Hi everyone,

So where shall I begin.. I got my 4th LDA-EPD last week and nothing. I think I am done with it. I have spent way to much money on that doc.

I feel like I am getting worse. I wake up inlflammed. My mouth and nose are inflammed everyday. My house is chemical free so I dont know why I still get inflammed. I have old carpet upsatirs that smells like fragrance but I keep that door closed at all times. We rent and are buying a house next year so I dont want to spend money on replacing. I did buy a carpet steamer maybe that will help take out the smell. I am so sensitivie I can smell the wood desk.

I cant find a doctor. I have searched and searched. I started eating a healthy diet and taking supplements on the treatment page. I just dont feel good ever. Who can live in pain eveyrday. If it wasnt for my two kids I think I would jump over a brige or something!

If I sound desperate its becasue I am. I have been to countless number of doctors. The one I have now is the only one that said he could treat MCS and that aint working. I live in Michigan and if anyone knows of a doctor please let me know. Maybe the best thing is to eat healthy take supplement and see in time. I am getting some Gut testing to rule that out.

Hi Denise,

You poor thing. I so know what you mean about how depressing and helpless this illness makes us. If I didn't have two loving cats, I wouldn't have made it through the first 2 years of my illness. I was so alone.

It's really good that you're getting your gut tested. I spent a lot of money before getting proper tests. I was seeing a Chinese medicine doctor who was giving me herbs and a chiropractor who was doing NAET. I was not getting better after over a year of this and had spent a ton of money on what I thought would be a miracle cure. I was actually getting worse!

I started to get a bit better (or at least not worse), after I saw a Naturopath. She had been to medical school so she wasn't just an herbalist or someone guessing at what's wrong.

She ran lab tests on my gut and found I had zero good bacteria in my stomach. Not low, but zero. This was the result of antibiotics I had taken over a year before this! All the supplements and organic food I was ingesting made no difference because I couldn't process it.

It does get better, but takes a long time. I'm still not healthy, but I'm well enough to go outside sometimes and am in a good relationship with a loving man.

Good luck.

Airy

Hi Airy,

Thanks...What did you do to work on your gut?

I feel so desperate here..I really am...I got a random email..someone told me that their MCS..was almost cured due to the Marshall Protocol? Has anyone heard of this or working on it?

Thanks
Denise H.

Hi Denise,

I'm sorry to hear you're struggling so much at the moment. EPD/LDA really is not a treatment for MCS unless allergies are also involved - so I hope you pass your experience on to anyone considering it and warn them not to use the doc you've been seeing!

I know you said you've spent a lot of money but if possible I would really recommend you see William Rea MD who runs the Environmental Health Center - Dallas. He is regarded as the father of environmental medicine by many and has published many articles on MCS and cured many patients over the past 30+ years. Dr. Lisa Nagy, who now has a regular column here at The Environmental Illness Resource, credits Dr. Rea with her own recovery from MCS and mold allergies. So if there is one man you want to see, it is he.

With regards to the Marshall Protocol I wrote quite a detailed explanation of it which can be found in the reviews section here. Or there is the official Marshall Protocol website.

My personal feelings are that there might be something to it but reading material written by Dr. Marshall (a PhD not an MD) and the staff on the website put me off. Everything seems very rigid and dare I say - cult-like. Opinions on the protocol seem to be polorized - it's either THE answer or it's a load of rubbish with no scientific foundation. I would steer clear for now and try Dr. Rea instead if you can.

Please try to be positive, I know it is very hard, but I recovered from MCS through strict trigger avoidance, natural living, and adrenal support only. The answer for you is out there.

Take care,

Maff

Thanks Matt..I do believe that I have an allergy because my mouth and nose are inflammed but chemicals cause it..I am not going back for LDA..its a waste of money..

I have ordered tons of supplements since I am not seeing a doctor at the moment but I am looking. I will look into that doctor in Dallas.

The supplements I ordered are. Tell me if this is to much to be taking. Like I said at the moment I am on my own with no doctor. If anyone knows...

DHEA 5 mg
L-Arginine, 500 mg
Taurine, 500 mg
Burdock Root, 430 mg
Vitamin A, 10,000 IU
Dandelion Root, 500 mg
Echinacea & Goldenseal, 450 mg
Milk Thistle 1000 mg
Vitamin C 1000mg
D-3 400IU
Magnesium 250 mg
zinc 50 mg
Vitamin E 400 IU

The question is whether the reaction you get from chemicals is caused by an immune reaction or a neurological one. LDA only works for immunological reactions....and even then is certainly not 100% effective.

The supplements you orderded certainly aren't in excessive amounts if those are what you intend to take daily - so you certainly won't do yourself any harm by taking them.

The question is - will they help? They almost certainly be doing your body good but I'm not sure your symptoms will improve greatly. I'd perhaps see how you go and up the dose of vitamin D3 a bit if you don't notice any benefit. D3 can have some very profound effects on pain, mood, energy, and many other things. DHEA falls into the same bracket but is potentially more dangerous and I wouldn't advise going higher without being under a doctors supervision.

The important thing is to find a doctor such as Bill Rea and get the proper testing done so you know what your underlying problems are...