Surviving Multiple Chemical Sensitivity! Surviving Multiple Chemical Sensitivity!

Multiple Chemical Sensitivity (MCS) recovery stories

Discussion started by Maff 8 years ago

I am sure many reading this can relate to what nontoxic4u posted on the group wall about the large sums of money she has spent on doctors bills and various treatments hoping to gain some relief from her MCS - I certainly can.

 

nontoxic4u suggested those who have found things that help alleviate their MCS symptoms, reduce their sensitivity, or indeed have led to a full recovery might want to share their knowledge and experience with other MCSers. I think this is a fantastic idea so have created this discussion for just that reason. So please do share below!

 

I am happy to report that after suffering from severe MCS for years I have now not reacted to any exposure for 5-6 years. I have gone from not being able to be outside, around people, or even go into my own bathroom or kitchen without wearing a carbon filter mask to being "normal" again and I know I am not the only one. So to all those currently struggling to live with MCS please don't give up hope!

 

I will start us off with what helped me personally...

 

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Maff
Maff
Hi Juniper,

You're welcome. I hope the masks help and also the DHEA. Just be careful with the DHEA, start with a very low dose and build up slowly would be my advice based on personal experience - being careful to note any side-effects. Despite being available OTC it is after all a steroid hormone and very powerful. Best to use under the supervision of a doctor/naturopath if at all possible!

What did your Genova testing show exactly? These tests usually show single nucleotide polymorphisms (SNPs) in specific genes and the abnormal variants usually mean the function of enzymes the genes code for is reduced rather than non-existent. Also there are a number of different genes involved in glutathione production, some specific to certain areas of the body e.g. liver, brain. I have had similar testing on a range of genes and also found problems with glutathione production and methylation cycle reactions i.e. folic acid and B12 metabolism.

Anyway, I am happy to hear the glutathione, folic acid and B12 supplementation is helping you

It is definitely a case of one step at a time with these illnesses we suffer from so any success can be a springboard to more. I hope you continue to find answers and my suggestions were of benefit. It would be a good idea to monitor any DHEA treatment with an Adrenal Stress Index (ASI) saliva test. I know the expense we incur is huge but this is a relatively inexpensive test.

Best wishes!
8 years ago
Juniper
Juniper
Hi Matt,
Thanks so much for getting back to me about the mask. I will definitely order some.
I also just started taking DHEA a few days ago after reading about your success with it.

I discovered a couple of years ago, while almost dying from chelation therapy that I have a genetic detoxification problem.
I had a build up of heavy metals and chemicals in my body that a couple of naturopaths were trying to remove.

It was suggested that I might have a detox problem and I took the Genova Detox test.
My results showed that I inherited from both my parents the inability to produce glutathione in my body.
As well, genetically, my body has challenges metabolizing estrogen and producing dopamine (neurotransmitter issues)

I am grateful to Genova. I finally got some answers. Just no doctors who know what to do with me. So I continue to fumble my way through.

After many trips to the clinic for injections I asked if I could self inject. Naturopaths in my province are just recently licensed to prescribe (thank goodness because my GP said no way!)
I self inject and nebulize daily, preservative free - glutathione, B12 and Folic acid.
It really helps.
I had a life undiagnosed learning disorder that disappeared and my brain fog is mostly gone.

My story is very long, life long, and complicated. I began searching for pain relief when I was 12 years old - I'm now 51.

I am grateful for the glutathione, B12, folic acid. I now have other aspects to heal. I don't know how far I can go considering I have some genetic issues.

The financial cost to me - unbelievable.

Thank you so much, once again
8 years ago
Maff
Maff
Hi Juniper,

I used the honeycomb carbon filter masks from www.icanbreathe.com - I found they allowed me to be around triggering chemicals without a reaction. They didn't cause reactions themselves and are relatively inexpensive. Were also a good fit for me. Hope they are effective fo you if you try them.

I look forward to reading about the thins you have found helpful for MCS!
8 years ago
Juniper
Juniper
Hi Matt,
What kind of carbon filter mask did you use? I will post some things that have worked for me in a few days. This is such a good idea!
8 years ago
Maff
Maff
Like all environmental illnesses, MCS is complex so I believe addressing things from every angle is important.

Evidence suggests that increased exposure to environmental chemicals, either acute (e.g. Gulf War, 9/11 type environments) or chronic (e.g. modest occupational exposure, household mold) can overwhelm the body's detoxification pathways. This results in increased levels of circulating toxins which can cause the brain and central nervous system (CNS) to become hypersensitive to subsequent low-level, everyday exposures to volatile organic compounds (VOCs) in those chemical industry money makers like perfumes, colognes and other synthetic fragrances. It makes sense then to reduce exposures as much as possible, support the body's detoxification pathways with nutritional therapy, and attempt to attenuate the brain's over reaction to environmental chemicals. This is exactly what I did and I am delighted to report that it worked!

Specifically I moved into a small self-contained flat/apartment alone (had previously been living at home with parents) and made sure it was free from sources of VOCs that may off-gas - I bought only used furniture etc. I stopped using all personal care and household cleaning products apart from natural, fragrance-free soap and dish washing liquid and soap nuts or laundry balls to do my laundry. I also wore a carbon filter mask in any place or situation I knew might trigger my symptoms i.e. anywhere except my bedroom or living room! My bathroom and kitchen triggered a reaction despite me having removed all potential problem products...never figured out why. I count this strict chemical avoidance as vital to my recovery.

Also of major importance were supplements of the adrenal hormone DHEA. This hormone acts to increase the effects of GABA, the brains major inhibitory (calming) neurotransmitter, among other actions. It may be that this helped to dampen the hypersensitivity of my brain to chemical stimuli. It also improves stress tolerance and feelings of well-being and thus could be expected to reduce activity of the sypathetic nervous system, which again ties in to reducing hyperstimulation of neurons in the brain.

Meditation is another tool/treatment I used that almost certainly helped restore equilibrium to my brain and CNS.

Finally I took a variety of supplements in an effort to support my body's detoxification pathways and reduce my toxic load. These included amino acids and nutrient cofactors required by phase 2 detox pathways, as well as herbs that stimulate bile production and bile flow. For more on detoxification pathways and the nutrients that can support them please see the following:

www.ei-resource.org/myblog/… hope my story will give others hope and I look forward to reading others' experiences and tips!
8 years ago

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