who has the CCN qualification. Any nutritionist your regular doctor refers you to is likely to read from the same script as the doctor and be unlikely to get to the bottom of your problems.

I know it is easy to suggest this but not easy to do when you are living on disability. If there is any way you can see someone like this however I think it would be worth it.

For the time being the easiest and cheapest thing that I would do personally is cut out the chocolate, toast and any other high sugar/starch foods for a week and see if my symptoms improve. They should respond quickly to a low carb diet like this if bacterial overgrowth is the major cause.

Empowering Organics' suggestion to remember to relax and breathe deeply is also a good one, particularly at meal times, as this helps to ensure foods are digested properly and don't pass through the digestive system too quickly before they can be absorbed. Poor digestion and rapid transit of foods due to stress and anxiety can contribute to bacterial overgroth as they are happy to feed on the partially digested food coming their way!

I don't have any experience with serrapeptase or In-Liven, sorry.
If you are going through hell, keep going - Winston Churchill
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Re: I need someone's help 8 years 7 months ago #8

Hi Maff,
I woke up this morning with terrible chest pressure. I think the Tramadol is causing because I can feel my digestive system really slowing. I know it isn't good for my GP. So I am going to buy Iberogast. It is an herb that helps the stomach move. It is completely safe and alot of people have had success with it.

I am going to start making almond flour recipies. Bread, baked goods ect ... It has very low carbs and no sugar. And eating protien foods. I hope this will help. Alot of these things are on scd diet so I hope it helps. I also found out that peppermint capsules help get rid of the overgrowth. Also, these herbs help with pain, so Ive got nothing to lose I figure. I can't stand taking reglan. It does horrible things to me. For one, it worsens my depression and makes me want to kill myself. So no more of that. Dont worry. I wont. I stopped taking it.
I don't have a neuropathic specialist in my area. The closest one is 2 hours away. So that is out.
I will try these herbs and see if they help and also the diet.
Thanks again for helping me
Take care
Trish
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Re: I need someone's help 8 years 7 months ago #9

  • live42day
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I have had similar health problems. My GI doctory recently recommended Culturelle for 1 month after 10 days on an antibiotic. Apparently Culturelle and Align are pretty good. In the past, I struggled to know what probiotic to use because there are so many brands out there and they are not all created equal! I agree with Maff-taking the antibiotic and probiotics at the same time could just be killing the good bacteria in the probiotics which could explain why you aren't feeling any better.

A few months ago I went to a CCN nutritionist and she recommended I try a Candida diet (low carb) along with a probiotic that must be kept refrigerate (pharmacist gave me VSL #3 brand: High-potency probiotic with 450 billion live bacteria per packet). I only took 1/2 packet per day, but ended up feeling awful (intestines felt extremely crampy, back pain). Looking back, now that I have been diagnosed with a bowel bacterial overgrowth this makes sense (if I already had too many bacteria, adding more was quite upsetting to my GI tract). Would love to keep this conversation going and hear from others who struggle with yeast/bacterial imbalances/IBS/GI symptoms.
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Re: I need someone's help 8 years 7 months ago #10

Hi Live42day,
Did you cure yours? I am just wondering because I am still in pain. Wondering how you got rid of the pain. I am trying a low carb diet now. With no sugar. I found out the only sugar that dosent feed the bacteria/yeast is stevia. So that is what I am using. Also baking with it. I just hope it works and the pain goes away. I am not on the antibiotics anymore. I found that does more damage so I quit. I am still taking the culturelle and it works pretty good, but not for the pain. I guess I must have tons of bad bacteria inside me.
Where do you live? I am in Iowa in the US. Right now, I am taking Tramadol for the pain, but it is causing horrible chest pressure so I pray that pain goes away soon so I can get off of them.
If you have found relief from pain, please let me know.
Thanks for replying!
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Re: I need someone's help 8 years 7 months ago #11

  • Maff
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It sounds like you are taking some great steps to help yourself now Trish. Baking with almond flour and adding stevia (if you have sweet tooth!) are a great idea. I used to love sweet foods but having maintained a low carb/anti-Candida diet for the past 10 years or so I can honestly say I am not interested in them any more. I think our taste buds adapt to what they are used to. Peppermint in any form (raw plant, tea, supplements) is great for gut issues as like you say it helps with dysbiosis and also relieves gas and soothes the mucosal lining of the gut. I hope these things bring you some quick relief!

Please don't be too hasty with quitting the antibiotics as they are a double-edged sword. Used without caution they can disturb the balance of bacteria in the gut..but ironically they are often needed, in combination with probiotic therapy, to cure this same problem. As with the Tramadol, you should really sit down and discuss this with your doctors.

live42day - Great to see you in the forums. I agree completely with Align and Culturelle. I graduated from a bachelors degree course in nutritional medicine last year and my dissertation/major project was a literature review looking at the effectiveness of various probiotic products in IBS. Without a doubt Align has the best scientific data to back it up. Culturelle and VSL#3 also do well but interestingly I do remember side-effects like those you describe cropping up with VSL#3 a fair bit. It may be due to the fact that this product contains such high numbers of bacteria (450 billion per dose) or because it is a combination product containing many different bacterial strains.

I think it's worth mentioning that Align is product of Proctor & Gamble which is obviously a huge company with vast resources available for funding studies. It may be that other probiotics are just as good but their manufacturers can't afford the studies that validate their effectiveness and give their products scientific credibility.

My own story is that I was diagnosed with CFS aged 12 and am now almost 32. I developed significant problems with gut dysbiosis (both fungal/Candida and bacterial) in my teens and this has been the main driver of my illness since. I ignored my symptoms until I was bedridden, eating junk, drinking, doing what teenagers generally do (at least in the UK) - so really got myself into a deep hole. The low carb diet has really kept symptoms as low as possible by starving the bugs of what they need to produce toxic fermentation products such as alcohols and aldehydes but I have been unable to treat the dysbiosis properly as both antifungals (of any kind) and probiotics cause unbearable symptoms of depression, anxiety, irritablility, mood swings, restlessness etc. I am now considering treatment at The Probiotic Therapy Research Centre in Sydney Australia. The centre performs human probiotic infusions (HPI), during which your gut is sterilised using antibiotic therapy and then faecal material from human donors is introduced to the small intestine (via feeding tube) and the colon (using enemas). Sounds gross but it makes sense that bacteria from healthy human faeces are far more likely to have a beneficial effect than any probiotic supplement. I absolutely believe that people can get better using probiotic supplements, antibiotics/antimicrobial herbs and diet but wanted to share another option with you guys should you have exhausted all other options.
If you are going through hell, keep going - Winston Churchill
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Re: I need someone's help 8 years 7 months ago #12

  • tawnya555
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Hi There!

I am going throughthe same thing right now and about to start healing myself in 3 days. I was diagnosed with MCS, only to find out I have LeakyGut Syndrome???? And the side affects are depression, anxiety, MCS, muscle aches/pains, headaches, abdominal pain, rashes etc. I can't believe I was so stupid and wasted over a year of my life in isolation. Now I'm hoping that it really is leaky gut and that supplements and following a low feermentation protocol will help :). I know this first hand because I have started the diet (well not really a diet, but changing some of the things you eat). You have to eliminate sugar if you are taking an anti yeast/fungal medication. I won't go into the details of the rest of it unless you want to know more.

It sucks feeling lousy every minute of every day, but with L-Glutamine powder, really really good probiotics, and will power (I say wil power because I loooooove sweets), you might begin to feel better. If you need more info or someone to chat with, I'm here

Hoping for Health

Tawnya

p.s. Maff., if you see this....you ROCK. I don't visit the site often (more of a Facebook gal) but your dedication and compassion to strangers around the world amazes me!
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