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27
Dec
0
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Rifaximin Does Not Relieve Persistent Celiac Disease Symptoms or SIBO

Photo: CC - spec-ta-cles
  Celiac.com 12/27/2011 - Non-controlled studies suggest that Rifaximin may improve celiac disease symptoms in such cases. However, up to now, no controlled trials have been conducted.   A team of researchers used a double-blind clinical trial to assess the effectiveness of rifaximin in relieving gastrointestinal symptoms in patients with poorly responsive celiac disease. They also assessed the effects of rifaximin on lactulose-hydrogen breath tests in those patients. The research team included Matthew S. Chang, Maria T. Minaya, Jianfeng Cheng, Bradley A. Connor, Suzanne K. Lewis, and Peter H. R. Green. Small intestinal bacterial overgrowth (SIBO) is one of the main reasons that certain people with celiac disease fail to respond well to a gluten-free diet, and why they often suffer persistent symptoms.  To make their assessment, the team designed a single-center, double-blind, randomized, controlled trial of patients with biopsy-proven celiac disease and persistent gastrointestinal symptoms despite following a gluten-free diet. For the trial, the...
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21
Dec
0
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more on lactoferrin.......... Part deux

 I came across this collection of information relating to lactoferrin. I think this has all you'll ever need to know about it:   "Examples of specific bacteria inhibited by lactoferrin include: Staphylococcus aureus, Escherichia coli, Klebsiella pneumoniae, and Helicobacter pylori, all of which are capable of causing serious illness. While many studies have involved observations of lactoferrin's effects on microbial growth in a laboratory dish or test tube, recent research in Japan has demonstrated that, when administered orally to mice, bovine-derived lactoferrin causes a marked reduction in the proliferation of intestinal bacteria, including several strains of the pathogenic bacterium, Clostridium. Furthermore, when administered to laboratory animals, lactoferrin also decreases the number of bacteria that translocate, or pass through, the cell lining of the intestines. Translocation of bacteria through the intestinal epithelium is a means by which bacteria can gain access to the blood and lymphatic system, and, if they are...
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21
Dec
0
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Lactoferrin – Keeping Candida Friendly

  Lactoferrin is the primary germ-fighting compound naturally occurring in breast milk, acting synergistically with other compounds like monolaurin.  It is a normal part of your body fluids and secretions (saliva, blood, tears, and mucous), providing important protection at points where germs come into contact with you.  Lactoferrin is a potent nutrient for natural balance and helpful immune support.  Hundreds of studies demonstrate the power of lactoferrin to help defend you against Candida, bacteria, and viruses.  It is a key player in the natural defenses that have enabled the survival of the human race.   Early immune system research on lactoferrin focused on its ability to bind iron (it puts iron in a safe cage and transports iron).  It has long been known that free iron impedes immune cell function1 and enables many pathogenic bacteria and Candida to grow.  It is rather disturbing that garbage-quality iron supplements, which rapidly produce free iron in the digestive tract, are...
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18
Dec
0
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Lost Youth and Lost Lives: The Devastating Consequences of Chronic Fatigue Syndrome

Me missing a day of school due to chronic fatigue syndrome (ME/CFS)
This week the online medical journal BMJ Open published a study whose findings re-opened old wounds and caused me great dismay. The study looked at every pupil between the ages of 11 and 16 at three high schools in England and revealed that 1% of the total student population had myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The researchers also reported that the illness accounted for more than 6% of pupils who were missing large amounts of school. What struck me as shocking was that 20 years after myself developing ME/CFS aged 11 the illness is still very poorly recognised. This is evidenced by the study scientists reporting that only five students had already received a diagnosis of ME/CFS while the study itself identified a further 23 cases. From experience I can say that there is little sympathy sent your way when you have this disabling illness, even as a...
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28
Nov
3
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Meditating Man
As someone who has suffered from chronic fatigue syndrome (ME/CFS) for over two decades from the young age of 11 I have come to see that we need to use every tool at our disposal to help us manage chronic illness and live life to its fullest. Starting around 10 years ago a began flirting with various forms of meditation and eventually settled into regular practice of a form of meditative practice that involves the repetitive chanting of a mantra (word or phrase). Whether the mantra itself is important is up for debate as it seems to me at least that the rhythm of the chanting is the important aspect, leading the brain into a state of syncronisation, focus, and relaxation. What I know for certain is that my practise of mantra meditation has empowered me to build and maintain The Environmental Illness Resource website, obtain a bachelor's degree in...
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  • adminv15
    adminv15 says #
    I had CFS/MCS for 8 years in my twenties... I was very ill. My primary cure was yoga. Not studio yoga so much as kriya yoga, wh
  • Maff
    Maff says #
    Hi Sanghagirl. Glad you found the above blog post helpful! To get to the LDN Group you can follow this link - Low Dose Naltrexone
  • Sanghagirl
    Sanghagirl says #
    Thank you for this post. I have also read your posts and those of others regarding LDN. I am somewhat "technology challenged" and
19
Nov
0
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GcMAF as Treatment for Chronic Fatigue Syndrome, Myalgic Encephalomyelitis and Related Conditions

Macrophage activating factors acting on a macrophage
Thanks to my younger sister Lindsay, who like me is a long-term chronic fatigue syndrome (ME/CFS) survivior, for pointing me in the direction of GcMAF; I am so busy with this website and other things at the moment that my time and energy reserves aren't stretching to as much research and general Googling as they did previously! Anyway, I have now taken a look at some information on GcMAF and feel it is worth sharing with fellow patients.   GcMAF derives its acronym from the fact it is a macrophage activating factor which is stimulated by the vitamin D-binding protein 'Gc' - hence Gc Macrophage Activating Factor. The first research on GcMAF was published in 1993 by Dr. Nobuto Yamamoto in the US who has subsequently published numerous articles on this substance over the past two decades. Other scientists have also become involved with such research. GcMAF is an immune...
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  • adminv15
    adminv15 says #
    One of Enlander's patients used GcMAF to recover from ME/CFS. Search youtube for the video interview. Thanks for the info on wher
08
Nov
0
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5 Indoor Air Quality Tips for Office Environments

By Jim Gates, CAFS The indoor air quality of an office environment is very important to the health, comfort, well being, and productivity of every person who works there. Improved indoor air quality is also important to management, as a healthy working environment can lead to higher productivity and fewer lost work days. Improving Air Quality at Work Many different factors have an influence how indoor air pollutants affect the occupants of an office environment. Exposure to high levels of pollutants over long periods of time increases the risk of serious, life threatening illnesses and short term exposures can result in irritation and significant respiratory problems. There are many different ways that indoor air quality can be improved: 1. Ensure Proper Air Circulation Make sure that all air vents and grills are free of obstruction. This allows the indoor air to circulate freely and ventilate wide areas of the office...
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01
Nov
0
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Groundbreaking Treatments, Innovative Prevention Strategies and New Insights on Impact of Lifestyle Factors on Digestive Health Presented at the American College of Gastroenterology’s 76th Annual Meeting

Newswise — Washington, DC (October 31, 2011) -- Many of the world’s preeminent gastroenterologists have convened this week for the American College of Gastroenterology's (ACG) 76th Annual Scientific Meeting at the Gaylord National Hotel and Conference Center at the National Harbor to review the latest scientific advances in gastrointestinal research, treatment of digestive diseases and clinical practice management. Groundbreaking treatments such as fecal microbiota transplantation for serious gastrointestinal conditions like antibiotic-associated diarrhea and inflammatory bowel disease; innovative prevention strategies for a host of GI-related health conditions including hepatitis C and colorectal cancer; new insights on the relationship between adult irritable bowel syndrome (IBS) and childhood trauma and the impact lifestyle factors like smoking and alcohol consumption have on digestive health, are among the highlights of this year’s scientific presentations. A press kit with highlights of important new science presented at the meeting is available online at the ACG Web site...
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  • adminv15
    adminv15 says #
    Organized content is the best way to display or post an article, thank you for making it easy to digest your post.
28
Oct
0
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Environmental Illness Safe Housing Charity to Hold Fund-Raising Auction

Re|shelter Holiday Auction 2011
For those who have not come across Re|shelter before it is s a non-profit, charitable 501(c)3 organization founded to address the urgent need for housing alternatives for people with environmental illnesses such as multiple chemical sensitivity (MCS), sick building syndrome (SBS), and electrical sensitivity (ES). Co-founders Julie Genser and Julie Laffin have made it their mission to address the current housing crisis and high rates of homelessness and suicide within vulnerable populations affected by disabling environmental sensitivities. Current Re|shelter activities include activities include fundraising, awarding housing aid grants, facilitating the design and construction of healthy homes and communities, and using the arts to promote awareness. I never cease to be amazed at the generosity of spirit and shear will of the "two Julies" to support those with environmental illness (EI) and manifest tangible benefits in their lives. I therefore wanted to do my part by posting this blog entry to...
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25
Sep
0
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XMRV and CFS: Time to put things in context

XMRV not cause of CFS
The mainstream media this week have been reporting on events that effectively put the final nail in the coffin of the purported association between the XMRV retrovirus and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). Here in the UK the BBC ran a major article in the health section of their hugely popular website titled Virus link to ME called into question (read here). Those of you keeping track of the XMRV story will remember that in May of this year following multiple studies failing to replicate the original findings of the Whittemore Peterson Institute (WPI) including investigations led by the US Food and Drug Administration (FDA) aand Centers for Disease Control and Prevention (CDC) the journal Science, which published the original WPI study back in 2009, issued an editorial "expression of concern" over the validity of those original findings. Such a move is a rarity in the world of...
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25
Sep
0
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air passengers would be forced to drink a sachet of probiotic formula before landing in Australia under a proposal by one of the state's leading gastroenterologists

  INTERNATIONAL air passengers would be forced to drink a sachet of probiotic formula before landing in Australia under a proposal by one of the state's leading gastroenterologists aimed at preventing an outbreak of a deadly bug ravaging North America. Thomas Borody, the founder of Sydney's Centre for Digestive Diseases, has likened his radical idea to the way in which incoming aircraft were once sprayed for foreign insects. Professor Borody believes NSW will not be able to avoid an epidemic of the stomach bug Clostridium difficile, the symptoms of which include severe diarrhoea, without concerted action. A hyper-virulent strain of C. difficile has killed 35 people in Ontario, Canada, in just the past four months. In the US, the superbug is estimated to have cost health services $3.2 billion in 12 months. ''We're not ready for it in this country … we're staring at an epidemic,'' Professor Borody told the Sun-Herald....
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18
Sep
0
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Carbohydrate metabolism, dysbiosis and autism

In a previous post, I discussed how environment is finally, in 2011, receiving some recognition in relation to some cases of autism spectrum conditions (ASCs). It has been a slow process but nevertheless progress has been made moving away from autism being some kind of 'genetics only' condition (where the lion's share of research funding has been committed over the past few years) to one where genes and environment share centre-stage. I might add that I give credit to the notion that autism is not autism but rather autisms as a consequence of the huge heterogeneity and various comorbidities potentially present and that the relative contributions of genes and environment might not be the same for everyone who has autism. Friday 16th September 2011 is another date for the autism research diary. The reason is the publication of a paper by Brent Williams and colleagues in PLoS ONE (open-access here)...
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16
Sep
0
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Giardia linked to IBS and chronic fatigue

Interesting article on a possible correlation between chronic fatigue and acute giardiasis.  This is apropos to my own case history, as many of my health issues (including CFS and IBS) cropped up after being diagnosed and treated with Giardia.   http://www.research1st.com/2011/09/13/giardia-link/   Full text article from Gut:   http://press.psprings.co.uk/gut/september/gut300220.pdf...
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15
Sep
1
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Glutamine for IBS - IBS characterized by chronic diarrhea often have low levels of glutamine

Overview Glutamine is one type of amino acid, the building blocks that make up proteins. As the most common amino acid in the body, glutamine plays important roles in many organs, including the lining of the digestive tract. Recent evidence has raised the possibility that treatment with glutamine may decrease the symptoms of certain digestive disorders, including irritable bowel syndrome, or IBS, although additional research is needed to confirm these findings. As with all healthe supplements, you should ask your doctor before taking glutamine. Glutamine Levels in IBS Recently, researchers have discovered that people with a particular type of IBS characterized by chronic diarrhea often have low levels of glutamine, reports a study published in the June 2010 issue of the medical journal "Gut." In this study, researchers found that some patients with IBS had lower levels of glutamine than normal, which leads to increases in permeability in the intestinal...
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  • Bushi
    Bushi says #
    Sorry to hear that glutamine doesn't help you. However, there does seem to be an overwhelming consensus that it can aid with all t
  • adminv15
    adminv15 says #
    This is interesting. I however go out of my way to avoid glutamate- I noticed I was brought down by specific foods once I started
13
Sep
0
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Bacterial protein found in yogurt may alleviate inflammatory bowel disorders

Bacterial protein found in yogurt may alleviate inflammatory bowel disorders
protein isolated from beneficial bacteria found in yogurt and dairy products could offer a new, oral therapeutic option for inflammatory bowel disorders, suggests a study led by Vanderbilt University Medical Center researcher Fang Yan. The study, published May 23 in the Journal of Clinical Investigation, shows that the protein, called p40, was effective as an intervention in animal models of colitis (colon inflammation). The investigators demonstrated that the protein supports intestinal epithelial cell growth and function, and reduces inflammatory responses that can cause intestinal cells to die. Importantly, the investigators showed that oral consumption of p40 by mice in a protective delivery system prevents and treats colitis in multiple models of the disease. Many of the hundreds of bacterial species that live in our gut (known as the “human microbiome”) are helpful to us: they help us digest certain substances, produce vitamins and fight off more dangerous bacteria. But miscommunication...
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11
Sep
0
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Diet affects type of bacteria in intestines

September 02, 2011|By Tom Avril, Inquirer Staff Writer   Here's some new dietary research, if you have the stomach for it: Your choice of foods may affect the kinds of bugs that live in your intestines. In a study of 98 people and their poop, University of Pennsylvania scientists reported Thursday that a person's long-term diet is connected to what kinds of bacteria live inside the gut. The intestinal tracts of folks who typically ate a high-fat, high-protein diet tended to be dominated by one kind of bacteria, whereas those who favored carbohydrates and vegetables had more of another type. Moreover, a short-term alteration in diet yielded small changes in the person's bacterial community within just 24 hours.     The findings are part of a growing body of research into how the teeming tide of microbes inside the body plays an essential role in human health, and how it...
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16
Aug
0
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A natural food preservative kills food-borne bacteria

Salmonella and E. coli account for more than half of all food recalls in the United States; salmonella contributes to an estimated 28 percent of more than 3,000 U.S. deaths related to foodborne illness each year; researchers have discovered and received a patent for a naturally occurring lantibiotic -- a peptide produced by a harmless bacteria -- that could be added to food to kill harmful bacteria like salmonella, E. coli, and listeria.  Researchers at the University of Minnesota have discovered and received a patent for a naturally occurring lantibiotic — a peptide produced by a harmless bacteria — that could be added to food to kill harmful bacteria like salmonella, E. coli, and listeria.  The U of M lantibiotic is the first natural preservative found to kill gram-negative bacteria, typically the harmful kind. “It’s aimed at protecting foods from a broad range of bugs that cause disease,” said Dan O’Sullivan,...
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  • adminv15
    adminv15 says #
    Your Blog is very good, I like it! Thank you for you sharing!
16
Aug
1
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Medical silver bullet: New drug cures most viral infections

Medical silver bullet: New drug cures most viral infections
Researchers at MIT’s Lincoln Lab have developed technology that may someday cure the common cold, influenza, and other ailments; the researchers tested their drug against fifteen viruses, and found it was effective against all of them — including rhinoviruses that cause the common cold, H1N1 influenza, a stomach virus, a polio virus, dengue fever, and several other types of hemorrhagic fever. Most bacterial infections can be treated with antibiotics such as penicillin, discovered decades ago. Such drugs, however, are useless against viral infections, including influenza, the common cold and deadly hemorrhagic fevers such as Ebola. The drug works by targeting a type of RNA produced only in cells that have been infected by viruses. “In theory, it should work against all viruses,” says Todd Rider, a senior staff scientist in Lincoln Laboratory’s Chemical, Biological, and Nanoscale Technologies Group who invented the new technology. Because the technology is so broad-spectrum, it could potentially...
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  • Maff
    Maff says #
    Wow, this could be a huge breakthrough! If this is indeed a broad spectrum antiviral drug it could have major consequences for tho
11
Aug
3
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ACTH Stimulation Test Results

ACTH Stimulation Test Results
Recently received back my ACTH stimulation test results and wanted to share (below).  Ideally, I would have done a repeat of the Adrenal saliva panel I had done 8 months ago, but that is not an option right now due to my financial situation.  Doctor says everything looks good (within the ranges), and suggested that maybe the symptoms of fatigue, low stress tolerance, etc. are not hormonal, but possibly some type of ongoing infection; he has referred me to an infectious disease doctor. Not sure if others have seen similar results, or been able to correlate their ACTH stimulation results to their saliva results, or have ever seen the test show results for adrenal insufficiency vs. failure. Thoughts?

 

ACTH Stimulation Test ResultsDynamic Neural Retraining Program (DNRS)

 

...
Tagged in: adrenal cortisol Test
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  • Maff
    Maff says #
    Thanks for posting the info from Dr. T. Interesting stuff which I am sure is based on a lot of clinical experience as well as lite
  • TheStache
    TheStache says #
    Good advice, thanks Maff. Always helps to have reminders that the healing is a journey, and that even when the progress seems slo
  • Maff
    Maff says #
    Sorry Stache I only just spotted this blog post - been busy with treatments the past few weeks so not monitoring the site as close
09
Aug
1
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The importance of tracking your progress...

Like many folks on the site, I am healing exclusively with the aid of OTC vitamins and supplements.  Although the healing response is often much slower than with prescription drugs, and there is more experimentation necessary, I consider it a much safer alternative that I feel I have much more control over.  The big downside of course,  is that one can end up with a laundry list of supplements to research, purchase, take correct dosages of, and track responses to.  This can become very overwhelming, especially if you are unsure whether a particular supplement is really providing any benefit, or if it is just burning a big hole in your pocket.   Wanted to share with folks here a reminder to do your best to track your supplements and the progress you make on them.  Recently, I have done I poorer job than usual at this, and it has led...
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  • Maff
    Maff says #
    Thank you so much for posting this. Some excellent practical tips for determining what works and what doesn't when self-treating w