Comments for Effective Treatment for Neuropathic Pain at http://www.ei-resource.org , comment 1 to 7 out of 7 comments http://www.ei-resource.org Sat, 21 Nov 2009 10:43:53 +0100 FeedCreator 1.7.2 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-934 HELLO LINDA, IF I TELL YOU THAT IN NINE YEARS OF BEING REGARDED AS ONE OF THE SEVEN MOST SEVERE CASES OF NEUROPATHIC PAIN IN THE UK, I HAVE NEVER UNTIL THIS VERY MINUTE HAD ANY DIALOGUE WITH ANOTHER SINGLE SUFFERER, WOULD THAT SURPRISE YOU? IT'S THE TRUTH. I HAVE THE PAIN AROUND MY PROSTATE, WHICH DEFERS TO THE WHOLE AREA, I HAVE BECOME REMARKABLY TOLERENT TO MY MEDS, MAINLY OXYCONTIN, I TAKE ELEVEN DIFFERENT DRUGS, OXY AT MORE THAN THE MAXIMUM PRESCRIBABLE DOSE, ABOUT 600MG A DAY. THIS HAS CAUSED ME TO HAVE 3 LAPEROTOMYS IN 3 YEARS, BUT I HAVE FOUND ONE DRUG TO BE IMMENSLY HELPFUL, AND IT ISN'T EVEN A PAIN DRUG, ZOPICLONE, BUT MOST PECULIARLY ONLY THE "ZIMOVANE" BRAND, WHICH IS BAFFLING, BUT IT REALLY MAXIMISES THE PAIN RELIEF. YOU MUST TRY THIS, EXACTLY THIS, IT WILL HELP. TAKE IT IN COMBINATION WITH YOUR OTHER MEDS. THERE ISN'T ENOUGH SPACE HERE TO SAY EVERYTHING, SO I WILL DO SOMETHING UNUSUAL, I WILL WRITE MY EMAIL ADDRESS SO THAT ANY OTHER SUFFERER OF THIS BITCHING ILLNESS CAN WRITE TO ME: devastation.angel@googlemail.com. (THIS IS AN ARTIST NAME) I HAVE MUCH TO SHARE AND HOPEFULLY TO LEARN ALSO BECAUSE TO BE PERFECTLY HONEST, I AM NOW ANTICIPATING A VERY EARLY DEATH, I'VE HAD NO PROGRESS IN NINE YEARS, HALF OF THE "DOCTORS" WHO I'VE SEEN SIMPLY DON'T APPEAR TO CARE ENOUGH TO DO ANYTHING. I DEVELOPED NEUROPATHIC PAIN DISORDER BY THE WILLFUL, EVEN HATEFUL NEGLIGENCE OF A CONSULTANT UROLOGIST, MR IAN CARTLEDGE AT ST JAMES' HOSPITAL LEEDS, ENGLAND, FOR THE CRIME OF HAVING QUESTIONED HIS DIAGNOSIS, I WAS IN AGONY, I PRAYED FOR DEATH, HE GAVE ME A NUISANCE TAG ON THE HOSPITAL COMPUTER SYSTEM WHICH READ: "IF THIS MAN TURNS UP AT A&E ASKING FOR PAIN RELIEF HE IS TO BE GIVEN NOTHING MORE THAN A VOLTOROL INJECTION AND IS TO BE SENT HOME IMMEDIATELY". ONE NIGHT I ATTENDED AND BEGGED FOR HELP, HE WAS THE UROLOGIST ON CALL, WHEN HE FOUND OUT IT WAS ME HE DIDN'T EVEN BOTHER TO COME OUT TO SEE ME, HE LEFT ME TO NOT SLEEP ON A HOSPITAL TROLLEY ALL NIGHT, AND WHEN HE CAME TO SEE ME IN THE MORNING HE ACTUALLY ABUSED ME BY STABBING HIS MIDDLE FINGER WITH ALL HIS MIGHT, INTO MY PROSTATE WHILST "EXAMINING" IT, IT FELT LIKE FRESH CIGARRETTE BURNS BEFORE THIS, OF COURSE I YELPED LIKE A DOG, AND TURNED AROUND IN A FLASH TO FACE HIM AND SAW A LOOK OF EXHILIRATED HATRED IN HIS EYES, I ACCUSED HIM FIVE MINUTES LATER, HAVING STOPPED CRYING, IN FRONT OF MANY OTHER DOCTORS, NURSES AND PATIENTS AND HE DIDN'T EVEN BOTHER TO DENY IT, HE JUST STOOD THERE BRIGHT RED IN THE FACE, ABSOLUTELY SILENT, BUT NOTHING WAS DONE, THIS HAD HAPPENED AT THE END OF THREE YRS IN BUILDING COLLEGE, I QUALIFIED AS A PLUMBER AFTER COMPLETING MY FINAL ASSESSMENT IN A STATE OF PURE AGONY, I NEVER DID A SINGLE WEEK'S WORK AS A PLUMBER, MY LOST EARNINGS ARE APPROXIMATELY £700,000 AFTER ALMOST TEN YRS OF NOT BEING ABLE TO WORK. I CANNOT SIT IN A CHAIR, I CAN'T HAVE A RELATIONSHIP, YOU'VE PROBABLY FOUND THAT MOST OF YOUR FRIENDS DESERT YOU, MINE DID, I HAVE NOBODY, AND AM NOW AT A DESPERATE STATE ONCE AGAIN, I REALLY DON'T KNOW WHAT I'M GOING TO DO, AND I'M GETTING WEARY OF THE STRUGGLE. I'M A COMPOSER AND PRODUCER, I HAVE A NICE LITTLE STUDIO WHICH IS BASICALLY MY LIVING ROOM, AND THIS IS MY REASON FOR LIVING, MY LEGACY IS ALMOST COMPLETE NOW. I DO KNOW A GREAT DEAL ABOUT THIS DISEASE, AND HOW TO MEDICATE IT THOUGH. ANY ONE OF YOU IS WELCOME TO EMAIL ME.MY NAME IS COLIN. - COLIN FOWLER Mon, 28 Sep 2009 00:03:48 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-896 Hello Linda I have just read your notes on your neuropathic pain and really feel for you. I too suffer very badly since having had a hernia op last year im left with awful neuropathic pain.Thought i was going mad. night time is always the bad time and i get electric shocks deep inside my torso and burning heat sensations and some nights sweats.I have had this for almost a year now and find that stress and thinking about the pain DO make it worse. Swimming and stretching help a lot, read as much as you can about the condition it is a comfort to find others with the same prob- i thought i had something real serious like cancer at first- the pain was so engulfing but i am learning to manage it now-a bit better not so panicky.i promise you are not alone there is a lot of us out there good luck hope this helps. - carole Ranken Thu, 10 Sep 2009 10:10:29 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-658 Hi Linda, I know it's hard when you are suffering but please be patient. This site does not focus on neuropathic pain so it may take time for someone who can help you to reply. Perhaps you could search for specific neuropathic pain support sites in the meantime... - Maff Tue, 23 Jun 2009 13:10:16 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-657 Someone please help, even a short comment would help. - Linda Roberts Tue, 23 Jun 2009 13:04:33 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-655 I have just been diagnosed with neruothic pain. This blogg has been so helpful and I certainly don't feel alone in my pain. Please, someone tell me. . . do you have burning heat senations with pain? Does it wake you at night? What about sweats. . . . i find myself sleeping with a towel just to wipe down the areas that mike make you comfortable. I slept with a full towel last night. Help me to feel like I'm not going crazy and I appreciate all of the support. Help me, please. Help me. Others may vary and look at other sites and I am appreciative of that as well.All I want right now is a solid nights' sleep. - Linda Roberts Tue, 23 Jun 2009 01:05:24 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-393 I HAVE NEUROPATHIC NERVE BURNING AND PYSCHOGENIC TREMORS I NEED HELP AND DON'T GET NO WHERE. I HAVE SEEN SO MANY NEUROGOLISTS AND I AM JUST RECOMMENDED TO PYSCH DR FOR TREATMENT. I LIVE ONE DAY NOT KNOWING IF I GOING TO BURN ALL DAY OR HAVE TREMORS FROM ONE DAY TO THE NEXT PLEASE HELP IF YOU CAN FAITH AIELLO - FAITH AIELLO Sun, 22 Feb 2009 18:52:08 +0100 http://www.ei-resource.org/expert-columns/dr.-jacob-teitelbaums-column/effective-treatment-for-neuropathic-pain/#comment-147 Since you have written your books and website, are there any newer pain medications that would help with the pain when it gets so severe. I have tried many and they either don't help or have too many side effects. If they don't seem to help could the dose be doubled? It seems to me physicians are too reluctant to treat the pain enough to cause a level of comfort. For example: How about Tramadol - (50 mg.) one not effective. Can I try 2? June Russell - russells@embarqmail.com 434-974-6595 www.jrussellshealth.org *I am working with many healing modalities,family physician & Nutritionist, homeopathy, massage, healers, etc. None seem as knowledgeable as you, and I keep referring to your books! I am glad you are out there with books, a website, e-mail, etc. so we can bring issues to out care-givers that may help. - June Russell Sat, 02 Aug 2008 22:25:14 +0100