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- Milo
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Re:sulphur detox pathway problems
Thank you so much Maff,
I purchased some NAC and will start taking that immediately. I do have some sublingual vitamin B12, but I think I react to it because I feel very fatigued and moody right after taking them and with B12 it's supposed to do the opposite...weird. I was thinking about maybe getting the injections. My doctor only does the cyanacobalamin which isn't as good as the menthylcobalamin so I was thinking about ordering them on-line. Maybe you know a good source.
I ordered some progesterone because I read that it's suppose to balance the overly dominant estrogen. I'm worried about using this, but I thought I'd try it out. Maybe you think otherwise.
I'm doing my candida diet and am feeling definite die-off symptoms, I feel tired and my throat is sore. It's not very pleasant but at least I know that the anti-fungal is working. I'm taking molybdenum but it's not really helping with the die-off. I'd eat yogurt for the probiotics, but I'm allergic to dairy. I'm taking a probiotic but don't know how effective it is. I also avoid gluten, corn, and yeast. I've tested positive for corn allergy but I haven't seen any improvement in my eczema after avoiding it for a month. This diet is so hard.
Thank you so much for all your help!!
I purchased some NAC and will start taking that immediately. I do have some sublingual vitamin B12, but I think I react to it because I feel very fatigued and moody right after taking them and with B12 it's supposed to do the opposite...weird. I was thinking about maybe getting the injections. My doctor only does the cyanacobalamin which isn't as good as the menthylcobalamin so I was thinking about ordering them on-line. Maybe you know a good source.
I ordered some progesterone because I read that it's suppose to balance the overly dominant estrogen. I'm worried about using this, but I thought I'd try it out. Maybe you think otherwise.
I'm doing my candida diet and am feeling definite die-off symptoms, I feel tired and my throat is sore. It's not very pleasant but at least I know that the anti-fungal is working. I'm taking molybdenum but it's not really helping with the die-off. I'd eat yogurt for the probiotics, but I'm allergic to dairy. I'm taking a probiotic but don't know how effective it is. I also avoid gluten, corn, and yeast. I've tested positive for corn allergy but I haven't seen any improvement in my eczema after avoiding it for a month. This diet is so hard.
Thank you so much for all your help!!
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- Maff
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Re:sulphur detox pathway problems
Glad I could help.
With the B12, as with anything else, it is sensible to listen to your body. If it causes symptoms soon after you take every time then it's probably not being used by your body in the way you'd hope. Methylcobalamin is the active form that the body actually uses and is produced from cyanocobalamin and hydroxocobalamin via the methylation cycle (if this is functioning correctly). I would be careful not to get "good" and "more potent" mixed up. You may be right an methylcobalamin injections would give your body B12 in a form it can use....but equally if you react badly to cyanocobalamin you might react even worse to methylcobalamin. I'd just be cautious and start with a very low dose if you decide to give it a go. I would recommend working with a doctor on this...and that's the best place/person to get methylcobalamin injections from.
Progesterone is the "other" female sex hormone and does indeed balance the effects of excessive estrogen. Again however I'd recommend working with a doctor as it will be important to get the dose correct, which will be individual to you. Working with a doctor you can get your estrogen and progesterone levels tested and monitored while you're using progesterone.
Probiotic supplements are a bit of a minefield. It is hard to know which, if any, is likely to help...even after studying all the available research! A good general recommendation is to only buy products that contain a specific strain of a probiotic bacteria that has been subjected to clinical trials...examples would be Lactobacillus acidophilus DDS-1 and Bifidobacteria infantis 35624 (where DDS-1 and 35624 denote the specific strains). Many people find that fermented foods such as kefir which can be made at home are very helpful...and much cheaper than probiotic supplements.
Take care and best of luck with everything.
With the B12, as with anything else, it is sensible to listen to your body. If it causes symptoms soon after you take every time then it's probably not being used by your body in the way you'd hope. Methylcobalamin is the active form that the body actually uses and is produced from cyanocobalamin and hydroxocobalamin via the methylation cycle (if this is functioning correctly). I would be careful not to get "good" and "more potent" mixed up. You may be right an methylcobalamin injections would give your body B12 in a form it can use....but equally if you react badly to cyanocobalamin you might react even worse to methylcobalamin. I'd just be cautious and start with a very low dose if you decide to give it a go. I would recommend working with a doctor on this...and that's the best place/person to get methylcobalamin injections from.
Progesterone is the "other" female sex hormone and does indeed balance the effects of excessive estrogen. Again however I'd recommend working with a doctor as it will be important to get the dose correct, which will be individual to you. Working with a doctor you can get your estrogen and progesterone levels tested and monitored while you're using progesterone.
Probiotic supplements are a bit of a minefield. It is hard to know which, if any, is likely to help...even after studying all the available research! A good general recommendation is to only buy products that contain a specific strain of a probiotic bacteria that has been subjected to clinical trials...examples would be Lactobacillus acidophilus DDS-1 and Bifidobacteria infantis 35624 (where DDS-1 and 35624 denote the specific strains). Many people find that fermented foods such as kefir which can be made at home are very helpful...and much cheaper than probiotic supplements.
Take care and best of luck with everything.
If you are going through hell, keep going - Winston Churchill
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- Milo
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Re:sulphur detox pathway problems
Thanks Maff,
I'm taking a b-complex that has the menthyl b12, and I don't seem to react to it, just the sublingual menthyl b12. I'll keep with the complex for now. I might consider injections later.
I react to dairy, so I stay away from kefir and I'm taking probiotics that are free of dairy. However, I purchased some of that undenatured whey. I know that comes from dairy, but I hope I don't react to it...maybe I won't. I REALLY want to increase my glutathione and think that the deficiency is my main problem which probably was caused by candida. So with the NAC and whey hopefully my liver will start functioning better along with my candida diet and antifungals.
I really am against doctors. Not one has ever been able to help me, and all the tests they run all come back normal. I think even their hormonal tests have come back normal in the past, however, who knows what tests they are running and how accurate they are. The only tests that have come back abnormal are vitamin D and ferritin. I've had a ferritin IV a few years ago to correct that deficiencty. I think I react to the vitamin D. They prescribed a high dose vit D that my body had difficulty with. I'm experimenting with low dose vit D but also am trying to get it from the sun when possible. So many doctors just want to prescribe stuff and not treat the root cause, turns me off. I'd prefer to see a holistic docter, but ofcouse my insurance doesn't cover that.
Just so you know, I had Hodgkin's Lymphoma 7 years ago. I had ABVD chemo and am in remission, but I think that same chemo probably hurt me as well as cured me. Could explain why I'm so chemical sensitive, who knows for sure though.
Thanks again for all of your help!!! There's so few of you out there that are so dedicated to helping people. I'm SOO glad I stumbled onto this website!!
Thanks Maff!!
I'm taking a b-complex that has the menthyl b12, and I don't seem to react to it, just the sublingual menthyl b12. I'll keep with the complex for now. I might consider injections later.
I react to dairy, so I stay away from kefir and I'm taking probiotics that are free of dairy. However, I purchased some of that undenatured whey. I know that comes from dairy, but I hope I don't react to it...maybe I won't. I REALLY want to increase my glutathione and think that the deficiency is my main problem which probably was caused by candida. So with the NAC and whey hopefully my liver will start functioning better along with my candida diet and antifungals.
I really am against doctors. Not one has ever been able to help me, and all the tests they run all come back normal. I think even their hormonal tests have come back normal in the past, however, who knows what tests they are running and how accurate they are. The only tests that have come back abnormal are vitamin D and ferritin. I've had a ferritin IV a few years ago to correct that deficiencty. I think I react to the vitamin D. They prescribed a high dose vit D that my body had difficulty with. I'm experimenting with low dose vit D but also am trying to get it from the sun when possible. So many doctors just want to prescribe stuff and not treat the root cause, turns me off. I'd prefer to see a holistic docter, but ofcouse my insurance doesn't cover that.
Just so you know, I had Hodgkin's Lymphoma 7 years ago. I had ABVD chemo and am in remission, but I think that same chemo probably hurt me as well as cured me. Could explain why I'm so chemical sensitive, who knows for sure though.
Thanks again for all of your help!!! There's so few of you out there that are so dedicated to helping people. I'm SOO glad I stumbled onto this website!!
Thanks Maff!!
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- Maff
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Re:sulphur detox pathway problems
No problem Milo!
If the methyl-B12 in your B complex is not giving you any problems I'd stick with that for a while to give it chance to restore your B12 levels...assuming they are depleted. It may be that the sublingual form gave your body too much to deal with in one go. If that's the case then injections may cause even more problems but obviously you can't know for sure.
When I suggested working with a doctor I didn't mean the regular doctors you have seen before, rather a naturopathic doctor (ND) or an MD who practices functional or integrative medicine and is familiar with the problems you're dealing with and the treatments you're using or would like to try. These are doctors that try to find and fix the root cause of an individual's ill health. Obviously seeing such a doctor can be prohibitively expensive if not covered by insurance but sometimes they will be able to find a way to get your insurance company to cover costs.
Sorry to hear of your Hodgkin's Lymphoma but glad that it has been in remission for so long. Chemotherapy is obviously very toxic so it is quite possible it contributed to the problems you're having now. I believe multiple courses of antibiotics as a child set the scene for my problems with Candida/yeast and a general anesthetic was the final straw that led to me developing MCS.
Oh, I almost forgot...you can make your own probiotics without using dairy. You can use a yoghurt starter based on soy or some other dairy-free alternative and add in a quality probiotic powder (or empty capsules) then just keep it going by topping up with more dairy-free yoghurt.
I really do hope the things you are now doing bring you some relief soon!
Best wishes
If the methyl-B12 in your B complex is not giving you any problems I'd stick with that for a while to give it chance to restore your B12 levels...assuming they are depleted. It may be that the sublingual form gave your body too much to deal with in one go. If that's the case then injections may cause even more problems but obviously you can't know for sure.
When I suggested working with a doctor I didn't mean the regular doctors you have seen before, rather a naturopathic doctor (ND) or an MD who practices functional or integrative medicine and is familiar with the problems you're dealing with and the treatments you're using or would like to try. These are doctors that try to find and fix the root cause of an individual's ill health. Obviously seeing such a doctor can be prohibitively expensive if not covered by insurance but sometimes they will be able to find a way to get your insurance company to cover costs.
Sorry to hear of your Hodgkin's Lymphoma but glad that it has been in remission for so long. Chemotherapy is obviously very toxic so it is quite possible it contributed to the problems you're having now. I believe multiple courses of antibiotics as a child set the scene for my problems with Candida/yeast and a general anesthetic was the final straw that led to me developing MCS.
Oh, I almost forgot...you can make your own probiotics without using dairy. You can use a yoghurt starter based on soy or some other dairy-free alternative and add in a quality probiotic powder (or empty capsules) then just keep it going by topping up with more dairy-free yoghurt.
I really do hope the things you are now doing bring you some relief soon!
Best wishes
If you are going through hell, keep going - Winston Churchill
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- Milo
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Re:sulphur detox pathway problems
Thank you Maff,
I'll keep with the B complex. I'm beginning to think nothing assorbs right through my digestive system. Do vitamin suppositories work? I've be adding Vit Bs and D to enema bag and it feels like it's absorbing because I have more energy afterwards. I'm also adding the l-glutathion in the meantime (still have received the NAC that I ordered). Also I feel like these enemas are reducing the candida die-off.
NC doctors are hard to find here, where I live (northern Virgina). I'll check, but I'm also going to use the advice I get from you. You have sooo much knowledge on the topic, you're probably just as good (if not better). BTW, how did you get rid of your MCS? Do you still have candida?
So, with the yogurt (maybe soy sugar-free if I can find it), I just add the probiotic and mix in the yogurt, or do I need to get something else? Sorry, I want to get this right.
Maff, thanks so much again!!
I'll keep with the B complex. I'm beginning to think nothing assorbs right through my digestive system. Do vitamin suppositories work? I've be adding Vit Bs and D to enema bag and it feels like it's absorbing because I have more energy afterwards. I'm also adding the l-glutathion in the meantime (still have received the NAC that I ordered). Also I feel like these enemas are reducing the candida die-off.
NC doctors are hard to find here, where I live (northern Virgina). I'll check, but I'm also going to use the advice I get from you. You have sooo much knowledge on the topic, you're probably just as good (if not better). BTW, how did you get rid of your MCS? Do you still have candida?
So, with the yogurt (maybe soy sugar-free if I can find it), I just add the probiotic and mix in the yogurt, or do I need to get something else? Sorry, I want to get this right.
Maff, thanks so much again!!
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- Tracy Mac
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Re:sulphur detox pathway problems
Hi Maff.
Yes I'm ending up all over your site *sigh*. My pyroluria / liver detox treatment was seeing wonderful results but has now resulted in sulphur problems! It seems the B6, milk thistle, NAC, methionine and brassica vegetables have all overloaded my system.
In my functional liver detox profile everything was below normal range except for sulphation which was over normal range. A naturopath has suggested this may be Gene mutation CBS 699T and account for the fact that I can't tolerate protein. But then again my intestinal permeability is off-the-scale which also explains the protein issue. I've tried to get my head around Amy Yasko's stuff but its really heavy going so I guess I'll find someone to do the tests for me.
Two questions:
1. Do you know anything about B6 supplementation causing problems? It also makes my urine PH plummet suggesting its not being metabolised properly but morphing into something acidic and being excreted in the urine.
2. Also in your post 2 years ago on this thread (a long time ago I know) you mentioned that insoluble fibre is bad for leaky gut. Leo Galland says soluble=bad insoluble=good. Was this a typo on your part or is this controversial?
Tracy
Yes I'm ending up all over your site *sigh*. My pyroluria / liver detox treatment was seeing wonderful results but has now resulted in sulphur problems! It seems the B6, milk thistle, NAC, methionine and brassica vegetables have all overloaded my system.
In my functional liver detox profile everything was below normal range except for sulphation which was over normal range. A naturopath has suggested this may be Gene mutation CBS 699T and account for the fact that I can't tolerate protein. But then again my intestinal permeability is off-the-scale which also explains the protein issue. I've tried to get my head around Amy Yasko's stuff but its really heavy going so I guess I'll find someone to do the tests for me.
Two questions:
1. Do you know anything about B6 supplementation causing problems? It also makes my urine PH plummet suggesting its not being metabolised properly but morphing into something acidic and being excreted in the urine.
2. Also in your post 2 years ago on this thread (a long time ago I know) you mentioned that insoluble fibre is bad for leaky gut. Leo Galland says soluble=bad insoluble=good. Was this a typo on your part or is this controversial?
Tracy
