Hello my friends
Anybody has ever heard of Breakspear Medical Groupe (www.breakspearmedical.com) in Hemel Hempstead Hertfordshire? According to their site their clinic treats MCS would anyone confirm this please for me? It sounds very exciting. Officially it’s a private Clinic therefore no NHS means we have to pay for our treatments which cost a fortune providing this would be retested and treated every 3 months. I’ll be travelling from Morocco for this treatment so I would really appreciate all information I can get. Many thanks

Hi Mariam,

Breakspear Medical Group is certainly well known, particularly for treating people with chronic fatigue syndrome (ME/CFS). It has many very knowledgeable doctors and all the equipment and lab facilities you could ask for to get to the root of your problems.

I have just read their section on MCS treatment and would agree with everything they suggest as being helpful - advice on removing toxins from the environment, improving the body's detoxification pathways, addressing gut issues etc.

The only reservation I would have would be about using low dose immunotherapy. In my personal experience this actually made me sicker by worsening my gut dysbiosis.

I certainly think it is worth you making an appointment but I would make sure you try all the other treatments before going for the immunotherapy. The scientific evidence shows MCS to be more of a neurological problem than an immune problem anyway.

Does anyone else with MCS have experience with lose dose immunotherapy (EPD/LDA) or Breakspear Medical?

Keep us updated if you decide to go ahead Mariam and good luck

I must to say am really surprised that none has dropped a comment or discussed this possible treatment? Bit strange wonder why?

My experience with traditional medicine was such a disaster, I gave up on doctors long ago.

I'm locked in to \"my insurance plan\" as to who I can see, and going out of plan would be so expensive it is out of the question for me.

Much of the research on MCS and its treatment is available online, and involves diet and supplement therapy, which one can re-create themselves.

\"Phospholipid Therapy\" was my salvation, but instead of expensive IV therapy at a clinic, I found an oral supplement (PPC, PhosChol) which took a few months, but brought me around in the end. A shame it took me 3 years of trial and error, but that's the way it went for me.

If you can afford clinics, then I'm all for them... It was just out of my price range. I was so sick I was barely employed when I needed treatment most.

Finding a solution to my problem on my own was also one of the high points of my little life; and I learned so much along the way.

Many thanks to maff and this site, which showed me I was not alone, and other people were working on this!<br /><br />Post edited by: bolam56, at: 2010/02/07 05:53

Hi
Though I've always had some form of MCS and found ways of coping so as not to be heavily exposed, my symptoms were never severe until I had exposure to new carpet for my job, which I desperately needed. I only lasted a day and was fired and now have such severe reactions can't even wear clothes I've had for years.

Like most of you, I've tried everything, and now I can't do most jobs or my real work of public speaking. Most of my mercury had been removed prior to this incident and I've tried nearly every vitamin on the market. I'm out of options as I'm confined to the house with no help. My system has always been sensitive so many vitamins or \&quot;cleanses\&quot; are too much for me.

It's fine to limit exposure but that literally means not leaving my house. Anyone out there, please tell me how to work with this. I'm well versed in alternative therapies but this has been off the chart for me. So here are some of my questions:
A. Are cleanses really that helpful???
B. Is the colon key in this (obviously if you aren't eliminating)
C. What vitamins seem most effective in helping the body get rid of these chemicals?
D. Most of the stuff for the brain, I don't tolerate well, but what's out there?
E. Glutathione seems to be the vitamin of choice but my EI doc says it isn't effective? Thoughts?
F. Why get tests done when you already know that you are allergic to carpet, VOC stuff, petroleum stuff, and all the other stuff??
So far energy medicine has been the most helpful, but doesn't address minimizing the sensitivities. Thanks for anyones input.

Hello
Sorry to hear this dear I understand your frustration I’ve been myself suffering from (MCS?) for last 3 years and I have to say I’ve tried quite lot of things. However since 15 June started taking PPC, PhosChol (3 daily) DHEA. The thing about PPC is not chemical and when it comes to DHEA you can find vegetal supplement. I have never believed or paid attention to diet “gluten free and dairy products” but last Saturday I decided to start this diet amusingly I already feel like relieved from pain. Something is going on I can feel it but what? Of course it’s too early to draw any analysis however I suggest you do some reading regarding gluten you would be surprised what they found. Apparently gluten can be the cause of quite few illnesses especially neurological.

One day they asked the Dalai Lama: \&quot;What surprise you most about humankind?\&quot;

He replied:

\&quot;Men who lose their health to earn money and later, spend the money to gain health. To think anxiously about the future too much, they forget the present, so much so that they end up not live the present nor the future! They live as if they were never going to die and die as if they had never lived\&quot;

Best Regards

Post edited by: Mariam, at: 2010/07/27 15:31<br /><br />Post edited by: Mariam, at: 2010/07/27 15:36