lloyd
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how to get rid of the sensitivity in MCS? - 2009/03/15 14:44
I started the Martin Pall nutrient complement 7 days ago and I do feel much better already! 
I'm also reading his book, and I read that MCS is based on 2 things: the vicious NO cycle and training of the nervous system to detect the problem causing agent.
Now my question is, I do feel much better as long as I live in my remote area. But going to cities where my friends are remain problematic. And Martin Pall nutrient complement will, theorically, reduce the excessive NO in my nervous system, thus getting rid of the inner inflamation, but I will remain over sensitive. Meaning if I stay in the city, I will quickly become badly ill once again.
Now in his book he mention that there are some occurence of case where people where able to reduce the sensitivity by being exposed to some quatity of related aromatic component. But he just mention it in passing...
Anyway, what I was wondering if anyone knows anyway to reduce the sensitivity?
Or if anyone knows any MCS aware physician in the Brisbane (Australia) area?
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Maff
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Re:how to get rid of the sensitivity in MCS? - 2009/03/17 12:30
Hi Lloyd,
It's good to hear that you are already feeling better using supplements recommended by Martin Pall.
There's no reason for you to feel that you will never be able to visit or live in the city again. I had MCS that was so severe I had to wear a carbon filter mask in my own bathroom and kitchen as well as any time I had visitors or went outside. I have now been MCS-free for 4 years and am able to go anywhere without a problem despite still having other health problems such as chronic fatigue syndrome.
My experience and knowledge of the medical literature tells me that MCS is a disorder of the nervous system i.e. hypersensitivity of certain parts of the brain to chemical stimuli (e.g. perfume and fragranced products, tobacco smoke, vehicle exhaust etc). However, I'm not sure being exposed to such VOCs is the way to go. I got well through strictly avoiding all chemical triggers for a few years and I know others have had success doing the same. I'd guess this gives the brain a chance to heal and regain its equilibrium.
Something else that I attribute my recovery to is the adrenal hormone DHEA which can be obtained as a supplement from the US. DHEA is a neurosteroid with powerful effects on brain function. It acts to calm several stress circuits, increase GABA (the "tranquilizing" neurotransmitter), and generally reduce overactivity in the brain and central nervous system. These qualities in theory make it an ideal treatment for MCS as well as a number of other conditions such as depression and anxiety.
Unfortunately I don't know of any MCS-aware doctors in the Brisbane area. Hopefully other visitors will be able to help you with that. Good luck!
"If you're going through hell...keep going" - Sir Winston Churchill |
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lloyd
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Re:how to get rid of the sensitivity in MCS? - 2009/03/17 14:22
Hi,
Thanks for your tip, I guess I just have to be patient!
And getting (relatively quickly) better is already so much better than being hopeless and worsening! 
Anyway, I take good notice of your DHEA suggestion. It's good to know alternatives. I will check if I can get it here.
However I'm not sure if it's a good idea to take it now as I'm already on Martin's Pall complement... do you have any idea on this?
Lastly do you have any idea where I could make a financial contribution to the fight against MCS?
I don't think I can make now.. but in a couple of month I'd like to help the good fight to succeed!
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Alea
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Re:how to get rid of the sensitivity in MCS? - 2009/03/26 09:59
Hi Maff,
I have MCS since 2006, I moved from Manhattan, New York to Miami Beach, Florida in 2007 where the air is more pure.... As you do, I strictly avoid all chemicals triggers, I am using supplements recommended from Martin Pall and Dr Grace Ziem, do the sauna detox 6 days per week, I am feeling much better than a year ago when my health was pretty bad, but still my MCS is very severe.....
But reading your answer to Lloyd gave me lots of hope!!!!!! I didn't know anybody with MCS that is MCS-free until now!!
I wanted to know if you can give me more information re: DHEA, how much did you take (dosage) and for how long, any special brand?, etc............
Many thanks!!!!!!
ps: I did for 2 months Dr. Shoemaker's cholestyramine protocol on 01/2009 - 02/2009 . My VCS test score improved, but i stopped taking the medicine for now, because they recommend me to be supervised while in the protocol with a physician and my Dr. is New York, and, as he said to me, he has not experience with this. Anyway I stopped it for now....... I'll look for a Dr. around Miami so I can be monitored during treatment. I'll post it with you how it goes.
Do you know anybody that did Dr. Shoemaker's treatment protocol?
Thanks!!!!!
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Maff
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Re:how to get rid of the sensitivity in MCS? - 2009/03/28 04:33
Hi Alea,
First of all - welcome to the forums I hope you find them and the rest of the site useful.
I'm glad to hear that you have had some success by moving to Florida and following the treatment protocols of Dr. Shoemaker and Prof. Pall.
It seems clear that MCS is caused by neurotoxicity, whether from acute/chronic chemical exposures, infectious agents (bacteria, fungi/yeasts etc), or any other source. The Shoemaker and Pall protocols are both aimed at combatting this toxicity in the body. In simple terms Dr. Shoemaker uses cholestyramine to bind to neurotoxins (chemical toxic to the brain) and remove them from the body. Martin Pall advocates the use of a wide range of antioxidant nutrients to combat the oxidative and nitrosative stress caused by the toxicity in the body.
Research suggests that exposure to neurotoxins can cause parts of the brain, such as the limbic system (emotional centre), to become hypersensitive to a wide range of chemicals, which is why MCS develops.
So along with tackling the toxicity with protocols such as those above, another way to approach treatment is to directly tackle the hypersensitivity of the brain. DHEA is a good agent for this because not only does it tackle adrenal fatigue and reduce stress but it also increases the activity of GABA, the major inhibitory (calming) neurotransmitter in the brain. In theory, GABA reduces the excessive brain activity triggered by chemicals in MCS sufferers and reduces the hypersensitivity that is present in the first place so reactions are reduced. I found that I didn't need a great deal of DHEA to achieve very good results. I started at 25mg per day but found that 10mg every other day worked just as well and minimised the chances of side-effects. DHEA , although available OTC, in the US is a steroid hormone, so it is best to work with a physician when taking it and have blood levels monitored.
I also found that increasing my levels of serotonin also reduced my MCS symptoms. Serotonin is also a calming neurotransmitter. I stumbled across its benefit by accident as I also suffer from seasonal affective disorder (S.A.D) in winter, which is associated with low serotonin levels. I noticed that in summer my symptoms of MCS were much improved. Susequently I increased my serotonin levels throughout the year by getting as much sunlight as possible and taking supplements including 5-HTP, vitamin D, St. John's Wort, and Rhodiola rosea.
You might also be interested in another approach to detoxification that a lot of people on the forums seem to be having success with - phospholipid exchange therapy. This provides the nutrients required for healthy cell membranes so that they can expel toxins efficiently.
You can read more about it through these links:
Forum Post - http://www.ei-resource.org/index.php?option=com_joomlaboard&Itemid=6&func=view&id=393&catid=10
The Detoxx System (Based on Dr. Shoemaker's work) - http://www.ei-resource.org/treatment-reviews-%11-other/specific-treatment-protocols/the-detoxx-
system/
Blog Post - http://www.ei-resource.org/myblog/Phospholipid-Exchange-for-Chemical-Sensitivity-Chronic-Fatigue-
Autism-and-other-Neurotoxic-Conditi.html
Hope this helps and let us know how you get on!
"If you're going through hell...keep going" - Sir Winston Churchill |
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Maff
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Re:how to get rid of the sensitivity in MCS? - 2009/03/28 04:38
Sorry Lloyd, I neglected to answer your questions in that last post!
There isn't any reason why you can't use DHEA and Martin Pall's recommended nutrients at the same time as far as I am aware.
In fact, doctors using the Detoxx System recommend both at the same time.
I'm not sure about how you could contribute financially to supporting MCS research etc. You may find more information on this at www.mcs-america.org or www.mcsrr.org.
Post edited by: Maff, at: 2009/03/28 11:38
"If you're going through hell...keep going" - Sir Winston Churchill |
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