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A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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14
Nov
0
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GM Crops and Human Health: Both Sides of the Safety Debate

GM Crops
Environmental Health Perspectives recently drew attention to a controversial statement released by the largest general scientific organization in the world - The American Association for the Advancement of Science (AAAS) - which asserted that GM crops are completely safe and no labeling of GM foods and food products is required. In response to this the environmental and consumer health information group published both the AAAS statement and a counter argument written by Patricia Hunt, PhD, of Washington State University and co-signed by 20 prominent scientists from fields including environmental health sciences and medicine. This set up a very informative and enlightening yes/no debate on whether or not foods containing GM ingredients should be clearly labeled as such. I would urge every health and diet-conscious reader to take a look at the full texts of the statements over at the Environmental Health Perspectives website. Below are the opening statements from both...
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  • adminv15
    adminv15 says #
    If they're harmless they can add them to the labeling. END OF. The fact that they won't says they either think we're idiots who
25
Oct
1
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iPhones and iPads: Pros and cons for environmental illness sufferers

iPad & iPhone
There is no doubt that the Information Age has provided both society as a whole and those suffering from environmental illnesses with countless benefits. Over recent years however there has been a huge shift in the way we access the information available online, with cellular and wireless devices such as the iPhone and iPad (and smartphone and tablet alternatives) replacing the traditional desktop or laptop computer as the preferred means of getting online for many. The benefits of such devices are easy to see. For example, cell phones are generally always switched on and ready to use and tablet computers can be switched on in an instant; compare this to desktop and laptop computers which can take an age to start up! Then there is the portability of such small and light devices. Many people suffering from environmental illnesses from chronic fatigue syndrome (ME/CFS) and fibromyalgia to multiple chemical sensitivity...
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  • Maff
    Maff says #
    Very good points indeed Sue! New electronics and their packaging off-gas like crazy for quite a while - my advice to MCS sufferers
  • adminv15
    adminv15 says #
    This is an interesting discussion. I used to have MCS and have a keen smell. I wonder about the new electronic smells from the but
30
Sep
0
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Treatments to Protect and Heal the Blood-Brain Barrier

Blood-Brain Barrier
What is the Blood-Brain Barrier? The blood-brain barrier (BBB) is a selectively permeable membrane that surrounds the brain and seperates this vital organ from the systemic circulation. The BBB serves the essential function of creating a "protective bubble" around the brain. It can be seen as acting as a gatekeeper - allowing only those molecules from the bloodstream that are required by the brain (e.g. oxygen, hormones) to enter into the brain extracellular fluid, while keeping out substances (neurotoxins) which may be damaging (e.g. metabolic & environmental toxins, bacteria). The BBB also actively transports certain metabolically essential molecules like glucose - that do not cross the barrier passively - into the brain extra cellular fluid via specific protein transporters. Structure of the Blood-Brain Barrier The BBB is composed of endothelial cells that are the structural building blocks of blood vessels throughout the body. The difference is that these cells are...
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  • adminv15
    adminv15 says #
    you people are completely 100% wrong and 'again' running down the wrong path of research, start looking at 'internal ionization ra
22
Aug
0
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Insulin Resistant with Hypoglycemia

Ok everyone ... I have always been the oddball for my doctors and it looks like I have to do more research on my own. Thanks to the fact that my memory has become awful I have forgotten where I have placed my medical file. I guess to start with I need to find out if there are others out there right now that have been gven this diagnosis. I am just starting treatment. I tried metformin 500 mg 2x a day for 6 days but the side effects were awful. The doctor placed me on a 150 carb a day diet. I am currently on the diet but am waiting for the metformin effects to wear off and be"normal" for 5 days and then I will start on glucosophate release tablets. 500mg 2x a day. At this point I am afraid that this has something more to do with pituitary...
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06
Jul
0
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SIBO: Guar Gum alongside Rifaximin could increase success rate

  Clinical trial: the combination of rifaximin with partially hydrolysed guar gum is more effective than rifaximin alone in eradicating small intestinal bacterial overgrowth. 2010 Oct; Abstract   BACKGROUND: Abnormal intestinal clearance is involved in the pathogenesis of small intestinal bacterial overgrowth (SIBO). It is known that partially hydrolysed guar gum affects intestinal motility. Eradication therapy of SIBO is based on antibiotic treatment: no data are available on the role of fibre supplementation in eradicating SIBO. AIM: To assess whether the combination of partially hydrolysed guar gum and rifaximin is more effective than rifaximin alone in the treatment of SIBO. METHODS: A 50 g-glucose breath test was given to 500 consecutive patients. Patients with a positive glucose breath test and predisposing conditions to SIBO entered into the study, and were randomized to receive rifaximin 1200 mg/day or rifaximin 1200 mg/day plus partially hydrolysed guar gum 5 g/day for 10 days....
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30
Jun
0
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Audio for Healing Trauma Underlying Allergies

Hi, I recently came across and purchased Brent Phillips audio for clearing trauma underlying allergies.  I wasn't sure if it would work but when you are desperate you will try anything. It seems to work -- and very quickly (and it is fairly cheap unlike a lot of products out there).  As a Ph.D.-level scientist, it sounds strange to say that -- but it is true -- at least for me.   (However, I must say that as with any technique or method you need to  have an open mind about it -- this also holds true for physical approaches like Western pharmaceuticals.) I recommend taking a closer look if you suffer from any trigger-induced  immune response that isn't serving you.  For example, although it works for me for pollen and dust, it even works for the immune over reaction to physical exercise and physical touch that arrived in my life after my hip reconstruction and replacement. ...
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  • adminv15
    adminv15 says #
    These Types connected with handbags usually are loved by means of females who want to carry the majority of their things through o
27
May
0
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Irritable Bowel Syndrome Clearly Linked to Gut Bacteria

This article should probably be taken with a pinch of salt as the study was carried out by Dr Pimental who has been pushing for the use of the drug Rifaximin for the treatment of IBS-D.  His company Salix pharmaceuticals own the use of Rifaximin so it's in his interest to use this specific drug.  Most people have found that Rifaximin isn't the silver bullet they initially thought it was going to be....   ScienceDaily (May 25, 2012) — An overgrowth of bacteria in the gut has been definitively linked to Irritable Bowel Syndrome in the results of a new Cedars-Sinai study which used cultures from the small intestine. This is the first study to use this "gold standard" method of connecting bacteria to the cause of the disease that affects an estimated 30 million people in the United States.   Previous studies have indicated that bacteria play a role in...
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09
May
0
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Obesity, GI Issues May Take Root in Gut Flora

  Source: http://www.medpagetoday.com/MeetingCoverage/ACP/32295   Manipulating the microbial flora within the intestine offers great promise for preventing or treating obesity and bowel disorders, but the precise means are not yet available, a researcher said here. It's clear that the diverse communities of microorganisms living in the human gut are necessary to normal health, and that their derangement can lead to metabolic and gastrointestinal disorders, said Walter Coyle, MD, of the Scripps Clinic in La Jolla, Calif. By the same token, then, it ought to be possible to alter the makeup of those communities, either to forestall development of such disorders or to treat them when they do occur, he told attendees at the American College of Physicians' annual meeting. However, the science of the intestinal "microbiome" is still in its infancy and it remains unclear what changes to make, let alone how best to make them, Coyle said. For starters, the mix...
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09
May
0
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The Antibiotic, Amoxicillin-Clavulanate, Before a Meal May Improve Small Bowel Motility

The common antibiotic, amoxicillin-clavulanate, may improve small bowel function in children experiencing motility disturbances, according to a study appearing in the June print edition of the Journal of Pediatric Gastroenterology and Nutrition from Nationwide Children's Hospital.     Amoxicillan-clavulanate, also known as Augmentin, is most commonly prescribed to treat or prevent infections caused by bacteria. However, it has also been reported to increase small bowel motility in healthy individuals and has been used to treat bacterial overgrowth in patients with chronic diarrhea. Upper gastrointestinal symptoms such as nausea, vomiting, abdominal pain, early satiety and abdominal distention are common in children. Despite the advances in the technology for diagnosing motility disorders, there continues to be a lack of medications available for the treatment of upper gastrointestinal tract motor function. "There is a significant need for new drugs to treat upper gastrointestinal symptoms in children," said Carlo Di Lorenzo, MD, chief of Gastroenterology, Hepatology...
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25
Apr
0
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me

At the start of January 2011 I got, what i thought was, a stomach bug but after 2 days of being unable to keep food down I went to the local GP out of hours centre, they took a urine sample and said there was an infection which was probably either a urine infection or Kidney stones and admitted me to hospital. I was put on a drip and given anti-sickness medicine and antibiotics, 2 days later they couldn't decide what was going on so discharged me!    That night i was still being sick and was bringing up blood so my partner took me to A & E. This time they decided it was my gallbladder and gave me another fluid drip, more anti-sickness medicine and, as the hospital was full, sent me home.  Two days later, and with no improvement, my partner took me to my GP who...
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31
Mar
1
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WE ARE SICK

I have come here to alert, this is in a way a wake up call. WE ARE SICK, WE HAVE MULTIPLE ISSUES, THESE ISSUES ARE GETTING WORSE. MY STORY,                  Lets take a trip back to 1971, at that time I was a brand new 17 year old recruit, the most healthy of the healthy, strong and near perfect. That was soon to end, I was in danger less from bullets and bombs and more from a insidious stealthy pathogen, this pathogen was ripping its way through the deployed military.  The pathogen (FOR ME) and many others from what I have seen,  shows its presents by saping your energy, afflicting your vison, afflicting the skin, dry patches, eczema, dermatitis, cherry angiomas, white spots or patches on the skin, ringing in the ears, floaters in the eye, blurry eyesight, rash like spots, sores that do not heal, itching, there are so many.  THEN you may...
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  • Maff
    Maff says #
    Sam, I just wanted to thank you for sharing your story and writing such a thought-provoking piece. The links alone will keep mysel
03
Mar
0
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PANDAS becomes PANS as researchers issue new definition and name change

Streptococcal Bacteria
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections (PANDAS) is a mental illness with a sudden onset affecting young children. It presents with behaviour typical of obsessive-compulsive disorder (OCD), as well as separation anxiety and mood swings. PANDAS has been a controversial diagnosis, not least because many of the symptoms place it well within the reach of the autism spectrum disorders (ASD) umbrella. A quick browse of online autism support forums reveals many a discussion on the subject of PANDAS among parents of autistic children or those seeking answers for sudden changes in their child's behaviour. One website estimates that "at least 40%" of children diagnosed with an ASD have PANDAS. In the medical profession however, PANDAS is most often associated with and compared to child-onset OCD. Some doctors insist there is no such thing as PANDAS and that Streptococcal infections and the onset of neuropsychiatricsymptoms are coincidental and affected...
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  • adminv15
    adminv15 says #
    I don't know if you are aware but the 16 or more LeRoy, NY teens who this October started to display a kind of Tourette's syndrom
01
Mar
0
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Proton pump inhibitors (PPIs) may not causes small intestinal bacterial overgrowth

    As previous studies suggested a relationship between small intestinal bacterial overgrowth (SIBO) and use of proton pump inhibitor (PPI) drugs, recent studies said that those link not completely right. While previous studies showed complicating results where is European studies mostly indicated positive effect between PPIs and SIBO, but US studies mostly indicated negative effect; which is suggesting dietary factor may influence the outcomes, lack of standard test to diagnose SIBO, and various duration and dose of PPIs use, current studies used patients with chronic acid suppression therapy that would be expected to increase the potential for an abnormal glucose hydrogen breat testing (GBHT), a testing of breath sample for hydrogen (H2) and methane (CH4) to determine the positivity of SIBO. Reported in the American Journal of Gastroenterology on February 14, 2012, there is no significant differences between once daily vs. twice daily PPI used to positive GHBT based...
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20
Feb
1
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Transplanting someone else's poo into your body is gaining medical acceptance. And making people money!!

news4-superpoop_3815
  Fecal Matters Transplanting someone else's poo into your body is gaining medical acceptance.   ILLUSTRATION: Hawk Krall 2 Comments        Tags: fecal transplantation, naturopathy, alternative medicine Most teenage boys make money the old-fashioned way. They mow lawns, wash cars or flip burgers. But one 13-year-old in Portland is the envy of his friends for the way he makes his money. He gets $50 for donating his feces. The boy (who, for reasons that will soon become obvious, asked not to be named) is part of a burgeoning business in fecal transplantation: a medical procedure in which—and here’s where you might want to put down that doughnut—donors’ poo is injected into a patient’s body. In Portland, fecal microbial transplantation is being promoted by a naturopath for a wide range of maladies. The treatment isn’t approved by the U.S. Food and Drug Administration. But the procedure—used in experiments since the 1950s—is getting approving articles...
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  • kjeanne
    kjeanne says #
    Posting to follow this
05
Feb
1
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Silver bullet for cancer: Metal can kill some tumours better than chemotherapy with fewer side effects

Good news: Silver can kill some cancers as effectively as chemotherapy and with potentially fewer side effects, new research has claimed
  Silver can kill some cancers as effectively as chemotherapy and with potentially fewer side effects, new research claims. Scientists say that old wives tales about the precious metal being a ‘silver bullet’ to beat the Big C could be true. The metal already has a wide range of medicinal uses and is a common antiseptic, antibiotic and means of purifying water in the third world.  Good news: Silver can kill some cancers as effectively as chemotherapy and with potentially fewer side effects, new research has claimed And British researchers now say that silver compounds are as effective at killing certain cancer cells as a leading chemotherapy drug, but with potentially far fewer side-effects. They compared it to Cisplatin, currently used to treat a wide variety of cancers, but known to have harsh side effects including nausea, vomiting and even kidney damage. Silver is used already in everyday products such...
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30
Jan
1
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The Perrin Technique for the Treatment of Chronic Fatigue Syndrome

The Perrin Technique
Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS) is something of a family "tradition". Besides myself, both my mother and sister are also long-term survivors of this devastating illness. We have all tried countless treatments and therapies over the years, some have helped, most have not. Both my mother and sister however have been treated using The Perrin Technique and seen positive results. My mother tries to see her specially trained osteopath regularly for the treatment or she sees a noticeable downturn in her condition. My sister got married in the summer of 2009 and says regular Perrin Technique treatments leading up to the big day definitely helped her get through it. So, I am now trying this unique therapy for myself. I have had two appointments with the same practitioner my family use, the first was purely history taking followed by a physical examination which the practitioner used to confirm...
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  • Maff
    Maff says #
    Hi Beauts, Great to see someone working to get a forum going for the Perrin Technique. I would be very happy to post some of what
  • adminv15
    adminv15 says #
    Hi Maff I am trying to get a discussion forum going for people who are undergoing Perrin technique treatment (of which I am one).
  • adminv15
    adminv15 says #
    I suspect that adrenal stimulants and tired adrenals from all the stimulants play a huge part. Sugar=toxin Why am I so tired?
20
Jan
0
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Water, PCE and psychiatric health

An interesting article has appeared recently detailing a possible relationship between prenatal or early childhood exposure to water contaminated with tetrachloroethylene (also known as perchloroethylene) (PCE) and later risk of bipolar disorder and/or post-traumatic stress disorder (PTSD). The results, whilst preliminary, seemed to suggest a relationship between early PCE exposure and later diagnosis with the requirement for further study. PCE exposure is, according to the US EPA, an important issue in terms of possible risks to health including cancer and reproductive issues. In autism research circles, PCE hs cropped up on previous occasions. Most recently as part of this study which looked at the effects of PCE on mice and seemed to indicate some parallels with equivalent symptoms noted in cases of autism. What perhaps makes the study by Guariglia and colleagues more interesting was their focus on a small township called Brick in New Jeresy which, quite a few...
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06
Jan
0
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New Year's Resolutions and Invisible Illness

Relaxing Man Planter
Let's face it - New Year's resolutions are hard to keep at the best of times. We all confidently list the vices we'll give up or positive life changes we'll make over the coming year with the best of intentions and (in most cases) a genuine desire to follow through. But I think most people will agree that after the rosy tint of the holiday season has worn off it becomes hard to stick to most resolutions. Throw invisible illnesses into the mix and things get a whole lot more problematic! For example, it's hard to shed any extra pounds you feel you might have when walking from the bedroom to the bathroom requires you to summon all the strength and energy you have. A new calorie burning exercise regime then is out of the question. Likewise, giving up vices such as smoking and drinking are common resolutions the average...
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27
Dec
0
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Rifaximin Does Not Relieve Persistent Celiac Disease Symptoms or SIBO

Photo: CC - spec-ta-cles
  Celiac.com 12/27/2011 - Non-controlled studies suggest that Rifaximin may improve celiac disease symptoms in such cases. However, up to now, no controlled trials have been conducted.   A team of researchers used a double-blind clinical trial to assess the effectiveness of rifaximin in relieving gastrointestinal symptoms in patients with poorly responsive celiac disease. They also assessed the effects of rifaximin on lactulose-hydrogen breath tests in those patients. The research team included Matthew S. Chang, Maria T. Minaya, Jianfeng Cheng, Bradley A. Connor, Suzanne K. Lewis, and Peter H. R. Green. Small intestinal bacterial overgrowth (SIBO) is one of the main reasons that certain people with celiac disease fail to respond well to a gluten-free diet, and why they often suffer persistent symptoms.  To make their assessment, the team designed a single-center, double-blind, randomized, controlled trial of patients with biopsy-proven celiac disease and persistent gastrointestinal symptoms despite following a gluten-free diet. For the trial, the...
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21
Dec
0
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more on lactoferrin.......... Part deux

 I came across this collection of information relating to lactoferrin. I think this has all you'll ever need to know about it:   "Examples of specific bacteria inhibited by lactoferrin include: Staphylococcus aureus, Escherichia coli, Klebsiella pneumoniae, and Helicobacter pylori, all of which are capable of causing serious illness. While many studies have involved observations of lactoferrin's effects on microbial growth in a laboratory dish or test tube, recent research in Japan has demonstrated that, when administered orally to mice, bovine-derived lactoferrin causes a marked reduction in the proliferation of intestinal bacteria, including several strains of the pathogenic bacterium, Clostridium. Furthermore, when administered to laboratory animals, lactoferrin also decreases the number of bacteria that translocate, or pass through, the cell lining of the intestines. Translocation of bacteria through the intestinal epithelium is a means by which bacteria can gain access to the blood and lymphatic system, and, if they are...
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