| Multiple Chemical Sensitivity associations in Spain to meet with Ministry of Health |
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| Written by Matthew Hogg BSc (Hons) | |||||
| Monday, 25 January 2010 16:45 | |||||
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This press release is to bring you up to date on the process we are following. We want a clear process and we also want to make all of you part of it.
The meeting will be hold on February 4th 2010 in the Ministry of Health. Mr José Martínez Olmos, Secretary General of the Ministry of Health and Mr Alberto Infante Campos, General Director of Professional Planning, Cohesion of SNS and High Inspection will attend to the meeting representing the Ministry of Health. Following the Ministry of Health instructions, one person by each MCS Association will attend to the meeting and a lawyer and a doctor specialized in MCS too.
David Palma is coordinating this process selflessly.
We are now working on petitions document that will be signed by all MCS associations. This document will be given to the Ministry during the meeting, along with medical information about MCS.
List of MCS associations that are part of this process:
This press release is to announce that we are all working together to take advantage of this big opportunity. We all want the same thing: MCS to be formally recognized as a physical illness in Spain and we all want that all sufferers have the same rights as the other chronically ill people.
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  written by Sarahwineglass, February 01, 2010
Great this is progress.
However you have to ask what can we do in the UK to match this recognition? We are supposed to be on of the leading members of the EU, but where MCS is concerned possibly the most backward at every level. Any ideas of a way forward for the UK Sarah
 written by Maff, February 01, 2010
One thing UK citizens can do is sign this petition on the 10 Downing Street website:
http://petitions.number10.gov.uk/Scents/ The purpose: "We the undersigned petition the Prime Minister to protect the public from exposure to artificial perfumes" Seems like a good place to start!
written by Sarahwineglass, February 02, 2010
Definately! and have signed up to it on more than one occassion.
My concern is that this kind of action is devoid of the real personal experiences of MCS when we are exposed and the impact on our lives. The effects of social neglect from medical, housing and benefit agencies. Those that make improvements are generally those who can afford it. Perhaps there is room for an action group in the UK concentrating purely on government awareness. Anyone else in the UK have any thoughts on this? Regards Sarah
written by Maff, February 02, 2010
Glad to hear you have signed the petition Sarah. We need plenty more yet though as there are only about 100 signatories so far - so if you are reading this in the UK and have MCS or know someone who has please sign the petition!
I agree we need much more of an organised effort in the UK Sarah. In the US MCS groups have managed to get numerous state governors to sign declarations of support and May is recognised as MCS Awareness month. We need to be working along these lines I think.
written by Mercedes, February 03, 2010
In 1983 I suffered a dramatic respiratory distress and terrible MCS due to a photocopier in Spain. I sent hundreds of letters and got nowhere. I got cured after 5 years. Then the same disease reappeared again in the UK due to a laser printer. Again this time and with even better evidences I sent more hundreds of letters and mails and notably to the UK. Again I got nowhere. One more terrible acute episode happened still in Spain in 2005 and despite overwhelming evidences again my disease was denied and for the third time I was left badly ill and with no social support. By now and after 27 years I must have sent THOUSANDS of letters and emails everwhere in the world. And I still got nowhere. There are very powerful forces at work to prevent recognition of this condition. That is the real problem, and not the lack of medical and other evidences.
I am not surprised for what you comment from the UK but very much the same happens in the rest of the countries. I hope that they will achieve something positive in Spain this time but I have lost all my confidence and my trust. And this meeting in Spain might end in just a cosmetic divertion with no real achievements. In any case the drama that this MCS and breathing distress has caused in my life will never be compensated. I and many others belong to the `lost generation´ of MCS sufferers. Hopefully we have eased the path for the newcomers. And there will be more. I see that in the UK the rejection of MCS as a real physical disease goes very much parallel to the increase in the consideration that everything is ´all in the mind´. Perhaps if you British started to question and fight this psychological abuse you would get somewhere. I wish I could tell you more about that psychononsense but this short entry in a blog is no good place for what I have to say. But you better reflect about what this means.
written by Maff, February 06, 2010
Hi Mercedes,
Thank you for sharing your experience. The toner is photocopiers and laser printers can be a huge problem - initially triggering chemical sensitivities and symptoms there after. I am sorry that you have suffered so much and made such great efforts by writing to all appropriate parties and still got nowhere with this. You are certainly right that there are powerful interests that want to keep MCS out of the public eye and make sure it is dismissed as being "all in the mind". Lack of medical/scientific evidence is still a problem however as it takes a good body of high quality to research to convince the medical establishment that something is a real physical disease. As a UK citizen I have seen some of my medical notes that state that I suffer from chronic fatigue syndrome, irritable bowel syndrome, depression, and...."beliefs" about chemical sensitivity. So yes, MCS is certainly still rejected as a physical disease. I hope someone will make a concerted effort to change this as has happened in German, Austria, Japan...and hopefully now Spain. If you want to say more you can write as much as you like in your own personal blog on this site. Simply click the 'My Blog' link in the 'User Menu' at the top left of every page (if you are registered and logged in) and then click the 'Write New Entry' button. You will then see a text editor to write your blog post in. I for one would love to hear more on your thoughts and experiences.
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| Last Updated on Monday, 29 November 2010 17:52 |
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