porphyria?

Discussion started by True 6 years ago

Im not sure Im posting this in the appropriate section, but was wondering if anyone has considered porphyria? I have a lot of the symptoms but havent really looked into it deeply.

 

Anyone read this book?

 

"Porphyria: The Ultimate Cause of Common, Chronic and Environmental Illnesses. With Breakthroughs in Diet, Supplements, and Energy Balancing"

 

 

 

● Click on the Testimonials link to read what people like you said about this book.

This hidden problem is often “the last piece of the puzzle” for many chronic illnesses (see below), and/or environmental illnesses (MCS, EMFS, food reactivity).

 

 

Poor tolerance for caffeine, alcohol, MSG, stress, meds, or supplements are possible indications of underlying porphyria.

If you became very sick, and/or very reactive to foods, chemicals or EMF after mercury, pesticide, mold, or other toxic exposure, or after a Candida, parasite, viral, Lyme, or other infectious problem, a worse state of (previously hidden) porphyria may have been induced.

Porphyria is NOT a “rare disease,” rather 20% of Mankind may have a porphyria genetic defect that shows itself after stress, toxic exposure, drugs, or micro-organism—Candida, parasites, bacteria, viruses—overgrowth.

Once the porphyria is active, some people then become chronically ill, and/or very “allergic.”

Porphyria may be the ultimate cause of MCS/EMFS/E.I./Universal Food Sensitivities, and numerous common, chronic illnesses--see below. Journal articles detail that tests for porphyria can be inaccurate.

This book also shows how other theories--including the nitric oxide, Vitamin D, neurotoxin, and pyroluria theories--are sub-sets of the Porphyria Hypothesis, and are superseded by it. Even explaining why "helpful supplements" make some people worse.

This is the first and only holistic or integrative book published on porphyria.

Besides Porphyria, 10 other conditions that can cause or exacerbate Chronic or Environmental Illnesses are leghthily discussed. Unique Rochlitz theories.

● Over-sized book. 8.5” X 11”

● 172 pages. A life-long, and unique reference for everyone.

● Illustrated in black & white.

● 21 Chapters, six appendices, including bibliography, index, extensive food lists, supplement sources, and more.

● Rare: Testing Guidleines

● It contains new information—for many conditions or problems—on diet, supplements, self-help, energy balancing (some in color), trigger points, and more.

● Hiatal Hernia Syndrome and Vagus Nerve Imbalance—with corrections. The 21st chapter is also our new, separate Hiatal Hernia booklet. Thus making the Porphyria book an even better value.

 

You need to be a member of this group before you can participate in this discussion.
margie
margie
Hi there;
I found it really worthwhile reading the book you refer to here-"Porphyria: The Ultimate Cause of Common, Chronic and Environmental Illnesses. With Breakthroughs in Diet, Supplements, and Energy Balancing"

And I gather others found it had new and helpful info..... as per testimonials on Prof. Rochlitz's web.

wellatlast.com/…].................. it takes some thought to put together a rotation diet and check on eliminating or reducing or spacing out supplements but the results have been great for my daughter...... in combo with the energy balancing techniques. Once she pieced it all together and put it into practice, it's all just part of her everyday life and routine now............... she's in much much better health now ............. her chiropractor said "whatever your doing, is really making improvements".
5 years ago
True
True
Hey Deedee,
thanks for responding.
how did you discover the mold infection? What are you taking for it?
Did you find the book to have new info unavailable online?
What are your thoughts about Dr. Rochlitz? I emailed him some questions about some info in one of his articles and his response was quite short and seemed to not to want to be bothered. Sort of turned me off since I had purchased the first copy of his allergy book which offered no help on what to actually do to erradicate bacteria which he claimed to be responsible for allergies. His response was to buy the new book.
UGH.
6 years ago
DeeDees
DeeDees
I've read the book and am selling my copy of anyone wants it. It's very, very dense. I also consulted with Dr. Rochlitz. More recently have found out I have a mold infection and am getting treatment from an OMD. It's the first relief I've had in a year...

Porphyria tests were negative. Yes, I got some blood tests. It was a fight just to get those and the genetic testing is out of the question... no one will refer for those.
6 years ago
True
True
I think I have tried that form, will need to think about it and check my vitamin stock =). I hear you on the tests been there..
6 years ago
Maff
Maff
Yes, since the treatment is simply nutrient supplementation (vitally B6) then it would be worth doing a treatment trial. Have you tried the P5P form of B6? This is further along the biochemical pathway which converts B6 to active biochemicals. It may be that you have a biochemical quirk that means plain B6 is ending up producing the wrong thing if taken in high doses.

50 is relatively cheap but there is still a huge list of other equally indicated tests I could do so the total bill would be huge and I've already spent a ridiculous amount and am now broke...as I am sure is the same story for many...
6 years ago
True
True
opps sorry. Thanks for the response and instructions. I suppose one could just try the recommended supplements for treating it and see if they get a response. One of the supplements recommended is super high doses of B6. I can take B6 only in tiny amounts in which case I notice I sleep better but anything over 20mg and I cant sleep at all. So Im not sure I am a candidate however I too have had all the symptoms listed.

The test is relatively cheap and can be found online for around 50.00, from what Ive read.
6 years ago
Maff
Maff
Hi True,

This was probably better off in the 'Supporting Liver Health & Detoxification Pathways' group at www.ei-resource.org/community/groups/viewgroup/33-supporting-liver-health-a-detoxification-pathways/… know all members can easily create a new group at any time from the groups menu. This would have been a good opportunity as a dedicated porphyria group would certainly be worthwhile!

Since we're here, I looked into porphyria when I was struggling with chemical sensitivities as this is what it seems to have been linked to most often. I never got tested at the time and was thankfully able to overcome MCS so have not given it much thought since. I suspect however that I may still show some abnormalities...I certainly meet the criteria in pink at the top of your post. it's just finding the money for all the tests I'd like to do! If you can afford it I would definitely say it is one area worth exploring.
6 years ago

Related Discussions