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Miche
Miche
You just need to find the right doctor. All the doctors who have treated your mum would have thought of MCS (or the denial of it as an illness) at least once. They know it exists. But it takes a brave man/woman to stand up against popular opinion and speak the truth; however, these doctors who believe us do exist. For me, it's been a doctor of environmental medicine and an immunologist specialist who have been helpful in diagnosis and suggestions - yet it is the information that I get from the community of MCS, EI, and chemically sensitive people that has helped me the most.

I recovered almost completely once, but did not appreciate it, and ended up sicker than before. This time when I recover, I'll hold onto it like gold!

I wish you and your mum luck and good health.

I'm a student and I blog about living like this at the-labyrinth.com

Also, I think you should look for some hospital guidelines that are for chemically sensitive patients. In Australia we have five states (3 of these now have guidelines for patients, so that is a positive).
7 years ago
marcus
marcus
Sadly nothing much in your story surprises me. The medical profession seem to be clowns, (although that is probably somewhat harsh given that they do do some good work), who seem to be in complete denial about anything out of their comfort zone.

They might just as well offer blue pill medical care and red pill medical care:

"Would you like treatment for conditions that actually exist, or just treatment for the conditions that we say exist"

I have hunted high and low for help, and little is forthcoming.

Where are you based?

I think in a recent survey the only things that had beenn found to help were prayer and acupressure.

I have actually started a course of acupuncture recently, and i feel that some headway is being made. However, I've had so many false dawns, I am not btting the house on it.

Good luck anyhow.
7 years ago