Surviving Multiple Chemical Sensitivity! Surviving Multiple Chemical Sensitivity!

Jobs for people with MCS??

Discussion started by ethansmom 5 years ago

Hi Everyone,

I just found this site when I was searching online for other job/career options that I can do where I am in control of my envionment.  Like from home.  My home is my only place I can go where I control and have no chemical cleaners, smoke, perfumes, smelly laundry detergents, etc.

Anyone have ideas (or what do you do)??  I cant work in my workplace anymore (a big nursing  home) because I end up going home sick and then suffer days from migraine when I work.  I am currently mostly a stay at home mom of  a 3 yr. old boy, and I am expecting our second baby.  I don't need full time work and its more thinking ahead. 

Would appreciate any ideas.  Thanks in advance :-)

Cory-lynn

 

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Maff
Maff
Oh and Jodie, yes the discussion Caz referred to is directly below this one in the list of discussions at the link you posted (group homepage) on my computer. I have no idea why it would not be the same on yours! Hopefully something else that will clear up with updated site software
5 years ago
Maff
Maff
Hi Jodie, thanks so much for your extensive feedback! I very much agree with most of what you have said and simplification of things in general and improving ease of use for members is top of my list. Moving the reviews to a sub-heading under 'Information' can be easily done and is a good idea, for example.

A lot of the complicated category structure (e.g. in Healthcare Professionals Directory) is there because I had planned to fully populate every category with information/entries...but then never found the time/energy.

The general navigation will certainly be simplified in an effort to make it more obvious to you guys how to do things and get to the information you're looking for. I will make the site search box much more prominent as I think most people don't even spot it in the very top right corner of the page. If you give it a try you'll find it picks out exactly what you're looking for on the site as it is powered by Google. Just need to make it front and centre so people know it's there!

The speed issue is something I'm very aware of and has been a source of much annoyance to me...so I can imagine you guys and general passers-by also get irritated. I have the site on expensive fast servers (£85/$140 per month) and am using other facilities to speed things up but the main problem is with programming errors in the software. These will be fixed with the revamp and that should make the site fly.

The new software will also provide a dedicated mobile version of the site so it will be much more easily accessible from smartphones and the smaller tablet computers.

I am slightly restricted in what I can do in terms of the groups/discussions because the community software is a ready-made software add-on that I can only tweak to a certain extent. The seperate groups will therefore remain but with simplification of navigation and other measures to clean things up and scale down the amount of information on the page and improved search it will hopefully make things easier to find.

I plan to write a news article or blog outlining my plans and asking for feedback that I'll post on the homepage of the site in the New Year. I'll also ask for feedback on the EiR Facebook page and Twitter account. I'm aware that what I think is a good idea is not necessarily what the majority of visitors and members think so I really want to make the next version of the site for you guys based on actual feedback rather than just my best guesses!

Thanks again Jodie and sincere apologies for hijacking your discussion Cory-Lynn!
5 years ago
Jodie
Jodie
Hi Maff, for me the strength of EIR is the stack of excellent, solid information which you've built up here. But the site generally seems quite scattered to me, like it needs streamlining, stuff has got a bit wild, jumped the fenced & needs rounding up and coralling back in :b I think there are lots of areas I probably haven't even looked at yet cos I haven't wandered the various forks in the paths that lead down that way.

As an example - maybe you don't need a seperate heading for Reviews - they can go in under 'Information' since that's already got Columnists, Articles & Research as sub headings

I don't think you need separate chat/discussion area for each sub category, there isn't enough chatting going on so don't really think it needs dividing up, Green Canary for instance has just one chat stream but you can do a search for particular subjects/words if you want & find the threads for that subject.

The Healthcare Professionals directory doesn't have enough on it to be divided into countries then states etc, it could be simplified - just the main headings - doctors/hosps & clinics .. etc..?

Basically I just think it needs simplifying and compacting
Also if it were more compact and streamlined the site might be quicker to download, it can be quite slow on older computers..

Anyway, those are just my impressions, others might think differently - worth putting the question out there for all to have a say before the revamp?

Not sure what you mean ..main group page? here? www.ei-resource.org/community/groups/viewgroup/9-surviving-multiple-chemical-sensitivity/ nope can't see that particular message there..
5 years ago
Maff
Maff
Jodie - Thanks for posting the link. The discussion Caz posted in - 'Any Success with Brain Retraining' - it is the discussion right under this one in list on the main group page on my computer? Is it different for you?

Either way I plan to upgrade all the site software and re-design the site itself with more of a focus on the community side of things...with better navigation and search facilities to find the information you're after. My plan is for the home page of the site to be a hub for the community with prominent login/register section. Would be good to get some feedback on this if you have any thoughts? Thanks!
5 years ago
Jodie
Jodie
Hi Caz, wow that was hard to find! Leaving a link for Cory here
www.ei-resource.org/community/groups/viewdiscussion/…
5 years ago
CazNZ
CazNZ
Jodie have put a posting under "Any Success with Brain Training" :>
5 years ago
Jodie
Jodie
btw Cory, I'm happy to pass on techniques for the pastel paintings - they sold for over £100 each and there's always a demand for folks wanting pix of themselves, their kids or their pets. You need a good set of soft pastels, an easle, mounting board & a good printer to print out photos they send you which you work from.
5 years ago
Jodie
Jodie
Good post as ever Maff, sorry you're having a rough time lately - don't get sick - we need you! !

Ta for the Mayo link, I will deffo look at that & pass it round if it passes muster, I'm sure it will if is from Mayo. I still think someone like Caz who has been through the course needs to explain exactly what goes on, I find it really bizarre that no one will talk thru this .. its as if if they do all their 'magic' will vanish.

I've had some training in NLP and was not convinced, but I know people it has helped some, and more to the point it's easy for folks to look up and find out about. So are yoga & meditation. Absolutely fine, look it up & once you've understood what you're going to be spending time and money on give it a go - you'll at least have some idea if it's for you or not. But the brain retraining programs still like to wrap themselves in a blanket of mystery. I hope Caz can find time to do some write ups for us. If it sounds feasible I can ask my local library to buy a copy - tho might be whistling in the wind in the current economic climate.

Incidentally the Annie Hopper link doesn't come up with the same warning from my virus checker, neither did any of half a dozen others I've just clicked on - just the Gupta one, and yet Hopper and Gupta are both are redirected thru e-junkie (which I'm guessing its the same affiliate?)
5 years ago
Maff
Maff
Wow, great to see you all getting involved with this discussion. I saw the original post before the weekend but was not feeling well enough to reply. I just came to give Cory-Lynn a few ideas and found you'd all beaten me to it!

As founder of EiR a few years ago I would have said start a website on a subject that interests you (not necessarily health) and use Google Adsense ads and a few respectable affiliate programs (e.g. Amazon). I was able to get this site to a point where for a 3 years I earned enough to pay the rent, bills and other living expenses and still have a little left over. Unfortunately Google has shaken things up a lot and advertising earnings have taken taken a huge hit over the past couple of years so this is no longer the case. Running a large website that can make significant money is always hugely stressful I have discovered so not exactly a good fit when you have the types of illnesses we do...

I would say whatever area you have skills in and/or enjoy and can do freelance at home is a good way to go. With the internet it is now easy to setup a small home business. There are loads of tools out there that you can use to build a promotional website just with a few point and clicks and no knowledge of what's going on "under the hood".

On the side topic that seems to have developed. I recovered from MCS by different means but I believe the theory and science behind brain retraining to have merit and be pretty solid. Aside from CazNZ and others doing well with the programs, a small study by the hugely respected Mayo clinic also found positive results with the Gupta program - www.guptaprogramme.com/… do agree with Jodie that these programs are way over-priced however. My advice would be that any combination of techniques such as meditation, yoga, neuro-linguistic programming (NLP), mindfulness-based cognitive behavioural therapy (MCBT) etc...will have a similar positive brain retraining effect and most importantly are free. I'm even doing myself out of any potential commission here which I earn on sales of brain retraining programs through the links in the right coloumn of the site...and like I said I am broke!

Oh and on the other sidenote - tackling Candida and any other dysbiotic gut situation will definitely help in managing/treating MCS. Such gut problems can be a huge source of highly toxic chemicals including alcohols, aldehydes, ammonia, hydrogen sulphide etc. Whatever you do to make your living environment chemical-free will only make a small difference if you're constantly absorbing all these poisons from your gut.

Jodie - The warning you got from your internet provider after clicking a link to the Gupta program here on EiR has nothing to do with the Gupta website. It is because the link goes through an affiliate program provider that both Annie Hopper and Ashok Gupta's programs use to let site's like EiR earn a commission for advertising them. This system could be used for scams and the like but this is not the case with the brain retraining programs I can assure you.

Take care all and all the best in your quests for physical and financial health
5 years ago
Jodie
Jodie
I think this deserves a seperate thread

I belong to several groups and have come across many who were bitterly disappointed having put a huge amount of their time and a lot of cash into Gupta particularly (Annie H seemed to get less bad press). I think they give you 6 months then your cash back if it doesn't work.. but then I understood you are told it can take more than 6 months to work - I think it took more than 6 mo's for Julie Genser (runs Planet Thrive) to get anything out of it.. I'm going to have to find where I read it but I believe she said it was a 'finishing touch' to a quite gruelling regime of alt. therapies.

We had people on Green Canary who would drop in, say 'Guptas heals me, praise the Lord!!' or something similar, then when asked for for details they'd say 'I can't tell you - I'm not allowed to talk to anyone, it will break the healing road!!' & they'd disappear again! It was enfuriating. NOBODY has ever explained exactly what happens thru these courses, even if you ask - and that's enough to sound cult-ish to me. So Caz, *please enlighten us!* explain exactly what happens - throw some light. If anyone is going to lay out that much cash on something it should be because we know what we're going to have to put into it and what its about - in detail. Not some vague 'well its about talking yourself out of reactions while in a state of relaxation' - not good enough. If you really think it's worth us spending a lot of cash (remember most of us are very hard up due to this condition), and putting a huge amount of time and effort into this, then give us a good description, a write up... - what did you need to do - daily/monthly- what was the process? what goes on? how did it affect you and how quickly? you are obviously articulate enough to do so . Put it under a seperate heading so it shows up on the right (this thread is quite hidden here) - this way people can ask questions and you will have the answers for them.. it could be really interesting.

5 years ago
CazNZ
CazNZ
Jodie. "online scams or fraud' yikes" a "cult". Brain retraining is a legitimate neurological treatment option. There is plenty of peer-reviewed academic research to support the effectiveness of these treatments. We would all agree that MCS is a physiological and neurological disorder. Many many people throughout the World are becoming completely well. I just say fantastic, me too please! I'm loving the program, it is doing more for me than all the doctors and specialists that treat individual symptoms. Being ill is costing me my salary, $1000s each year as I am now unable to work.

Cory-Lynn. I'll send you a separate email regarding graphic design and working at home. I use to work for a publishing firm, from home, when I was raising my children. I avoid stress now because I find that chemicals and stress make my MCS worse.
5 years ago
Jodie
Jodie
Oh that's interesting Cory. That suggests that, for you anyway, the Candida came first. I need to try some anti candida supplements again, tho I had very serious reactions to Caprylic Acid and also Diflucan which kindof put me off trying anything else, plus I find the no-carbs no-sugar no-fruit diets incredibly debilitating - no energy at all! Still you're making me think I should give it another go..

Incidentally have you thought about childminding if you want to earn extra cash later?
5 years ago
ethansmom
ethansmom
CazNZ, did you find graphic design to stressful because you had a lot of clients (full time). Would one be able to do something like that on a casual basis?

I think I need to focus on gut healing right now, because I think without ever getting the Candida under control (gut microbe balance) I will always still be chemically sensitive.

But as I am expecting again, I can't do elimination diets or take certain supplements so currently I am only taking Candex, which digests the yeast cells in the gut. It definitely is keeping it "under control" until after delivery when I can hit it with some harder antifungals.
5 years ago
ethansmom
ethansmom
My chemical sensitivity symptoms are mainly limited to migraines. If I am around a person who has cigarrette smoke on them, or in a moldy place, or near perfume, I get an instant headache which usually turns into a migraine within an hour. I was very healthy and had no chemical sensitivities until about 12 years ago when I developed candida overgrowth. I could be around smoke, mold, chemicals, perfumes, but after my gut imbalance with Candida, I can no longer tolerate any of it. I am working on gut healing, because when I have my Candida really under control and am not eating lots of sweets, I have a way higher tolerance of the offending chemicals than when my candida is worse.
5 years ago
Jodie
Jodie
Yeh, dunno about that stuff, it has the air of a cult about it which I find irritating, and its not cheap - over £100 last time I looked. But relaxation exercises can only be good, I do a lot of yoga, love it, it makes me feel amazing.. £6 DVD tho, not £100 Cory there's lots of discussion on both those group links I gave you on brain retraining, I would read as much as you can before shelling out ££'s. On Planet Thrive someone has started a sort of round-robin lending system for the DVDs which makes more sense to me. I just clicked on the link to Gupta's site at the side here and my Virgin virus software wouldn't let me in - 'this site can transmit malicious software and has been involved in online scams or fraud' yikes!
5 years ago
CazNZ
CazNZ
I agree with you Jodie. I have a friend in my village who got rid of the candida and the chemical sensitivity disappeared (drugs and diet). She still has lots of issues though. Racing heart, racing thoughts, brain fog, fatigue . . . the list goes on and on. But no candida. Interestingly my candida is not showing its presence any more. Not too sure what has got rid of this though . . . have been sugar free for some time; also on Pall supplements and doing brain retraining.

We definitely have a speeding "cycle" in our bodies. Slow it, get a little better, add a few chemical hits and stress and we speed it up and get much worse. The Pall supplements slowed my cycle down. Hence I got 30% better very fast . . . chemical sensitivity increased though. I have just had the first half my my amalgm filings removed so I suspect that will help also.

Nevertheless, I am absolutely blown away with the effects of brain retraining. I believe in my case (I know my history) that it is my unconscious part(s) of my brain winding up the cycle. When I first started the Gupta programme at least 80% of my thinking was geared towards being sick and thinking negative. I was frantically always trying to prove myself and keep myself safe. I was naturally breathing very shallowly (panic mode) also. The reason why I recommended only brain training to ethansmom was that she is expecting another body and lots of the "things" we all have been doing to help MCS, would not be appropriate at this time for her. Brain retraining with all its breathing exercises and mediation etc., would of course not only be good for mum but also good for the developing baby.
5 years ago
Jodie
Jodie
There does seem to be a connection between Candida and MCS. Often if one gets better the other does too, tho I'm not sure where the cause and effect thing is, does Candida aggravate the MCS or the other way round? When I had all my amalgams removed both died down 50% almost immediately, and I was told that mercury and Candida are synergistic.

Have a look at this page for the most common approaches to treatment recommended according to feedback from MCS patients, the brain training is on the list there.
www.ei-resource.org/treatment-options/treatment-information/multiple-chemical-sensitivity-treatment/
5 years ago
CazNZ
CazNZ
Website design and development is oversupplied in NZ. I'm actually a graphic artist and have developed a number of sites also. I would find the work too stressful at this stage.

I've decided to take life very easy and get better. Which I am. I forgot to put my carbon mask on when I went into my husbands workshop today, lots of fumes from oil and petrol in there, and I DIDN'T HAVE A REACTION!!! YAH! Crazy I know, but I just stood in there and marvelled over forgetting the mask and not being in pain.

I'm doing the Gupta Programme, for CFS/ME/MCS. The Dynamic neural retraining I've heard is very good too. I have MCS. As I got worse I developed FM and had long periods when I was fatigued. This video will give you info on the Gupta programme: ">www.youtube.com/… .

Yes, candida use to be a big problem for me. Thrush, you know where, and even in the nostils and eye ducts yuk. I don't have that problem any more.

Use the "search" on this site. Lots of information. I came to this site in June and have learnt lots and have made a number of informed decisions.
5 years ago
ethansmom
ethansmom
Thank you for the ideas I am going to check out those other groups Jodie. I do have hobbies and people do say I am creative. I also thought of website design and development??? And CanNZ, I've never heard of brain training before, what is that?
Also I wonder if other people's chemical sensitivities began with a long time battle with Candida overgrowth. Wondering if I can reverse the MCS is I can really get rid of the yeast?
5 years ago
CazNZ
CazNZ
Hi Cory-Lynn. Jodie is right about possible hobbies. I have a large vege patch and have been thinking of making herb vingars and oils etc. You could always get into beading, it's very popular to buy here in NZ or making cane baskets (I use to make pigs), natural candles, etc. I have been lucky in that since I haven't been able to work people have offered me gardening to do . . . I love gardening. Alas my career at this stage is gone too.

Alternatively, you could always do what I am . . . brain training and very likely get well again. It's certainly reduced my sensitivity (only been at it for three months) and what is really really good my body gives me lots of warning now - without going into pain-land - I have several minutes to move away. Both of the recommended brain training systems are very very very cheap for the benefits they give. Would also have you nice and relaxed for your upcoming birth too. (The grannie is coming out in me :> )

PS: You have a lovely wee boy.
5 years ago
Jodie
Jodie
Are there any hobbies you think you could turn into cash? I painted & sold portraits for a while (in pastels - no smells!) it paid well but it was giving me RSI, so now I make craft jewellery - more for the fun of it than anything, I'm not going at it hard enough to make much out of it, but its sold on Etsy and to friends. Just an idea. Here's a couple of other groups you could ask at
planetthrive.com/
http://health.dir.groups.yahoo.com/group/GreenCanary/
5 years ago

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