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MCS recovery update(1 viewing) (1) Guest
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- Kcall07
- EiR Newbie
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- Posts:6
- Karma: 1
Hello Everyone.
I just thought I'd write an update on my situation. I have been recovered from mcs for about a year and a half now. I had very bad mcs for about seven years. I had to sleep outside and wear organic clothes and all the rest of it. I recovered by taking an antipsychotic drug called amisulpride. I take a small dose - 100mg - everyday. Now as before I have no head for science and cant begin to explain why this works, but I can assure you my mcs was genuine and this drug cured it.
I still have to take the tablet everyday, or I imagine my symptoms would return. If I forget it sometimes I'll get a bit of a headache. The tablet has no other effect on me other than weight gain, which Is a bit of a problem but nothing compared to full blown MCS obviously.
I know this is a very difficult solution for people to try out because its only availiable for a doctor. I have no idea whether this would work for everyone with MCS or not but I know of two other people Ive been in contact with who this has also worked for.
So yeah, I dont really know what else to do apart from keep telling people what worked for me. It upsets me greatly to see people on this site suffering as badly as I was. If anybody would like to talk to me about this, or anything else mcs related (I learnt a lot during my seven year spell and know lots of survival techniques etc) send me a message and I can give you my email or phone number.
I also have a million books on mcs that im looking to get rid of. If anyone would like them get in touch. I can give them away for free if you can just pay postage.
So just to recap, I am 100% cured while taking this tablet. That includes all my airborne and touch sensitivities, and my one food allergy. The only thing I'm left with is my mould allergy, which is annoying but without mcs is quite easy to manage.
Take care everyone,
Ben.
I just thought I'd write an update on my situation. I have been recovered from mcs for about a year and a half now. I had very bad mcs for about seven years. I had to sleep outside and wear organic clothes and all the rest of it. I recovered by taking an antipsychotic drug called amisulpride. I take a small dose - 100mg - everyday. Now as before I have no head for science and cant begin to explain why this works, but I can assure you my mcs was genuine and this drug cured it.
I still have to take the tablet everyday, or I imagine my symptoms would return. If I forget it sometimes I'll get a bit of a headache. The tablet has no other effect on me other than weight gain, which Is a bit of a problem but nothing compared to full blown MCS obviously.
I know this is a very difficult solution for people to try out because its only availiable for a doctor. I have no idea whether this would work for everyone with MCS or not but I know of two other people Ive been in contact with who this has also worked for.
So yeah, I dont really know what else to do apart from keep telling people what worked for me. It upsets me greatly to see people on this site suffering as badly as I was. If anybody would like to talk to me about this, or anything else mcs related (I learnt a lot during my seven year spell and know lots of survival techniques etc) send me a message and I can give you my email or phone number.
I also have a million books on mcs that im looking to get rid of. If anyone would like them get in touch. I can give them away for free if you can just pay postage.
So just to recap, I am 100% cured while taking this tablet. That includes all my airborne and touch sensitivities, and my one food allergy. The only thing I'm left with is my mould allergy, which is annoying but without mcs is quite easy to manage.
Take care everyone,
Ben.
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- Maff
- Administrator
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- Posts:689
- Karma: 11
Hi Ben,
Many thanks for updating us on your condition. It's fantastic to hear that you are still doing so well!
At the dose you have been taking amisulpride at it works to increase dopamine concentrations in the brain which would be expected to improve mood, motivation and feelings associated with reward. Dopamine also helps the brain focus and filter out irrelevent stimuli. MCS is thought to involve hypersensitivity of various regions of the brain to volatile chemicals - it is not such a large stretch to hypothesise then that amisulpride might help by counteracting the brain's \"over reaction\" to these chemicals.
My own MCS was improved hugely (I haven't had a major reaction in 6 years now) by taking the adrenal hormone DHEA which is classed as a neurosteroid. DHEA has a calming effect on the brain and would similarly be expected to reduce overstimulation by exposure to chemicals to which an MCS sufferer has become sensistised.
It is very kind of you to offer your experience to others and I am sure many will benefit from it
If you would like to pass on your MCS books I would be happy to pay for postage and I will post review pages for each on the site and review them myself. I'll send you a private message with my address but if you would rather give the books to individuals still struggling to cope with the life of an MCS canary I completely understand.
Take care,
Maff
Many thanks for updating us on your condition. It's fantastic to hear that you are still doing so well!
At the dose you have been taking amisulpride at it works to increase dopamine concentrations in the brain which would be expected to improve mood, motivation and feelings associated with reward. Dopamine also helps the brain focus and filter out irrelevent stimuli. MCS is thought to involve hypersensitivity of various regions of the brain to volatile chemicals - it is not such a large stretch to hypothesise then that amisulpride might help by counteracting the brain's \"over reaction\" to these chemicals.
My own MCS was improved hugely (I haven't had a major reaction in 6 years now) by taking the adrenal hormone DHEA which is classed as a neurosteroid. DHEA has a calming effect on the brain and would similarly be expected to reduce overstimulation by exposure to chemicals to which an MCS sufferer has become sensistised.
It is very kind of you to offer your experience to others and I am sure many will benefit from it
If you would like to pass on your MCS books I would be happy to pay for postage and I will post review pages for each on the site and review them myself. I'll send you a private message with my address but if you would rather give the books to individuals still struggling to cope with the life of an MCS canary I completely understand.
Take care,
Maff
If you are going through hell, keep going - Winston Churchill

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