Hello any and all Canadians with MCS

I had this idea this summer (while watching the Terry Fox movie) that one of the biggest problems for people with MCS (aside from the actual illness, I mean) is that as a group we are not visible.

This illness is considered an invisible illness. That doesn't mean that WE have to be invisible!

I wanted to start a website where we could post our pics of ourselves. I was hoping to eventually get over 1 million Canadians with MCS registered and visible.

What a magic piece of display that would be to show off! No one could discount one million pictures of real people!

However, my webmistress is unable at this time to take on the project,so in the interim, I have created a group on Facebook.

Facebook is easy to join, just fill in the necessary blanks (notnecessarily with your real info.)

I even opened a new hotmail account just to be the email address for my facebook!

If you are a Canadian with MCS, please come join my group and add your photo, masked or unmasked, to help build up our members' photo display to the million that we are.

The group can be found at:www.facebook.com/group.php?gid=43360023072

I called it \"The Many Faces of Multiple Chemical Sensitivity in Canada\".

\"Lady Itchalot\"

Hi,

What a fantastic idea!

I'd join the Facebook group myself but...I'm English so I presume that disqualifies me

I hope you get a lot of people signing up so it really makes a statement. What do you think about me writing a news article about it which would be posted on the front page of the site for a week or two and should get well indexed in Google?

Another thought is that it would be easy for me to add a gallery area to this site where visitors could post pictures of themselves wearing masks or perhaps in a wheelchair or bed in the case of the most severely affected with ME/CFS and fibro. Like you say, those of us with 'invisible illnesses' need to make ourselves visible!

Please everybody let me know what you think on this and good luck with the Facebook group Ladyitchalot <br /><br />Post edited by: Maff, at: 2008/10/21 16:49

Thank you so much for your enthusiastic support for my idea, Maff!
That means so much when things are slow to start...

Yes, I think making these invisible illnesses visible is an important step to take.
For my way of thinking, it needs to be by nation and by illness.

If your site can support this, by all means do it!

LadyItchalot

Maff wrote:


Oh Maff!
That would be superb!
Would you? Could you? thank you from all canadians with MCS!
Debbie

Hiya,

News story written and available from the home page or directly through this link: Canadian Multiple Chemical Sensitivity Sufferer starts Facebook Group.

I hope it's all ok and helps to increase the visibility of your group.

If there's anything you'd like me to edit or add then just reply here.

Take care<br /><br />Post edited by: Maff, at: 2008/10/23 12:58

Hello

That is a great idea Maff although I don’t agree with idea that it should be limited only to “Canadians” because in Canada there are people immigrated from everywhere round the world. These people are workers and taxes payers like anyone else therefore they are in titled to care and health service. You see, LadyItchalot she’s talking about visibility and discounting people with MCS and in other hand she’s making others “invisible and discounting” them. We have to be careful with this if we don’t like to be ignored as MCS is not much as nationality but as human being therefore we should not segregate or discriminate besides more we are more we can be heard don’t you think? This is a battle as we say in French: “l’Union fait la force (being united makes us stronger).

Post edited by: Mariam, at: 2008/10/23 20:56<br /><br />Post edited by: Mariam, at: 2008/10/23 23:03