Comments for Pathological Detoxifiers and Environmental Illness at http://www.ei-resource.org , comment 1 to 3 out of 3 comments http://www.ei-resource.org Sat, 21 Nov 2009 07:43:15 +0100 FeedCreator 1.7.2 http://www.ei-resource.org/myblog/Pathological-Detoxifiers-and-Environmental-Illness.html#comment-679 Doh! Well, hopefully Australia will follow Austria's lead and get with the program! Cheers! - bolam56 Sun, 28 Jun 2009 15:14:19 +0100 http://www.ei-resource.org/myblog/Pathological-Detoxifiers-and-Environmental-Illness.html#comment-677 No problem, thanks for raising the topic in the first place :) Yes that is my experience as well. The term "pathological detoxifier" comes from the alternative medicine field and is not used in conventional medicine as far as I know. I had a battery of tests done by functional testing labs around the time of my detoxification profile all pointing to chronic toxic exposure, nutritional deficiencies, gut problems, and liver detoxification problems. I took them to various specialists - (immunologists etc) and they were all dismissed out of hand. I was incensed when the immunologist told me that if his own children had ME/CFS (he didn't believe in MCS) he wouldn't waste his money on these tests. I had a lot of the answers to my suffering in my hands and here was a highly intelligent and educated specialist simply dismissing them with no consideration. I am sure things will change but this will take time... There are signs they already are. I now have a GP (who also has a biochemistry degree) who is very open and believes 1. that both ME/CFS and MCS are physical illnesses and 2. a lot of the things I suggest as treatment approaches could well be useful but he is bound by guidelines so can't prescribe them. He tried prescribing the probiotic VSL#3 which costs close to £100 a month only to find it is not sanctioned by our local healthcare trust. I don't know if it was a typo but it's Austria not Australia that has joined Germany in recognizing MCS ;) P.S. I plan to write another blog this coming week on foods and nutritional supplements that address pathological detoxification. - Maff Sun, 28 Jun 2009 10:00:32 +0100 http://www.ei-resource.org/myblog/Pathological-Detoxifiers-and-Environmental-Illness.html#comment-676 Hey Matt, thanks so much for following up on this... My work comp toxicologist would just parrot out his mantra of: "at inhalation levels, these chemicals (glycols/phenoxyethanol) simply can not hurt you... You'd have to drink them". As I researched the toxilogical profiles of these chemicals, I would often come across comments on the possibility of "potentially sensitive subpopulations" that might be reactive at lower than normal levels, but none ever discussed pathological detoxifiers. It seems doctors simply refuse to accept any medical condition they can't measure/confirm with standard medical (blood/urine/imaging) techniques... Hopefully, with the tests you mentioned (caffeine, paracetamol/acetaminophen, and aspirin clearance) to demonstrate the potential for pathological detoxification, we'll have some much needed ammo in our war for recognition of MCS as a "real" disease. PS Great to hear Australia has joined Germany in recognizing MCS as "real"... Go Team! - bolam56 Sun, 28 Jun 2009 01:10:41 +0100