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Maff

Maff

Aquasana Water Filters are currently offering up to an incredible 75% off. Simply use code: BOGO at checkout and save $$$ hundreds!
30
Sep
0
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Treatments to Protect and Heal the Blood-Brain Barrier

Blood-Brain Barrier
What is the Blood-Brain Barrier? The blood-brain barrier (BBB) is a selectively permeable membrane that surrounds the brain and seperates this vital organ from the systemic circulation. The BBB serves the essential function of creating a "protective bubble" around the brain. It can be seen as acting as a gatekeeper - allowing only those molecules from the bloodstream that are required by the brain (e.g. oxygen, hormones) to enter into the brain extracellular fluid, while keeping out substances (neurotoxins) which may be damaging (e.g. metabolic & environmental toxins, bacteria). The BBB also actively transports certain metabolically essential molecules like glucose - that do not cross the barrier passively - into the brain extra cellular fluid via specific protein transporters. Structure of the Blood-Brain Barrier The BBB is composed of endothelial cells that are the structural building blocks of blood vessels throughout the body. The difference is that these cells are...
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  • adminv15
    adminv15 says #
    you people are completely 100% wrong and 'again' running down the wrong path of research, start looking at 'internal ionization ra
03
Jul
2
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DNA Strand
I think most people would agree that aging is not particularly desirable. Some even go as far as to call it a "disease". While I wouldn't go that far, I want to do all I can to understand the aging process and perhaps slow it down and avoid its more serious consequences. What are these consequences I am talking about? Well although I do not see aging as a disease in itself, our risk of degenerative diseases certainly increases as our bodies age. Heart attacks, strokes and cancer, some of the the biggest killers in the developed world become much more likely, as do multiple sclerosis (MS), Parkinson's disease and various forms of dementia such as Alzheimer's disease. Not to mention conditions such as rheumatoid arthritis which can leave individuals disabled. All of these diseases of aging reduce a person's quality of life and in the case of cardiovascular disease...
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  • Miche
    Miche says #
    Do you know if the Lipic Acid would be fermented? As I have one like that and I'm not sure about it.
20
Jun
0
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AlcoholThe widespread use of antibiotics, birth control pills and immune-suppressing steroids such as anti-inflammatories, combined with modern high sugar diets, has led to the overgrowth of Candida and other yeasts in the upper gut becoming common and leading to debilitating systemic illness.

 

As an individual living with this for the past 20 years or so I have begun to notice something that should be obvious but nobody I am aware of has written about - that is that many effects of intestinal Candida overgrowth are the same as those that alcoholics experience or are at risk for.

 

The reason for this is that the main way intestinal Candida overgrowth causes illnesses is through the production of alcohol. Candida is a yeast which ferments carbohydrates in our diet to produce exactly the same type of alcohol that an alcoholic would consume to excess in the form of alcoholic beverages - namely ethanol.

 

Ethanol is a central nervous system depressant and it is this property that makes social drinking enjoyable since it relaxes us and removes inhibitions. It can however also cause long-term effects on cognitive function and mood. Ethanol is toxic and can damage the body at the cellular level as well as the organ level - the obvious example of the latter being liver diseases including alcoholic hepatitis and cirrhosis.

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  • adminv15
    adminv15 says #
    Thank you so much I am not alone ! I try an avoid all yeast foods but its really hard! My doctor just wants to give me anti acid t
20
Mar
4
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Glutathione Molecule
Glutathione (GSH) is a small tripeptide molecule (composed of 3 amino acids) that plays a big part in detoxifying the body of harmful substances and protecting it from reactive oxygen molecules such as free radicals in its role as an antioxidant. The three amino acids that combine to form glutathione are cysteine, glycine and glutamic acid. Glutathione is a major player in the Phase 2 (conjugation) detoxification system which is primarily active in the liver. Molecules of glutathione are "conjugated", or joined, to toxins that have either passed through Phase 1 (cytochrome P450) system to prepare them for conjugation, or to substances which are already amenable to joining with glutathione. Once glutathione conjugation has taken place the toxins can be safely and easily excreted from the body. As an antioxidant glutathione directly neutralizes free radicals and other reactive oxygen molecules like peroxides. In addition to this it also plays a...
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  • Tracy Mac
    Tracy Mac says #
    Here is another way to raise glutathione particularly if you have sulphation pathway problems. http://www.ncbi.nlm.nih.gov/pubmed/
03
Mar
0
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PANDAS becomes PANS as researchers issue new definition and name change

Streptococcal Bacteria
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections (PANDAS) is a mental illness with a sudden onset affecting young children. It presents with behaviour typical of obsessive-compulsive disorder (OCD), as well as separation anxiety and mood swings. PANDAS has been a controversial diagnosis, not least because many of the symptoms place it well within the reach of the autism spectrum disorders (ASD) umbrella. A quick browse of online autism support forums reveals many a discussion on the subject of PANDAS among parents of autistic children or those seeking answers for sudden changes in their child's behaviour. One website estimates that "at least 40%" of children diagnosed with an ASD have PANDAS. In the medical profession however, PANDAS is most often associated with and compared to child-onset OCD. Some doctors insist there is no such thing as PANDAS and that Streptococcal infections and the onset of neuropsychiatricsymptoms are coincidental and affected...
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  • adminv15
    adminv15 says #
    I don't know if you are aware but the 16 or more LeRoy, NY teens who this October started to display a kind of Tourette's syndrom
30
Jan
1
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The Perrin Technique for the Treatment of Chronic Fatigue Syndrome

The Perrin Technique
Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) is something of a family "tradition". Besides myself, both my mother and sister are also long-term survivors of this devastating illness. We have all tried countless treatments and therapies over the years, some have helped, most have not. Both my mother and sister however have been treated using The Perrin Technique and seen positive results. My mother tries to see her specially trained osteopath regularly for the treatment or she sees a noticeable downturn in her condition. My sister got married in the summer of 2009 and says regular Perrin Technique treatments leading up to the big day definitely helped her get through it. So, I am now trying this unique therapy for myself. I have had two appointments with the same practitioner my family use, the first was purely history taking followed by a physical examination which the practitioner used to confirm...
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  • Maff
    Maff says #
    Hi Beauts, Great to see someone working to get a forum going for the Perrin Technique. I would be very happy to post some of what
  • adminv15
    adminv15 says #
    Hi Maff I am trying to get a discussion forum going for people who are undergoing Perrin technique treatment (of which I am one).
  • adminv15
    adminv15 says #
    I suspect that adrenal stimulants and tired adrenals from all the stimulants play a huge part. Sugar=toxin Why am I so tired?
16
Jan
12
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Matthew Hogg wearing icanbreathe carbon filter mask for multiple chemical sensitivity (MCS)
After the initial bewilderment and panic of becoming sensitive to what were previously harmless everyday items and environments, everyone who suffers from multiple chemical sensitivity (MCS) quickly realizes that there is yet more suffering in store for them. Firstly, their regular doctor is unlikely to take the condition seriously or diagnose it correctly, instead opting for a psychiatric diagnosis. Secondly, no treatment actually targeted at MCS is likely to be forthcoming. Even when naturopathic doctors and other alternative practitioners who do recognize MCS for what it is are consulted, the treatments on offer are often expensive and only partially successful at best. For this reason I decided to compile the following list and summaries of five MCS treatments which are most likely to help you if you suffer from this debilitating and isolating condition. I decided on the five treatments based on my own recovery from MCS, feedback from other...
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  • adminv15
    adminv15 says #
    Ive been suffering from msc for 20 years! Im still looking for a answer! My first Dr said it was in my head, that was 19 years ago
  • adminv15
    adminv15 says #
    sorry the comment just above this I accidentally wrote f.c. daughter, I was wanting to address that comment to her. My first time
  • adminv15
    adminv15 says #
    f.c.daughter.... I'm right there with you. My husband thinks the exact same thing. There is soooo much to do. I just wish I could
06
Jan
0
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New Year's Resolutions and Invisible Illness

Relaxing Man Planter
Let's face it - New Year's resolutions are hard to keep at the best of times. We all confidently list the vices we'll give up or positive life changes we'll make over the coming year with the best of intentions and (in most cases) a genuine desire to follow through. But I think most people will agree that after the rosy tint of the holiday season has worn off it becomes hard to stick to most resolutions. Throw invisible illnesses into the mix and things get a whole lot more problematic! For example, it's hard to shed any extra pounds you feel you might have when walking from the bedroom to the bathroom requires you to summon all the strength and energy you have. A new calorie burning exercise regime then is out of the question. Likewise, giving up vices such as smoking and drinking are common resolutions the average...
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18
Dec
0
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Lost Youth and Lost Lives: The Devastating Consequences of Chronic Fatigue Syndrome

Me missing a day of school due to chronic fatigue syndrome (ME/CFS)
This week the online medical journal BMJ Open published a study whose findings re-opened old wounds and caused me great dismay. The study looked at every pupil between the ages of 11 and 16 at three high schools in England and revealed that 1% of the total student population had myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The researchers also reported that the illness accounted for more than 6% of pupils who were missing large amounts of school. What struck me as shocking was that 20 years after myself developing ME/CFS aged 11 the illness is still very poorly recognised. This is evidenced by the study scientists reporting that only five students had already received a diagnosis of ME/CFS while the study itself identified a further 23 cases. From experience I can say that there is little sympathy sent your way when you have this disabling illness, even as a...
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28
Nov
3
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Meditating Man
As someone who has suffered from chronic fatigue syndrome (ME/CFS) for over two decades from the young age of 11 I have come to see that we need to use every tool at our disposal to help us manage chronic illness and live life to its fullest. Starting around 10 years ago a began flirting with various forms of meditation and eventually settled into regular practice of a form of meditative practice that involves the repetitive chanting of a mantra (word or phrase). Whether the mantra itself is important is up for debate as it seems to me at least that the rhythm of the chanting is the important aspect, leading the brain into a state of syncronisation, focus, and relaxation. What I know for certain is that my practise of mantra meditation has empowered me to build and maintain The Environmental Illness Resource website, obtain a bachelor's degree in...
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  • adminv15
    adminv15 says #
    I had CFS/MCS for 8 years in my twenties... I was very ill. My primary cure was yoga. Not studio yoga so much as kriya yoga, wh
  • Maff
    Maff says #
    Hi Sanghagirl. Glad you found the above blog post helpful! To get to the LDN Group you can follow this link - Low Dose Naltrexone
  • Sanghagirl
    Sanghagirl says #
    Thank you for this post. I have also read your posts and those of others regarding LDN. I am somewhat "technology challenged" and
19
Nov
0
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GcMAF as Treatment for Chronic Fatigue Syndrome, Myalgic Encephalomyelitis and Related Conditions

Macrophage activating factors acting on a macrophage
Thanks to my younger sister Lindsay, who like me is a long-term chronic fatigue syndrome (ME/CFS) survivior, for pointing me in the direction of GcMAF; I am so busy with this website and other things at the moment that my time and energy reserves aren't stretching to as much research and general Googling as they did previously! Anyway, I have now taken a look at some information on GcMAF and feel it is worth sharing with fellow patients.   GcMAF derives its acronym from the fact it is a macrophage activating factor which is stimulated by the vitamin D-binding protein 'Gc' - hence Gc Macrophage Activating Factor. The first research on GcMAF was published in 1993 by Dr. Nobuto Yamamoto in the US who has subsequently published numerous articles on this substance over the past two decades. Other scientists have also become involved with such research. GcMAF is an immune...
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  • adminv15
    adminv15 says #
    One of Enlander's patients used GcMAF to recover from ME/CFS. Search youtube for the video interview. Thanks for the info on wher
28
Oct
0
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Environmental Illness Safe Housing Charity to Hold Fund-Raising Auction

Re|shelter Holiday Auction 2011
For those who have not come across Re|shelter before it is s a non-profit, charitable 501(c)3 organization founded to address the urgent need for housing alternatives for people with environmental illnesses such as multiple chemical sensitivity (MCS), sick building syndrome (SBS), and electrical sensitivity (ES). Co-founders Julie Genser and Julie Laffin have made it their mission to address the current housing crisis and high rates of homelessness and suicide within vulnerable populations affected by disabling environmental sensitivities. Current Re|shelter activities include activities include fundraising, awarding housing aid grants, facilitating the design and construction of healthy homes and communities, and using the arts to promote awareness. I never cease to be amazed at the generosity of spirit and shear will of the "two Julies" to support those with environmental illness (EI) and manifest tangible benefits in their lives. I therefore wanted to do my part by posting this blog entry to...
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25
Sep
0
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XMRV and CFS: Time to put things in context

XMRV not cause of CFS
The mainstream media this week have been reporting on events that effectively put the final nail in the coffin of the purported association between the XMRV retrovirus and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). Here in the UK the BBC ran a major article in the health section of their hugely popular website titled Virus link to ME called into question (read here). Those of you keeping track of the XMRV story will remember that in May of this year following multiple studies failing to replicate the original findings of the Whittemore Peterson Institute (WPI) including investigations led by the US Food and Drug Administration (FDA) aand Centers for Disease Control and Prevention (CDC) the journal Science, which published the original WPI study back in 2009, issued an editorial "expression of concern" over the validity of those original findings. Such a move is a rarity in the world of...
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08
Aug
1
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Black Mold
Multiple Chemical Sensitivity (MCS) is estimated to affect up to 15% of the population in the US and other industrialised nations (1), yet research into why people develop this hypersensitivity to chemicals is sorely lacking. Currently we have mainly animal testing and studies involving small numbers of participants diagnosed with MCS to go on. One leading theory suggests the development of a hypersensitivity to chemical stimuli in an area of the brain known as the limbic system which controls a variety of functions including emotion, behaviour, long term memory, and olfaction (our sense of smell). Animals studies have shown that both large acute exposures and low-level chronic exposures to certain organic chemicals can result in hypersensitivity of the limbic system to subsequent minute exposures to the same, or similar chemicals (2). Perhaps the most complete theory of the pathophysiology of MCS thus far has been proposed by Martin Pall, Professor...
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  • adminv15
    adminv15 says #
    Have you thought about vaccinations?
  • adminv15
    adminv15 says #
    I honestly believe this century (& maybe next) will come to be known as " The Chemical Age" & even future schoolchildren will be a
  • adminv15
    adminv15 says #
    Hi Monique and Maff and all, Certain medications such as Fluoroquinolone antibiotics can cause damage to the Cytochrome P450 syst
31
Jul
0
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Noetic Science and Holistic Health

Brain Scan
Suffering with environmental illness is a huge struggle, not only in terms of dealing with the dibilitating symptoms themselves but also the lack of healthcare provision and the way we are regarding with suspicion by doctors and even our friends and family. Finding ourselves in this situation though does have its up side...it has a way of opening our minds to possibilities we may not otherwise have considered. Like me, when you were healthy and everything was going great you probably gave little thought to how something like your diet as a whole and even specific foods could be affecting your body. Environmental illness forces us to explore all our options in the pursuit of healing and I am sure the vast majority of you have turned your attention to your diet and probably have an impressive collection of nutritional and/or supplements in your kitchen. Now, I'd like to take...
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18
Jul
0
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Chronic Fatigue Syndrome Guidelines for Doctors Still Exhibit Ignorance and Misinformation

ME/CFS Ribbon
In 1991 I was diagnosed with Myalgic Encephalomyelitis (M.E.) following a two day stay in hospital for a battery of tests. The diagnosis of M.E. was given by my GP and hospital specialists. It's funny then that the latest guidelines to doctors from the Royal College of General Practitioners (RCGP) here in the UK blatantly dismisses the very existence of this illness - referring to M.E. as a "colloquial" term. Rather odd when this is a true medical name which had been in use for decades, in contrast to 'chronic fatigue syndrome' or 'CFS' - the all encompassing term with which anyone suffering from a single symptom of mild chronic fatigue to what we used to know as severe M.E. is now branded. Unlike those who pull the strings at the RCGP, and despite my 20 years of illness, I can be objective and like to give credit where credit...
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  • adminv15
    adminv15 says #
    Maff, you're so clever and so awesome!
04
Jul
0
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Health Dangers of EMF Exposure: Help us Fight for Action

Mobile Phone Mast
The other day I was contacted by new EiR member Emfsafety100 about the potential dangers the electromagnetic fields (EMFs) from our modern technology, such as power lines, wireless internet and cell/mobile phones, pose to human health and also to wildlife. Emfsafety100 reported coming across the global non-profit organisation Avaaz, who have a simple democratic mission: “to close the gap between the world we have and the world most people everywhere want”. If you aren’t familiar with this organization, their campaigns typically address environmental issues, corruption and human rights. If enough people ask Avaaz to lobby the World Health Organisation to review the EMF exposure safety guidelines, they would take action. Such a campaign would immediately enlist the support of many of their 9 million-plus members and would raise public awareness of the industry influence in the EMF safety debate. I will be suggesting a campaign to have EMF safety concerns...
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25
Jun
0
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Chronic Fatigue Syndrome in the Family: Same Diagnosis, Different Symptoms

My sister Lindsay and myself
As a family of four, three of us have been diagnosed with Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME). Myself, my mother and my younger sister. My mother and I were diagnosed in 1991 when I was aged 12 and she was 39. My sister became ill when she was 15/16 years old in 1998. Obviously this is has been a tragedy of indescribable proportions for us as a family. My sister and I have (so far) had our youths and young adulthood stolen and our mum was not only struck down in the prime of her life but has had to watch both of her children suffer horribly, directly as a result of CFS and also due to society's attitude towards it. That we are certainly not the only family to be in this horrible situation is certainly no comfort. I would not wish this illness on anyone....
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  • adminv15
    adminv15 says #
    I'd end up writing an essay if I fully went into this here and now, but in my family, 2 of my 3 siblings have ME. I have ME. My Mu
  • adminv15
    adminv15 says #
    Thank you for sharing this. I believe that I have CFS and am working with holistic physician. My Mom had many symptoms that you de
19
Jun
0
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Causes Of Sleep Problems You May Not Have Considered If You Have Environmental Illnesses

Woman with sleep problems
Sleep problems are common among the general population but particularly so among those suffering from 'environmental', or 'invisible', illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FMS) and multiple chemical sensitivity (MCS). Everyone will be familiar with common causes of insomnia and poor sleep quality such as consumption of stimulants like caffeine (coffee, tea, soda/fizzy drinks) and psychological factors such as work or relationship stresses. For those suffering from environmental illnesses there may be other less obvious contributors to sleep problems, however.   Hypoglycaemia Hypoglycaemia, or low blood sugar, is frequantly experienced by those suffering from environmental illnesses and is exacerbated by a diet that contains significant amounts of foods containing sugar or refined carbohydrates e.g. candy/sweets, chocolate, white bread, white pasta, white rice, baked goods, fast food. When levels of blood sugar (glucose) drop too low or too rapidly it is the brain that is affected first since it...
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20
May
2
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Albert Einstein
Albert Einstein is my kind of guy. Although undeniably one of the greatest scientists who ever lived, he did not see the world simply through the narrow focus of physics. Although his views on religion and the existence of God are far from clear...due in no small part to his (I suspect deliberately) ambiguous comments on these subjects, he appears to have had a spiritual side and despite his great knowledge and understanding of the workings of the universe, he maintained childlike wonderment at that which we call reality. Einstein famously said "Science without religion is lame, religion without science is blind". Although open to interpretation, my take on what he was saying is that without the ability to see scientific findings in the context of a greater whole those findings serve little purpose and do nothing to furthering our understanding of reality and of the human experience. Equally, to...
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  • Maff
    Maff says #
    No problem Tracy, I'm glad you found this blog post of interest. I totally agree that this subject could form the basis of a resea
  • Tracy Mac
    Tracy Mac says #
    Thanks for this Maff. Only today I was wondering what sustains the people who suffer this journey. It is a research thesis in itse