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Maff

Maff

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11
May
0
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Salt water as effective as antibacterial wipes

Bacteria
I stumbled across an interesting snippet in a science magazine the other day about a study conducted by researchers at the University of Alberta, Canada. The scientists had observed that hospital staff habitually give surfaces only a single quick wipe with antibacterial products in order to disinfect them. They wondered if the number of wipes was important for bugs to be successfully removed from surfaces. The main results themselves are interesting because it was found that one wipe is not enough and that in fact, three wipes is optimal to properly disinfect surfaces and equipment. What is also interesting however, particularly to those of us affected by environmental illnesses, is the finding that if wiping a surface three times a simple saline solution (salt water) is as effective at removing nasty bugs as the antibacterial wipes, sanitizers and other products impregnated with chemical disinfectants such as triclosan. These products have...
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08
Apr
6
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Close up eye in black and white
Those of us affected by what are frequently referred to as 'Invisible Illnesses' - chronic fatigue syndrome (ME/CFS), fibromyalgia (FMS), multiple chemical sensitivity (MCS) etc - are constantly frustrated by the fact that we feel lousy, yet appear perfectly healthy to the casual observer i.e. our friends and relatives. Perhaps even more frustrating is that to the eye of the conventionally-trained doctor we also show no signs of illness, leading many to assume it's all in our heads and to send us off to the shrink. Which is of course unproductive, and often counter-productive, given that these illnesses may often be invisible, yet are nevertheless as real and legitimate as physical conditions as the likes of diabetes and arthritis. The medical literature is now full of decades worth of research documenting immunological, endocrine, and neurological abnormalities that overwhelmingly makes this case for us.   These illnesses may be invisible to...
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  • adminv15
    adminv15 says #
    I am the drunk with a grumpy face that can't remember what she was trying to say. Never had bags under my eyes but people say my c
  • Maff
    Maff says #
    You can still pull off some good moves on the dancefloor with the slow and gingerly approach tori Thanks Airy, I'm glad you like
  • Airy
    Airy says #
    Wow Maff, Great list. I so relate to all of these. I also sometimes forget things that I've known for years like passwords or a
28
Mar
3
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Faecal Transplants and Human Probiotic Infusions (HPI): Mainstream Media Attention

Most people suffering from environmental illnesses experience gastrointestinal (GI) symptoms of some kind, or show other signs that something is not quite right in the gut. Perhaps tests such as a comprehensive digestive stool analysis (CDSA), or equivalent, reveal an imbalance in the normal balance of bacteria, yeast, and other microbes that is essential for overall health. Research has revealed pathological changes in the composition of the gut flora (gut dysbiosis) in irritable bowel syndrome (IBS), chronic fatigue syndrome (ME/CFS), fibromyalgia, and autism...and this is a relatively new area of study so this may only be the tip of the iceberg. The most common (and most widely accepted) finding has been the presence of small intestinal bacterial overgrowth (SIBO) in IBS, ME/CFS and fibromyalgia. Healthy individuals have very little bacterial growth in their small intestines (most gut microbes reside in the colon) - SIBO is the presence of large numbers...
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  • Maff
    Maff says #
    Hi Mario, HPI tends to be used as a treatment of last resort. In C. difficile infections it has been remarkably successful when t
  • adminv15
    adminv15 says #
    Maff l was diagnosticated with Blastocystis Hominis trof ozoitos. Aparently is resistant to Fragyl. Do you know if is tratable wi
  • Maff
    Maff says #
    Hi Mario, No problem. Good to hear that the combination of colostrum and probiotics is helping you feel better. Unfortunately I a
25
Mar
0
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Policy on Lyme Disease and Tick-Borne Infections: A Community Agenda

Policy on Lyme Disease and Tick-Borne Infections: A Community Agenda
The following is the Preface and Introduction to an extensive 26 page article on Lyme disease and tick-borne infections (TBIs) by Kate Bloor (followed by a link to the full article in PDF format). Kate argues that a coordinated effort is required, from  government policy at the top down to local community efforts at the bottom, to prevent the spread of TBIs and the incidence of Lyme disease, which as many will know is extremely difficult to treat once it becomes chronic. It is focused on the UK but the information is relevent to those of you in the US, Canada, and elsewhere.  If you or any of your loved ones suffers from Lyme disease, TBIs, or multi-system illnesses such as chronic fatigue syndrome (often misdiagnosed Lyme disease), I urge you to read the full article and take action to implement its recommendations.   POLICY ON LYME DISEASE (AND TICK-BORNE INFECTIONS) IN ENGLAND AND THE...
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  • adminv15
    adminv15 says #
    “Unnecessary risks are being taken by patients seeking the liberation treatment.” says Dr. Avneesh Gupte of the CCSVI Clinic. “It
07
Mar
0
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Genes and Personality: An Introspective Exploration
After being chronically ill for 20 years, having been diagnosed with chronic fatigue syndrome (ME/CFS) at the young age of 11, I have grown increasingly interested in psychology and particularly the traits required to survive an illness that robs sufferers of so much (what I would give to be able to just go for a run). My ill health has also included multiple chemical sensitivity (MCS), seasonal affective disorder (S.A.D.), and adrenal fatigue, which are all terrible things to deal with in themselves and have forced me to draw on every last bit of inner strength I could muster to keep going despite a distinct lack of enjoyment in life. Rather than crushing my spirit however, these trials and tribulations that have shaped my life, have actually strengthened my resolve, given me greater confidence in myself and my abilities, and changed my outlook on life for the better. When one...
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10
Feb
0
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LifeWave Y-Age Aeon Patch
So, I again find myself writing on my positive experience with a LifeWave patch...this time the new Aeon product which is aimed at reducing stress and its consequences, both as a standalone product, or as part of LifeWave's Y-Age system which also incorporates patches designed to increase levels of glutathione and carnosine in the body. Having last year completed a Bachelor of Science degree in nutritional medicine, including a dissertation which involved performing a systematic review of the medical literature, I am quite familiar with the 'hierarchy of evidence' which is revered in academia, and perhaps most of all in medicine. In modern medicine if an intervention does not have numerous randomised controlled trials (RCTs) and systematic reviews of such trials supporting its use it is dismissed as useless or a scam. Now I understand the rationale behind this system and to a point agree with it. Living with a...
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29
Jan
1
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Food cans contain bisphenol A (BPA)
At the back end of last year I underwent a number of laboratory tests through my environmental medicine doctor. One of these tests, through UK-based laboratory named Acumen, looked for 'DNA adducts' (substances bound to DNA that should not be there) and found bisphenol A (BPA) to be an issue for me. The significance of the DNA adducts testing is that if a toxin such as BPA is present in in large enough quantities in the body to become bound to DNA then its concentrations in the body as a whole are likely to be quite high. Once these toxins become bound to DNA they may also damage it and change the way genes function. Our genes regulate every process in the body so this is not a good thing at all!  The purpose of this blog post however, is not to go into an in-depth discussion of DNA adduct testing, but rather to look...
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  • Maff
    Maff says #
    Hey Chris, Absolutely, the list of chemicals in common use that research is showing might have health impacts is pretty frighteni
  • adminv15
    adminv15 says #
    Hey Maff, Good heads up. BPA is just one of many dangerous chemicals floating around society today, not only dangerous to the hype
27
Oct
1
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A Life Changed by Chronic Fatigue Syndrome and Multiple Chemical Sensitivity (Photo Diary)
For those who are not regular visitors to The Environmental Illness Resource, I am a 31 year old male from the UK and was diagnosed with Chronic Fatigue Syndrome (ME/CFS) in March 1991 around the time of my 12th birthday. Recently my parents moved house and my mum dropped off a box full of old photos of me from my childhood. Looking through them I was struck by how happy I looked as a child. This was clearly the purest type of happiness borne out of freedom from worry and a true zest for life and the excitement of discovering new things every day. Naturally, it's easy and 'normal' to lose these things as we get older, but even more so when a chronic and misunderstood illness such as ME/CFS deprives you of many of the things that most people take for granted. As I found photos of myself as...
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  • adminv15
    adminv15 says #
    How did you find a way to manage your sensitivities better? I have moved 3 times now, but each place i try to make 'Home', has pro
  • adminv15
    adminv15 says #
    Thank you for sharing. I really think this will help others. Keep up the good work Christina
  • adminv15
    adminv15 says #
    Thanks Maff, I can completely understand your logic and I too feel shackled by this illness that some idiots consider to be all i
19
Sep
0
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Chronic Illness: Stress, Suffering and Psychological Reframing
 There is no doubt that chronic illness involves a lot of suffering, a lot of soul searching, and a great deal of loss, both of one's capacity to continue doing all the things that bring enjoyment and of self-esteem and fulfillment in life. But what if chronic illness could be turned into a positive experience? This summer I completed a bachelors degree in nutritional health and was awarded first class honours by the University of Greenwich, London. At 31 I was beginning to think I would never obtain a degree after being forced to drop out of a computer science course at the University of Sheffield aged 19 due to ill health - this was therefore a great achievement for me. However, the degree was supposed to be followed by a year of clinical training to become a nutritional therapist/nutritionist. A recent downturn in my health as forced me to...
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21
Aug
0
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An Open Letter from Dr. Doris Rapp Regarding Environmental Exposures in Schools

Dr. Doris Rapp, MD
 [The following is an open letter from renowned environmental illness expert Dr. Doris Rapp. Posted with Full Permission. Permission further granted for recipients to foward.]     August 18, 2010   Dear Friends, I wonder if you would be willing to help me. Together we might be able to help tens of thousands of children. Alone I seem to do able to do very little. We Need To Get The Following Information To Our Schools:   Dear ------,   Dust, mold, pollen, foods and chemicals certainly can cause much more than cause asthma and hay fever. As you all know allergies can take on many forms and often affects how children feel, act, behave, walk, talk, write, draw, and especially learn. Many different areas of the brain can be affected. There is no doubt that it is possible to raise academic performance and attendance, while lowering infection, allergies, hyperactivity, behavior...
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12
Aug
1
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Genetic Testing for Detoxification, Immune and Neurological Risk Factors in Environmental Illness
As an environmental illness sufferer myself and someone who is in the final stages of clinical training to become a Nutritional Therapist having obtained a bachelor's degree in nutritional health, I have become interested in genetic testing.   In the past genetic testing of any kind has been extremely expensive and has tradtitionally looked only for genes that identify hereditary diseases. Now however there are commercially available tests that many naturopathic doctors and other functional medicine-orientated health care practitioners are utilising to better help patients with environmental illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple chemical sensitivity (MCS), as well as those with chronic unexplained ill-health but no diagnosis. Such testing allows for the detection of single nucleotide polymorphyisms (SNPs - pronounced "snips"), small sections of genetic code that determine, for example, the efficiency with which an individual can neutralise and excrete toxins or synthesise neurotransmitters by affecting the functioning of various enzymes...
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22
Jul
0
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Climate, Weather and Environmental Illness

Climate, weather and environmental illness
I was lucky enough to spend two weeks on holiday/vacation in Turkey recently to recuperate after over-exerting my body and brain completing my bachelor's degree in nutritional health. Being a resident of the UK with its, let's say temperamental weather, I really notice a change in how I feel (mostly good, some bad) when I spend time in a country where the climate is warmer and sunnier. This got me thinking that a good topic for a blog and dscussion would be how climate and weather affect the health of people suffering from environmental illnesses. Personally, my moods and energy levels are greatly influenced by the weather and the seasons and I have in the past been diagnosed with Seasonal Affective Disorder (SAD). Here in the UK it can be sunny one minute and raining the next at any time of year. When it is sunny my mood is correspondingly bright...
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12
May
7
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Chronic Fatigue Syndrome, Environmental Illness, and Low White Blood Cell Count

White Blood Cells
 I feel I must apologise for my recent lack of blogging activity but I'm sure when I explain why you'll understand - plus the reason has given me the inspiration for this post! As regulars will be aware I have suffered from Chronic Fatigue Syndrome (ME/CFS) for a long time - since I was 11, so 20 years now. Like many ME/CFS sufferers I am also burdened by adrenal fatigue, low thyroid function, hypoglycaemia, Candida and Small Intestinal Bacterial Overgrowth (SIBO) amongst other things. I also suffered from severe Multiple Chemical Sensitivity for a number of years in my early 20s but thankfully was able overcome it (touch wood)! Like most suffering from environmental illnesses (or more appropriately here 'invisible illnesses') I have been constantly frustrated by the absence of any abnormal findings on conventional medical tests over the years. After all, if the standard lab tests are normal there can't possibly be anything wrong...
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  • adminv15
    adminv15 says #
    Hi stumbled across this site when trying to get answers for CFS. In September I had cystitus and required three doses of antibiot
  • adminv15
    adminv15 says #
    Hi there.. stumbled on your blog because recently I had a lab test come back with a really low neutrophil count and the doctor is
  • adminv15
    adminv15 says #
    Hey maff, I have been suffering with bacterial overgrowth issues for the last five years. The Antibiotics and the anti acid treatm
05
May
2
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May 2010 Multiple Chemical Sensitivity Awareness Month

by  Carolyn Cooper, MPH, RN Multiple Chemical Sensitivity awareness is one of the health observances for the month of May.  MCS is also variously known as Environmental Illness, Idiopathic Environmental Intolerance, and 20th Century Disease.  Over the course of the last 8 years I have become acquainted with a number of individuals who are afflicted with this often misunderstood condition.  MCS causes many of those who are severely affected to isolate themselves in order to take refuge from the synthetic fragrances and fumes that are ubiquitous in industrialized nations.  My interest in MCS resulted from experience caring for one of my hospital patients who is severely afflicted.  (Read about my patient's experience with MCS in my blog post from May of 2009).  Recognizing the lack of scholarly published literature to inform health care providers about the specific needs of the chemically sensitive in the health care setting, I eventually wrote a...
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  • adminv15
    adminv15 says #
    Every person has his or her opinion. For example, people care much more about their heath. so They would like to buy fitness shoes
  • Maff
    Maff says #
    Linda, The following is from SandyJo Johansen, a member of our Facebook page: "I found briefly visiting the hospital out of visi
  • Maff
    Maff says #
    Hi Linda, Sorry to hear about your daughter, having suffered from Chronic Fatigue Syndrome from age 11 and Multiple Chemical Sens
05
Mar
0
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Synthetic fragrances in public spaces a danger to health

Synthetic fragrances are increasingly being used as a marketing tool to create atmosphere and brand awareness. As such these potentially toxic chemical cocktails are being released into the air in enclosed public indoor environments such as shops and shopping centres/malls, hotels, car parks, gyms and even 'health spas'. These fragrances are often marketed as being natural and healthful which is often more than just a slight bending of the truth. Many such 'natural' scents are in fact wholly synthetic pterochemical concoctions which may act as neurotoxins and are certainly an infringement on the freedoms of people who suffer from multiple chemical sensivitity (MCS). The FreshAirFiend blog has been investigating this issue lately. Here are two interesting posts on the subject: http://freshairfiend.wordpress.com/2010/02/19/real-synthetics/ http://freshairfiend.wordpress.com/2010/02/26/more-on-real-synthetics/   These posts make a particularly good point about synthetic fragrances being used in gyms in that when working our respiratory rate and volume of air inhaled increases many...
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  • adminv15
    adminv15 says #
    Thanks for writing about stores' use of chemicals. This is a big concern and more research needs to be done so we can be informed
12
Feb
0
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Allergies make Valentine's Day a Tricky Affair

Allergies make Valentine's Day a Tricky Affair
 For those who suffer from allergies and intolerances, or have a partner that does, Valentine's Day is often not a simple affair. Places to eat, romantic home-cooked meals,  and traditional gifts all have their problems. Food allergies are a particular problem and can cause  symptoms including nasal congestion or a scratchy throat after eating a food. They can also cause serious problems such as throat closures, tightness, swelling of the face, breathing trouble and anaphylaxis (a life-threatening blockage of the airways). I certainly don't want to bring down the mood on what should be a celebration of love however...hopefully the following information will mean that you and your partner can enjoy Valentine's Day in each other's company...despite those troublemaking allergies!   A Romantic Meal Whether dining out at your favourite restaurant or enjoying a candle lit dinner at home, a romatnic meal for two is often a big part of the way couples choose to...
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05
Feb
0
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Hypothyroidism: Nutritional, Lifestyle and Environmental Causes Your Doctor Might Miss
Hypothyroidism (low thyroid function) is something that those suffering from environmental illnesses often struggle with. Poor thyroid function has been linked to many of then illnesses covered on this site and is often the hidden cause of a host of chronic symptoms including fatigue, poor cognitive function, low mood, low sex drive, cold intolerance, weight gain or inability to lose weight...and many others. Assuming you have been diagnosed with hypothyroidism (not easy in itself), unless the cause is obvious such as a tumour or autoimmune disease and is detectable using routine tests, chances are you will simply be given a prescription for thyroxine (the main hormone produced by the thyroid gland and also referred to as 'T4') and have your blood levels monitored, along with levels of thyroid stimulating hormone (TSH) - a pituitary hormone that stimulates production of T4 by the thyroid gland. Unfortunately many patients find that T4...
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  • adminv15
    adminv15 says #
    Due to PCB's toxicity and classification as a persistent organic pollutant, PCB production was banned by the United States Congres
22
Jan
0
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The work of The European Society for ME

European Society for ME - Research & Knowledge
 I received an email update this week on the work of the European Society for ME (ESME) that I thought you may be interested in. ESME is a Think Tank of top scientists in fields relevant to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) where the latest research and knowledge on the illness can be discussed and efforts made to propogate this to the medical profession to improve care for patients. ESME was founded just last year and had its launch meeting on June 13th, in Stavanger, Norway. The launch was well covered by the mainstream media and the following are summaries of this coverage with links to full articles and videos.   ESME Press Summary 2009 SKY NEWS - UK In connection with ESME's Think Tank meeting in Norway, Sky News aired a story on the 13th of June with the heading, "Could a Cure for ME be Near?" In the piece,...
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22
Jan
0
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 As someone who has suffered from chronic fatigue syndrome (ME/CFS), multiple chemical sensitivity (MCS), irritable bowel syndrome (IBS), adrenal fatigue (AF) and a host of related concerns for almost 19 years now, since the age of 12, I am acutely aware of the need to pace myself. I know I should not take on too much at once and allow myself time to relax and recuperate, at least to some small degree, yet after all these years I still find this extremely difficult. ME/CFS patients have often been reported to be disproportionately Type A personalities as a group. This study refers to the "action-proneness" of patients i.e. our need to always be on the go and engaged in activity of some kind, whether physical or mental. I can certainly relate to that. Here I am so many years after becoming ill and I am singlehandedly running this website (which is...
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  • adminv15
    adminv15 says #
    I find it very difficult to pace myself, especially when I have a good day. And then I pay for it for days...I never seem to lear
  • adminv15
    adminv15 says #
    Maff, many, many congratulations for such a wonderful website! Your coverage of Chronic Fatigue Syndrome (and more) is excellent.
15
Jan
0
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Molecules of Emotion
 Many people who develop chronic illnesses find that conventional medical care is inadequate for treating their symptoms and incapable of giving them the quality of life they desire. This is a major reason why many of us turn to complementary and alternative medicine (CAM). Many CAM therapies are proposed to work through the so called 'mind-body connection'. Despite a now well established body of sound scientific evidence this connection is usually ignored by conventional medicine which still thinks of the body and mind as being seperate. In conventional medicine there is no room for a "spiritual" aspect to healing at all. To many people it seems obvious that the mind and body are essentially one and the same. Science began to make this link experimentally around the 1950s and in 1980 Robert Ader introduced the term 'psychoneuroimmunology' during his presidential lecture to the American Psychosomatic Society. The term brings together...
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