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26
Oct

new to forum- need information for cfs sufferers

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I am new to the forum...my question is for cfs. my best friend has had cfs for 20 odd yrs...has all the symptoms..from aches, no sleep, fatique, fever, etc..has all listed symptoms...takes meds to conbat fever...aches...but has no quality of life..is almost homebound. Can go out one day and is sick the next day. Does not feel like seeing a specialist..think the antidepressent drugs are numbing her?  what can i do as a friend..she has no family exc. spouse and son whom lives away. spouse is absorbed in his work and is used to the problem..i read so much about the gut and nutrition..think she should see a specialist instead of her gp...any help out there..have any of you gotten better with vitamins or a nutrition change - thank u

 

new to forum- need information for cfs sufferersDynamic Neural Retraining Program (DNRS)

 

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  • It is definitely worth your friend getting the thyroid tests Burkey describes since people suffering from ME/CFS often have hormonal problems, including thyroid, adrenal and sex hormones. People with hypothyroidism may sometimes be misdiagnosed with ME/CFS if adequate tests (as listed by Burkey) are not carried out. However, ME/CFS is NOT a symptom of an underactive thyroid. It is more correct to say 'fatigue', or possibly 'chronic fatigue' are symptoms of hypothyroidism, ME/CFS is a very serious and complex illness in its own right and an altogether different kettle of fish!

    While treating any issues with the thyroid may improve a ME/CFS patient's symptoms, it is just one piece in the puzzle and is highly unlikely to lead to full recovery. Conversely, someone with hypothyroidism alone can expect to make a complete recovery when thyroid hormones are restored to their optimum levels.

    I would recommend your friend see a doctor or clinical nutritionist who practices functional medicine. This kind of healthcare professional will assess your friend from every possible angle, looking at immunity, the gut, liver, hormonal and neurotransmitter imbalances and so forth. After all, the body operates as a system and in ME/CFS in particular there are problems in each one of these areas that can have consequences for the others, creating a viscious cycle.

    Are you in the UK? Please let me know which country you are in and I will give you some links to help find a suitable practitioner for your friend. Beyond that you just need to keep offering her support and encouragement, as I am sure you are doing. Try to get her to visit support sites online herself as many people with ME/CFS are able to make significant improvements in their health and even make full recoveries. I am a ME/CFS sufferer myself and for many years had given up all hope and was plagued by suicidal thoughts. However I now run this website, have a degree in nutritional medicine and have steadily uncovered the underlying factors behind my illness and am now on the road to putting things right. The gift of hope is the best thing you can give to your friend in any way you can.
    Best wishes to you both.

    Comment last edited on about 5 years ago by Maff
  • Have the person's Thyroid Checked. Get a complete Thyroid Panel to include TSH, T4 free, T3 free, reverse T3, and Thyroperoxidase Antibodies and Thyroglobulin Antibodies. The symptoms you describe are that of a person who is Hypothyroid. CFS is just one of 60 + symptoms of Hypothyroidism. Here is a list I copied from a dependable site:

    HYPOTHYROID LIST of SYMPTOMS
    Less stamina than others
    Less energy than others
    Long recovery period after any activity
    Inability to hold children for very long
    Arms feeling like dead weights after activity
    Chronic Low Grade Depression
    Suicidal Thoughts
    Often feeling cold
    Cold hands and feet
    High or rising cholesterol
    Heart disease
    Palpitations
    Fibrillations
    Plaque buildup
    Bizarre and Debilitating reaction to exercise
    Hard stools
    Constipation
    No eyebrows or thinning outer eyebrows
    Dry Hair
    Hair Loss
    White hairs growing in
    No hair growth, breaks faster than it grows
    Dry cracking skin
    Nodding off easily
    Requires naps in the afternoon
    Sleep Apnea (which can also be associated with low cortisol)
    Air Hunger (feeling like you canĂ¢â‚¬â„¢t get enough air)
    Inability to concentrate or read long periods of time
    Forgetfulness
    Foggy thinking
    Inability to lose weight
    Always gaining weight
    Inability to function in a relationship with anyone
    NO sex drive
    Failure to ovulate and/or constant bleeding (see RainbowĂ¢â‚¬â„¢s story)
    Moody periods
    PMS
    Inability to get pregnant; miscarriages
    Excruciating pain during period
    Nausea
    Swelling/edema/puffiness
    Aching bones/muscles
    Osteoporosis
    Bumps on legs
    Acne on face and in hair
    Breakout on chest and arms
    Hives
    Exhaustion in every dimensionĂ¢â‚¬â€œphysical, mental, spiritual, emotional
    Inability to work full-time
    Inability to stand on feet for long periods
    Complete lack of motivation
    Slowing to a snailĂ¢â‚¬â„¢s pace when walking up slight grade
    Extremely crabby, irritable, intolerant of others
    Handwriting nearly illegible
    Internal itching of ears
    Broken/peeling fingernails
    Dry skin or snake skin
    Major anxiety/worry
    Ringing in ears
    Lactose Intolerance
    Inability to eat in the mornings
    Joint pain
    Carpal tunnel symptoms
    No Appetite, or
    Extreme hunger, especially at nighttime
    Fluid retention to the point of Congestive Heart Failure
    Swollen legs that prevented walking
    Blood Pressure problems
    Varicose Veins
    Dizziness from fluid on the inner ear
    Low body temperature
    Raised temperature
    Tightness in throat; sore throat
    Swollen lymph glands
    Allergies (which can also be a result of low cortisolĂ¢â‚¬â€œcommon with hypothyroid patients)
    Headaches and Migraines
    Sore feet (plantar fascitis); painful soles of feet
    now how do I put this one politelyĂ¢â‚¬Â¦.a cold bum, butt, derriere, fanny, gluteus maximus, haunches, hindquarters, posterior, rear, and/or cheeks. Yup, really exists.
    colitis
    irritable bowel syndrome
    painful bladder
    COPD
    Asthma
    Emphysema
    Dysphagia, which is nerve damage and causes the inability to swallow fluid, food or your own saliva and leads to Ă¢â‚¬Å“aspiration pneumoniaĂ¢â‚¬Â.


    I have many articles I have written and many sites to direct you to where you may find a cure, just using nutrition. You are welcome to e-mail me directly at:

    [email protected]

    I am a clinical nutritionist and I believe I can direct you to the sites to find what you need to heal your friend naturally.

    Comment last edited on about 5 years ago by Maff

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