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clothcase
EiR Junior
Posts:20
Karma: 1

Some test results and advice needed please

#1 1 year, 2 months ago
Tsh is 1.40 and they have given me two cortisol readings, one of 1.35 and 3.35 . Strange thing is I don't know why the did the latter one as they said it had to be an am reading and they sent me away telling me to get a new referral form but hey ho!

NO t4 or t3 done though.

From what I gather the TSH is deemed 'normal' and someone has commented to me that with that result a thyroid problem will not be accepted apparently understandably.

This frustrates me - I thought the whole premise here was that what is 'normal' for some is not for others?

Anyway, during my appointment with the G.P he has asked me to do a couple of online depression assessments - I guess this is to rule out whether it is just depression realated or not but ironic as many of the articles I have read state that this situation is often mistaken for depresssion and previous DR asked me whether I felt depressed too.

He has now sent me for FSH but says if this comes back normal he will refer me to endo as he still thinks its hormone related. At the moment he is concerned I am pre menopausal!

Overall do u guys have any idea having had similar initial results and responses of what direction endo might/should go? I am concious I don't want to go down a long potentially unecessary road of tests when a lot of you guys discovered and had to guide health professionals to your own health problems before they were looked at/resolved. I guess I look to you as the Professionals as many of you have been there, done that etc

In addition to the unexplained weight gain, sympoms include such as heightened anxiety, extremely oily skin, deppressive modes, heightened PMT, weird periods, cold hands and feet, dry hair which seems to get finer and finer.
judyjude
EiR Newbie
Posts:10
Karma: 1

Re: Some test results and advice needed please

#2 1 year, 2 months ago
Hi

Certainly the symptoms you are describing point to hypothyroid. I had a similar result 6 months before I was finally diagnosed after a bout of flu that I just didn't recover from. I can tell you I had there symptoms for 6 years before the test result agreed with the symptoms.

I don't tell you this to discourage you but to help you keep on with this until you find a doctor/consultant who will treat you on symptoms and give you a trial on Levothyroxine. You are in a better place than I was as I just didn't have a clue what was wrong with me.

As your doctor has said he will refer you to an endocrinologist I would take him up on this.

Please join Thyroid Patient Advocacy forum which is run by a dedicated team lead by Sheila. She will advise you of good endocrinologist both NHS and private. They will also help with what you should expect on your first appointment. It can be helpful to write to the GP stating all your symptoms and requesting it to be put in you notes. Again Sheila will advise you what to put in your letter and who to address it too.

www.tpa-uk.org.uk/

Click on discussion forum

As your TSH would be classed as in normal range then the labs wouldn't do T4 or T3. It is so wrong as it doesn't give the full picture. Also ask for the ranges when you get test result as every labs is slightly different.

Can't help with the cortisol as different time of the day have different levels. Ihave the same problem with my cortisol test results, its like asking for the world to get a straight forward answer to what they mean.

Hope this helps someway and you keep going with this until you get the help you need.

Judy
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