Hello everyone,

I have been struggeling with MCS for a year now...its been a tough year..I am confined to my home...if I come into contact with any chemical my mouth and nose become very inflammed....I am about to get my 4th LDA-EPD shot...I havent noticed any change just keep getting worse...but I want to get my 6th shot (year of LDA) of LDA before I decide to try different treatment...

So I would love to hear successful recovery stories...how you beat this..I have heard Matts and Thankyou...I cant stand having this...my life has taken a complete change..

Thanks
Denise

Hi Denise,

I hope you get replies from other people as well. I know there are a few around who have also recovered from MCS. I'm not the only one to be symptoms-free! Various detoxification protocols and the Martin Pall Protocol seem to be helpful to some.

I just wanted to give you a link about LDA. I know you probably feel you want to complete the full course before you make a decision on it but if it's anything like the UK equivalent (EPD) then it's no doubt expensive and I don't want you to waste your money!

Basically MCS is a neurological disorder affecting the brain while LDA/EPD are aimed at treating allergic conditions my altering the immune response so it ignores allergens rather than reacting and causing symptoms. It may be that you have both MCS and allergies so the treatment could be helpful - but you need to know for sure. FOr straight MCS LDA/EPD will not help.

Lourdes Salvador of MCS America describes all this very well in a recent article - Low Dose Antigens (LDA)

On another note, Professor Pamela Reed Gibson has surveyed MCS patients and by far the most helpful \"treatment\" was avoidance of triggering chemicals. The good thing is that this doesn't just reduce symptoms in the short-term but for a lot of people seems to allow them to build up their tolerance so that they can once again be around chemicals without suffering symptoms. I think strict avoidance over a number of years was probably the most important factor in my recovery.

Thanks Matt....I have spent alot of money on LDA..I have health insurance but this doctor doesnt take any insurance...I have had the basic allergy testing and nothing really..I understand that the inflammation I get is some what directed to allergies but the whole chemical thing that causes it is more MCS..but I dont kow what to do...I have been to 10 different doctors in less than a year and none could help me besides the one I ma at now..

I do avoid as much as I can..I dont leave my house ever..This has taken so much out of me....how would I kow for sure if it is a mix of MCS and allergies?

Thanks
Denise

I know how you feel Denise, first we have to find a doctor who knows how to, or is willing to treat us, then we have to find the money to pay for treatment when the insurance companies or government (here in the UK) won't pay. All of this when we're stuck at home and can't work!

Have you tried using a carbon filter mask? Sorry if I've asked this before...bad memory! They allowed me to go outside at least, even if I got stared at a lot!

To find out if allergies are part of your illness your doctor would need to look for elevated total IgE antibodies, and elevated levels of specific white blood cells - basophils and eosinophils. These would all be high in allergic disease. You could also have skin prick tests or a RAST test (blood test) to determine what you are allergic to.

You should ask your doctor about having these things done. Elevated eosinophils and basophils would show up in a regular blood count so you shouldn't have any problem getting that for starters and may already have had it done!

If these tests show you to be have allergies then by all means carry on with the LDA as it could help but if not you are most likely wasting your money using it for MCS I'm sorry to say.

Good luck!

Thanks for all the information Matt...its nice to look to others who are or have gone through MCS....I have a Carbon Mask..It does help somewhat..I will look into all the info you gave me.
Thanks
Denise