The Environmental Illness Resource Forums :: Topics in Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (M.E.) (1/2)

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Topics in Category: Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (M.E.)

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CFS Support in Norway Topic started by Dominic1 1 week 6 days ago

Replies: 1 Views: 71

by Jodie
1 week 5 days ago
- Topic started by Dominic1 1 week 6 days ago
  
  I have a good friend living in Norway who has been a CFS sufferer for the past 10 years ....and I'm wondering if anybody has any information on CFS support groups / clinics in the Oslo area. Or of any upcoming CFS conferences in Norway ?
- Last reply by Jodie 1 week 5 days ago
  
  Hi Dominic, If you google 'support group for CFS Norway' there seems to be quite a lot of info. Failing that I think Julie Genser at planetthrive.com was trying to get a list of international support groups together. Jodie
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Ireland: 4 ME talks by Dr Ros Vallings in May 2013 Topic started by Tom 2 months 5 days ago

Replies: 1 Views: 204

by Maff
2 months 3 days ago
- Topic started by Tom 2 months 5 days ago
  
  (Hope this is ok to post. Please delete if not. I couldn't see any rules on a quick search) The Irish ME/CFS Association is pleased to announce the following four talks by Dr. Ros Vallings from New Zealand as part of its ME Awareness Month activities in May (2013). A profile of Dr. Vallings is at...
- Last reply by Maff 2 months 3 days ago
  
  Hi Tom, Thank you for posting this information - it's not a problem at all. The opposite in fact! I'm sure it will be very useful for many visitors to the site. Anyone with ME who is able would benefit greatly from hearing Dr. Vallings speak. Thanks again Tom!
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Cort Johnson's interview of me on research on CBT Topic started by Tom 3 months 4 weeks ago

Replies: 0 Views: 339

by Tom
3 months 4 weeks ago
- Topic started by Tom 3 months 4 weeks ago
  
  Cort Johnson interviewed me following the publication of my paper, "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". If the title of the paper doesn't interview you, you might not find this of...
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GcMAF or Helminthic Therapy for ME and CFS Topic started by Maff 4 months 4 weeks ago

Replies: 4 Views: 1329

by Maff
4 months 3 weeks ago
- Topic started by Maff 4 months 4 weeks ago
  
  Hi all, I have rather been stagnating in my recovery attempts over the past 18 months after trying fecal transplants without any success (thankfully no side-effects either!). A little bit of backgorund - I have suffered from M.E./Chronic Fatigue Syndrome for 22 years having been diagnosed on my...
- Last reply by Maff 4 months 3 weeks ago
  
  Nobody could explain my Th1/Th2 ratio extrapolated from various cytokine levels either Jodie. My NK function being high doesn't fit with theories of chronic fatigue syndrome either as it is always suggested to be lower than normal in patients! The link talks about single nucleotide polymorphisms...
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Best way to raise glutathione ?
Topic started by mersan 3 years 8 months ago
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Replies: 15 Views: 16.3k

by Maff
9 months 3 days ago
- Topic started by mersan 3 years 8 months ago
  
  Best way to raise glutathione ? Hi all, I read about Matt using tribulus and was intrigued by that. I found this which shows pycnogenol raised glutathione significantly within 1 monht www.ncbi.nlm.nih.gov/pubmed/16984739 Sounds wonderful ! So, I'm going to try that as I couldn't find...
- Last reply by Maff 9 months 3 days ago
  
  Yes, Co-Q-10 is a good "all rounder" and is itself an antioxidant. The addition of other antioxidants will generally have a sparing effect on reduced glutathione in the body. Of course Q10 is also vital for mitochondrial metabolism and anything that helps these cellular powerhouses run more...
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Harms Associated with GET and CBT in ME/CFS -pape Topic started by Tom 1 year 2 months ago

Replies: 2 Views: 6417

by traceys
1 year 1 month ago
- Topic started by Tom 1 year 2 months ago
  
  This is from a peer-reviewed journal. Free full text at: iacfsme.org/LinkClick.aspx?fileticket=Rd...1&forcedownload=true Quote: Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
- Last reply by traceys 1 year 1 month ago
  
  I am on waiting list for both these should I be worried because I was under the impression that these are the only treatments that have success for cfs.
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d-ribose and candida
Topic started by ocdfreak 3 years 9 months ago
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Replies: 10 Views: 12.7k

by Maff
1 year 5 months ago
- Topic started by ocdfreak 3 years 9 months ago
  
  i have cfs which has been caused by 10 years of systemic candida. i ordered some d-ribose as its supposed to help with fatigue but i read ribose is a sugar. does anyone know if it will feeds the yeast?
- Last reply by Maff 1 year 5 months ago
  
  Thanks for posting this link CaptainInsano. Interesting reading if a little heavy on anecdotal reports. In humans d-ribose helps replenish ATP as it is absorbed and shunted into a metabolic pathway that accepts this pentose (5 carbon sugar) and uses it to directly produce new ATP...most is...
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Just diagnosed with CFS
Topic started by Mere 3 years 1 month ago
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Replies: 6 Views: 6058

by Maff
1 year 8 months ago
- Topic started by Mere 3 years 1 month ago
  
  My Dr. just diagosed me with CFS last month. Here's my history. I'm a 36yo female. Just about 2 years ago I started getting EXHAUSTED. I've always been in fairly good health but have struggled with depression for most of my life. I had never experienced the kind of exhaustion I was experiencing...
- Last reply by Maff 1 year 8 months ago
  
  Coincidentally I've just started publishing that series of articles in Dr. Teitelbaum's column on this site Bushi! Part 1 can be found here. Part 2 will be posted next Monday and part 3 the following week.
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Methylcobalamin -Vitamin B12 Topic started by Bushi 1 year 10 months ago

Replies: 5 Views: 15k

by Bushi
1 year 9 months ago
- Topic started by Bushi 1 year 10 months ago
  
  I don't have CFS but I have noticed in a few artciles that Methylcobalamin B12 is mentioned for CFS... just wondered if any of you had try this. It may be worth looking into if not. You can read the full article here: health101.org/art_methylcobalamin.htm "There's a buzz over B12 these...
- Last reply by Bushi 1 year 9 months ago
  
  Hi, I've been take B-12 in tablet form. I don't know if I have low levels of it but as I don't really digest food at all I thought my nervous system and 'B' levels may have been compromised over the years so I thought I'd take it for a couple of months. I bought my stash from Health Monthly UK
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Human Growth Hormone (IGF-1) Blood Test for CFS Topic started by TheStache 1 year 9 months ago

Replies: 3 Views: 6068

by Maff
1 year 9 months ago
- Topic started by TheStache 1 year 9 months ago
  
  After reading Dr. Teitelbaum's blurb on Growth Hormone in Fatigued to Fantastic, ordered a blood spot test through the Canary Club to see if this was a factor for me. According to Teitelbaum, those with CFS often test low for Growth Hormone, possibly due to a failure to get stage 3 and 4 sleep. A...
- Last reply by Maff 1 year 9 months ago
  
  I assume this is the test you had - IGF-1 Blood Spot Test (http://www.canaryclub.org/home-test-kits/single-hormone/human-growth-hormone.html). It says it's $75. Sounds like the combination of those supplements is really helping a lot. That sleep pattern is not bad at all considering your illness....
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What do you think about the drug Xyrem? Topic started by Pattys Mill 2 years 4 months ago

Replies: 3 Views: 21k

by Redo
2 years 1 week ago
- Topic started by Pattys Mill 2 years 4 months ago
  
  I was wondering if anyone with ME had tried Xyrem for sleep.
- Last reply by Redozipous 2 years 1 week ago
  
  As most probably know, Xyrem and GHB are the same. But that said, that doesn't mean that it's problematic. I don't think it is. I have only heard good things about Xyrem and sleep for PWCs. Narcoleptics take it as a medicine and are fine with that. I would do it if it was offered me (for insomnia).
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I'm almost better.... with Ashok Gupta's technique Topic started by LadyItchalot 2 years 5 months ago

Replies: 0 Views: 4033

by LadyItchalot
2 years 5 months ago
- Topic started by LadyItchalot 2 years 5 months ago
  
  Hi everyone, I just wanted to say that I have had marked improvement since doing the Gupta Amygdala Retraining, in both cfs and mcs. I'm probably up to 85% or better in cfs. I'm 100% in mcs improvements. I expect to be 100% in cfs by spring. For those of you who are interested, there is a support...
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Good CFS doctor near Richmond, VA Topic started by Tired4solong 2 years 8 months ago

Replies: 1 Views: 4865

by david
2 years 7 months ago
- Topic started by Tired4solong 2 years 8 months ago
  
  Does anyone know of a good Chronic Fatigue Syndrome doctor in the Richmond, VA area? What type of doctor should I even be going to?? I searched at this site and no one is close to me. Thank you! :)
- Last reply by david 2 years 7 months ago
  
  Hi there This is a UK based site so we may not be able to help you with a doctor local to you but there are a number of USA based facebook groups for CFS which you may have more luck with :)
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My Detox Profile from Genova Diagnostics - help! Topic started by BA88 3 years 2 months ago

Replies: 4 Views: 5863

by BA88
2 years 8 months ago
- Topic started by BA88 3 years 2 months ago
  
  Hi, Unfortunately I can't upload images of results; the pixels are too great and file size is too large. I have read a lot of Maff's stuff on Phase I and Phase II stuff. My phase I is over functioning. My environmental doc seems to think having a fast Phase I isn't a problem as long as none of the...
- Last reply by BA88 2 years 8 months ago
  
  Yeah well I bought some glycine and it seems to of helped. I haven't tried taurine as I hear it is not great for candida. I guess your right about the overload of metals in the blood stream. I have been told phosphatidyl choline (from lecithin) help... i was taking dandelion but I was told that the...
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What to start with? Topic started by janna 3 years 6 months ago

Replies: 4 Views: 4449

by gr8tful4life
2 years 9 months ago
- Topic started by janna 3 years 6 months ago
  
  I am 45 yo female. I suffer CFS for many years ( around 12-13years). The symptoms have developed quite slowly so I could not tell exactly how many years I have the illness. Many years I was convinced that it was due to very frequent Flu and Cold. Just a year ago I had realized I could not live like...
- Last reply by gr8tful4life 2 years 9 months ago
  
  Jesslm wrote: Quote: I find it strangely comforting and alarming reading through all of the related posts. Comforting to learn there are others out there experiencing similar problems and that support is with in reach. However, alarming as I am new to these conditions and answered yes to most of...
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Wanted Topic started by m123 3 years 1 month ago

Replies: 2 Views: 3620

by m123
3 years 1 week ago
- Topic started by m123 3 years 1 month ago
  
  Severe sufferer greatly needs your help please: Have you ever suffered a very severe stimulatory adverse reaction to venlafaxine (or to other SSRI’s/antidepressants/stimulating medications? involving extreme “wakefulness” and damaging masking of ME symptoms? Please send accounts of your...
- Last reply by m123 3 years 1 week ago
  
  Thank you very much for your reply, I will pass it to Megan as soon as possible.
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CFS Sexually Transmitted? Topic started by charlotte 3 years 2 months ago

Replies: 1 Views: 5523

by Maff
3 years 2 months ago
- Topic started by charlotte 3 years 2 months ago
  
  Hi everyone, I saw this interesting link on the EIR Facebook page about researchers who found the XMRV virus is a lot like HIV in the way it is transmitted. They say blood and semen (particularly) are the main routes of infection. So does this mean CFS could be a sexually transmitted disease? Very...
- Last reply by Maff 3 years 2 months ago
  
  Hi Charlotte, Great to hear you found us through the Facebook page :) The XMRV issue is still very poorly understood and while the article on how it is transmitted is interesting we are getting a bit ahead of ourselves worrying about that at this stage. None of the studies that have tried to...
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CFS and Heart Palpitations? Topic started by gr8tful4life 3 years 5 months ago

Replies: 3 Views: 7028

by Elizabeth1960
3 years 2 months ago
- Topic started by gr8tful4life 3 years 5 months ago
  
  Hi, does anyone know if heart palpitations are linked to CFS? I don't read it as a common symptom, but I have CFS and heart palpitations. Sometimes like tonight, I wake from a sound sleep to the sound of my heart beating in my ears and can feel it in my chest. Needless to say, this is disturbing...
- Last reply by Elizabeth1960 3 years 2 months ago
  
  Im glad to hear of your improvement since having your fillings removed. I developed pneumonia last year which has left me with all the symptoms of ME, and I too had this pounding heart which sometimes I could also feel in the throat area. As a Naturopath specializing in Celloid Mineral Therapy and...
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Previously suicidal but now hopeful- my game plan Topic started by javan999 3 years 4 months ago

Replies: 1 Views: 4170

by explorer54
3 years 4 months ago
- Topic started by javan999 3 years 4 months ago
  
  Hello everyone- I haven't posted on here in a while. (I had written this to a fellow member and decided to share it as well.) Sorry for the looong delay in getting back with you. Well as with many things some of the items I was taking seemed to begin to slightly lose their effect. I had been...
- Last reply by explorer54 3 years 4 months ago
  
  Wow, awesome to read that you have turned around both your mental outlook and your health to such a degree in a short space of time! Interesting that someone with MCS tested positive for XMRV. I am also considering the test but the cost is putting me off. I wanted to get some feedback from others...
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Anyone had XMRV test? Topic started by explorer54 3 years 4 months ago

Replies: 0 Views: 4284

by explorer54
3 years 4 months ago
- Topic started by explorer54 3 years 4 months ago
  
  Howdy everybody, I am a 55 year old CFS sufferer (of 15 years) and I am sure like many of you was very excited by the XMRV news in the fall. My question is has anybody tried the XMRV test now available from VIP Dx lab? I am tempted as I don't know where to turn next for hope and help but at 600...
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