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TOPIC: Modes of Transmission

Re: Modes of Transmission 6 years 3 months ago #7

  • RitaA
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I was diagnosed clinically with a supporting Western Blot test.

My favourable response to the antibiotics further confirmed a Lyme disease or at least some type of infectious process. My Infectious Diseases specialist pointed out the reality that there are infections that have likely not even been discovered yet and that reliable tests do not often exist even for those infections that have been identified, so he doesn't get too hung up on exactly which one(s) might be causing signs and symptoms.

This approach has advantages and disadvantages. Without even ordering a test for one co-infection -- that co-infection was apparently overlooked and was likely only suppressed rather than treated (because an additional medication needs to be added to the mix).

The testing for Lyme disease is not reliable, however your best best would be to have a cooperative doctor order the Western Blot test from IGeneX. There is controversy over this lab being too sensitive, but at least it has provided important clues for many people when a tick-borne illness is being considered. There are a number of reasons that even IGeneX might produce a "false negative" test result, so even that isn't foolproof.

Given the many overlapping symptoms between CFS, fibromyalgia, lupus, Lyme disease (and others), it makes a definitive diagnosis challenging (to say the least). Some Lyme-literature medical doctors (LLMDs) diagnose everyone who walks in their office/clinic with Lyme disease, so it's important to find someone who can tell the difference between Lyme disease and other possible causes for similar symptoms. You might want to consider checking the website for "Turn the Corner Foundation" for recommendations that they provide only via e-mail to get in touch with a healthcare provider who would be most qualified to help. Unfortunately, the vast majority of doctors in North America don't know very much about Lyme disease and co-infections -- including how to diagnose and treat them.

I wish you the very best of luck in what is often a very difficult journey.
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Re: Modes of Transmission 6 years 3 months ago #8

  • TheStache
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Very insightful, thanks RitaA.

Apologize if I am not up on the terminology but what exactly is a co-infection? Are the ticks (or other critters) capable of transmitting more than one type of bacteria, or is this more like a secondary infection where a compromised immune system is susceptible to other infections after the initial?

Also interested in what your symptoms are in that you can confidently say you do not have CFS? The amount of overlap in symptoms in the literature seems like it would be hard to differentiate, so interested in what your personal account includes.

I am seeing my doctor today (an Internist), and will see what the reaction is to my suggestion of Lyme testing.

Thanks again, and best of luck.
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