EiR Blog

A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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21
Aug
0
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An Open Letter from Dr. Doris Rapp Regarding Environmental Exposures in Schools

Dr. Doris Rapp, MD
 [The following is an open letter from renowned environmental illness expert Dr. Doris Rapp. Posted with Full Permission. Permission further granted for recipients to foward.]     August 18, 2010   Dear Friends, I wonder if you would be willing to help me. Together we might be able to help tens of thousands of children. Alone I seem to do able to do very little. We Need To Get The Following Information To Our Schools:   Dear ------,   Dust, mold, pollen, foods and chemicals certainly can cause much more than cause asthma and hay fever. As you all know allergies can take on many forms and often affects how children feel, act, behave, walk, talk, write, draw, and especially learn. Many different areas of the brain can be affected. There is no doubt that it is possible to raise academic performance and attendance, while lowering infection, allergies, hyperactivity, behavior...
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19
Aug
0
Posted by Posted on in EirBlog
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9 Steps to Eating on Purpose

9 Steps to Eating on Purpose
How many times do you just wolf-down your meal in a mad rush to finish before getting back to work? How many times are you eating out of obligation to just eat? How many times do you see undigested food in your stool? Gross, I know! Do you have food allergies? If you answered “Yes” to any of these questons it is likely you need to retrain yourself in how to eat on purpose. Maintain regular and consistent mealtimes. It is better to eat five smaller meals than three large meals. Before eating relax momentarily for 10 seconds, then begin eating. (Blessing your food in prayer – science has shown that this cleans the food, makes it more bio-available, more digestible, and consequently tastes better) Smell each item on your plate before you take your first bite, like sniffing your wine before drinking, which will awaken the taste centers in...
Tagged in: allergies MCS
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18
Aug
0
Posted by Posted on in EirBlog
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Heavy Metal Toxins

We must change our body’s internal environment, so that it’s not the perfect home for microbes. Heavy metals are hugely responsible for weakening our immune system and setting us up for chronic and repeated infections. A significant portion of my book, Beating Lyme Disease: Living the Good Life in Spite of Lyme, discusses the methods and means to extensive detoxification protocols. What are Heavy Metals? The term ‘heavy metals’ refers to the over-accumulation of many different types of metals in the fat cells, central nervous system (brain, brainstem, spinal cord), bones, glands or hair. Heavy metals may include mercury, iron, lead cadmium, palladium, platinum, arsenic and nickel, to name a few. Common Sources of Heavy Metals 1.  Dental amalgam fillings 2. Cosmetics and antiperspirants with an aluminum base, and mineral powders containing bismuth. 3.  Vaccinations containing mercury or aluminum that are injected into your bloodstream. 4.  Use of conventional household...
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17
Aug
0
Posted by Posted on in EirBlog
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It's Not In Your Genes; It's In Your Jeans

Did you ever wonder why you act the way you do, or why you suffer with certain types of illnesses? How you act and the physical symptoms you suffer from may have more to do with your ancestors than with your lifestyle. The theory of epigenetic miasms may explain some of what makes you uniquely prone to the types of problems you experience . This is not “new age” and is not genetic aberrations, but it is more of an epigenetic phenomenon. An Epigenetic miasm, by definition, is a predisposition, or tendency, of certain psychological and physical problems that are set in motion by illnesses in your family history going back seven generations, or acquired within your own lifetime. Epigenetic miasms are due to changes in the expression in genes that are not due to underlying changes in the actual DNA sequences. Epigenetic miasms are not to be confused with...
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15
Aug
2
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PESTICIDE POISONING IN PUBLIC HOUSING: SYDNEY

Greetings.  My name is Murray Thompson.  My son and I are victims of callous pesticide poisoning.  We have both been acutely and long-term exposed to termite pesticide solvent vapours in our public housing residence in North-West Sydney.  Although I had explicitly warned the Department of Housing (DOH) about my asthmatic chemical sensitivity on multiple occasions, two pesticide treatments were forced upon me resulting in a kaleidoscope of unusual symptoms.  Essentially, I have MCS, depression and a host of physical ailments.  My now 18 year old son is 115kg of pure rage and paranoia, although very controlled (substitute: repressed) and this to his considerable credit. My legal case against the New South Wales Department of Housing will go to trial soon in November 2010 at the New South Wales Supreme Court in Sydney (the file number of my case is 2003/00091442 and the hearing is listed for 15/11/10 in the Supreme...
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  • Maff
    Maff says #
    Dear Murray, You and your son have clearly been treated with nothing less than contempt by the DoH and the ignorance of the poten
13
Aug
0
Posted by Posted on in EirBlog
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Chronic Fatigue Syndrome & Low Body Temperature

In Chronic Fatigue Syndrome there are many theories as to the cause. Some say it is the effects of heavy metal and chemical toxicity. Some say it is chronic infections, while others say it is the side-effects from vaccines and the use of suppressive medicines such as acetaminophen, aspirin, and ibuprofen, still others say it is dysregulated hormones or the effects of emotional trauma. It this author’s opinion everyone is correct in the same way as the proverbial three blind men describing an elephant from the head, tail, and the side are correct in each one’s description but only from his unique vantage point. However, in Chronic Fatigue Syndrome there is one common overriding finding…low body temperature! This article deals primarily with the very predictable problems seen in low body temperature and the profound importance of restoring and maintaining normal core body temperature. This is true not just in Chronic...
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11
Aug
0
Posted by Posted on in EirBlog
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Why Detoxifying The Body of Lyme Toxins May Not Be Enough!

Research indicates that the majority of symptoms in Lyme disease are caused by the release of toxins by the spirochetes. If that were not bad enough, for most people in the United States, the daily accumulation of toxins just from living, eating, and breathing is staggering! Environmental toxins from our air, water, personal care products, medications, and food supply are jamming up the machinery of the cells, interfering with the regulation of the body. Toxins are a global problem. There is virtually no one on the planet who does not need to detoxify the body on a continual basis. Every person on the planet should be working to eliminate the sources of toxins in our house and life. Detoxification of the body must be a part of any effective Lyme protocol or one risks permanent damage to nerve and joint tissue from the toxic irritation. Today more than 77,000 chemicals...
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  • adminv15
    adminv15 says #
    After 8 years of antibiotic protocols and getting sicker & sicker, I am glad to have found Dr. Jernigan's products. He is heads ab
10
Aug
0
Posted by Posted on in EirBlog
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Fibromyalgia & Low Body Temperature

There are many theories as to the cause of Fibromyalgia. Some say it is the effects of heavy metal and chemical toxicity. Some say it is chronic infections, while others say it is the side-effects from vaccines and the use of suppressive medicines such as acetaminophen, aspirin, and ibuprofen, still others say it is dysregulated hormones or the effects of emotional trauma. In this author’s opinion everyone is correct in the same way as the proverbial three blind men describing an elephant from the head, tail, and the side are correct in their description of the elephant, but only from each one’s unique vantage point. However, in Fibromyalgia there is one common overriding finding…low body temperature! This article deals primarily with the very predictable problems seen in low body temperature and the profound importance of restoring and maintaining normal core body temperature. This is true not just in Fibromyalgia, but...
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  • adminv15
    adminv15 says #
    This is so true. My son and I run low body temperatures when we have too much potassium, too little sea salt, or a strong exposur
22
Jul
0
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Climate, Weather and Environmental Illness

Climate, weather and environmental illness
I was lucky enough to spend two weeks on holiday/vacation in Turkey recently to recuperate after over-exerting my body and brain completing my bachelor's degree in nutritional health. Being a resident of the UK with its, let's say temperamental weather, I really notice a change in how I feel (mostly good, some bad) when I spend time in a country where the climate is warmer and sunnier. This got me thinking that a good topic for a blog and dscussion would be how climate and weather affect the health of people suffering from environmental illnesses. Personally, my moods and energy levels are greatly influenced by the weather and the seasons and I have in the past been diagnosed with Seasonal Affective Disorder (SAD). Here in the UK it can be sunny one minute and raining the next at any time of year. When it is sunny my mood is correspondingly bright...
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22
Jul
0
Posted by Posted on in EirBlog
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Green product Labels and Formaldehyde Free Insulation

Green with Envy Home Store receives many interesting phone calls and mails about product labels and ingredients in many green and not so green products.  This week, we received a few calls about a new miracle product that was advertised in a few different magazines and on the Internet.  These products always get us talking about ingredients and toxicity in the products that we use in our projects and sell in our  store.  A client mentioned the Fair Packaging and Labeling Act.  Please do not even attempt to read the Fair Packaging and Labeling Act.  This document is really confusing and the word “exempt” is used way too often.  In the past, we have tried to interpret this document and the political doublespeak is overwhelming.  If you want to check how business lobbying works in our government, browse this document on a rainy, wintry day.  A few important facts are...
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20
Jun
0
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Multiple Chemical Sensitivity June 23 2010

Well here goes, I have  multiple chemical sensitivity. I have had this for ten years or so. I now don't use any chemicals in my home I try and use natural products.  Family and Friends are very understanding, but anyone else seems they do one min and the next telling me it's all in my mind. More from when I was working I find it hard to find and employer who understands what I have and the people I work with. They think if its in a another room it will stay in there don't think so smells travel you can not say stay to it like a dog lol. But that is what I have had to deal with working. Doctors can be as bad finding one which understands that I can not use many items is hard. Also after waiting ten years I am now been sent to the hositpal...
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  • adminv15
    adminv15 says #
    I've been dealing with MCS over 14 years. I too use all natural products. I sure can relate to your story. I have a blog and would
17
Jun
2
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BUILDING A MCS SAFE HOME, SEEKING ADVICE

Looking for Friends with MCS and help building a safe home.  I recently suffered a house fire in a small town in Mt.  I am relocating to a healthier North Idaho area and have insurance money to rebuild. i am finding builders and materials providers with in depth knowledge of what MCS means to every day life and to building a safe home are few and far between.  even green builders say everything has to gas out and it takes an average of 5 years.  I would not be able to live to enjoy  my new house in that case..    No one seems to realize that if my house isn't safe, it's a death sentence to me.  I often feel terrified over living through this and ending up with a healthy home I can thrive in. My house was very small so my insurance co. has allowed me 4...
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  • adminv15
    adminv15 says #
    Hi my husband is in air conditioning. We both have mold problems because of his job. Now we think we have mcs to go along with i
  • adminv15
    adminv15 says #
    LEED was created by a non-profit not-government organization, the US Green Building Council. Indoor air quality is a major consid
  • adminv15
    adminv15 says #
    sungardenhouses.com has the best MCS, mold free house you can find, minus water-driven radiant floor heat and real stucco exterior
12
May
7
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Chronic Fatigue Syndrome, Environmental Illness, and Low White Blood Cell Count

White Blood Cells
 I feel I must apologise for my recent lack of blogging activity but I'm sure when I explain why you'll understand - plus the reason has given me the inspiration for this post! As regulars will be aware I have suffered from Chronic Fatigue Syndrome (ME/CFS) for a long time - since I was 11, so 20 years now. Like many ME/CFS sufferers I am also burdened by adrenal fatigue, low thyroid function, hypoglycaemia, Candida and Small Intestinal Bacterial Overgrowth (SIBO) amongst other things. I also suffered from severe Multiple Chemical Sensitivity for a number of years in my early 20s but thankfully was able overcome it (touch wood)! Like most suffering from environmental illnesses (or more appropriately here 'invisible illnesses') I have been constantly frustrated by the absence of any abnormal findings on conventional medical tests over the years. After all, if the standard lab tests are normal there can't possibly be anything wrong...
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  • adminv15
    adminv15 says #
    Hi stumbled across this site when trying to get answers for CFS. In September I had cystitus and required three doses of antibiot
  • adminv15
    adminv15 says #
    Hi there.. stumbled on your blog because recently I had a lab test come back with a really low neutrophil count and the doctor is
  • adminv15
    adminv15 says #
    Hey maff, I have been suffering with bacterial overgrowth issues for the last five years. The Antibiotics and the anti acid treatm
10
May
2
Posted by Posted on in EirBlog
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Toxic Mold Recovery

Our family of 11 lost our home, our possessions, and our health to toxic mold in October 2008. We have been on quest for recovery ever since. Toxic mold is a serious health issue in our country and often misdiagnosed by the medical profession. Little is known about the health implications of fungus.  Our quest has led us to a primarily raw foods diet. We have re-located to the desert. I have a passion to help those who have connected their illness with their environment. My personal blog contains information about multiple chemical sensitivity, symptoms of toxic mold exposure, as well as  treatment options. In addition I provide links to trusted mold websites, as well as updates to our family's story. The blog is entitled "Our Mold Journey" and can be found here.

 

Toxic Mold RecoveryDynamic Neural Retraining Program (DNRS)

 

...
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  • adminv15
    adminv15 says #
    Mandy, I am so sorry to hear all of this. Life will get better for you. Would you mind emailing me directly? [email protected]
  • adminv15
    adminv15 says #
    Hello. I've been exposed to Stachybotrys as well as high levels of Chaetomium . I've had the my too in panel performed and showed
  • adminv15
    adminv15 says #
    You are absolutely right Toxic mold is so much harmful for health.There are some chemical substances.You also provide treatment po
05
May
2
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May 2010 Multiple Chemical Sensitivity Awareness Month

by  Carolyn Cooper, MPH, RN Multiple Chemical Sensitivity awareness is one of the health observances for the month of May.  MCS is also variously known as Environmental Illness, Idiopathic Environmental Intolerance, and 20th Century Disease.  Over the course of the last 8 years I have become acquainted with a number of individuals who are afflicted with this often misunderstood condition.  MCS causes many of those who are severely affected to isolate themselves in order to take refuge from the synthetic fragrances and fumes that are ubiquitous in industrialized nations.  My interest in MCS resulted from experience caring for one of my hospital patients who is severely afflicted.  (Read about my patient's experience with MCS in my blog post from May of 2009).  Recognizing the lack of scholarly published literature to inform health care providers about the specific needs of the chemically sensitive in the health care setting, I eventually wrote a...
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  • adminv15
    adminv15 says #
    Every person has his or her opinion. For example, people care much more about their heath. so They would like to buy fitness shoes
  • Maff
    Maff says #
    Linda, The following is from SandyJo Johansen, a member of our Facebook page: "I found briefly visiting the hospital out of visi
  • Maff
    Maff says #
    Hi Linda, Sorry to hear about your daughter, having suffered from Chronic Fatigue Syndrome from age 11 and Multiple Chemical Sens
30
Apr
1
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Great site!

Wow. Great articles and information! I just found this site today while googling for information on Adrenal Stress Index testing. I have been greatly encouraged by the number of user posts on this site about this test and the path to "energy recovery" - the first step is always understanding the root cause. I look forward to reading more entries ...

 

Great site!Dynamic Neural Retraining Program (DNRS)

 

...
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  • Maff
    Maff says #
    Hi Renee, Welcome to the site and thanks for your comments. It's great to hear you have found some of the information helpful and
14
Apr
3
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First Post - Question Concerning Blood Pressure?

Hello...this is my first post.  I found this site a few months back.  Having a really bad day and decided I needed to come back here and look for answers. I'm currently experiencing once again high blood pressure and wondering it is a typical symptom of MCS? A little backgound history: I had a extreme exposure a few weeks before Thanksgiving ... Cashmere Mist Cologne at church.  EMS had to be called and taken to ER.  My blood pressure was 196/123...another reason the EMS wanted me to go to the ER even though I told them I just needed a few hours and I would be better. I also have been diagnosed with Fibromyalgia and Myasthenia Gravis in 1993.  MG causes extreme muscle weakness and I had a severe case of MG.  Through nutriution I had both of these well managed until 2004 when an exposure to lacquer varnish (at...
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  • Jake
    Jake says #
    Hi scrapyladyandmore, I can truly relate to your sufferings - I have MCS, CFIDS, FMS, Hashimoto's Disease. I collapsed one day wi
  • scrapladyandmore
    scrapladyandmore says #
    Thanks so much for your response...and yes I have meant to come back to note that I was treated for with pyridostigmine (Mestinon)
  • Maff
    Maff says #
    Hi Lajuana, Sorry to hear that you are suffering so much. I and many others can empathise with your experiences of being made sic
07
Apr
1
Posted by Posted on in EirBlog
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Thank you

Thanks guys/girls for all your lovely messages of hope, encouragement and suggestions! I have some what come a long way in diagnosis since I worte the last entry. It appears I have ME/Chronic Fatigue as no blood test show anything conclusive (which is always the case). I am interested in this condition as currently I am finding it totally disabilitating and spending days in bed when I want to be doing things! Are there ways I can help myself?

 

Thank youDynamic Neural Retraining Program (DNRS)

 

...
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  • Maff
    Maff says #
    Hi Jess, I would thoroughly recommend you do exactly the opposite to what I did when I was diagnosed with chronic fatigue syndrom
28
Mar
3
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Ongoing Struggle

I would be interested to hear from anyone who has experienced or is experiencing similar health issues like myself and suggestions/advice would be most welcome! I have type one diabetes controlled by insulin pump therapy. I was diagnosed with this when I was 15 despite no-one in my family having had any history of type 1 or type 2 diabetes. Throughout my late teens and twenties I have experienced a range of illnesses such as constant urinary tract infections, IBS and two years ago Adrenal Insufficiency. Consultants/Doctors often blamed my illness on the lack of apparent control of my diabetes despite my protests that something else was wrong. When my adrenal glands were not producing the right amount of cortisol I started hydrocortisone steroids which appeared to make no difference to the fatigue I was experiencing. I began to get the side effects of steroids - moon face and fluid retention....
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  • adminv15
    adminv15 says #
    Hi Jess, You might be interested in this documentary that just came out,it's called "Simply Raw" it's about how 6 people with dia
  • Jesslm
    Jesslm says #
    Hi Matt, Please don't apologise as I more than aware how much time you must spend on achieving your goals and how draining it can
  • Maff
    Maff says #
    Hi Jess, Thanks for posting your experiences on the site. I know it can sometimes be hard for people to share (although often it
16
Mar
3
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Any suggestions for me?

My name is Victor.  I was born in smoggy Los Angeles in 1963 and lived there until the age of 15, when my family moved to Irvine, CA. My mother was a dentist.  I have been told that she kept me in a sterile environment as a baby.  My mother suffered from hypothyroidism after giving birth to me at the age of 42. She was born and grew up in the country of Latvia, which is low in iodine My father, also from Latvia, smoked up until the time I was about 10 years old. He had some psoriasis on the nails of his feet.  His sisters (my aunts) both suffer from psoriasis. Both of my parents had some slight allergies. My father suffered from sinus pressure. I did not have major health problems as a child. I do remember catching a cold about every six weeks. However, as puberty came upon me, some...
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  • lastofherline
    lastofherline says #
    Hi Victor, Thank you for sharing your story. I’m sorry for your suffering. Most of us understand that plight. My first questio
  • Airy
    Airy says #
    Hi Victor, I wanted to add that you should try to find a Naturopathic Doctor also called and ND. An ND can run specific tests an
  • Maff
    Maff says #
    Hi Victor - welcome to the site and thanks for sharing your experiences! Here are some replies to your blog that were posted on o
05
Mar
0
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Synthetic fragrances in public spaces a danger to health

Synthetic fragrances are increasingly being used as a marketing tool to create atmosphere and brand awareness. As such these potentially toxic chemical cocktails are being released into the air in enclosed public indoor environments such as shops and shopping centres/malls, hotels, car parks, gyms and even 'health spas'. These fragrances are often marketed as being natural and healthful which is often more than just a slight bending of the truth. Many such 'natural' scents are in fact wholly synthetic pterochemical concoctions which may act as neurotoxins and are certainly an infringement on the freedoms of people who suffer from multiple chemical sensivitity (MCS). The FreshAirFiend blog has been investigating this issue lately. Here are two interesting posts on the subject: http://freshairfiend.wordpress.com/2010/02/19/real-synthetics/ http://freshairfiend.wordpress.com/2010/02/26/more-on-real-synthetics/   These posts make a particularly good point about synthetic fragrances being used in gyms in that when working our respiratory rate and volume of air inhaled increases many...
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  • adminv15
    adminv15 says #
    Thanks for writing about stores' use of chemicals. This is a big concern and more research needs to be done so we can be informed
05
Mar
2
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Bile, Bowels, Bovered?

My health journey has taken some interesting twists and turns of late, the new area of interest being the liver. For the majority of my poor health I have had a gnawing ache under my rib cage on the right side. Twice my liver enzymes registered as normal and I dismissed it as a consequence of generally being fatigued and secondary to other health concerns. I'm now starting to give the liver a little more thought, interested by the traditional chinese medicine view of 'liver qi ('chi')' and it's impact on general health. After getting nowhere using adrenal supplementation I decided to trace back my steps starting with digestion. Perhaps I'm not absorbing nutrients effectively? After all most nutrients will pass through the body if the liver is weak - were my thoughts. Trying to boost the adrenals when your digestion is so poor must be akin to skating uphill..on...
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  • Maff
    Maff says #
    Sparky, Thanks for bringing up the subject of coprophagia as discussed by Dr. Myhill. It is certainly a concept that is not for t
  • sparky
    sparky says #
    Hi Konner been following your progress,as my mum has similar but not as sverre ibs as yourself. All I know about the TCM isthat
03
Mar
0
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Travelling through the World with EI

My EI has not acted up for awhile due to my diligent efforts to adhere to my routine.......except I had a reaction to Trader Joe's Rio Pink Grapefruit Juice because it contained filtrated water. My system is so sensitive that I have to drink ONLY natural spring water or I get bloated easily. I have to brush my teeth and rinse with only natural spring water, as well. Crazy. People like me with an EXTREME EI face fears of an outbreak when  travelling to another country. There is the notion that there will be no access to our usual products that are usually reliable like my Cetaphil. Also, now with the inability to carry liquids in our carry-on and the extreme baggage fees for excess weight ( I was charged 80 U.S. Dollars in India for carrying too many Cetaphil Gentle Skin Cleansers.....like they sell that in a small Indian village. ) , it is a challenge.   I remember the panic...
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03
Mar
0
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Issues with the Household Flea

Anybody with a pet will have experienced a problem with fleas and one point. There are over 2,000 recorded species of fleas in the world with around 100 in Europe and 60 or so species in the UK. They are wingless insects, and their bodies are hard and flattened from side to side, helping them move about in the fur of a variety of  animals including our pets dogs and even ourselves. Recently my dog, Mack (a crossbreed), experienced an attack of fleas.  He reacted badly as he had developed flea allergy dermatitis. He suffered with severe itching and balding patches. But why can these tiny creatures have such a great impact? I read that fleas have a unique structure to their mouths which allow them to spread various pathogens; "The dual function of a flea's mouth allow them to both squirt saliva and blood into the bite, whilst sucking...
Tagged in: fleas home pesticides pets
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28
Feb
3
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WHAT I DID TO CURE MYSELF....SO FAR...

Hello, fellow sufferers of Environmental Illness or Multiple Chemical Sensitivity ! I HAVE AN EXTREME VERSION OF EI. I wanted to share my story. When I was 18, I was a heavy crystal meth user for a year. A year later, when I began detoxing, I noticed the symptoms that would be classified as EI. It first started off with an immediate allergic reactions to ANY soap, detergent, shampoos, etc. Anything that was applied to my skin led to my heart racing fast, difficulty breathing, nausea, a " cloudy " feeling, an intense irritability. etc. I seeked over 12 doctors to figure out what this condition was. Lazy HMO doctors would dismiss it as psychological and refer me to a therapist. The therapist realized that my severe depression stemmed from this condition that cannot be classified by traditional medical terms. ( I could have told myself that. The therapy sessions...
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  • hennhouse5
    hennhouse5 says #
    Yes, we have to make choices. I surely can't go everywhere but here are some things I do to keep up with my family (husband,10,13
  • Yong
    Yong says #
    Hey, thanks for all your positive feedback. Maff, humor is laughing at tragedy and that's all you can do when your chips are down.
  • adminv15
    adminv15 says #
    When I'm suffering from a reaction (takes months to over come), I use tree soap nuts for my hand soap, shampoo and laundry by it's
27
Feb
4
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Soul Searching

Some personal thoughts I felt compelled to share. Highlights the complexity of emotions and feelings when one has multiple body wide symptoms. Broadly speaking physically and mentally it kind of feels like the culmination of almost a lifetime of not being 'free', instead being overly sensitive and stimulated by my surroundings that has culminated in a body that simply can't keep up, ahearing to ideologies and unhealthy traits outside of myself that have caused a disharmony that I'm battling to balance. The reliance on sugar and a manifestation of these feelings have left me where I am today, constantly looking for solutions. I've always looked to others to tell me what to do, and feel frustrated that I can't conjure up my own feelings of love, courage, commitment, creativity and joy. I'm stagnent in my ability to experience true happiness. One quick signal from the body, whether it's a sleepless...
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  • sparky
    sparky says #
    A body that cant keep up, thank you Konner youve put it very well. thats how i feel. I also feel like my mind cant as well, and on
  • Maff
    Maff says #
    Thanks Matt, It's clear to me you have all the tools you need to make big strides forward yourself so don't stop believing! And
  • konnor
    konnor says #
    Good stuff, What you've acheived is very impressive. Even a healthy bodied person would stuggle to generate an income from scratc
25
Feb
1
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Intro - I just joined

Quick synopsis of my situation... I have had what I found to be MCS since a head injury in Sept '05.  I donated blood, passed out and hit my head, waking up on the floor.  A week to the day after, I started to experience symptoms and through much trial, error, and turmoil, my husband and I partially converted our house away from natural gas use, I had to quit my job after 7 months of enduring feeling terrible there post injury.  I have found some relief to my digestive issues by avoiding most foods I have tested sensitive to, taking a probiotic every other day, and drinking lots of water.  We are currently about to undertake IVF with a reproductive endocrinologist, we had just started trying to concieve for about 2 months when I hit my head.  I am hoping for success as I am 35 and more than...
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  • adminv15
    adminv15 says #
    I was wondering if anyone has noticed severe pain from strawberry soda or strawberry margarita and, could this be a product contai
  • Maff
    Maff says #
    Hi Chris, Welcome to the site and thanks for sharing with us It sounds like you are doing many of the right things regarding r
17
Feb
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The harsh reality

Trying not to let me anger and frustration overflow too much, however I was given a stark reminder into the orthodox view of sub clinical chronic illnesses by my GP. As I have been experiencing more digestive related symptoms of late, including abdominal/stomach ache, pop bellied feeling, occasional nausea, flatulence, gas, bloating, loose stools, stomach burning and constipation, I decided to approach my GP for a general rendezvous, and perhaps the option of doing a H Pylori breath test.  Almost immediately I was ‘diagnosed’ as having IBS, then told my physical symptoms were a manifestation of my mental state, then told to take up yoga, rounded off nicely with the comment ‘M.E is a disease of despair’. So not only was I denied a simple test, but I was hit hard with some ignorant orthodox views. I left mildly flustered to say the least.  I’m trying to look at this...
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12
Feb
0
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Allergies make Valentine's Day a Tricky Affair

Allergies make Valentine's Day a Tricky Affair
 For those who suffer from allergies and intolerances, or have a partner that does, Valentine's Day is often not a simple affair. Places to eat, romantic home-cooked meals,  and traditional gifts all have their problems. Food allergies are a particular problem and can cause  symptoms including nasal congestion or a scratchy throat after eating a food. They can also cause serious problems such as throat closures, tightness, swelling of the face, breathing trouble and anaphylaxis (a life-threatening blockage of the airways). I certainly don't want to bring down the mood on what should be a celebration of love however...hopefully the following information will mean that you and your partner can enjoy Valentine's Day in each other's company...despite those troublemaking allergies!   A Romantic Meal Whether dining out at your favourite restaurant or enjoying a candle lit dinner at home, a romatnic meal for two is often a big part of the way couples choose to...
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27
Jan
5
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Overdue update - and referal

Its been a while since my last entry. I had nothing to report except various chemical exposures before christmas which wiped out 9 days of my life and another four pounds off my already pathetic 7st 10lb frame.  I think I qualify as size zero Uk size 6. I eat 3 meals a day when I am not ill (on those days I dont not even get out of bed) have been known to tuck into a whole bag of kettle chips! . I am just wiped out by chemicals in everything I cant afford organic everything so am at risk at every meal from potential toxic injury. I am free of dairy and gluten to free my body of further toxic overload and cant tolerate any food additives or preservatives. Well my Christmas money has been invested in supplements which I started taking  3 weeks ago. I am supposed...
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  • Sarahwineglass
    Sarahwineglass says #
    Good luck this year it must be really hard, congratulations for getting this far, the ups and downs are difficult to contend with.
  • Maff
    Maff says #
    You will get there Sarah. Great that you are so positive! I have been free from reactions for over 5 years now The studying is
  • Sarahwineglass
    Sarahwineglass says #
    Thanks Maff, Ever hopeful of a positive outcome! Hows the studying going?
24
Jan
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Book Review: The Relaxation Response

I've always viewed meditation as something I would like to do, but thus far have struggled to get motivated to do it. It's odd, and difficult to rationalise, but for some reason it doesn't come easy wanting to learn to relax. Perhaps this is a hangup of western culture in general, and the need to always be 'switched on'. Delving into the world of meditation can be daunting. There's mindfullness, transcendental, vibrational, zen etc and within that further deviations in technique and style. Involvement can range from a quick 4 point 5 minute breathing exercise to lifelong practise and teachings of all aspects of the meditation and culture. Naturally I didn't want to delve too deep into anything, particularly as my foggy brain would struggle with anything moderately weighty. After browsing amazon for all of 15 minutes, I settled on 'The Relaxation Response'. The book is slim, akin to myself,...
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22
Jan
0
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The work of The European Society for ME

European Society for ME - Research & Knowledge
 I received an email update this week on the work of the European Society for ME (ESME) that I thought you may be interested in. ESME is a Think Tank of top scientists in fields relevant to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) where the latest research and knowledge on the illness can be discussed and efforts made to propogate this to the medical profession to improve care for patients. ESME was founded just last year and had its launch meeting on June 13th, in Stavanger, Norway. The launch was well covered by the mainstream media and the following are summaries of this coverage with links to full articles and videos.   ESME Press Summary 2009 SKY NEWS - UK In connection with ESME's Think Tank meeting in Norway, Sky News aired a story on the 13th of June with the heading, "Could a Cure for ME be Near?" In the piece,...
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19
Jan
2
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Coming Home: My Adrenal Rejuvination Plan

With all the prolonged profound stress of the last decade my Adrenal Glands officially raised the white flag--some time ago. More recently, after the fire and through the sprains and facial fractures, they have sent me a series of increasingly louder signals that have brought me to my knees. From my knees, honoring the symptoms, ready to listen now... Thank you. I am finally ready to let my adrenals (and the rest of my body) guide me onto a path of taking better care of my whole being--or at least this little piece of the physical universe that I that I happen to wake up inside of every morning. Below is the start my "doctor heal thyself adrenal health plan". I offer it as a starting place for anyone considering their own need for deep rejuvenation from stress and adrenal fatigue. FOR THE MIND Holding the self in high esteem....
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  • Maff
    Maff says #
    I couldn't agree more - an excellent list of tips for the mind that everyone could benefit by living (or at least striving to) phy
  • konnor
    konnor says #
    Wowzers great list there. I wish you all the best on your journey. I myself am also dealing with AF and would be keen on keeping
08
Jan
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Neither herbal or pharmaceutical antidepressants help in irritable bowel syndrome

A study conducted at the Mayo Clinic and published this week in the January issue of The American Journal of Gastroenterology has found that the popular antidepressant herbal supplement St. John's wort is unhelpful for those suffering from irritable bowel syndrome (IBS). In a press release the lead researcher on the study, Yuri Saito, M.D., M.P.H., said that "Several of the chemical neurotransmitters that are in the brain are also in the colon. Therefore, it's been thought that antidepressants may affect sensation in the colon in a similar way to how they affect sensation in the brain. Our goal was to evaluate the usefulness of St John's wort in treating IBS." In discussing the outcome of the study Saito said "Because people tend to struggle with IBS for several years, patients are really looking for inexpensive, over-the-counter treatments such as St. John's wort. Unfortunately, our study showed that St. John's...
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08
Jan
1
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Hi!

hi so i'm new here at EiR though i have been to this website doing research ;) ok so about me: i'm 22 years old (just turned  decembre 26th ;P) and i love Art! my profile picture is my own work and my gallery is at www.laesdaw.deviantart.com (+1 for self promotion hahaha). i live with my twin sister and our two cats Mokona(Moko for short) and Kiki :)in an apartment in Ontario Canada in a very polluted city. I have been sensitive to perfumes for most of my life.  i first noticed when i was in highschool and the axe deodorant came out and i got such horrible headaches!. i apparently have had headaches my whole life according to my mom. recently(in the last year) i've been having most all the other symptoms of MCS. i haven't been diagnosed with it but i'm still waiting to get the questionnaire to...
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  • Maff
    Maff says #
    Hi Rachelle, Welcome to EIR and thanks for taking the time to share your experiences in the blog I think most of us who have s
06
Jan
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Stomach ulcer and Christmas hangover.

Going through a particularly tough time at the moment which could be due to a number of things. I unfortunately ended up binging on Christmas day, feasting on fruits, starches, stuffing, turkey glazed in who knows what, a bit of chocolate and lots of cashews. I was also constipated on the day itself, which wasn’t very pleasant and have had trouble with regular BM’s for a while now. I’m once again struggling with sleep, often only getting a few hours when I’m most backed up. This tends to ramp up the brain fog and anxiety. I suspect this could all be a prolonged hangover from indulging in too many treats at Christmas. Not much else has changed in my routine. I’ve also picked up what I believe to be a stomach ulcer, as it aches most when I don’t have food in the stomach. To address this I’ve decided to...
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06
Jan
0
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Aircraft Cabin Air Quality Survey

European Aviation Safety Agency (EASA)
Today I received an email from the Aerotoxic Association which campaigns for recognition of the health damaging effects of toxic cabin air on passenger aircraft. The email was a reminder that the deadline for the European Aviation Safety Agency (EASA) survey. If you have been affected by toxic fumes in aircraft cabin air please complete this important survey. The text of the Aerotoxic Association email is as below: There are only two days left until the deadline for the European Aviation Safety Agency (EASA) survey, and if you haven't completed the questionnaire, we would like to urge you to fill it in online now and email any supporting evidence. We appreciate some of the questions on the form may not fit in with your experience of this subject, and we appreciate you may have had several reminders from other sources, but it is vital EASA have as much data as...
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  • adminv15
    adminv15 says #
    So far all the aviation regulating authorities have been doing what they can to deny a link between contaminated cabin air and chr
31
Dec
1
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Films on health and nutrition

  I've stumbled across a few gems that I'd thought I would share. Supersize me Probably one of the more well known films about the fast food industry and it's impact on health. The premise I think is somewhat flawed, as not many people get close to eating fast food for every single meal. The results are bound to be bad. However as poor nutrition often degrades health over a long period of time, watching this accelerated experiment unfold gives us a very useful insight into what can happen with a high refined carb and fat diet. The highlights of the film for me are not the focus of the main character, Kevin Spurlock, but in broader areas of food such as school meals and the profiteering of the grocery industry. Overall: 7/10 http://www.imdb.com/title/tt0390521/   All Jacked Up This was an independent film I stumbled across quite recently that focuses...
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  • Maff
    Maff says #
    Hi Matt, Great post! You actually beat me too it as I was sent a copy of Food Matters on DVD before Christmas but haven't had cha
30
Dec
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New year, new focus

As another year draws to a close I’m strangely looking forward to the year ahead.   Last year for me was mainly spent acquiring knowledge and bumbling a little bit as I got to grips with my health problems. I laid allot of foundations, but at times had a hard time executing them, whether it’s a dietary and supplement plan, regular meditation or sticking to Spanish revision. That said I’ve learned allot about myself, about the deception of food and pharmaceutical companies and good all round green living. I feel empowered to use natural, raw, organic foods and products that are closer to what nature intended and of more benefit to the suppliers. Whilst never being a ‘crusader’, my own experience has left me eventually wanting to help others when in a fit and able state to do so. The success stories of people within these communities acts as inspiration...
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  • Abi75
    Abi75 says #
    Good for you, Matt. I've been thinking along very similar lines: no more discecting everything to death, stop researching this con
20
Dec
0
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Intolerant, allergic, sensitive or addicted?

There are quite a few terms to describe how one reacts to food. It's such a common symptom of environmental illness yet the causes and manifestation of symptoms vary greatly from person to person. I've had many fun experiences with food over the years I have been ill. Sugar and refined carb addiction was the first to strike and an upbringing of processed flavours from sauces, marinades and dressings. I rarely was able to eat any sort of food, whether it was salad, vegetables, or meat without ketchup, salad cream, brown sauce or similar. These two dietary faux pa's I believe blunted my natural repsonse to flavour from food. When I became ill, dairy was very high in my diet. As a source of protein and fat it served a purpose to smooth out my blood sugar response in the early stages of hypoglycemia, and is still widely promoted as...
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19
Dec
0
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The Loneliness of the long distance Hypothyroid Butterfly

Well it all began, what seems like an eternity ago, we had just come back from the most wonderful holiday, I was oh so much in love. I had to pinch myself I was so happy! He loves running so I thought I'd join him, but I couldn't keep up, it was like my fuel tank was empty, I knew something was wrong! All my life I've been what can only be described as hyper, I never could sit down, was forever hungry and never put on an ounce. It hit me like a ton of bricks, if I'd been a horse they would have shot me, put me out of my misery! Can you imagine the worst flu you have ever had, well times this by two and you might still not feel as bad as I was feeling! I put on three stone and I was starving myself,...
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18
Dec
5
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Zhu Zhu Pets Go Go Hamsters and Toy Safety At Christmas

Mr Squiggles Go Go Hamster
If there are two words that should surely not lay in close proximity to each other, "toxic" and "toys" are they. Yet headlines including the words "toxic toys" have been everywhere for the past few weeks triggered by an independent investigation in the US that claimed to have found high levels of the toxic metal antimony in not just any toy, but the Mr Squiggles version of the Zhu Zhu Pets Go Go Hamster toy, set to become the biggest selling Christmas toy ever with some stores having already sold out weeks ago in the US, UK and other countries. The consumer watch group GoodGuide tested the Mr Squiggles version of the cute little Go Go Hamster toy and found antimony at levels of 93ppm (parts per million) in its fur and 103ppm in its nose. In the US the Federal legal limit for antimony is 60ppm. Co-founder of GoodGuide and associate professor of environmental science at...
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  • DeniseB
    DeniseB says #
    Yes, I learnt so much last year. Like sometimes you have to let go of the one you love, just to see if they love you enough to com
  • Maff
    Maff says #
    Great to hear things are going well and you're so positive about the year ahead Denise! I hope you'll continue to visit us here an
  • DeniseB
    DeniseB says #
    Hi Matt, the weather may be cold but I'm feel warm inside, the sun is mostly shinning in my world. I am so much better this year t
08
Dec
2
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Choosing a practitioner

With my ASI test results imminant, I've narrowed down who I'm likely to approach as a practitioner to 2 options. Chronicfatigue.org is a non profit CFS center based purely on the approach that treating the adrenals will help with CFS. They have a couple of books I would love to get hold of as and the shipping looks reasonable. Had a brief email exchange with the N.D there, and I was impressed with there knowledge of interpreting and treating the different stages to the ASI. He also seemed aware of the potential paradoxical and stimulatory problems that can crop up as a result of ones individual response to treatment, making me feel like I wouldn't simply get a shotgun of nutrients that will only go towards making me feel worse. The cost is likely to be low as well, charging per minute. The UK practitioner Dr Peatman is my second...
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  • konnor
    konnor says #
    Hi Abi, It was a bit of a random find during my many hours researching. Appealed to me being non profit and focused almost enti
  • Abi75
    Abi75 says #
    Hi Matt - just looked at the chronicfatigue.org website. Apart from the eye-soar of a background pattern, it sounds interesting. H
02
Dec
2
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My Cocoa emergency

Continuing the theme of a fairly rocky few weeks, last night culminated in an extremely distressing situation.  Cocoa is an interesting food. Some people sware by its antioxidant and magnesium rich properties whereas others report shot adrenals,  stimulation and a general worsening of energy levels and symptoms. Broadly speaking its a significant step in the right direction when compared to your average western chocolate bar, which is mainly made up sugar, fat and cheap fillers. Proper chocolate is predominantly cocoa mass and cocoa butter, and some sugar depending on the percentage. It's simple logic regarding healthier foods - The fewer, purer ingredients it contains, the better it generally is for your body. So I decided to experiment with a reasonable amount of cocoa, making sure to balance the intake with other protein and veg. The good news initially was it didn't taste addictive, or seem to swing my blood sugar........
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  • konnor
    konnor says #
    I have developed a taste for redbush lately too! ...........
  • Maff
    Maff says #
    Wow that was a pretty severe reaction you had there konnor, glad it didn't last too long. Sounds like you're hypersensitive to the
  • adminv15
    adminv15 says #
    No snowman soup for you this year then! Just bought a great apple and cinnamon herbal tea from Holland and Barrett, smells like Ch
27
Nov
4
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Chronic Illness and the Holidays: Finding the Positives

Chronic Illness and the Holidays: Finding the Positives
 For those of us suffering from environmental illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple chemical sensitivity (MCS) and gut problems including irritable bowel syndrome (IBS), leaky gut syndrome (LGS) and Candida it can be hard to stay positive and enjoy life at any time of year but the holidays can be particularly difficult. Just when the generally healthy majority are taking time out, indulging and letting their hair down us 'canaries' can often find life even more of a struggle than normal. At Christmas people are told to "eat, drink and be merry" - and most people happily comply but this poses a problem for us unfortunates. First of all there is the eating. Most of us will have some kind of dietary restriction whether our own bodies have told us to avoid certain foods, we've discovered the "baddies" through our own research, or we've been put on a...
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  • adminv15
    adminv15 says #
    Thank you all so much for sharing this. Just when I was starting to feel the dread of the holidays, you've given me back the jolt
  • konnor
    konnor says #
    Fantastic news Nicole. Lionel would be proud! Getting a regular nights sleep is such a core component to good health that I'm sur
  • adminv15
    adminv15 says #
    Slept through the whole night last night for the first time in 6 months..woo hoo! It might seem like a really small thing but to m
27
Nov
0
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fibro and cold weather

hi, i am new here. i have fibro and cfs since 2000. i live in a cold climate(very cold). does anyone have the experience of moving to a warm climate and it helps the fibro??...
Tagged in: CFS FMS
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  • adminv15
    adminv15 says #
    Hi cinny I have had CFS for more than 10 years and moved so Arizona a few years ago. I have to say I do feel quite a bit better l
24
Nov
3
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My old diet. Read at risk!

Thought I'd post this, to provide some shock value.   Pretty much my complete diet from when I was a child to 2 years ago (roughly age 5-22) consisted of the foods below. I've gone in and colour coded items, red for very bad, orange for bad and green for good.   Instant noodles, coco pops, corn flakes, rice crispies, sugar puffs, cheerios, golden grahams, weetabix, shreddies, wheetos, special K, milk, cheese, eggs, dolmio, white pasta, pastries, chicken pies, chicken kievs, mushy peas, crisps, tortillas, snack a jacks, golden syrup, chocolate, powerade, lucozade, red bull, Ribena, Vimto, Blackcurrant, instant coffee, tea, frozen vegetables, smoothies, baked potatoes, tinned beans, tinned chilli con carnie, pre packed sandwiches, mayonnaise, ketchup, salad cream, ham, cooked chicken breast (prepacked), turkey breast (prepacked), salad, crusty bread, porked pies, scotch eggs, salami, Cornish pasties, corned beef, takeaways - McDonalds, Burger King, kebabs, Indian, Chinese, subway, pizza, ready...
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  • Maff
    Maff says #
    Hi Nicole, A long course of anti-malarials without concurrent use of probiotics to maintain your gut flora could certainly have t
  • adminv15
    adminv15 says #
    I suppose that's a godsend I do have as far as self-diagnosis is concerned. I can trace the start of my illness directly to the po
  • konnor
    konnor says #
    Cheers fella. Anyone would think your studying in this area..... Your probably right about genetic susceptibility and medication
21
Nov
1
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Oh dear...

Unfortunately continuing the negative trend of blog entries. So about half an hour ago, I ate the equiverlant of a whopping 200 grams of sugar. Short of putting a bullet in my brain, this is quite possibly the worst thing for someone with my health troubles to do. It was fuelled by an insatiable craving, and what were christmas presents for friends soon became presents for the evils populating my gut. Naturally I'm fuming about it. I've not fallen off the wagon this much for over a year. I stared longingly at the packet for a good few seconds and reminded myself 'you have a choice' but still couldn't control the urge. This is the second time in as many months that I've succumed to eating gifts I'd plan to give to others. The first occasion wasn't quite so severe, gorging 2 agave nector based cocao bars from a health...
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  • Maff
    Maff says #
    konnor - I can certainly relate to the cravings and would be lying if I said I hadn't done exactly the same as what you describe o
  • adminv15
    adminv15 says #
    I think the isolation is the hardest part for me. My colleagues and friends have been semi-understanding as far as this ridiculous
20
Nov
0
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Facebook for Environmental Illness and Unexplained Chronic Illness Sufferers

Facebook and Environmental Illness Support
 Once upon a time Facebook was the domain of students who used the social networking site to keep track of friends and share their academic and non-academic exploits. However, since Facebook opened its cyber-doors to the the online community at large it has grown into much more and believe it or not it now has much to offer people who are struggling with what we call 'environmental illnesses' on this site, but may also be termed 'unexplained chronic illnesses' or 'invisible illnesses'. We're talking chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple chemical sensitivity (MCS), irritable bowel syndrome (IBS) and others. On Facebook you will now find a multitude of interactive pages and groups devoted to these illnesses that both provide information and act as support and advocacy groups. Since many suffering from these illnesses are housebound these are ideal as an alternative to support groups in the real world where you might...
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  • Maff
    Maff says #
    Thanks for your suggestions guys. I have joined the adrenal fatigue group which seems to be a very active and useful group. I also
  • adminv15
    adminv15 says #
    I have MCS but before I was diagnosed I started this group Creation of a Scent Free Envirnoment http://www.facebook.com/group.php?
  • konnor
    konnor says #
    There's a relatively small but growing group for adrenal fatigue here... http://www.facebook.com/#/group.php?gid=6057629851&ref=m
13
Nov
0
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CDSA Interpretation - Microbiology

CDSA Report - Microbiology
Continuing my series on interpreting the sometimes confusing results of the Comprehensive Digestive Stool Analysis (CDSA) today we're going to look at the Microbiology section.   Beneficial Bacteria By now almost everyone has heard of so called "beneficial" or "friendly" bacteria, thanks mainly to probiotic yoghurt advertising that seems to be everywhere these days. Beneficial bacteria are in basic terms seen as the good guys within a huge community of bugs that inhabit our gastrointestinal (GI) tract. A lot of research has gone into understanding their role over the past few decades. Some of their benefits include: - Physical crowding out of less desirable microorganisms - Production of antimicrobial substances to keep pathogens at bay - Breaking down bacterial toxins - Production of short-chain fatty acids (SCFAs) which keep GI tract cells healthy, provide a source of energy and help to maintain a healthy GI tract pH. - Digestion of proteins -...
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08
Nov
9
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More intolerances

It looks like I have more food allergies going on, to accompany a slowly declining state of health. I'm certain chronically high insuling levels are really causing me some problems, along with the intolerances. So, I'm stood at a crossroads with about 5 routes to choose from! - I've done all that I can to control hypogylcemia over the past year yet still feel insulin is high and blood sugar continues to drop regardless what i eat. - I've been taking all the nutrients and lifestyle tip suggestions for adrenal fatigue, and not noticed the slightest bit of improvement over the past few months. I still think this is a factor as occasionally when my blood sugar is low and I wait it out a bit, it begins to stabilise, suggesting an adrenalin response. If I had the money to, I would approach Dr Lam with my case. - Liver...
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  • adminv15
    adminv15 says #
    Now that I'm a social pariah, really don't have much else to do! LOL! Hey don't you have another blog somewhere? Under a different
  • konnor
    konnor says #
    Not a problem Nicole. I did try to convey the truth of the situation in the 'day in the life of' post rather than just a negative
  • adminv15
    adminv15 says #
    Inspiring? No, it wasn't :-)...but I think many people find it hard to put into words how this kind of thing makes us feel and how
06
Nov
2
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Low Stomach Acid Test: Home and Lab Methods

Low Stomach Acid Test
 Low stomach acid, or hypochlorhydria, occurs when the the parietal cells lining the stomach are unable to produce enough acid (HCl) for whatever reason. Low stomach acid can be a significant problem since sufficient amounts are required for a number of purposes. Firstly stomach acid is required for the digestion of proteins. High acidity breaks down the bonds between protein fibres allowing proteolytic (protein digesting) enzymes to go to work to further digest protein in the small intestine. Secondly, stomach acid is needed to liberate essential minerals from food so they are present in their unbound ionic forms which can then be absorbed. This is true for important nutrient minerals including calcium, magnesium, zinc, copper, iron and selenium. Stomach acid is also required to liberate vitamin B12 from meat, its main dietary source. Finally, acid acts to sterilise the stomach, killing bacteria, yeast and parasites that may be ingested. The symptoms of low stomach acid can mimic those of...
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  • adminv15
    adminv15 says #
    The simplest and most effective test for gastric HCl is a Kinesiological Test. Arms stretcged out in front of you with back of the
  • adminv15
    adminv15 says #
    You do not want to take neem, or any other drug, to reduce stomach acid until you have determined for certain that you are making
  • adminv15
    adminv15 says #
    Hi, thanks Sarah, i checked out www.ayurveda-yoga.co.uk and Neem was buy one get one free! Lets hope it works!
30
Oct
3
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Halloween - Allergies and Chemicals Make it a Scary Night for Kids and Parents

Halloween: Allergies and Chemicals Make it a Scary Night for Kids and Parents
 Without going into the history and traditional meaning of Halloween, these days October 31st is seen simply as a night for kids to dress up and have fun with the added bonus of treats a plenty being dished out. However, there is a darker side to halloween and it doesn't involve any real life witch craft, ghouls or ghosts - it comes in the form of allergies and more menacingly the toxic chemicals used in Halloween costumes. For families with kids that suffer from allergies, Halloween can be a 'tricky' time indeed. Without careful supervision and precautions kids can end up eating foods to which they are allergic, particularly hidden allergens such as unexpected food additives. Even the vigilant can be caught out by cross contamination as safe treats come into contact with allergenic treats in bags and containers and kids share between themselves. It's not only foods that can be allergens. Make up,...
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  • DeniseB
    DeniseB says #
    Thanks Maff, I've have a new bed coming next week, I will be sure to open the windows as you suggest. Denise
  • Maff
    Maff says #
    Hi Denise, Well I'd hate to be called an alarmist but you are probably not far wrong when it comes to many everyday products. Cer
  • DeniseB
    DeniseB says #
    Hi Maff, I've come to the conclusion that just about everything is potentially dangerous these days. I was bought a new silentnig
26
Oct
2
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A Thorough Disagreement to the Theory that Fibromyalgia is simply Psychosomatic

Wondering if there's any truth to Fibromyalgia being a case, or in part a case,  of Psychosomatics.  Everything's connected sure.  But must i read the whole book in order to find out whether it is indeed either caused, or sustained by psychosomatics? The Divided Mind: The Epidemic of Mindbody Disorders by John E. Sarno, M.D. And if it is trauma/stress that effects a weakening of the immune system initially, how could one attribute it to simply mood or the mind?  For instance, if the trauma was physical, that does mean injury happenening to the entire body.  (which does include the blood and also therefore brain.)  (For instance, some shady antibiotics do not and yet some do pass the blood brain barrier.  So who's to say that an antibiotic, for instance, couldn't poison a person directly. . . There sure have been more and more stories coming out about how some...
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  • sparky
    sparky says #
    Hi Eireann Just read your article, I think we've been reading the same books!!! I have read Dr sarnos books, and while they anno
  • Maff
    Maff says #
    Hi Eireann, Welcome to the site and thanks for such an informative and thought-provoking first post! You've provided links to som
25
Oct
0
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Fullness and sleep

 I've started to notice a shift in some of my symptoms which may be good or may be bad. The first is I'm waking up less in the night and able to sleep in longer. Waking up in less in the night must be a good thing, and naturally sleeping in longer I guess could work both ways.  I'm still yet to get tired before 12 which is the main aim and will need to think about ways to achieve this. The other symtpom which actually changed a few months ago is the food, stomach, potential blood sugar problem. To sum it up, after I eat my stomach has that emptiness feeling soon after, from 1 hour onwards. I don't feel hungry in the sense I want to eat and I don't think my blood sugar is at fault. Even the most severe hypoglycemics I doubt would drop after 1...
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23
Oct
1
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Swine Flu Vaccine Worrying Many Natural Health Experts

Swine Flu Vaccine Worrying Many Natural Health Experts
Since the first reported cases of swine flu, or influenza H1N1, were reported in Mexico in the early months of this year the subject has hardly been out of the media. Much of the coverage has been sensationalist and misleading and has led to what many natural health experts are saying is unnecessary public panic over the disease. In a Special Swine Flu Update published on the highly popular Mercola.com earlier this week Dr. Joseph Mercola brings our attention to a study published in the the British Medical Journal:   'A thorough , comparative analysis of several flu pandemics has been published in the prestigious British Medical Journal, that gives evidence that the H1N1 swine flu is of "the same subtype as seasonal H1N1 that has been circulating since 1977." The author points out the substantial confusion between the high public attention the present H1N1 scare is receiving and the very...
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  • The Vaccinator
    The Vaccinator says #
    This 'flu' was engineered in a lab so the only way that you would know if you had it would be a dna sequence of recovered virus, b
22
Oct
1
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Depression questions

I have always wondered how bad depression could get when you're a teen in high school. Could it be controlled? Or could you make it stop?This is one thing I want the answer to. How many levels are there?...
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  • Maff
    Maff says #
    Hi, There are many degrees of depression and it can be a very serious illness. Age doesn't matter and as a teenager there is no d
16
Oct
0
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Is a Cure for Chronic Fatigue Syndrome Really a Big Step Closer?

Since Thursday of last week when news of research linking the XMRV retrovirus  to chronic fatigue syndrome hit the headlines many patients (and I suspect their doctors) have been wondering what exactly this finding means. The amount of media attention this discovery by the Whittemore-Peterson Institute for Neuro-Immune Disease (WPI) generated in the press was unprecedented. After having the WPI press release delivered to my email inbox, the next day my mum handed me a copy of The Independent (one of the major "serious" national newspapers in the UK) with a front page article asking 'Has science found the cause of ME?' There was also an editorial piece coming down squarely on the side of us much maligned chronic fatigue syndrome (ME/CFS) patients and concluding that it was about time we were taken seriously. It is rare to find any ME/CFS news in the mainstream media but the story was the same across...
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  • adminv15
    adminv15 says #
    Good-day every one, my name is Mike Clinton, i want to share my experience with the general public on how i got my hiv aids cured,
  • adminv15
    adminv15 says #
    By ALISON YOUNG-The Atlanta Journal-Constitution Sunday, April 26, 2009 http://www.ajc.com/metro/content/metro/stories/2009/04/26/
  • adminv15
    adminv15 says #
    from Hillary Johnson’s blog at http://www.oslersweb.com (I love that woman’s writing and detective skills!). Ms. Joh
11
Oct
0
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Television blues

The good news this week was I managed to shake off a virus which had troubled me for almost a week. It's possible it was swine flu, however whilst I felt like garbage, I could still function relatively well. I managed to get into work but they were a few of the worst days I've ever experienced. I'd had about 3 hours sleep between 2 nights.  It's the first time I've experienced flu since becoming noticeably sick just over a year ago, and it took some determination not to reach for the ibuprofen or paracetamol. Instead I opted to increase my vitamin C intake and take colloidal silver. I was noticeably better after a couple of days however I can't be sure whether it was my bodies natural defences or the supplements. Perhaps a bit of both.   A good weekend with my friends and a lazy day in front of...
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06
Oct
1
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Mineral analysis results

I have had the results of mineral analysis. I have yet to have nutrioninst follow up this will be Friday. Initial results low Mg. K(None), Cu, Mn  and probably zinc. "probably zinc?" Not very scietific I know but Its in my shampoo so therefore accurate measurements cannot be taken. I am a slow metaboliser. I have had the dietry restriction of a slow metaboliser for 18 months or so other factors have to be involved. I will speak to my GP to see if they show any interest in these test of following them up.  The detox diet has made a huge difference to my day to day well being and generally on the up (excluding chemical exposure) but have just been knocked sideways by a huge bout of depression following mineral supplement and very small chemical exposure over the last 2-3 days. Sensitivities are back to where they were...
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  • Maff
    Maff says #
    Hi Sarah, No problem regarding the supplements I recommended. But yes, do discuss them with your nutritionist. I hate to say it
03
Oct
1
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Virus takes hold

Well it was to be expected really. There is so much going round at the moment that all it probably takes is walking into air that has been freshly coughed into. So I picked up a virus. Couldve been swine flu or something more generic, I can't tell. In anycase the past week has been horrible. I'm about 60% better after feeling my worst around tuesday/wednesday time. I've kept on my supplements, increasing the vitamin C by 2g to 8g daily, and I've felt this has helped significantly. I'm also trialling some 10ppm colloidal silver, 3 tablespoons daily for a couple of days to see what happens. Alot of people claim this can clear up viruses fast. When I'm feeling a little better and get round to it, the original plan for the silver was as a nasal rinse for my post nasal drip. I plan to mix it with...
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  • Maff
    Maff says #
    Hi Konnor, Glad you seem to be getting over your virus. I'm sure the extra vitamin C helped as it has many functions in the immun
29
Sep
3
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Booze and Bagel

So much for the steady week! After a good week and a reasonable schedule of events lined up over the weekend, things were looking good. Unfortunately being surrounded by a thousand university students in the union club led me to break my 1 year and 2 month restriction on alcohol. Not only did I falter but I faltered in style, swiftly downing 2 double vodka's and 2 double gin's on an empty stomach. Surprisingly the rest of the evening didn't go horribly. My blood sugar didn't swing nor did I feel anything hugely abnormal from the usual experience of 4 double shots in a row.  However it's now the early hours of Tuesday morning from that Saturday night out and I feel like death.   Since I was in the mood for breaking restrictions, I thought I'd also go for a McDonalds breakfast on Sunday morning. This was the real...
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  • dianemarie
    dianemarie says #
    Oh I see. Sorry about your flu! Could be die off too though, expecially if you are on antifungals. What about anxiety - I sudde
  • konnor
    konnor says #
    Well it looks like I may have flu, potentially of the swine variety. Usually my die off symptoms are mild flu like symptoms. More
  • dianemarie
    dianemarie says #
    Well I am only now at your most recent writing. Can you please tell me what type of reactions you get from die-off? Mine are alm
28
Sep
1
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Extreme Oversensitivity

I have had candida for many years and twelve years ago when a practitioner told me to stop taking probiotics and I did so I suddenly found myself totally unable to take almost any vitamins, minerals, anti-fungals, medications, etc. - any pills (including anything in liquid form).   Now the candida is causing a chronic viral infection for 1.5 years and other complications and I must try to get the candida reduced.  Can anyone tell me how they cope with or coped with severe, I am talking severe, oversensitivity?  I could not even drink alkaline water without a reaction.  The reaction I get is in my chest and then I cannot sleep.  It feels as though someone has twisted my chest with a wrench slightly or more depending on how much of a supplement I have taken.  Then I have to go off of it for several days.  I have been...
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  • Maff
    Maff says #
    Hi DianeMarie, It sounds like you're in an impossible situation. It's hard to know what to recommend really so all I can offer is
26
Sep
1
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Steady week

I've had a reasonably steady week this week which bodes well. I did have some stressfull moments at work but managed to absorb it pretty well.  Supplements are going quite steady. My liver is much improved and bowel movements are okay, alot more solid. This might have been helped by the tribulus, vitamin C, molybdenum and NAC and/or keeping the diet tight and not overdoing any antifungals. Made a mistake last weekend of twice assuming tonic water would be a good beverage. Looked up the ingredients and the contents included none other than corn syrup high fructose, sugar, sodium benzoate and citric acid.  Unbeknownst to me I ate a snack with a reasonable amount of coconut oil later that night and struggled to get any sleep, possibly due to a reaction with the sugar.  I also had an appointment with an endocrinologist which raises an interesting dilemma.  She recommended a...
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  • dianemarie
    dianemarie says #
    Wow, some progress. As the doctor told me today, it's a slow boat. But I guess that means it will still get there.
19
Sep
1
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A day in the life of an Adrenal Fatigue/Candida sufferer

Mornings usually begin with a sense of calmness as my body slowly kicks into gear. The stillness of the world is not replicated in my mind as from the moment my eyes open, all sorts of swirling thoughts beyond my control populate my brain. I wander to the toilet and take a piss, routinely confused about where the fluid comes from considering my limited water intake the night before. Negotiating the stairs is next on the agenda, followed by the preparation of my breakfast and (first) lunch. As my body likes to reject most foods, vegetables and sunflower seeds are on the menu, occasionally with an avocado. I’ll wack the veg in the steamer along with some lunch veggies, strain the seeds I soaked overnight and hop upstairs for a shower. Seeing myself in the mirror doesn’t inspire me with confidence. My eyes look worn, my tongue coated, ears itchy...
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  • adminv15
    adminv15 says #
    Finally a real life desciption of what has been my real life situation for many years right down to the light sensitivty. I've bee
  • dianemarie
    dianemarie says #
    Wow - definitely not all in the head. I have had a low grade fever for 1.5 years, since I caught a flu one spring that never full
  • adminv15
    adminv15 says #
    no, its not all in the head. well my day is a copy of yours. i am still in the process which food i can or not eat. and since i c
18
Sep
0
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Multiple Chemical Sensitivity in the Media and Entertainment Industry

Multiple Chemical Sensitivity in the Media and Entertainment Industry
 Browsing through the online news looking for stories about multiple chemical sensitivity (MCS) yesterday, I came across a review of a play which features a main character with the illness. The review features in the The Record, a local newspaper serving Troy and surrounding areas in New York state. The play is titled 'Sick' and features a 17-year- old character called Davey who suffers from MCS. Davey's family live in a New York apartment and protect him by turning their home into a chemical-free zone - something anyone who suffers from MCS knows is a necessity. Reading the review got me thinking about the exposure MCS gets in the media and how it is portrayed. It seems to me that there is a steady increase in awareness of the condition and it is beecoming more and more a part of the public consciousness. Just a few short decades ago virtually...
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17
Sep
1
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Grumble day

Well I’ve allowed myself a little grumble today. My positivity and calmness have been tested today both with uncomfortable symptoms of a constant stomach ache which I believe to be an ulcer, and liver ache worse than usual. I’m not sure whether this is the fallout from using Threelac or the result of adding a few more supplements and foods to my regime. Despite probably eating enough fiber from vegetables alone, I have added both oat bran and rice bran to my diet, adding to the cellulose powder I already take. Prior to this my diet was predominantly grain free and although my bowel movements are regular, they are a poor consistency or often pale. The odd thing is despite my liver feeling worse and generally feeling a little stuffy in the head, my 3 bowel movements today were a much better colour and consistency. Maybe it is a mini...
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  • Maff
    Maff says #
    Hey, Feel free to have a grumble whenever you feel like it. God knows us EI sufferers have a lot to grumble about I'm surprise
10
Sep
3
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Die-off and meditation

Interesting first week on the Threelac. I made the initial mistake of continuing the dose of my regular probiotic (50 bill per capsule) whilst introducing one sachet of Threelac. As a result my brain fog reached mach 10 in a couple of days which resulted in poor sleep, accompanied by general mild die off symptoms. I quickly cut back the dose to prevent anything too strenuous. The good news is my liver and bowel movements have been holding up well. Threelac and die-off in general both often result in constipation in the early stages which makes clearing out Candida equivalent to skating uphill.   Had a quick look into molybdenum. As is the case with most supplements there are positives and negative arguments. The positive side suggests that molybdenum is a mineral that can break down acetaldehyde (one of the Candida toxins) into acetic acid. As Acetaldehyde cannot be excreted...
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  • Maff
    Maff says #
    I know all too well how frustrating it is when you can't tolerate a large number of supplements or medication that should really h
  • konnor
    konnor says #
    Thanks chap, Well it was a short journey with the Threelac and I've decided to discontinue. When I'm sensitive to something my mo
  • Maff
    Maff says #
    Thanks for another update Konnor - I hope the die-off has dropped down a notch after you adjusted your probiotic regimine. Molybd
10
Sep
1
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CANDIDA SYMPTOMS (SYSTEMATIC)

Hi, my daughter is constantly being misdiagnosed........ I have been researching her symptoms and think she is suffering from some type of Candida; not just the usual Thrush which appears to be common, its quite severe affecting her mental state too.  I can now approach our G.P to discuss further. My question is "is anyone aware of whether it would affect her menstrual cycle; because hers has stopped? and I am unable to clarify this anywhere.... Any help will be great Sue

 

CANDIDA SYMPTOMS (SYSTEMATIC)Dynamic Neural Retraining Program (DNRS)

 

...
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  • Maff
    Maff says #
    Hi Sue, Intestinal overgrowth of Candida commonly affects the mental state of sufferers since the toxins this yeast produces incl
04
Sep
10
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Candida & Yeast Infection Treatment - Rotating and Combining Antifungals

Selection of anti-fungal substances for Candida rotation therapy
When it comes to what is variously known as intestinal yeast overgrowth, fungal-type dysbiosis, gut fermentation syndrome, or simply Candida, it is safe to say that prevention is much simpler than cure. Ignored by the conventional medical establishment, people affected by this condition often struggle to treat themselves to alleviate their many symptoms which can range from fatigue, muscle aches and pains, and general malaise to cognitive symptoms such as poor concentration and memory, and mood disturbances including depression, anxiety, irritability, restlessness, and mood swings. Most of these symptoms are likely the result of the chronic absorption of toxins produced by Candida (or whatever fungal organism is the problem),  primarily ethanol and acetaldehyde, and the consequences these substances have on metabolic functions. For more information see: Candida and Gut Dysbiosis  My Candida Hell - Chronic Ethanol and Acetaldehyde Poisoning   To avoid developing this awful condition in the first place...
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  • yelena
    yelena says #
    Hi, I am from Roanoke VA, looking for people in my area for support. I struggle with systemic candida and treatment is very hard o
  • adminv15
    adminv15 says #
    Hi! I believe that there are many people who are suffering from yeast infections and it is nice that there are sites and blogs lik
03
Sep
0
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My mind at rest and you don't need a prescription!

Dear Denise, Thank you for your email. Both Dr. Lowe and I appreciate your concern for the protection of desiccated thyroid. Dr. Lowe has been in touch with RLC Labs to discuss this and as of yet, RLC has not received any notice that they will be required to fill out a new application. The reason for their particular unavailable product is that the raw material is on back-order not because of the FDA. The back up product that might help you if you run out of your thyroid hormone would be to consider the HYPO SUPPORT FORMULA. Dr. Lowe was asked by RLC to research it and he conducted clinical trials to determine that it is effective in relieving hypo symptoms. The HSF does not require a prescription as it is considered a "dietary" desiccated thyroid product and protected by the 1994 dietary supplement act. You can read about...
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03
Sep
3
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Back on the Threelac

Threelac - Live Lactic Acid Bacteria Supplement
I’ve decided to re-take the plunge by adding Threelac to my supplement regime. I did try Threelac many moons ago and started to see some reasonable results, however I foolishly stopped taking it for some reason. I think I was deterred too quickly by some nasty smelling flatulence and bowel movements, later realising this is usually an indication the little critters are getting to work.   Rather than hammering my body with various antifungals, which typically do more harm than good, Threelac can be used by itself in varying dosages. After digging around it would seem the general consensus is that Threelac can create good results, even after you wade through the corporate and commercial ‘spiel’ associated with it. What I’m having less trouble finding is good research on why it can be so effective. The company has it’s own research, which is no doubt naturally biased, so I would...
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  • Maff
    Maff says #
    Ah, no problem. You wouldn't believe the amount of junk code Word inserts into the HTML! I hope you're doing well on the Threelac
  • konnor
    konnor says #
    Apologies! I did copy it from word so I'll blame Microsoft
  • Maff
    Maff says #
    Sorry, had to edit this post slightly as all the code in it (for the image and text formatting) caused the whole blog component to
01
Sep
11
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Sensitivity has increased

I just wanted to pinch and punch someone this morning. . .sometimes its  just the little things like the loneliness of this disease can get to y0u. . .or was it my vicious streak! . .anyway... Today was my first accidental chemical exposure under the new regime, as I had to go to social services as they would not come to me. However when seeing my reaction even through a mask after a few minutes ( This as much quicker and severe than usual ie tha past 2 months) . . .its was extremely fragrant body lotion as it turns out,  I was sent home and allowed to conduct the interview over the phone. . . ( with lots of apologies,-). Anyway can honestly say the symptoms were just different not any better,  my breathing difficulties and dizziness were lessened but  I had muscle spasms in my face head and...
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  • Butterfly
    Butterfly says #
    Hi Maff have checked out the site anything else you could recommend while I'm ordering the Epsom salts?
  • Maff
    Maff says #
    Glad you're enjoying the epsom salts baths Denise You are experiencing the natural tranquilising effect of magnesium as it is ab
  • DeniseB
    DeniseB says #
    I felt very relaxed after my bath so much so I had one the next night. Yes I thought it was expensive, I will be ordering from the
31
Aug
5
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Liver and Anxiety

Toxic Liver
Two immediate things are bothering me at the moment, mainly because I don't fully understand how they integrate into my overall health problems and whats going on behind the scenes.   Liver ache  This is symptom is rather annoying. It manifests as a dull ache just under rib cage on the right hand side. There are times when it aches less however I've not noticed any regularity towards that suggests a dietary/lifestyle change might help. So far Milk thistle has done didly squat. There is a likely to be an indirect link, either from adrenal fatigue or candida, or prehaps just stress. Using my completely unscientific brain, it probably follows that a build up of toxins is hard on the liver, which can occur when they body is compremised as in adrenal fatigue and/or candida.   Despite this my bowell movements are relatively good, 2 a day usually. The quality on the...
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  • adminv15
    adminv15 says #
    Thanks for the candid description of symptoms konnor. It's kind of rare on the internet where everyone can read what you write but
  • konnor
    konnor says #
    Thanks for the thoughts all. I was looking into trying some short infrared sauna sessions. On one hand the removal of toxins this
  • adminv15
    adminv15 says #
    P.S. yes the psyche reactions over adrenal stress/ etc...needs attention as your blog stated. Activate your healing mind perhaps
30
Aug
4
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Withdrawal symptoms?

Well its day 2 of gluten and dairy free and I have to admit I feel pretty awful shakey, feverish, head ache, indigestion, poor breathing, extremely swollen head painful muscles etc. But its different and  have to say worse than the usual fuzzy headedness if am kept away from chemicals. Last night I felt like an extra from train spotting going cold turkey, I had the most lucid nightmare and insomnia. . ..all this completely new to me and not very welcome I must say. Anyway am off back for a lie down as am feel extremely spaced and head feels like someone is pumping it up and doesn't know when to stop!

 

Withdrawal symptoms?Dynamic Neural Retraining Program (DNRS)

 

...
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  • Sarahwineglass
    Sarahwineglass says #
    Thanks Bz, Sorry for the delayed response, had a two week holiday at carefully prepared cottage on remote Northumberlad coast. I
  • adminv15
    adminv15 says #
    Some of this sounds promising Sarah. I've never heard anyone else mention this kind of thing but it fits closely some stuff I expe
  • Maff
    Maff says #
    Hi Sarah, Ultratrace is a trace mineral supplement which supplies minerals the body requires in trace (very small quantities). Alt
29
Aug
1
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Stimulation - The bad kind

Well, I’ve had a couple of rough ‘wired’ days which aren’t hugely enjoyable. The best way to describe the feeling is to imagine not having slept for 2 days, then using red bull or coffee to keep you awake. You don’t feel tired enough to sleep yet you are really physically and mentally shattered. The difference with me is that I often get this feeling with certain supplements, for which there is not obvious rational medical explanation for. The latest supplement to affect me in this way is L-glutamine, which is highly unfortunate as there are many benefits to taking this non essential amino acid. L-Glutamine is helpful for: - blood sugar balance - food cravings - gastrointestinal function - muscle growth and recovery And users range from people with chronic illness (moi) to professional body builders. The therapeutic dosage is between 1-20g a day with no known significant side...
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  • Maff
    Maff says #
    I know the 'wired' feeling well, as I'm sure many other readers do. It IS strange you get this stimulation from glutamine but ther
28
Aug
8
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Where is the light?

It's raining heavy out side, but what is much worse at this moment in time is the feeling of doom and gloom in my heart. The word is that the FDA is telling people who have called their consumer hotline that they will be requiring natural thyroid drugs to go through the New Drug Application process. The question now is, when? And will they pull these drugs off the market for the several years this process can take? It's really appalling. The FDA -- which rushes to approve all sorts of dangerous and overpriced drugs -- is poised to remove from the market a drug that has been safely used for more than 100 years. And we all know what it's about. It's not about safety. It's all about market share for a certain levothyroxine manufacturer, and their ability to influence decisions at the FDA.! There are no words to...
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  • DeniseB
    DeniseB says #
    I 've had a lap top donated free, which is why I am going to do my own site, perhaps you will contribute to it? I am hoping to get
  • tinac
    tinac says #
    Aw thats great news Denise, its lovely being a Grandma! I have 2 grandchildren. Great news about the site too, you will have to ge
  • DeniseB
    DeniseB says #
    Hi, Yes fingers, toes and eyes crossed Tina. I have been very busy too, I am going to be a Nan, Grand daughter due being of March,
28
Aug
1
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The second of many. ..

Well I am very positive after nearly 2 hours with  a nutritionalist and has agreed and identified my toxic overload by a sympton question and answer (no surprises there then)  - but its  some one who understands,  is more than willing to help and gives me access to this all important testing. Simple symptom question and answer has identified deficiencies in EFA Vits and Liver function, and Adrenals. The first few weeks will be diet based reducing the bodies metabolic  load from caseine and gluten. . .and try and replace some nutrients naturally. In unison with this I will be recommended tests according to priority which we will discuss further on receipt of her report. Liver funstion test concerns me as am extremely sensitive to caffeine and paracetamol and so am very wary, so I will  investigate quantities etc in the Genova test and make a decision. Still have to...
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  • Maff
    Maff says #
    Hi Sarah, Good to hear your consultation with the nutritionist was positive. I found removing casein and gluten from my diet w
28
Aug
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An environmentally friendly insect repellant? - Not for those with environmental illness!

As I was browsing my Google Alerts emails covering multiple chemical sensitivity (MCS) yesterday I came across what looked like a very interesting article in the New York Times which looked like it would be useful for those suffering from MCS and environmental illness (EI). The article is titled 'An Environmentally Friendly Mosquito Repellent?' so I thought, great, this sounds like great news and perfect material for my blog tomorrow. Unfortuately when I actually read the article this morning it was not what I was expecting at all. First off, the author talks in considerable length about how during her childhood in New Jersey she would chase farm machinery spraying the highly toxic pesticide DDT (note pesticide, as in kills pests, it is not an insect repellant), breathing it in and having her clothes and skin covered in it. The fact that as far as she knows her expsoure to DDT in this way...
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28
Aug
0
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Truly Non-toxic and Natural Insect Repellants

Following on from my previous blog about a NY Times article that didn't live up to its promise of offering a safe way to combat mosquitos I wanted to provide some genuine advice on non-toxic insect repellants and techniques for avoiding the troublesome pests. After a quick internet search I came across a fantastic article on About.com written by Anne Marie Helmenstine, Ph.D., the site's chemistry guide. Helmenstine explains that mosquitos use complex mechanisms to detect hosts so the most effective way escape becoming such a host is to avoid things that attract them and also use truly non-toxic repellants at the same time.   What do Mosquitos Find Attractive? Carbon Dioxide - As mentioned in my previous blog, mosquitos find hosts by following their trail of exhaled carbon dioxide (CO2). You give off more CO2 when you are hot or have been exercising so either avoid being outside or...
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27
Aug
1
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MCS - Must be a Cure Surely

This is my first attemp at a blog/blogging .. .. .however you want to describe it . . .so please bare with me I have experienced all the highs but mostly lows of suffering with MCS. The feeling like you are going to die as our body slowly feels like its grinding to a halt  and not being at all bothered or able to do anything about it, and even worse,  willing it to happen to ease the pain. Being nursed through the hours of convulsions as the body reacts to something new. The isolation is difficult to deal with. People stare, laugh or cross the road when you wear your mask. . .......I often wonder what they are thinking? The financial worries of living in a place you cant afford and what happens when the savings run out. The highs. . when you can hug a member of your...
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  • adminv15
    adminv15 says #
    The Above Blogg by Breathless is indeed me, Cherryblossom.... I could not remember what name I had chosen when I had signed up jus
  • adminv15
    adminv15 says #
    Hi Just a little blog here....... Have Lupus diagnosed in 2006 and Fibromyalgia in 2009 now 2012 seems to be my time for MCS howev
  • Maff
    Maff says #
    Hi Sarah, I'm so happy you've chosen to blog about the journey of healing you are embarking upon . I think the more of us that a
21
Aug
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The Science Behind LifeWave Technology and Energy Meridians

LifeWave Patches - Energy, Pain Relief, Appetite Control, Anti-Aging, Sleep
 For those of you who might be interested in learning a little more about LifeWave patches and how they work I thought I would pass on this information supplied by the company this week. I received the information in an email as I have used a number of the patches and found them to be quite helpful, particularly the energy enhancer, glutathione (Y-Age), and Silents Nights products. I'm not suggesting by any means these products will cure chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity, autism, or any other environmental illness....but in my own experience they can certainly provide an effective means of drug-free symptom relief and improvements in well-being and daily functioning. LifeWave patches purportedly work on the principles of Traditional Chinese Medicine (TCM) - specifically the system of energy meridians said to carry Qi (life force/energy) around the body. In essence the patches work in the same way as...
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  • adminv15
    adminv15 says #
    I have good news and I have BAD news. First the Good news: My many years of experience with Homeopathics has caused me to have gr
17
Aug
15
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Nature-throid does it work? Let us know your experiences.

Well I've been taking the Nature-throid for 1 week now! I do seem a little bit more tired than when I was on Armour otherwise no side effects, I have 140 of the Armour tabs left so I am going to go back to taking them as from tomorrow, as they have a much earlier use by date! That should take me to beginning of Jan 2010, when I will review the Nature-throid situation.  If you have tried or you are going to try Nature-throid I would love to hear how you get on with them, don't make my mistake and take too much. If you know of any other helpful treatments please let me know. Any advise would be welcome and I would love to hear of your experiences. Take care Denise

 

Nature-throid does it work? Let us know your experiences.Dynamic Neural Retraining Program (DNRS)

 

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  • adminv15
    adminv15 says #
    I started to take Nature Throid 6 months ago. The Doctor started me on 125mg's, the dosage was too high, since my blood pressure s
  • adminv15
    adminv15 says #
    I just started taking Nature-throid as a replacement to Armour. I was feeling bad on the Armour and did not realize all the side
  • adminv15
    adminv15 says #
    All I want to do is EAT on Nature throid!! Is this normal? I am gaining weight. Making me crazy. I notice an increase in libido, m
07
Aug
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Daily and Seasonal Fluctuations in Symptoms in Environmental Illness

I thought for my main blog entry this week I'd discuss a subject that has for the past 10 years or so had a major impact on my ability to cope with daily life and plan for events in the future - the daily and seasonal fluctuations in the appearance and severity of my symptoms of chronic fatigue syndrome, environmental illness, and related conditions. I'll also talk about what I have done to adapt and minimise their impact.   Daily Fluctuations First I ought to explain that the body varies its biological processes such as hormone production throughout the day and night to allow for periods of activity and rest (i.e sleep) and this is known as the circadian rhythm. For example in the morning secretion of the adrenal hormone cortisol increases, as does activity of neurotransmitters such as serotonin, and this makes us feel awake and full of energy so we're prepared to...
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  • adminv15
    adminv15 says #
    Thankyou Maff, you described the patterns daily and seasonally and the way you've adapted to create balance with your internal and
  • Maff
    Maff says #
    N-acetyl-tyrosine is a nutritional supplement so you don't need a doctor for that. I get all my supplements from [URL=https://affi
  • DeniseB
    DeniseB says #
    Hi Maff Where do I get these medications from as I don’t have a doctor and I am working purely on how I feel. I’ve
06
Aug
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Natural, chemical-free head lice and flea control with innovative electronic comb

Electronic Lice & Flea Comb
 My regular readers will know that I don't often use my blog to talk about a product or service but since I'd discussed the problems I'd had finding natural methods to rid my cat of fleas a few weeks ago, I thought I'd let you all know about a new product I found and have been using for the past week. I had previously been using a regular flea comb when I came across this electronic version on the Androv Medical website. It's strictly a lice comb for ridding your youngsters of head lice but I thought it would be worth a shot for getting shot of the fleas on my moggy - and the results have been great.  The problem with regular lice/flea combs is that you're combing out live bugs and eggs so you have to be extremely careful and take the correct precautions to make sure you don't infest...
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  • adminv15
    adminv15 says #
    well this blog is great i love reading your articles.,http://www.belstaffjacketsukstore.net
  • adminv15
    adminv15 says #
    Where did that head lice came from? Is there any way to stop them? coz it’s kind of annoying when they are living on you, your sca
31
Jul
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Novel Pain Relief Techniques for Fibromyalgia

Does listening to music help fibromyalgia pain?
 Fibromyalgia is a condition that can literally leave sufferers disabled by intesnse pain, both generalised and at  specific "tender points" around the body. Traditional medicines used for pain relief often have little or no effect or become less and less effective over time so the patient is often left in agony as their doctor exhausts their armoury of painkilling drugs. Even powerful "last resort" opioid drugs including morphine, Codeine, Vicodin, and Oxycontin often have little effect on fibromyalgia pain. Research suggests this could be because in fibromyalgia patients these drugs fail to bind effectively to pain receptors in the brain (read more). The US Food and Drug Administration has recently approved the first three drugs specifcally for the treatment of fibromyalgia - Lyrica, Cymbalta, and Milnacipran. Lyrica is designed to treat pain by working on "sodium channels", which are involved with the transmission of nerve impulses, and reduce the central...
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  • DrDavidJernigan
    DrDavidJernigan says #
    Ronda, Take a minute to read Dr. Jernigan's article: "Chronic Fatigue and Low Body Temperature" http://www.drjerniganblog.com/ar
  • adminv15
    adminv15 says #
    Hi! I was diagnosed with FMS (among other things) in 2004 but I'm sure I had it earlier than that. I've tried just about everythin
  • adminv15
    adminv15 says #
    Try magnetic therapy, this stuff really works. What it does is increase blood flow. When magnets are applied to a specific area of
24
Jul
2
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CDSA Interpretation - Metabolic Markers

CDSA Report - Metabolic Markers
Continuing with my blog series aimed at helping you decipher the results of a comprehensive digestive stool analysis (CDSA), this week I will describe the various "metabolic markers" that might be referred to on your test results. n-Butyrate This short-chain fatty acid (SCFA) is produced as a result of the fermentation of dietary fibre, particularly gums and pectins, by certain bacteria that inhabit the intestines (particularly probiotic bacteria such as Lactobacilli and Bifodobacteria species). An n-butyrate level within the reference range is first and foremost then, an indicator that such health promoting bacteria are present in sufficient amounts. A low n-butyrate level in this respect may indicate a deficiency of beneficial bacteria while a high level suggests a general bacterial overgrowth caused by factors such as low stomach acid or high carbohydrate/fibre diets. In the former case probiotic supplements may be required while in the latter antibiotic therapy, whether drug-based...
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  • Maff
    Maff says #
    Very kind True, I'm really happy you find the site so helpful. We're all glad to have you as a member
  • True
    True says #
    thank you so much for providing this info. I love this site, I can always find the info I need here. Very valuable.
18
Jul
1
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Natural and safe flea control for the home

Flea Control for Cats
For the first time my cat (Stimpy) has recently developed a very persistent flea problem and managed, despite my best efforts, to infest my home as well - so I ended up covered in itchy bites! I don't mind treating Stimpy with the regular anti-flea products as I can apply them wearing my carbon filter mask (or holding my breath!) and then leave him outside for the rest of the day. When it comes to my home however there is no way I can spray pesticides/insecticides on my carpets and furnishings. I'd never be able to live there again. On a recent trip to Pets at Home (the equivalent of PetSmart in the US) I came across a product labelled with stand-out words such as "natural" and "organic". I've learned through experience that this in no way means the product is safe for those with environmental illness however so I made a mental...
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  • adminv15
    adminv15 says #
    I consider that grooming your pet is a vital part of being a pet owner. Grooming your canine helps you accomplish many things. It
  • adminv15
    adminv15 says #
    The most popular kind of flea control product on the market is the “spot-on” variety, sold under brand names like Fron
  • adminv15
    adminv15 says #
    Thanks very much for the good wishes and for checking out the videos. Feel free to embed and use them to educate others. T he ebo
17
Jul
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Light at the end of the tunnel. I hope so!

I am still waiting for my Nature-throid to arrive but just to let you know of the information I have found at:  http://rlclabs.com/aboutUs.asp RLC Labs, Inc supply Nature-ThroidTM, and claim that they provide the only hypoallergenic medication with a history of safety, efficacy, and consistent T3 and T4 content unmatched by anyone in the industry.  I can not wait to try it, if it works as good as the old Armour did I'll be happy but I have a feeling it may be better as RLC concentrate of providing thyroid care! Check out their web site for yourself.  If any one has tried it I would love to hear your views.  Denise

 

Light at the end of the tunnel. I hope so!Dynamic Neural Retraining Program (DNRS)

 

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  • DeniseB
    DeniseB says #
    Hi Tina Glad to hear that you may have cracked it! I do take more Armour (1.5grains) than I did Levo (100) because I read that I m
  • tinac
    tinac says #
    Hi there! yep! been taking the extra quarter grain for the last 3 days, and my temp was up slightly this morning, so it could be d
  • DeniseB
    DeniseB says #
    Hi Tina did you take the extra bit of Armour, if so did make any difference? Well I've been taking the Nature-throid now for 5 day
09
Jul
21
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Red Alert! Bad, bad news Guys I am so disappointed Armour formulation has changed!!!

I can't believe it just as I am feeling great I get this awful, totally devastating E-mail bulleting from Mary Check this out  Mary Shomon -  About.com - Thyroid disease guide. They have changed the formula of Armour and it's making people ill, not working as good, apparently the new tablets are crumbly so when I get home from work to day I am going to see which they have sent me. God this stinks! I will now have to look for an alternative, I could cry I feel so well and they are taking my health away from me God dam Forrest Laboratories!

 

Red Alert! Bad, bad news Guys I am so disappointed Armour formulation has changed!!!Dynamic Neural Retraining Program (DNRS)

 

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  • DeniseB
    DeniseB says #
    Hi Tina It’s a case of trial and error. Before this illness I never took any drugs or medicines of any kind. I am a big bel
  • tinac
    tinac says #
    Hi there Denise, I have been taking the old stuff, but as its only been a couple of days i don't feel any different yet, to top it
  • DeniseB
    DeniseB says #
    Hi Tina Did you try taking all the ggod stuff (old type Armour) on it's own and did you notice any difference? Denise
03
Jul
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Foods and Supplements to Balance Phase 1 and Phase 2 Liver Detoxification

Liver detox pathways and required nutrients
Last week I blogged about how the two phases of liver detoxification can get out of balance due to chronic exposure to toxins, for example, and how this can impact on a person's health. As discussed, the most common problem is that phase 1 speeds up and phase 2 cannot keep up - someone in this situation is known as a pathological detoxifier because of their increased risk for symptoms and disease. The previous blogs with more detailed information can be found at: Pathological Detoxifiers and Environmental Illness Detoxification Profile Results - The Pathological Detoxifier and Chronic Illness   Now I want to take a look at foods and supplements that pathological detoxifiers can use to balance their liver detoxification pathways and improve their health. Essentially what we want to do is slow down phase 1 while speeding up phase 2. There are many foods and supplements that can help. One...
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  • Maff
    Maff says #
    Yes, I'm not sure about SAMe being available IV to doctors and patients Tracy. I mentioned it to one nutritional medicine doctor I
  • Tracy Mac
    Tracy Mac says #
    Some of the studies of S-ame have been done using IV therapy so it is possible. Whether it is available commercially is another qu
  • Maff
    Maff says #
    I just remembered...I'm not sure if I've asked you before whether you've looked into phospholipid exchange (PLX) therapy? That is
30
Jun
11
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I feel fantastic but don't just take my word for it!

That being wrongly diagnosed is rampant due to the very 'validated' TSH (Thyroid Stimulating Hormone) lab test result they support, i.e. a pituitary hormone, which can be "normal" for years before it rises high enough to reveal one's cellular hypothyroid state; That thryoxine is the medication wrongly treating thyroid patients, since it leaves most all patients with lingering hypothyroid symptoms which doctors dismiss as belonging to something else; That those natural treatments, such as desiccated thyroid like Armour made by Forest Labs of the US, are changing lives and removing those lingering hypothyroid symptoms because of the presence of direct T3; That side effects from the use of natural desiccated thyroid are due to undiagnosed adrenal fatigue and low cortisol which needs treatment, not the desiccated thyroid itself; and That the adrenal fatigue so many thyroid patients find themselves with is, in fact and ironically, due to the inadequacy of...
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  • DeniseB
    DeniseB says #
    I had the same response from the Doctor, they don't want you to have Nature thyroid because it really does makes you better! Unfo
  • Maggiem
    Maggiem says #
    Ps she nearly foamed at the mouth when I asked about natural thyroid replacements
  • Maggiem
    Maggiem says #
    Such a comfort to read, I feel I've been poisoned on Levothyroxine I'm trying to get it out of my system now Doc said there was no
26
Jun
1
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Detoxification Profile Results - The Pathological Detoxifier and Chronic Illness

Detoxification Profile Results - Pathological Detoxifier
Following on from my blog - Pathological Detoxifiers and Environmental Illness which explained the process of detoxification in the liver and when someone might be termed a 'pathologicial detoxifier' - I wanted to share the results of my own Detoxification Profile and explain how the results related to my illness at the time and subsequent developments. The Detoxification Profile uses caffeine, paracetamol, and aspirin, to determine how well phase1 and some of the most important phase 2 liver detoxification pathways are functioning.   My Detoxification Profile Results     Interpretation As you can see, although my phase 1 is within the reference range, it is towards the upper end of normal. In combination with this my phase 2 glutathione conjugation is borderline low. The other phase 2 pathways are all what Genova ,I believe, now classes as high and indicates increased toxic exposure.  Other testing revealed my d-glucaric acid was high...
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  • adminv15
    adminv15 says #
    Hey Matt. I'm in a terrible situation - I've almost died a few times in the last 1.5 years from such severe CFS/MCS etc, which the
  • Maff
    Maff says #
    Hi Rick, Sorry to hear about your poor health. I can certainly sympathise with the frustration of needing expensive medical tests
  • adminv15
    adminv15 says #
    I need help with liver detoxification. Everytime I take any liver detoxing herbs or eat any liver detoxing foods I get a very bad
19
Jun
4
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Don't ever give up hope!

I have shed a stone now since being on Armour thyroid, I started taking it on the 21st of March 2009 so just over a pound per week, I have done nothing other change from Levothyroxine, and if anything I am eating more! To you Doctors out there who promote Levothyroxine and other synthetic options only, I would ask you to please consider that some people can be violently intolerant of it, as I was! To my fellow thyroid suffers I would say don't ever give up hope, your salvation may be just a little tablet away, I had over two years of Hell, living in a dark place with me hiding inside. I can see the blue skies now, the difficult times have helped me to understand better than before how rich and beautiful life is, and that so many things that one goes worrying about are of no...
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  • Maff
    Maff says #
    Hi Denise, Glad you had a great time on your holidays! Thanks for the permission to copy and paste your posts to the review secti
  • DeniseB
    DeniseB says #
    Hi, I am back, I had a wonderful time, ate like a little pig and didn't put on an ounce! Maff, I am very busy playing catch up but
  • Maff
    Maff says #
    Hi both of you. It's great to hear you're both doing so well on Armour. I had the same experience....levothyroxine did nothing for
19
Jun
0
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Petition the UK Government to Protect us from Artificial Perfumes/Scents

Today I was contacted by Vivien Pomfrey who has started a peition on the 10 Downing Street website (UK Government site) calling on the Prime Minister to protect UK citizens from artificial perfumes in all their forms. I have just signed the petition and hope that if you are a UK citizen you will do the same. Vivien and myself also hope that those of you from other countries will petition your own governments through whatever means possible. This is an issue that has widespread implications for human health and the environment and deserves much more attention than it currently receives.  Thank you!   Here is the email from Vivien with the link to the petition and more information she has compiled: There is now a petition to Downing Street demanding a ban on the uncontrolled public use and importation of artificially-perfumed products at http://petitions.number10.gov.uk/Scents/ You need to be a UK...
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  • adminv15
    adminv15 says #
    Great! And here is a petition going on in America that will affect the world as it involves asking the Olympics and their affilia
  • adminv15
    adminv15 says #
    As an asthmatic I will certainly be signing, the strong perfumes some people wear are a trigger for asthmatic attacks, or make sym
16
Jun
1
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Letter to the Ombudsman - had reply he is looking in to it........

Dear Ombudsman, I am writing to you because I don't have the internet at home and don't have much time at work! I have tried PALS and written to my ex doctors directly, I want something done about this injustice! I have so many questions. I am truly mystified at why Doctors seem to delight in kicking patients while they're down! I have been fighting my right to health for over two years now! Although I had almost every single symptom and a family history of hypothyroidism my doctors wouldn't treat me until I reached '10' [for TSH] on their stupid scale. I put on 3 stone, had symptoms too numerous to mention and thought I was going crazy! On the 2nd September 2008, I final reached this goal, then and only then did they say "You will be glad to know we can treat you now." I was angry,...
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  • DeniseB
    DeniseB says #
    Hi I’ve had another reply, saying I have not gone through the proper channels. Should have contact the Practice Manager, Go
16
Jun
1
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Letter to the Endocrinologist

Dr Doctor Hosker If there was any way I could prevent another person from going through what I did, I would do everything in my power to stop it! Potentially thousands of people are walking around feeling miserable when I know you can feel so much better. I am not going to get into all the details because I am sure you will do the due diligence should this topic interest you. I know you address a lot of issues that affect women specifically. Exploring thyroid disease should be at the top of your list. It is the reason that many women are overweight and depressed or having trouble conceiving. It is the reason why many women who are diagnosed with menopausal symptoms do not respond to hormone or other treatments. Menopause is not their only problem. I feel that if I had not taken the time, or had the...
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  • Maff
    Maff says #
    Hi Denise, Thank you for your continued blog updates on your fight for effective diagnosis and treatment of hypothyroidism. You'r
11
Jun
0
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Anti-Aging & Wellness Event

The Wellness Revolution (Wiley, 2002) was the “shot heard round the world” for the wellness industry. It defined wellness as an industry—linking hundreds of thousands of disparate service and product suppliers with a single cause. It showed like-minded scientists, fitness providers, businesspeople, food manufacturers, restaurant owners, wellness product distributors, doctors, and others focused on disease prevention and antiaging that they were part of a worldwide revolution—not just lone iconoclasts inside their chosen profession or industry. If you are an entrepreneur, or are considering becoming one in wellness, there has never been a better time in history to start a home-based direct selling business. This paradigm shift towards entrepreneurship is the only answer to America's Economic Crisis. On June 27, 2009 at the Health Care Organizing Kickoff event we plan to officially Launch an Academy of Social Entrepreneurship. The Academy will provide the tools and resources necessary to empower our communities...
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05
Jun
2
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Do Mercury Amalgam Fillings Cause Chronic Illness?

Mercury Amalgam Filling
 As part of some research I was doing for my degree lately I had to address the issue of mercury fillings and their potential to cause ill-health. Having no fillings myself this is not a subject I have looked at in any real detail before, but I know it may be a major concern to many of you. The literature I came across was certainly conflicting. The US National Institutes of Health (NIH) published a news release acknowledging study findings from the 1970s and 80s demonstrating that amalgam fillings are continuously giving off mercury vapour...which of course the unlucky individual with the fillings then inhales. Until this time it was thought that exposure only occured during the initial installation of the fillings and that after that the mercury was stable. The news release raises the possibility that the mercury vapour given off by fillings could cause chronic mercury poisoning and some of...
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  • adminv15
    adminv15 says #
    I had some large amalgam fillings removed by drilling about 5 years ago. When the dentist had finished I had black dust all over
  • adminv15
    adminv15 says #
    Well after wathcing the following video "The Beautiful Truth" on Youtube, only a week later I booked an appointment with a special
  • adminv15
    adminv15 says #
    I'm 27 years old, have three amalgam fillings in lower jaw. They were put in my mouth me being 10-17 years old, i cannot recall mo
04
Jun
0
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The NHS are Killing us!

The NHS are Killing us!   Patients are been ignored, denigrated, overlooked, and under-treated and doctors who prescribed natural thyroid drugs like Armour are been written off as quacks, or irresponsible, or in some cases, even brought up on charges by the levothyroxine-only zealots on medical boards.   It's all one gigantic smelly mess and ARMOUR REALLY WORKS I am living proof! If I hadn't discovered it I'd be bed ridden now, instead of full of life!   Will somebody out their please tell me what to do to make people aware about all the doctors out there that are evil, cheating, money grabbing, selfish creatures. I say creature because they can not be human if they are letting their fellow human beings suffer so needlessly.   They are literally killing us! Denise

 

The NHS are Killing us!Dynamic Neural Retraining Program (DNRS)

 

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