An excellent Youtube presentation by Dr Afrin from the US, who has spearheaded research and treatment into Mast Cell Activation Disorder. youtu.be/lrKqlv6VK_w
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Exactly Maff. Hope it's going ok there! It gets better, nothing ever as bad again as those first 3 months
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There is no reason why a child should not be taken abroad for treatment by well qualified medics who might be able to help, when there are no options left for treatment in this country. Taking into...
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Ok saved it - you can delete that post. Dont feed the bots
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I don't think I have that addie Maff? Theres one on your profile: Maff@ .. and I've got your 23 hotmail one. Maybe email me and let me know which is best for ppl to contact you on..
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Congrats on your new daughter Maff! I was wondering how you were getting on, it's a big upheaval right ? btw how good are you at interpreting organix urine acid tests, I might have a few...
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Hi tamie, it hasn't really got down to GP level yet, we have a charity set up to do exactly that. The right specialist will be very clued up tho. As for tests, each specialist has their own...
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Tell me about it. In 20 years of being unwell I had more nightmare battles with dentists than any other medic I crossed paths with. Decent dentists are very rare. I would think u cd get to sp needs...
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Hi Tamie.. I had a hell of a time with this and eventually ended up with NHS Special Needs dentist (yes there is such a thing tho most NHS dentists don't even know it exist
s). I wrote a lot up here:...
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Interesting, broccilli supposedly has an effect on tests for H.Pylori, which suggests that HP may have been the prob there, worth getting an HP test. Also look at MCAS. Both MCS and MCAS now have...
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We have done this one on another group - there was no co-relation as far as we could see. Much more likely is genetic similarities.
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Hello Aqua, I would get in touch with MCS America, if you haven't already www.mcs-america.org
There are also support groups on Facebook and at Planet Thrive & some on Yahoo. But I wd contact...
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I've had this happen with certain chems. It seems it's an inflammatory response to what your bod thinks is an enemy, similar to bacterial /viral infection.
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www.imdb.com/title/tt5001718/

www.imdb.com/title/tt5001718/

"Everything, everything"
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I thought as much. Jeez.. exasperating :-O ... yeh at the very least make them pay for your time!
Theres no point in making a programme on mystery illnesses if they are going to go straight to...
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