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A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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25
Sep
0
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air passengers would be forced to drink a sachet of probiotic formula before landing in Australia under a proposal by one of the state's leading gastroenterologists

  INTERNATIONAL air passengers would be forced to drink a sachet of probiotic formula before landing in Australia under a proposal by one of the state's leading gastroenterologists aimed at preventing an outbreak of a deadly bug ravaging North America. Thomas Borody, the founder of Sydney's Centre for Digestive Diseases, has likened his radical idea to the way in which incoming aircraft were once sprayed for foreign insects. Professor Borody believes NSW will not be able to avoid an epidemic of the stomach bug Clostridium difficile, the symptoms of which include severe diarrhoea, without concerted action. A hyper-virulent strain of C. difficile has killed 35 people in Ontario, Canada, in just the past four months. In the US, the superbug is estimated to have cost health services $3.2 billion in 12 months. ''We're not ready for it in this country … we're staring at an epidemic,'' Professor Borody told the Sun-Herald....
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18
Sep
0
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Carbohydrate metabolism, dysbiosis and autism

In a previous post, I discussed how environment is finally, in 2011, receiving some recognition in relation to some cases of autism spectrum conditions (ASCs). It has been a slow process but nevertheless progress has been made moving away from autism being some kind of 'genetics only' condition (where the lion's share of research funding has been committed over the past few years) to one where genes and environment share centre-stage. I might add that I give credit to the notion that autism is not autism but rather autisms as a consequence of the huge heterogeneity and various comorbidities potentially present and that the relative contributions of genes and environment might not be the same for everyone who has autism. Friday 16th September 2011 is another date for the autism research diary. The reason is the publication of a paper by Brent Williams and colleagues in PLoS ONE (open-access here)...
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16
Sep
0
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Giardia linked to IBS and chronic fatigue

Interesting article on a possible correlation between chronic fatigue and acute giardiasis.  This is apropos to my own case history, as many of my health issues (including CFS and IBS) cropped up after being diagnosed and treated with Giardia.   http://www.research1st.com/2011/09/13/giardia-link/   Full text article from Gut:   http://press.psprings.co.uk/gut/september/gut300220.pdf...
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15
Sep
1
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Glutamine for IBS - IBS characterized by chronic diarrhea often have low levels of glutamine

Overview Glutamine is one type of amino acid, the building blocks that make up proteins. As the most common amino acid in the body, glutamine plays important roles in many organs, including the lining of the digestive tract. Recent evidence has raised the possibility that treatment with glutamine may decrease the symptoms of certain digestive disorders, including irritable bowel syndrome, or IBS, although additional research is needed to confirm these findings. As with all healthe supplements, you should ask your doctor before taking glutamine. Glutamine Levels in IBS Recently, researchers have discovered that people with a particular type of IBS characterized by chronic diarrhea often have low levels of glutamine, reports a study published in the June 2010 issue of the medical journal "Gut." In this study, researchers found that some patients with IBS had lower levels of glutamine than normal, which leads to increases in permeability in the intestinal...
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  • Bushi
    Bushi says #
    Sorry to hear that glutamine doesn't help you. However, there does seem to be an overwhelming consensus that it can aid with all t
  • adminv15
    adminv15 says #
    This is interesting. I however go out of my way to avoid glutamate- I noticed I was brought down by specific foods once I started
13
Sep
0
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Bacterial protein found in yogurt may alleviate inflammatory bowel disorders

Bacterial protein found in yogurt may alleviate inflammatory bowel disorders
protein isolated from beneficial bacteria found in yogurt and dairy products could offer a new, oral therapeutic option for inflammatory bowel disorders, suggests a study led by Vanderbilt University Medical Center researcher Fang Yan. The study, published May 23 in the Journal of Clinical Investigation, shows that the protein, called p40, was effective as an intervention in animal models of colitis (colon inflammation). The investigators demonstrated that the protein supports intestinal epithelial cell growth and function, and reduces inflammatory responses that can cause intestinal cells to die. Importantly, the investigators showed that oral consumption of p40 by mice in a protective delivery system prevents and treats colitis in multiple models of the disease. Many of the hundreds of bacterial species that live in our gut (known as the “human microbiome”) are helpful to us: they help us digest certain substances, produce vitamins and fight off more dangerous bacteria. But miscommunication...
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11
Sep
0
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Diet affects type of bacteria in intestines

September 02, 2011|By Tom Avril, Inquirer Staff Writer   Here's some new dietary research, if you have the stomach for it: Your choice of foods may affect the kinds of bugs that live in your intestines. In a study of 98 people and their poop, University of Pennsylvania scientists reported Thursday that a person's long-term diet is connected to what kinds of bacteria live inside the gut. The intestinal tracts of folks who typically ate a high-fat, high-protein diet tended to be dominated by one kind of bacteria, whereas those who favored carbohydrates and vegetables had more of another type. Moreover, a short-term alteration in diet yielded small changes in the person's bacterial community within just 24 hours.     The findings are part of a growing body of research into how the teeming tide of microbes inside the body plays an essential role in human health, and how it...
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16
Aug
0
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A natural food preservative kills food-borne bacteria

Salmonella and E. coli account for more than half of all food recalls in the United States; salmonella contributes to an estimated 28 percent of more than 3,000 U.S. deaths related to foodborne illness each year; researchers have discovered and received a patent for a naturally occurring lantibiotic -- a peptide produced by a harmless bacteria -- that could be added to food to kill harmful bacteria like salmonella, E. coli, and listeria.  Researchers at the University of Minnesota have discovered and received a patent for a naturally occurring lantibiotic — a peptide produced by a harmless bacteria — that could be added to food to kill harmful bacteria like salmonella, E. coli, and listeria.  The U of M lantibiotic is the first natural preservative found to kill gram-negative bacteria, typically the harmful kind. “It’s aimed at protecting foods from a broad range of bugs that cause disease,” said Dan O’Sullivan,...
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  • adminv15
    adminv15 says #
    Your Blog is very good, I like it! Thank you for you sharing!
16
Aug
1
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Medical silver bullet: New drug cures most viral infections

Medical silver bullet: New drug cures most viral infections
Researchers at MIT’s Lincoln Lab have developed technology that may someday cure the common cold, influenza, and other ailments; the researchers tested their drug against fifteen viruses, and found it was effective against all of them — including rhinoviruses that cause the common cold, H1N1 influenza, a stomach virus, a polio virus, dengue fever, and several other types of hemorrhagic fever. Most bacterial infections can be treated with antibiotics such as penicillin, discovered decades ago. Such drugs, however, are useless against viral infections, including influenza, the common cold and deadly hemorrhagic fevers such as Ebola. The drug works by targeting a type of RNA produced only in cells that have been infected by viruses. “In theory, it should work against all viruses,” says Todd Rider, a senior staff scientist in Lincoln Laboratory’s Chemical, Biological, and Nanoscale Technologies Group who invented the new technology. Because the technology is so broad-spectrum, it could potentially...
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  • Maff
    Maff says #
    Wow, this could be a huge breakthrough! If this is indeed a broad spectrum antiviral drug it could have major consequences for tho
11
Aug
3
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ACTH Stimulation Test Results

ACTH Stimulation Test Results
Recently received back my ACTH stimulation test results and wanted to share (below).  Ideally, I would have done a repeat of the Adrenal saliva panel I had done 8 months ago, but that is not an option right now due to my financial situation.  Doctor says everything looks good (within the ranges), and suggested that maybe the symptoms of fatigue, low stress tolerance, etc. are not hormonal, but possibly some type of ongoing infection; he has referred me to an infectious disease doctor. Not sure if others have seen similar results, or been able to correlate their ACTH stimulation results to their saliva results, or have ever seen the test show results for adrenal insufficiency vs. failure. Thoughts?

 

ACTH Stimulation Test ResultsDynamic Neural Retraining Program (DNRS)

 

...
Tagged in: adrenal cortisol Test
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  • Maff
    Maff says #
    Thanks for posting the info from Dr. T. Interesting stuff which I am sure is based on a lot of clinical experience as well as lite
  • TheStache
    TheStache says #
    Good advice, thanks Maff. Always helps to have reminders that the healing is a journey, and that even when the progress seems slo
  • Maff
    Maff says #
    Sorry Stache I only just spotted this blog post - been busy with treatments the past few weeks so not monitoring the site as close
09
Aug
1
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The importance of tracking your progress...

Like many folks on the site, I am healing exclusively with the aid of OTC vitamins and supplements.  Although the healing response is often much slower than with prescription drugs, and there is more experimentation necessary, I consider it a much safer alternative that I feel I have much more control over.  The big downside of course,  is that one can end up with a laundry list of supplements to research, purchase, take correct dosages of, and track responses to.  This can become very overwhelming, especially if you are unsure whether a particular supplement is really providing any benefit, or if it is just burning a big hole in your pocket.   Wanted to share with folks here a reminder to do your best to track your supplements and the progress you make on them.  Recently, I have done I poorer job than usual at this, and it has led...
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  • Maff
    Maff says #
    Thank you so much for posting this. Some excellent practical tips for determining what works and what doesn't when self-treating w
31
Jul
0
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Noetic Science and Holistic Health

Brain Scan
Suffering with environmental illness is a huge struggle, not only in terms of dealing with the dibilitating symptoms themselves but also the lack of healthcare provision and the way we are regarding with suspicion by doctors and even our friends and family. Finding ourselves in this situation though does have its up side...it has a way of opening our minds to possibilities we may not otherwise have considered. Like me, when you were healthy and everything was going great you probably gave little thought to how something like your diet as a whole and even specific foods could be affecting your body. Environmental illness forces us to explore all our options in the pursuit of healing and I am sure the vast majority of you have turned your attention to your diet and probably have an impressive collection of nutritional and/or supplements in your kitchen. Now, I'd like to take...
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21
Jul
2
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ONE THING

Thought I would let you all know the ONE THING that has helped me with living with chronic fatigue that I learned from one of my customers/patients.  I own a small medical company that services assisted livings and nursing homes in Portland,  Oregon.  Her name is "T" and she died of terminal cancer a few years back.  I asked her one day how did she get through the day knowing she had a terrible illness.  Her response was I look forward to watching Seinfeld re- runs every night.  There are days where I have severe fatigue and that One Thing that I focus on is getting home after work and walking my black lab.  I know it sounds cheesy, but thought I would throw that out for people struggling with this illness.  Pick One Thing everyday that you enjoy and can look forward to. Scott...
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  • Juniper
    Juniper says #
    Hi Scott, Thank you for your story Its not cheesy.... I got a puppy two years ago and another one a month ago. They have been and
  • Maff
    Maff says #
    Hi Scott, many thanks for sharing that inspiring little story with us. I think you are absolutely right. I have learnt through my
18
Jul
0
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Chronic Fatigue Syndrome Guidelines for Doctors Still Exhibit Ignorance and Misinformation

ME/CFS Ribbon
In 1991 I was diagnosed with Myalgic Encephalomyelitis (M.E.) following a two day stay in hospital for a battery of tests. The diagnosis of M.E. was given by my GP and hospital specialists. It's funny then that the latest guidelines to doctors from the Royal College of General Practitioners (RCGP) here in the UK blatantly dismisses the very existence of this illness - referring to M.E. as a "colloquial" term. Rather odd when this is a true medical name which had been in use for decades, in contrast to 'chronic fatigue syndrome' or 'CFS' - the all encompassing term with which anyone suffering from a single symptom of mild chronic fatigue to what we used to know as severe M.E. is now branded. Unlike those who pull the strings at the RCGP, and despite my 20 years of illness, I can be objective and like to give credit where credit...
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  • adminv15
    adminv15 says #
    Maff, you're so clever and so awesome!
12
Jul
0
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Environmental factors steps up in autism

Tom Insel, Director of the National Institute of Mental Health (NIMH) is quoted in his recent blog entry titled 'Autism Spring' as saying about autism "The answers — and there will be answers — will no doubt merge genetic risk and environmental exposure to help us reach the far side of the complexity of ASD". Whilst to many this sentence has made sense for many years, it is indeed a 'game-changer' when the Head of the one of National Institutes of Health makes such a bold statement. One might even suggest that his words define a new era in autism research where genetics share the throne with environment rather than environment somehow being seen as the distant cousin. What might lead Dr Insel to make such bold claims? Could it be that 2011 might just be the year when the worm turns. Indeed, 2011 has witnessed several interesting findings in...
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08
Jul
0
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Effective Allergen Control Strategies

Considering the fact that most people spend at least half their day confined inside their homes, it is very important to have an allergen-free environment. Allergens are unhealthy for everyone and can be particularly harsh on those suffering from respiratory ailments like asthma or emphysema. Microscopic airborne contaminants not only make it harder to breathe, they also can cause coughs, sore throats, nasal problems and watery eyes. Chances are very good that if you always feel weak and tired, allergens in your home are at least partly responsible. Homeowners can employ a number of different allergen control strategies that can help keep the air that you breathe as clean as possible. There is no such thing as 100% pure air in any house, but the following steps can certainly make a big improvement in the overall quality of the air you breathe every day. Air Filters The use of quality filters to...
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04
Jul
0
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Health Dangers of EMF Exposure: Help us Fight for Action

Mobile Phone Mast
The other day I was contacted by new EiR member Emfsafety100 about the potential dangers the electromagnetic fields (EMFs) from our modern technology, such as power lines, wireless internet and cell/mobile phones, pose to human health and also to wildlife. Emfsafety100 reported coming across the global non-profit organisation Avaaz, who have a simple democratic mission: “to close the gap between the world we have and the world most people everywhere want”. If you aren’t familiar with this organization, their campaigns typically address environmental issues, corruption and human rights. If enough people ask Avaaz to lobby the World Health Organisation to review the EMF exposure safety guidelines, they would take action. Such a campaign would immediately enlist the support of many of their 9 million-plus members and would raise public awareness of the industry influence in the EMF safety debate. I will be suggesting a campaign to have EMF safety concerns...
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25
Jun
0
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Chronic Fatigue Syndrome in the Family: Same Diagnosis, Different Symptoms

My sister Lindsay and myself
As a family of four, three of us have been diagnosed with Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME). Myself, my mother and my younger sister. My mother and I were diagnosed in 1991 when I was aged 12 and she was 39. My sister became ill when she was 15/16 years old in 1998. Obviously this is has been a tragedy of indescribable proportions for us as a family. My sister and I have (so far) had our youths and young adulthood stolen and our mum was not only struck down in the prime of her life but has had to watch both of her children suffer horribly, directly as a result of CFS and also due to society's attitude towards it. That we are certainly not the only family to be in this horrible situation is certainly no comfort. I would not wish this illness on anyone....
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  • adminv15
    adminv15 says #
    I'd end up writing an essay if I fully went into this here and now, but in my family, 2 of my 3 siblings have ME. I have ME. My Mu
  • adminv15
    adminv15 says #
    Thank you for sharing this. I believe that I have CFS and am working with holistic physician. My Mom had many symptoms that you de
19
Jun
0
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Causes Of Sleep Problems You May Not Have Considered If You Have Environmental Illnesses

Woman with sleep problems
Sleep problems are common among the general population but particularly so among those suffering from 'environmental', or 'invisible', illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FMS) and multiple chemical sensitivity (MCS). Everyone will be familiar with common causes of insomnia and poor sleep quality such as consumption of stimulants like caffeine (coffee, tea, soda/fizzy drinks) and psychological factors such as work or relationship stresses. For those suffering from environmental illnesses there may be other less obvious contributors to sleep problems, however.   Hypoglycaemia Hypoglycaemia, or low blood sugar, is frequantly experienced by those suffering from environmental illnesses and is exacerbated by a diet that contains significant amounts of foods containing sugar or refined carbohydrates e.g. candy/sweets, chocolate, white bread, white pasta, white rice, baked goods, fast food. When levels of blood sugar (glucose) drop too low or too rapidly it is the brain that is affected first since it...
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11
May
0
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Salt water as effective as antibacterial wipes

Bacteria
I stumbled across an interesting snippet in a science magazine the other day about a study conducted by researchers at the University of Alberta, Canada. The scientists had observed that hospital staff habitually give surfaces only a single quick wipe with antibacterial products in order to disinfect them. They wondered if the number of wipes was important for bugs to be successfully removed from surfaces. The main results themselves are interesting because it was found that one wipe is not enough and that in fact, three wipes is optimal to properly disinfect surfaces and equipment. What is also interesting however, particularly to those of us affected by environmental illnesses, is the finding that if wiping a surface three times a simple saline solution (salt water) is as effective at removing nasty bugs as the antibacterial wipes, sanitizers and other products impregnated with chemical disinfectants such as triclosan. These products have...
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09
May
0
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Epidemiology of autism - its been a busy few days

One of the 'hot' topics of autism research is the question of 'how many people present with an autism spectrum condition'? I don't have the answer by the way, but there are a few recent papers which seem to be pointing at a few interesting figures. Indeed the last week or so has been an interesting time for those with an interest in the epidemiology of autism. First there was the findings from a UK study looking at the prevalence of autism spectrum conditions in an adult population (16 years +). The paper abstract can be viewed here but the paper summary: (1) an initial autism traits screening questionnaire was completed by nearly 7,500 participants; (2) 618 participants were invited for a more detailed follow-up interview; (3) the weighted prevalence of autism spectrum disorder (ASD) in adults was estimated to be 9.8 per 1,000 (approaching 1% of the population); (4) none of those diagnosed with an ASD...
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