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A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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08
Mar
1
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Reverse T3 and Thyroid Resistance

A guide to the treatment of Thyroid resistance written for the brain fogged patient Our web site has been in place for nearly 12 months now and has been largely successful at answering questions and healing people treat their RT3 issues. I have been through this site to expand places where we have leant more and update things were we have learnt better. Pages where additional information has been added are marked (updated 10/10). This web site has been set up to gather together the information and discussions that have come from the RT3 Yahoo Group. If you are not already a member of that group then you can click here to join Most people who have got to here have been through a few doctors along the way and spent a lot of money trying to recover their health. I am not a Dr, I'm an electronics problem solver...
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  • TimelessRainbow
    TimelessRainbow says #
    Other Imbalances The body is a complex chemical factory with lots of interactions. Imbalances in the ratios of these trace elemen
08
Mar
0
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The National Academy of Hypothyroidism

The National Academy of Hypothyroidism is a non-profit, multidisciplinary medical society dedicated to the dissemination of new information on the diagnosis and treatment of hypothyroidism. It consists of a group of thyroidologists, headed by Kent Holtorf, M.D., who are dedicated to the promotion of scientifically sound and medically validated concepts and information pertaining to the diagnosis and treatment of hypothyroidism. http://nahypothyroidism.org/

 

The National Academy of HypothyroidismDynamic Neural Retraining Program (DNRS)

 

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08
Mar
0
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Peripheral Metabolism of Thyroid Hormones

Alternative Medicine Review, August, 2000 by Greg Kelly Abstract Peripheral metabolism of thyroid hormones is a critical component of the impact these hormones have on intracellular function. Thyroid hormones can be metabolized in peripheral tissue by deiodination, conjugation, deamination, and decarboxylation enzyme reactions. Therefore, alterations in these metabolic pathways might significantly impact the quantity of specific thyroid hormone metabolites influencing function at the cellular level. Available evidence also suggests that, under some circumstances, the activity of hepatic antioxidant enzyme systems and lipid peroxidation might influence the peripheral metabolism of thyroid hormones. Several syndromes, such as "euthyroid sick syndrome" and "low T3 syndrome," have been classified within the medical literature. The common feature of these disorders is a low level of circulating T3, with generally normal to slightly elevated blood T4 levels and either normal or slightly suppressed TSH levels. This pattern of altered thyroid hormone levels is generally agreed to...
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08
Mar
0
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Cortisol — Its Role in Stress, Inflammation, and Indications for Diet Therapy

Today’s Dietitian Vol. 11 No. 11 P. 38 November 2009 Issue By Dina Aronson, MS, RD   Cortisol, a glucocorticoid (steroid hormone), is produced from cholesterol in the two adrenal glands located on top of each kidney. It is normally released in response to events and circumstances such as waking up in the morning, exercising, and acute stress. Cortisol’s far-reaching, systemic effects play many roles in the body’s effort to carry out its processes and maintain homeostasis. Of interest to the dietetics community, cortisol also plays an important role in human nutrition. It regulates energy by selecting the right type and amount of substrate (carbohydrate, fat, or protein) the body needs to meet the physiological demands placed on it. When chronically elevated, cortisol can have deleterious effects on weight, immune function, and chronic disease risk. Cortisol (along with its partner epinephrine) is best known for its involvement in the “fight-or-flight”...
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08
Mar
0
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The Thyroid-Adrenal-Pancreas Axis

Thyroid-Adrenal-Pancreas (TAP) Axis
by Nikolas Hedberg, D.C., D.A.B.C.I. on February 24, 2011 In addition to gastrointestinal and blood sugar disorders, adrenal gland dysfunction is the most commonly seen imbalance in today’s society.  Adrenal gland imbalances are also one of the major factors that cause thyroid hormone imbalance.  Stress from work, relationships, electronics, poor diet choices such as consumption of refined carbohydrates and trans fats, infections, and environmental toxins all contribute to adrenal disorders. The Adrenal Glands The adrenal glands are about the size of a walnut and lie on top of the kidneys.  The outer adrenal cortex comprises eighty percent of the gland and produces many hormones including cortisol and DHEA from cholesterol.  Ninety percent of the cholesterol in the body is made by the liver and only ten percent comes from the diet.  Cholesterol converts into the hormone pregnenolone in the adrenal cortex which then converts to cortisol, the stress hormone, or...
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07
Mar
0
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Adrenal Exhaustion

by Ingrid Naiman Tired?  Feeling that your mind is half a century ahead of your body?  Too much energy in your head and not enough in your feet?  Starting to doubt that you will ever again have pep and vigor? These symptoms are epidemic among well educated, urban people, particularly those with Yuppie proclivities. I named the syndrome “adrenal exhaustion” because the adrenals are charged with providing the oomph needed to get us from A to Z: http://www.kitchendoctor.com/health_issues/adrenal_exhaustion.php

 

Adrenal ExhaustionDynamic Neural Retraining Program (DNRS)

 

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07
Mar
0
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Toxics In Bedding

USA - Consumer Products Safety Commission (CPSC) opens public comment period on new law to flameproof mattresses, this requires known toxic FR chemicals. Our exposure to chemical via our mattresses and furniture and carpet's and even walls are increasing on a daily basis. In addition to mattresses, laws require chemicals in bedclothes, mattress pads, sheets, blankets, bedspreads, comforters, and pillows. This new law will be effective nationwide within the year: http://www.nontoxic.com/beds/fireretardentalert.htm

 

Toxics In BeddingDynamic Neural Retraining Program (DNRS)

 

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14
Feb
0
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ME/CFS and gluten?

Apologies to readers who might have already read about this story. The UK Mail on Sunday (February 13th 2011) carries an article by Esther Rantzen on her daughter who has ME. UK viewers will know Esther from such classic TV programmes such as That's Life. In recent years she has discussed ME as a consequence of her daughter's diagnosis. The article in the Mail regarding a possible link between ingestion of gluten and ME/CFS can be viewed here: http://www.dailymail.co.uk/health/article-1356316/At-I-discovered-secret-Emilys-14-lost-years-Esther-Rantzen.html Many thanks, ESPA Research

 

ME/CFS and gluten?Dynamic Neural Retraining Program (DNRS)

 

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09
Feb
0
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A few interesting studies...

This and last week have been bumper weeks for interesting studies related to autism and ADHD. First, the Lancet published the results of a controlled trial on the use of a few-foods rotation diet on the symptoms of Attention-Deficit Hyperactivity Disorder (ADHD). The link to the abstract for the study by Pelsser and colleagues is shown below: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(10)62227-1/abstract A break down of the study and the main findings can be viewed here: http://evolutionarypsychiatry.blogspot.com/ In short, a very well conducted and controlled study that showed that diet can affect some cases of ADHD. As to how and why it works is more of a mystery. Second, a review study has been published looking at the connection between gastrointestinal disorders and autism spectrum conditons. The link to the abstract for the article by Chen and colleagues is shown below: http://www.ncbi.nlm.nih.gov/pubmed/21297509 The results: the studies so far have a number of methodological issues...
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30
Jan
0
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Dairy in, dairy out

http://thehealthvoyage.com Well, after the excitement of finding a local raw dairy supplier and enjoying the process of learning and creating ghee, dairy in all forms (from cow’s milk at least) will be put on hold once again. I really crave the stuff, and seemingly no amount of purity, or the type, whether it’s milk, butter or yogurt can I eat regularly without some side effects. Like my trouble with eggs and a few other foods, for the most part my reaction manifests as cravings and wacky brain fog. Regardless of how healthy it may and ‘should’ be, when your sat there trying desperately not to spoon a whole jar of ghee into your mouth, you know the food has crossed that line between simply tasting good and feeding an addiction. Attempting tiny doses unfortunately doesn’t really help either. It has been a little tough to rationalise, but perhaps a useful...
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27
Jan
0
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The Memory of Health (link, excerpts)

The Memory of Health (link, excerpts)
This is a link to excerpts from my upcoming book, The Memory of Health on my journey through chronic fatigue and chronic illness:   http://www.authorlink.com/writers/detail/1689    ...
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26
Jan
0
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Healing Autism: A Parent’s Complete Guide to New Natural Treatments

Healing Autism: A Parent’s Complete Guide to New Natural Treatments
The following information is for educational purposes only and is not meant to diagnose, treat, or prescribe any kind of disease or illness. It is a good idea to seek the professional advice of a qualified health care practitioner (remember Naturopaths are doctors too) before making any major changes in your self health care. The National Institutes of Health released funding of $60 million dollars for research last year.  Although autism is now considered an epidemic by many, modern medicine claims it lacks hard scientific evidence as to how autism initially onsets. In the 1970’s, autism occurred in 1out of every 10,000 children. Today, that number is 1 in 150 in the United States, even less in the U.K. where Cambridge University just came out with a study where 1 in 60 children were diagnosed with autism. For boys, it was 1 in 38. Our children are getting sicker more...
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25
Jan
0
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Chronic Fatigue Syndrome and Dysregulated Stress Response

  This is the most comprehensive summary I’ve found of what happens with the pathogenesis of CFS: http://www.prohealth.com/library/showArticle.cfm?libID=9672&t=#discuss         http://www.ConnektWell.com/ http://www.TheHolistiCoach.com/...
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25
Jan
0
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What Is Chronic Fatigue And How Do I Beat It?

What Is Chronic Fatigue And How Do I Beat It?
  The truth is, no really knows, or at least there’s no general consensus on it. There are many theories out there however. Some of them include that it’s caused by some kind of virus.  Other theories say that it due to “burnout,” is caused by unrelenting stress, or is caused by one initial stressful event like divorce or a car accident that fundamentally alters the way the body functions afterward. It’s tough, unfortunately for those of us suffering from this illness, since fatigue itself is a marker of most disease states, and therefore it’s hard to pinpoint what this is exactly. Chronic fatigue is feeling that you have no energy, absolutely zero energy – like you are at zero point energy — and even below that if it’s possible. It feels like the main switch in your body that gives you energy has been turn off – or shorted...
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22
Jan
1
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Ghee wizz

Ghee wizz
http://thehealthvoyage.com/ If anyone knows where the sleep fairy is be sure to send him/her my way. At least I have the Australian Open tennis to peacefully whittle away those early morning hours. Our man Andy looking strong so far. Had a cool day today, mainly due to popping to the Norfolk/Suffolk border and having a browse round a local farmers market. I decided to pick up some raw dairy while I was there and also had a quick chat with a lady who recovered from Crohn’s disease in the past. I wouldn’t say I learned anything new, as she pretty much touted the ‘heal the gut and the rest will come’ type philosophy, as well as mentioning the importance of probiotics etc. Throw liver issues in the mixer and unfortunately good advice gets a little tricky. However she was really nice, and gave me a good run down on the...
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  • ediesummers
    ediesummers says #
    Have you tried 5-HTP for sleeping? It is a godsend for me.
11
Jan
0
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Seeking out the big guns

Seeking out the big guns
http://thehealthvoyage.com/ Man-o-man my days have become about survival at the moment. A quick glance in the mirror in the morning prior to hopping in the shower reveals some nice racoon style dark circles under my eyes. After reading his excellent book ‘The Fourfold Path to Healing’ I have decided to approach Dr Cowan. With his wide range of knowledge I’m hoping his expertise might be able to help me understand what’s going on with my rather annoying body. I opted for the ‘community support’ option as I have a habit of being a little jumpy when it comes to treatments, so I’m hoping this will put me on the straight and narrow with ongoing support and discussion. Unloading my symptom set and sharing my dietary woes will be fun for him! Although perhaps to keep the consultation fee a little cheaper I could perhaps try a quick summary along the...
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11
Jan
0
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Help! Parents of children with autism wanted for study on feeding issues and diet.

Greetings to all and a Happy New Year. ESPA Research has been contacted by a Dietitian based in the UK with an interest in autism and diet. She is looking for parents / primary caregivers of children diagnosed with an autism spectrum condition to take part in an on-line survey looking at various facets of feeding and diet. Children should be aged between 3-16 years and resident in the UK. A link to the survey is provided here hosted by the National Autistic Society (NAS) Research Projects section. As many parents and professionals will know, feeding and dietary issues are often an area of significant concern for many children on the autism spectrum. There is a growing recognition that more research and resources are required to catalogue such issues in terms of prevalence and specific types of problems present in autism; and where possible, ensure that appropriate nutritional intake is maintained (particularly for those following...
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30
Dec
5
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A year in review

http://thehealthvoyage.com/ Well, what a year, and one which I can probably say has ended slightly on the positive side. I wouldn’t say that I’ve picked up a huge amount of forward momentum, but more stopped the rot and stabilised. Also coming across GAPs towards the latter part of the year has filled me with a deep confidence that recovery is possible, despite how complicated it seems at the moment. Despite knowing allot about my health and what I thought I needed to do to try and get better, this year did see some moments that further plunged me into illness and toxicity. If I remember correctly there were at least 3 occasions where I binged on food. These weren’t your average binges either, they were huge, jolting my body from a generally low carb diet to massive amounts of sweets, breads, junk food, drinks etc for days at a time....
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  • Maff
    Maff says #
    Hi Matt, It's a long trip to the land down under so some company on the flight(s) would be welcome! My adrenals are clearly stru
  • konnor
    konnor says #
    Thanks fella, Wouldn’t be too far fetched to say that I might have to hop on that plane to Australia with you! No doubting the i
  • Maff
    Maff says #
    Hey, I should have said that although I would consider adrenal fatigue to be an effect rather than a cause (in my case at least)
17
Dec
0
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New article added on the possible reasons why a GFCF diet might work for autism

A quick update: ESPA Research announces the publication of a new article in the peer-reviewed journal Autism Insights titled: How could a gluten- and casein-free diet ameliorate symptoms associated with autism spectrum conditions? The article is open-access and free to download for non-commercial purposes via the ESPA Research or publishers website (Libertas Academica). www.espa-research.org.uk Building on the various pieces of research attempting to determine how such dietary intervention may work in some cases of autism spectrum conditions, the authors detail the various evidence for a direct or co-morbid link between autism and (i) gluten sensitive enteropathy or coeliac disease, (ii) allergy and atopic disease, and (iii) hyperpermeability of the gastrointestinal membrane (leaky gut) and passage of biologically active material to the central nervous system. Many thanks All at ESPA Research

 

New article added on the possible reasons why a GFCF diet might work for autismDynamic Neural Retraining Program (DNRS)

 

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  • Maff
    Maff says #
    Thank you ESPA Research for your work and for updating us here. The aspect of your work I find most important is the insight that
08
Nov
2
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ESPA Research - Introduction

ESPA Research ESPA Research is a not-for-profit, wholly owned subsidiary of ESPA (Education and Services for People with Autism) based in Sunderland, UK. We are committed to continuing the research carried out by the Autism Research Unit into autism spectrum and related conditions. Our current portfolio of investigations include: examining the effectiveness of a gluten- and casein-free (GFCF) diet for people with autism and related conditions alongside the discovery of biological entities that may provide insight into any underlying metabolic conditions including potential markers for best- and non-responders to various interventions. The aim of our work is to improve quality of life for people with autism spectrum conditions and increase public recognition of autism to foster a welcoming society. Various information is shown on our website including: who we are, details of our recent 2-year RCT of a GFCF diet with children with autism (ScanBrit), details of our peer-reviewed publications...
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  • Maff
    Maff says #
    Hi and thank you so much for taking the time to post on this site. I have used your urinary opioid peptide analysis myself and the
30
Oct
1
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Today I feel wonderful!

Long time no input, but things are going great! I have recently (in the last three months) made a fantastic discovery and I feel wonderful! In my opinion diet is one of the answers to our modern day illnesses. I discovered that people with Hypothyroid can also have gluten or lactose intolerance. I have been following the Paleo(caveman) diet, the weight as just fallen off!  I also have a lot more energy and I am back into my pre illness clothes. It makes so much sense. The Paleo diet consists of eating meat, fish, vegetables, fruits, plants, nuts and seeds, but nothing that is processed, foods without modern food techniques, chemicals and preservatives. 'Simples!' It is based on the foods available to our hunter gatherer ancestors, foods found in nature.   It really does work and it's so easy to follow, you have nothing to loose, but the weight in pounds and...
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  • Maff
    Maff says #
    Hi Denise, Great to see you back on the site. Thanks for sharing your experiences of the Paleolithic diet diet with us. I'm sorr
26
Oct
2
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new to forum- need information for cfs sufferers

I am new to the forum...my question is for cfs. my best friend has had cfs for 20 odd yrs...has all the symptoms..from aches, no sleep, fatique, fever, etc..has all listed symptoms...takes meds to conbat fever...aches...but has no quality of life..is almost homebound. Can go out one day and is sick the next day. Does not feel like seeing a specialist..think the antidepressent drugs are numbing her?  what can i do as a friend..she has no family exc. spouse and son whom lives away. spouse is absorbed in his work and is used to the problem..i read so much about the gut and nutrition..think she should see a specialist instead of her gp...any help out there..have any of you gotten better with vitamins or a nutrition change - thank u

 

new to forum- need information for cfs sufferersDynamic Neural Retraining Program (DNRS)

 

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  • Maff
    Maff says #
    It is definitely worth your friend getting the thyroid tests Burkey describes since people suffering from ME/CFS often have hormon
  • Burkey
    Burkey says #
    Have the person's Thyroid Checked. Get a complete Thyroid Panel to include TSH, T4 free, T3 free, reverse T3, and Thyroperoxidase
26
Oct
0
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adrenal fatique

daughter has adrenal fatique--- anyone have any ideas or thoughts on the subject..what are the symptoms...and cures..
08
Oct
1
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Do You Know How Toxic Your Life Is?

Do You Know How Toxic Your Life Is?
Intentionality in changing our buying and cleaning habits is vital for protecting our well-being. In order to be stronger and live longer, we must choose to create a healing habitat that effectively eliminates toxins in our bodies and reduces the source of toxins in our environment so that restoration of optimum health can occur.   These check-points will alert you to some of the ways to improve your health through behavioral changes:   1. Check in your sink and under it   Dishwashing liquid residue is left on dishes and eaten, use a non-toxic alternative such as Seventh Generation Free & Clear Laundry Liquid Clean your sponge; studies have shown that the degree of contamination of sponges of a hundred million to one billion microorganisms of any kind per sponge. Wash your sponge (put it in your dishwasher even). Toxic chemical arsenal under the sick! Yes, most of us are...
Tagged in: CFS Lyme Disease MCS ME MECFS
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  • adminv15
    adminv15 says #
    I’ve been a regular face at the hospital to get treatment for my condition. After a very long time, I kind of almost gave up. Th
18
Sep
0
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What is wrong with me?

This my first attempt at blogging, really.  I'm very confused with my symtoms and what I experience.  I just read an article on MCS and found it very encouraging.  I found that other people have the same symtoms as I do.  I really was at a loss, I thought I had an alergy but when I described my symtoms to a Alergy Physician at the Mayo Clinic, this was 2 or 3 years ago, he just said this is the world and you have to live in it, end of conversation.  I asked if he could refer me to someone that was familiar with my symtoms but he just dismissed me.  I really felt pretty bad.  I've given up talking to doctor's about what I'm experiencing.  I go through periods of sensitivty to certain smells and I don't always know what is happening.  I'm more aware of things like perfume...
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04
Sep
3
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Marriage after MCS

So where do I start here...I have 2 kids..12 and 2..I met Jon my husband in 2006 and we hit it off.  We had a lot in common..we listened to the same music, love to drink alcohol!! Camping, concerts..everything it seems. We fell in love at the start.  We were married in 2007 and had a child together in 2008. Right after my 2nd child I started to notice smoke and fragrance bothering me and slowly it came to me being homebound now. Our marriage was great great great to now I can't stand being in the same room as him! I am worried he will bring smells home from work or who he has been around.  MCS has taken its toll on us both which I acknowledge is my fault to begin with because if I didn't have this then we might be fine again.   I don't know...
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  • adminv15
    adminv15 says #
    You certainly came to the right place to get great information as Matthew has worked very hard in providing us updated information
  • Maff
    Maff says #
    Hi Denise, It sounds like you're having it really rough at the moment so thank you for taking the time to share with us. What re
  • dwise21
    dwise21 says #
    I should add that he complains about everything since I can't grocery shop..it just seems like everything I can't do because of MC
30
Aug
1
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Why is Lyme Disease Largely Being Ignored?

Today I was asked the following question via a comment on my Facebook page "In your humble opinion, WHY is media & gov't ignoring the plight of over 2.3+ billion people in their suffering? Is it because of their involvement in bioweaponizing this bacteria on {C}Plum Island or is it deeper than this? This is question many of us are plagued with... God Bless Always. Thank you." Mary B. Dear Mary, I have pondered this same question for the past 12 years that I have been helping people with this illness. While Lyme disease might have been a weaponized bug from Plum Island, it comes down to who is going to treat these chronically ill people in a hospital setting. In a hospital the human conditions are departmentalized into Neurology, Cardiology, Nephrology, Rheumatology, Infectious Disease, and every other '...ology. Most chronic Lyme sufferers have virtually every system being effected to...
Tagged in: Lyme Disease
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  • blytheH
    blytheH says #
    Maybe because Lyme disease is not contagious from an affected person to someone else. But take note Lyme disease can cause abnorma
25
Aug
0
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Flu Season is coming… - NOT!

Flu Season is coming… - NOT!
  Do We Really Believe Flu-viruses and Bacteria are Stronger in the Winter Time? Every year the pharmaceutical/medical mass media marketing begins in the Fall-season and proceeds through late Spring in fear-mongering everyone into believing they must get flu shots. When considering the fact that historically influenza viruses have killed many people throughout the last hundred years it would seem justified to think we should be thankful for vaccines. The truth is that no virus or bacteria can replicate out of control and cause disease in an optimally healthy person of any age! (See my recommendations at the end of this article on how to reach optimum health) In a dominantly poorly functioning society of people who are loaded with environmental toxins and pesticide/herbicide/fungicide/preservative-laden foods, not to mention the deleterious effects of the average American taking an average of 12 pharmaceutical suppressive/symptom-masking medicines that are weakening the overall integrity and...
Tagged in: Flu
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25
Aug
0
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Childhood Stress and Lyme Disease

By Dr. David Jernigan of Hansa Center for Optimum Health   Childhood Lyme infections can be somewhat easier to address, due to the pristine nature of most children’s bodies, and if it is caught early. At the same time, Lyme in children can be devastating; depending upon their health heritage and the degree of balanced life and stress in the child’s life prior to becoming sick. These issues will dictate how well a child processes through the illness. In a child’s life, stress comes from all directions. In children, as in adults, prolonged stress predisposes one to illness by changing the cellular chemistry. It must be remembered that every thought, especially those thoughts backed by strong emotions, is every cell’s command to change its chemical production in order to bring that thought/emotion into reality. Strong negative emotions promote alterations in the immune system’s ability to keep bacteria and other microbes...
Tagged in: Lyme Disease
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24
Aug
0
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Can Lyme Disease Be Cured?

The question of whether or not Lyme disease can be cured is a recurring question that is asked every doctor who is faced with a person suffering from the disease. The term “Cure” is almost taboo in the healing arts profession. No doctor that I know of is willing to say they can cure any illness…especially not Lyme disease. Before we just say an absolute “No” that Lyme disease is incurable lets see what the best medical dictionaries define the word “Cure” as meaning. After all, these medical dictionaries are the basis of what even the most agnostic doctors hold up as “truth.” The following are taken from Dorland’s Medical Dictionary and Stedman’s Medical Dictionary. Cure noun. 1. Restoration of health; recovery from disease. 2. A method or course of medical treatment used to restore health. 3. An agent, such as a drug, that restores health; a remedy. 4. Something...
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  • adminv15
    adminv15 says #
    If you have chronic lyme disease, and you take antibiotics, in 1-2 years, you get to a level of bacteria presance where you almost
24
Aug
0
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Fuel Oil Disaster in our 150yr old Home

Hello Everyone, I'm Sandi.  I'm online looking for advice, information, and support for what is currently going on in my life.  I'm also willing to return the above if I can to anyone in need. Almost 3 weeks ago now, a fuel oil company pumped 250+ gallons of fuel oil into my 150+ yr old family homestead basement.  We neither ordered it or were even their customers.  It was to go across the street to our uncle's house.  Needless to say we are still dealing with the cleanup and all of its after effects. My main concerns are for the air quality, water as we have well water and my children's health.  They both has asthma and one has constant breathing issues from asthma to allergies.  My husband stayed in the house the 2nd and 3rd night and was very sick the next day.  He was in denial as to how...
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24
Aug
0
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In Sickness and in Health: …Married to Your Doctor!

By Dr. David Jernigan of the Hansa Center for Optimum Health   Plum blossoms covered the trees on the hillside overlooking the house and garden. A warm breeze sent thousands of petals swirling up into the blue sky like a synchronized flight of white butterflies. As the breeze abandoned them aloft the flight broke apart into graceful catchers of sunlight as they drifted down eventually settling in a delicately scented caress on her body as Su Lin lay on her pallet in the garden as part of her prescribed treatment. The physician leaned over her administering his potent tea of carefully selected herbs. He would not be paid on this visit. The year is 821 B.C. and during the Zhou Dynasty of China the physician only gets paid if you stay healthy. It had been ten years since Su Lin experienced any symptom at all. She was just ten when...
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23
Aug
0
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Lyme Disease: Why Don’t I Feel Better?

The question that dominates most Lyme Disease Forums is why don’t I feel better, even after doing everything I can think of to get well. The dominant protocols are conventional medicine’s Long-term antibiotics, and natural medicine protocols; such as the Zhang Protocol, The Cowden Protocol, The Klinghardt Protocol, and The Jernigan Perfect-7 Protocol. The reality is that no canned protocol, natural or conventional, can do everything and cover every potential health issue. Most if not all of the natural protocols are designed to address the most common issues that lead to illness in Lyme disease. None of the protocols can address every issue, since not every issue needing to be corrected can be fixed with a pill or nutritional supplement. For example, if you dislocate your finger there isn’t a pill in the world that can correct that finger. You must find a doctor with the knowledge necessary to correctly...
Tagged in: Lyme Disease
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23
Aug
0
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Realities of Antibiotics for Lyme Disease

 Article by Dr. David Jernigan It may seem that I am 'anti-antibiotic treatment'; however, the reality is that there is a time and a place in which antibiotics can be beneficial for some people. Antibiotics are definitely not a solution I recommend if at all possible to avoid, due to the many, very real, direct, and unavoidable adverse effects on the integrity of the body, not to mention the potential for side effects and allergic reactions. I am amazed at how many people already know they are allergic to at least one class of antibiotic. The problem I have seen repeatedly is that a worsening of symptoms is expected by many doctors as an indication to them that the medicine is working -- the proverbial 'Herx' reaction. But how does one know when it is a true adverse reaction to the drug? Many, if not most, people we have tested...
Tagged in: Lyme Disease
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22
Aug
0
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Initial Blog - Allergies

I am hoping to get some feedback that will help me.  I do have 5 dogs that are house dogs.  They are all rescue dogs and I live in a very hot climate.  I can't put my dogs outside when the temp. is in the 90's or 100's.   I have been reading about the allergy problems that can come from dogs being in the house.  I have also found some very good information for dealing with it, such as --  no carpet no cloth curtains use a dehumidifier use a hepa air filtration system With this in mind, I think I will go ahead and pull up the old carpet in the bedrooms.  I have already eliminated the carpet in most of the house replacing it with wood or tile. You would never believe what is under that carpet when you pull it up.  Might as well be living in a...
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22
Aug
0
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American Biological Medicine™ - A New Healthcare Solution

By Dr. David Jernigan of Hansa Center for Optimum Health   American Biological Medicine is based upon a relatively new philosophy within what is generically termed Alternative Medicine. This new philosophy is called Biological Medicine. Biological Medicine recognizes that all aspects of the body, mind, and spirit must be addressed and brought into optimal integrity before lasting health can be achieved. Unlike other body/mind/spirit philosophies of the healing arts, American Biological Medicine is unique in that it is able to utilize the highly scientific, adjunctive diagnostic and treatment technique, Bio-Resonance Scanning™ (BRS), as well as conventional tests and the ancient healing arts of observation and intuition, to rapidly and accurately determine where interferences exist within the body, mind, or spirit. BRS helps to greatly diminish the educated “guesswork” of doctoring. BRS can be used to flow dynamically, in real-time, from interference-diagnostics to treatment selection and its correct application. The reason...
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21
Aug
0
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Medicine-Induced Illness

One of my “All-time” favorite newspaper cartoons pictured a doctor handing a patient a bottle of pills. The caption read, “Take one of these…and if you wake up in the morning, take another!” All humor aside, I want to pass on a medical truth that very few doctors even realize. Every medicine’s primary side-effect is also its primary action! The primary side-effect of an antidepressant is depression and suicidal tendencies. Your insomnia medicine’s primary side-effect is sleeplessness. The same is true for many natural medicines, which is a shocker to many people! The truth is that even if a medicine is perfect for “curing” what is wrong with you, as it is fixing things in the body eventually you reach the point where the correction is complete and you should discontinue the medicine. If you continue the remedy beyond the point of completion you literally go through the correction and...
Tagged in: MCS
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21
Aug
0
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The Spirit of the Virus

Black death, Plague, Pandemic, Ring around the rosy, 150 million dead, millions more maimed and dying… In the dark ages the Spirit of the Virus was all that existed - a death wind that blew no good. There was no such thing as science; no microscope to give the virus the crystalline form we know today. However, the Spirit of the Virus lives on today and is breathed to life in its gullible victims. It is known by many names, Swine Flu, Avian Flu, H1N1, SARS, Ebola… The masses slurp in every whisper of news about the impending virus and with crazed minds suspecting every tickle in their throat, every cough of their neighbor. Like the shadows of a setting sun the Spirit of the Virus moves across the landscape enveloping all in its path who beckoned it with their fear. The Spirit of the Virus is fueled by fear....
Tagged in: Vaccination virus
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21
Aug
0
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An Open Letter from Dr. Doris Rapp Regarding Environmental Exposures in Schools

Dr. Doris Rapp, MD
 [The following is an open letter from renowned environmental illness expert Dr. Doris Rapp. Posted with Full Permission. Permission further granted for recipients to foward.]     August 18, 2010   Dear Friends, I wonder if you would be willing to help me. Together we might be able to help tens of thousands of children. Alone I seem to do able to do very little. We Need To Get The Following Information To Our Schools:   Dear ------,   Dust, mold, pollen, foods and chemicals certainly can cause much more than cause asthma and hay fever. As you all know allergies can take on many forms and often affects how children feel, act, behave, walk, talk, write, draw, and especially learn. Many different areas of the brain can be affected. There is no doubt that it is possible to raise academic performance and attendance, while lowering infection, allergies, hyperactivity, behavior...
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19
Aug
0
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9 Steps to Eating on Purpose

9 Steps to Eating on Purpose
How many times do you just wolf-down your meal in a mad rush to finish before getting back to work? How many times are you eating out of obligation to just eat? How many times do you see undigested food in your stool? Gross, I know! Do you have food allergies? If you answered “Yes” to any of these questons it is likely you need to retrain yourself in how to eat on purpose. Maintain regular and consistent mealtimes. It is better to eat five smaller meals than three large meals. Before eating relax momentarily for 10 seconds, then begin eating. (Blessing your food in prayer – science has shown that this cleans the food, makes it more bio-available, more digestible, and consequently tastes better) Smell each item on your plate before you take your first bite, like sniffing your wine before drinking, which will awaken the taste centers in...
Tagged in: allergies MCS
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18
Aug
0
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Heavy Metal Toxins

We must change our body’s internal environment, so that it’s not the perfect home for microbes. Heavy metals are hugely responsible for weakening our immune system and setting us up for chronic and repeated infections. A significant portion of my book, Beating Lyme Disease: Living the Good Life in Spite of Lyme, discusses the methods and means to extensive detoxification protocols. What are Heavy Metals? The term ‘heavy metals’ refers to the over-accumulation of many different types of metals in the fat cells, central nervous system (brain, brainstem, spinal cord), bones, glands or hair. Heavy metals may include mercury, iron, lead cadmium, palladium, platinum, arsenic and nickel, to name a few. Common Sources of Heavy Metals 1.  Dental amalgam fillings 2. Cosmetics and antiperspirants with an aluminum base, and mineral powders containing bismuth. 3.  Vaccinations containing mercury or aluminum that are injected into your bloodstream. 4.  Use of conventional household...
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17
Aug
0
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It's Not In Your Genes; It's In Your Jeans

Did you ever wonder why you act the way you do, or why you suffer with certain types of illnesses? How you act and the physical symptoms you suffer from may have more to do with your ancestors than with your lifestyle. The theory of epigenetic miasms may explain some of what makes you uniquely prone to the types of problems you experience . This is not “new age” and is not genetic aberrations, but it is more of an epigenetic phenomenon. An Epigenetic miasm, by definition, is a predisposition, or tendency, of certain psychological and physical problems that are set in motion by illnesses in your family history going back seven generations, or acquired within your own lifetime. Epigenetic miasms are due to changes in the expression in genes that are not due to underlying changes in the actual DNA sequences. Epigenetic miasms are not to be confused with...
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15
Aug
2
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PESTICIDE POISONING IN PUBLIC HOUSING: SYDNEY

Greetings.  My name is Murray Thompson.  My son and I are victims of callous pesticide poisoning.  We have both been acutely and long-term exposed to termite pesticide solvent vapours in our public housing residence in North-West Sydney.  Although I had explicitly warned the Department of Housing (DOH) about my asthmatic chemical sensitivity on multiple occasions, two pesticide treatments were forced upon me resulting in a kaleidoscope of unusual symptoms.  Essentially, I have MCS, depression and a host of physical ailments.  My now 18 year old son is 115kg of pure rage and paranoia, although very controlled (substitute: repressed) and this to his considerable credit. My legal case against the New South Wales Department of Housing will go to trial soon in November 2010 at the New South Wales Supreme Court in Sydney (the file number of my case is 2003/00091442 and the hearing is listed for 15/11/10 in the Supreme...
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  • Maff
    Maff says #
    Dear Murray, You and your son have clearly been treated with nothing less than contempt by the DoH and the ignorance of the poten
13
Aug
0
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Chronic Fatigue Syndrome & Low Body Temperature

In Chronic Fatigue Syndrome there are many theories as to the cause. Some say it is the effects of heavy metal and chemical toxicity. Some say it is chronic infections, while others say it is the side-effects from vaccines and the use of suppressive medicines such as acetaminophen, aspirin, and ibuprofen, still others say it is dysregulated hormones or the effects of emotional trauma. It this author’s opinion everyone is correct in the same way as the proverbial three blind men describing an elephant from the head, tail, and the side are correct in each one’s description but only from his unique vantage point. However, in Chronic Fatigue Syndrome there is one common overriding finding…low body temperature! This article deals primarily with the very predictable problems seen in low body temperature and the profound importance of restoring and maintaining normal core body temperature. This is true not just in Chronic...
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11
Aug
0
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Why Detoxifying The Body of Lyme Toxins May Not Be Enough!

Research indicates that the majority of symptoms in Lyme disease are caused by the release of toxins by the spirochetes. If that were not bad enough, for most people in the United States, the daily accumulation of toxins just from living, eating, and breathing is staggering! Environmental toxins from our air, water, personal care products, medications, and food supply are jamming up the machinery of the cells, interfering with the regulation of the body. Toxins are a global problem. There is virtually no one on the planet who does not need to detoxify the body on a continual basis. Every person on the planet should be working to eliminate the sources of toxins in our house and life. Detoxification of the body must be a part of any effective Lyme protocol or one risks permanent damage to nerve and joint tissue from the toxic irritation. Today more than 77,000 chemicals...
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    adminv15 says #
    After 8 years of antibiotic protocols and getting sicker & sicker, I am glad to have found Dr. Jernigan's products. He is heads ab
10
Aug
0
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Fibromyalgia & Low Body Temperature

There are many theories as to the cause of Fibromyalgia. Some say it is the effects of heavy metal and chemical toxicity. Some say it is chronic infections, while others say it is the side-effects from vaccines and the use of suppressive medicines such as acetaminophen, aspirin, and ibuprofen, still others say it is dysregulated hormones or the effects of emotional trauma. In this author’s opinion everyone is correct in the same way as the proverbial three blind men describing an elephant from the head, tail, and the side are correct in their description of the elephant, but only from each one’s unique vantage point. However, in Fibromyalgia there is one common overriding finding…low body temperature! This article deals primarily with the very predictable problems seen in low body temperature and the profound importance of restoring and maintaining normal core body temperature. This is true not just in Fibromyalgia, but...
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  • adminv15
    adminv15 says #
    This is so true. My son and I run low body temperatures when we have too much potassium, too little sea salt, or a strong exposur
22
Jul
0
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Climate, Weather and Environmental Illness

Climate, weather and environmental illness
I was lucky enough to spend two weeks on holiday/vacation in Turkey recently to recuperate after over-exerting my body and brain completing my bachelor's degree in nutritional health. Being a resident of the UK with its, let's say temperamental weather, I really notice a change in how I feel (mostly good, some bad) when I spend time in a country where the climate is warmer and sunnier. This got me thinking that a good topic for a blog and dscussion would be how climate and weather affect the health of people suffering from environmental illnesses. Personally, my moods and energy levels are greatly influenced by the weather and the seasons and I have in the past been diagnosed with Seasonal Affective Disorder (SAD). Here in the UK it can be sunny one minute and raining the next at any time of year. When it is sunny my mood is correspondingly bright...
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22
Jul
0
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Green product Labels and Formaldehyde Free Insulation

Green with Envy Home Store receives many interesting phone calls and mails about product labels and ingredients in many green and not so green products.  This week, we received a few calls about a new miracle product that was advertised in a few different magazines and on the Internet.  These products always get us talking about ingredients and toxicity in the products that we use in our projects and sell in our  store.  A client mentioned the Fair Packaging and Labeling Act.  Please do not even attempt to read the Fair Packaging and Labeling Act.  This document is really confusing and the word “exempt” is used way too often.  In the past, we have tried to interpret this document and the political doublespeak is overwhelming.  If you want to check how business lobbying works in our government, browse this document on a rainy, wintry day.  A few important facts are...
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20
Jun
0
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Multiple Chemical Sensitivity June 23 2010

Well here goes, I have  multiple chemical sensitivity. I have had this for ten years or so. I now don't use any chemicals in my home I try and use natural products.  Family and Friends are very understanding, but anyone else seems they do one min and the next telling me it's all in my mind. More from when I was working I find it hard to find and employer who understands what I have and the people I work with. They think if its in a another room it will stay in there don't think so smells travel you can not say stay to it like a dog lol. But that is what I have had to deal with working. Doctors can be as bad finding one which understands that I can not use many items is hard. Also after waiting ten years I am now been sent to the hositpal...
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  • adminv15
    adminv15 says #
    I've been dealing with MCS over 14 years. I too use all natural products. I sure can relate to your story. I have a blog and would
17
Jun
2
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BUILDING A MCS SAFE HOME, SEEKING ADVICE

Looking for Friends with MCS and help building a safe home.  I recently suffered a house fire in a small town in Mt.  I am relocating to a healthier North Idaho area and have insurance money to rebuild. i am finding builders and materials providers with in depth knowledge of what MCS means to every day life and to building a safe home are few and far between.  even green builders say everything has to gas out and it takes an average of 5 years.  I would not be able to live to enjoy  my new house in that case..    No one seems to realize that if my house isn't safe, it's a death sentence to me.  I often feel terrified over living through this and ending up with a healthy home I can thrive in. My house was very small so my insurance co. has allowed me 4...
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  • adminv15
    adminv15 says #
    Hi my husband is in air conditioning. We both have mold problems because of his job. Now we think we have mcs to go along with i
  • adminv15
    adminv15 says #
    LEED was created by a non-profit not-government organization, the US Green Building Council. Indoor air quality is a major consid
  • adminv15
    adminv15 says #
    sungardenhouses.com has the best MCS, mold free house you can find, minus water-driven radiant floor heat and real stucco exterior
12
May
7
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Chronic Fatigue Syndrome, Environmental Illness, and Low White Blood Cell Count

White Blood Cells
 I feel I must apologise for my recent lack of blogging activity but I'm sure when I explain why you'll understand - plus the reason has given me the inspiration for this post! As regulars will be aware I have suffered from Chronic Fatigue Syndrome (ME/CFS) for a long time - since I was 11, so 20 years now. Like many ME/CFS sufferers I am also burdened by adrenal fatigue, low thyroid function, hypoglycaemia, Candida and Small Intestinal Bacterial Overgrowth (SIBO) amongst other things. I also suffered from severe Multiple Chemical Sensitivity for a number of years in my early 20s but thankfully was able overcome it (touch wood)! Like most suffering from environmental illnesses (or more appropriately here 'invisible illnesses') I have been constantly frustrated by the absence of any abnormal findings on conventional medical tests over the years. After all, if the standard lab tests are normal there can't possibly be anything wrong...
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  • adminv15
    adminv15 says #
    Hi stumbled across this site when trying to get answers for CFS. In September I had cystitus and required three doses of antibiot
  • adminv15
    adminv15 says #
    Hi there.. stumbled on your blog because recently I had a lab test come back with a really low neutrophil count and the doctor is
  • adminv15
    adminv15 says #
    Hey maff, I have been suffering with bacterial overgrowth issues for the last five years. The Antibiotics and the anti acid treatm
10
May
2
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Toxic Mold Recovery

Our family of 11 lost our home, our possessions, and our health to toxic mold in October 2008. We have been on quest for recovery ever since. Toxic mold is a serious health issue in our country and often misdiagnosed by the medical profession. Little is known about the health implications of fungus.  Our quest has led us to a primarily raw foods diet. We have re-located to the desert. I have a passion to help those who have connected their illness with their environment. My personal blog contains information about multiple chemical sensitivity, symptoms of toxic mold exposure, as well as  treatment options. In addition I provide links to trusted mold websites, as well as updates to our family's story. The blog is entitled "Our Mold Journey" and can be found here.

 

Toxic Mold RecoveryDynamic Neural Retraining Program (DNRS)

 

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  • adminv15
    adminv15 says #
    Mandy, I am so sorry to hear all of this. Life will get better for you. Would you mind emailing me directly? andrea@momsaware.org
  • adminv15
    adminv15 says #
    Hello. I've been exposed to Stachybotrys as well as high levels of Chaetomium . I've had the my too in panel performed and showed
  • adminv15
    adminv15 says #
    You are absolutely right Toxic mold is so much harmful for health.There are some chemical substances.You also provide treatment po
05
May
2
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May 2010 Multiple Chemical Sensitivity Awareness Month

by  Carolyn Cooper, MPH, RN Multiple Chemical Sensitivity awareness is one of the health observances for the month of May.  MCS is also variously known as Environmental Illness, Idiopathic Environmental Intolerance, and 20th Century Disease.  Over the course of the last 8 years I have become acquainted with a number of individuals who are afflicted with this often misunderstood condition.  MCS causes many of those who are severely affected to isolate themselves in order to take refuge from the synthetic fragrances and fumes that are ubiquitous in industrialized nations.  My interest in MCS resulted from experience caring for one of my hospital patients who is severely afflicted.  (Read about my patient's experience with MCS in my blog post from May of 2009).  Recognizing the lack of scholarly published literature to inform health care providers about the specific needs of the chemically sensitive in the health care setting, I eventually wrote a...
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  • adminv15
    adminv15 says #
    Every person has his or her opinion. For example, people care much more about their heath. so They would like to buy fitness shoes
  • Maff
    Maff says #
    Linda, The following is from SandyJo Johansen, a member of our Facebook page: "I found briefly visiting the hospital out of visi
  • Maff
    Maff says #
    Hi Linda, Sorry to hear about your daughter, having suffered from Chronic Fatigue Syndrome from age 11 and Multiple Chemical Sens
30
Apr
1
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Great site!

Wow. Great articles and information! I just found this site today while googling for information on Adrenal Stress Index testing. I have been greatly encouraged by the number of user posts on this site about this test and the path to "energy recovery" - the first step is always understanding the root cause. I look forward to reading more entries ...

 

Great site!Dynamic Neural Retraining Program (DNRS)

 

...
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  • Maff
    Maff says #
    Hi Renee, Welcome to the site and thanks for your comments. It's great to hear you have found some of the information helpful and
14
Apr
3
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First Post - Question Concerning Blood Pressure?

Hello...this is my first post.  I found this site a few months back.  Having a really bad day and decided I needed to come back here and look for answers. I'm currently experiencing once again high blood pressure and wondering it is a typical symptom of MCS? A little backgound history: I had a extreme exposure a few weeks before Thanksgiving ... Cashmere Mist Cologne at church.  EMS had to be called and taken to ER.  My blood pressure was 196/123...another reason the EMS wanted me to go to the ER even though I told them I just needed a few hours and I would be better. I also have been diagnosed with Fibromyalgia and Myasthenia Gravis in 1993.  MG causes extreme muscle weakness and I had a severe case of MG.  Through nutriution I had both of these well managed until 2004 when an exposure to lacquer varnish (at...
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  • Jake
    Jake says #
    Hi scrapyladyandmore, I can truly relate to your sufferings - I have MCS, CFIDS, FMS, Hashimoto's Disease. I collapsed one day wi
  • scrapladyandmore
    scrapladyandmore says #
    Thanks so much for your response...and yes I have meant to come back to note that I was treated for with pyridostigmine (Mestinon)
  • Maff
    Maff says #
    Hi Lajuana, Sorry to hear that you are suffering so much. I and many others can empathise with your experiences of being made sic
07
Apr
1
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Thank you

Thanks guys/girls for all your lovely messages of hope, encouragement and suggestions! I have some what come a long way in diagnosis since I worte the last entry. It appears I have ME/Chronic Fatigue as no blood test show anything conclusive (which is always the case). I am interested in this condition as currently I am finding it totally disabilitating and spending days in bed when I want to be doing things! Are there ways I can help myself?

 

Thank youDynamic Neural Retraining Program (DNRS)

 

...
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  • Maff
    Maff says #
    Hi Jess, I would thoroughly recommend you do exactly the opposite to what I did when I was diagnosed with chronic fatigue syndrom
28
Mar
3
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Ongoing Struggle

I would be interested to hear from anyone who has experienced or is experiencing similar health issues like myself and suggestions/advice would be most welcome! I have type one diabetes controlled by insulin pump therapy. I was diagnosed with this when I was 15 despite no-one in my family having had any history of type 1 or type 2 diabetes. Throughout my late teens and twenties I have experienced a range of illnesses such as constant urinary tract infections, IBS and two years ago Adrenal Insufficiency. Consultants/Doctors often blamed my illness on the lack of apparent control of my diabetes despite my protests that something else was wrong. When my adrenal glands were not producing the right amount of cortisol I started hydrocortisone steroids which appeared to make no difference to the fatigue I was experiencing. I began to get the side effects of steroids - moon face and fluid retention....
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  • adminv15
    adminv15 says #
    Hi Jess, You might be interested in this documentary that just came out,it's called "Simply Raw" it's about how 6 people with dia
  • Jesslm
    Jesslm says #
    Hi Matt, Please don't apologise as I more than aware how much time you must spend on achieving your goals and how draining it can
  • Maff
    Maff says #
    Hi Jess, Thanks for posting your experiences on the site. I know it can sometimes be hard for people to share (although often it
16
Mar
3
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Any suggestions for me?

My name is Victor.  I was born in smoggy Los Angeles in 1963 and lived there until the age of 15, when my family moved to Irvine, CA. My mother was a dentist.  I have been told that she kept me in a sterile environment as a baby.  My mother suffered from hypothyroidism after giving birth to me at the age of 42. She was born and grew up in the country of Latvia, which is low in iodine My father, also from Latvia, smoked up until the time I was about 10 years old. He had some psoriasis on the nails of his feet.  His sisters (my aunts) both suffer from psoriasis. Both of my parents had some slight allergies. My father suffered from sinus pressure. I did not have major health problems as a child. I do remember catching a cold about every six weeks. However, as puberty came upon me, some...
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  • lastofherline
    lastofherline says #
    Hi Victor, Thank you for sharing your story. I’m sorry for your suffering. Most of us understand that plight. My first questio
  • Airy
    Airy says #
    Hi Victor, I wanted to add that you should try to find a Naturopathic Doctor also called and ND. An ND can run specific tests an
  • Maff
    Maff says #
    Hi Victor - welcome to the site and thanks for sharing your experiences! Here are some replies to your blog that were posted on o
05
Mar
0
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Synthetic fragrances in public spaces a danger to health

Synthetic fragrances are increasingly being used as a marketing tool to create atmosphere and brand awareness. As such these potentially toxic chemical cocktails are being released into the air in enclosed public indoor environments such as shops and shopping centres/malls, hotels, car parks, gyms and even 'health spas'. These fragrances are often marketed as being natural and healthful which is often more than just a slight bending of the truth. Many such 'natural' scents are in fact wholly synthetic pterochemical concoctions which may act as neurotoxins and are certainly an infringement on the freedoms of people who suffer from multiple chemical sensivitity (MCS). The FreshAirFiend blog has been investigating this issue lately. Here are two interesting posts on the subject: http://freshairfiend.wordpress.com/2010/02/19/real-synthetics/ http://freshairfiend.wordpress.com/2010/02/26/more-on-real-synthetics/   These posts make a particularly good point about synthetic fragrances being used in gyms in that when working our respiratory rate and volume of air inhaled increases many...
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  • adminv15
    adminv15 says #
    Thanks for writing about stores' use of chemicals. This is a big concern and more research needs to be done so we can be informed
05
Mar
2
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Bile, Bowels, Bovered?

My health journey has taken some interesting twists and turns of late, the new area of interest being the liver. For the majority of my poor health I have had a gnawing ache under my rib cage on the right side. Twice my liver enzymes registered as normal and I dismissed it as a consequence of generally being fatigued and secondary to other health concerns. I'm now starting to give the liver a little more thought, interested by the traditional chinese medicine view of 'liver qi ('chi')' and it's impact on general health. After getting nowhere using adrenal supplementation I decided to trace back my steps starting with digestion. Perhaps I'm not absorbing nutrients effectively? After all most nutrients will pass through the body if the liver is weak - were my thoughts. Trying to boost the adrenals when your digestion is so poor must be akin to skating uphill..on...
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  • Maff
    Maff says #
    Sparky, Thanks for bringing up the subject of coprophagia as discussed by Dr. Myhill. It is certainly a concept that is not for t
  • sparky
    sparky says #
    Hi Konner been following your progress,as my mum has similar but not as sverre ibs as yourself. All I know about the TCM isthat
03
Mar
0
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Travelling through the World with EI

My EI has not acted up for awhile due to my diligent efforts to adhere to my routine.......except I had a reaction to Trader Joe's Rio Pink Grapefruit Juice because it contained filtrated water. My system is so sensitive that I have to drink ONLY natural spring water or I get bloated easily. I have to brush my teeth and rinse with only natural spring water, as well. Crazy. People like me with an EXTREME EI face fears of an outbreak when  travelling to another country. There is the notion that there will be no access to our usual products that are usually reliable like my Cetaphil. Also, now with the inability to carry liquids in our carry-on and the extreme baggage fees for excess weight ( I was charged 80 U.S. Dollars in India for carrying too many Cetaphil Gentle Skin Cleansers.....like they sell that in a small Indian village. ) , it is a challenge.   I remember the panic...
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03
Mar
0
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Issues with the Household Flea

Anybody with a pet will have experienced a problem with fleas and one point. There are over 2,000 recorded species of fleas in the world with around 100 in Europe and 60 or so species in the UK. They are wingless insects, and their bodies are hard and flattened from side to side, helping them move about in the fur of a variety of  animals including our pets dogs and even ourselves. Recently my dog, Mack (a crossbreed), experienced an attack of fleas.  He reacted badly as he had developed flea allergy dermatitis. He suffered with severe itching and balding patches. But why can these tiny creatures have such a great impact? I read that fleas have a unique structure to their mouths which allow them to spread various pathogens; "The dual function of a flea's mouth allow them to both squirt saliva and blood into the bite, whilst sucking...
Tagged in: fleas home pesticides pets
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28
Feb
3
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WHAT I DID TO CURE MYSELF....SO FAR...

Hello, fellow sufferers of Environmental Illness or Multiple Chemical Sensitivity ! I HAVE AN EXTREME VERSION OF EI. I wanted to share my story. When I was 18, I was a heavy crystal meth user for a year. A year later, when I began detoxing, I noticed the symptoms that would be classified as EI. It first started off with an immediate allergic reactions to ANY soap, detergent, shampoos, etc. Anything that was applied to my skin led to my heart racing fast, difficulty breathing, nausea, a " cloudy " feeling, an intense irritability. etc. I seeked over 12 doctors to figure out what this condition was. Lazy HMO doctors would dismiss it as psychological and refer me to a therapist. The therapist realized that my severe depression stemmed from this condition that cannot be classified by traditional medical terms. ( I could have told myself that. The therapy sessions...
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  • hennhouse5
    hennhouse5 says #
    Yes, we have to make choices. I surely can't go everywhere but here are some things I do to keep up with my family (husband,10,13
  • Yong
    Yong says #
    Hey, thanks for all your positive feedback. Maff, humor is laughing at tragedy and that's all you can do when your chips are down.
  • adminv15
    adminv15 says #
    When I'm suffering from a reaction (takes months to over come), I use tree soap nuts for my hand soap, shampoo and laundry by it's
27
Feb
4
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Soul Searching

Some personal thoughts I felt compelled to share. Highlights the complexity of emotions and feelings when one has multiple body wide symptoms. Broadly speaking physically and mentally it kind of feels like the culmination of almost a lifetime of not being 'free', instead being overly sensitive and stimulated by my surroundings that has culminated in a body that simply can't keep up, ahearing to ideologies and unhealthy traits outside of myself that have caused a disharmony that I'm battling to balance. The reliance on sugar and a manifestation of these feelings have left me where I am today, constantly looking for solutions. I've always looked to others to tell me what to do, and feel frustrated that I can't conjure up my own feelings of love, courage, commitment, creativity and joy. I'm stagnent in my ability to experience true happiness. One quick signal from the body, whether it's a sleepless...
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  • sparky
    sparky says #
    A body that cant keep up, thank you Konner youve put it very well. thats how i feel. I also feel like my mind cant as well, and on
  • Maff
    Maff says #
    Thanks Matt, It's clear to me you have all the tools you need to make big strides forward yourself so don't stop believing! And
  • konnor
    konnor says #
    Good stuff, What you've acheived is very impressive. Even a healthy bodied person would stuggle to generate an income from scratc
25
Feb
1
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Intro - I just joined

Quick synopsis of my situation... I have had what I found to be MCS since a head injury in Sept '05.  I donated blood, passed out and hit my head, waking up on the floor.  A week to the day after, I started to experience symptoms and through much trial, error, and turmoil, my husband and I partially converted our house away from natural gas use, I had to quit my job after 7 months of enduring feeling terrible there post injury.  I have found some relief to my digestive issues by avoiding most foods I have tested sensitive to, taking a probiotic every other day, and drinking lots of water.  We are currently about to undertake IVF with a reproductive endocrinologist, we had just started trying to concieve for about 2 months when I hit my head.  I am hoping for success as I am 35 and more than...
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  • adminv15
    adminv15 says #
    I was wondering if anyone has noticed severe pain from strawberry soda or strawberry margarita and, could this be a product contai
  • Maff
    Maff says #
    Hi Chris, Welcome to the site and thanks for sharing with us It sounds like you are doing many of the right things regarding r
17
Feb
0
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The harsh reality

Trying not to let me anger and frustration overflow too much, however I was given a stark reminder into the orthodox view of sub clinical chronic illnesses by my GP. As I have been experiencing more digestive related symptoms of late, including abdominal/stomach ache, pop bellied feeling, occasional nausea, flatulence, gas, bloating, loose stools, stomach burning and constipation, I decided to approach my GP for a general rendezvous, and perhaps the option of doing a H Pylori breath test.  Almost immediately I was ‘diagnosed’ as having IBS, then told my physical symptoms were a manifestation of my mental state, then told to take up yoga, rounded off nicely with the comment ‘M.E is a disease of despair’. So not only was I denied a simple test, but I was hit hard with some ignorant orthodox views. I left mildly flustered to say the least.  I’m trying to look at this...
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12
Feb
0
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Allergies make Valentine's Day a Tricky Affair

Allergies make Valentine's Day a Tricky Affair
 For those who suffer from allergies and intolerances, or have a partner that does, Valentine's Day is often not a simple affair. Places to eat, romantic home-cooked meals,  and traditional gifts all have their problems. Food allergies are a particular problem and can cause  symptoms including nasal congestion or a scratchy throat after eating a food. They can also cause serious problems such as throat closures, tightness, swelling of the face, breathing trouble and anaphylaxis (a life-threatening blockage of the airways). I certainly don't want to bring down the mood on what should be a celebration of love however...hopefully the following information will mean that you and your partner can enjoy Valentine's Day in each other's company...despite those troublemaking allergies!   A Romantic Meal Whether dining out at your favourite restaurant or enjoying a candle lit dinner at home, a romatnic meal for two is often a big part of the way couples choose to...
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27
Jan
5
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Overdue update - and referal

Its been a while since my last entry. I had nothing to report except various chemical exposures before christmas which wiped out 9 days of my life and another four pounds off my already pathetic 7st 10lb frame.  I think I qualify as size zero Uk size 6. I eat 3 meals a day when I am not ill (on those days I dont not even get out of bed) have been known to tuck into a whole bag of kettle chips! . I am just wiped out by chemicals in everything I cant afford organic everything so am at risk at every meal from potential toxic injury. I am free of dairy and gluten to free my body of further toxic overload and cant tolerate any food additives or preservatives. Well my Christmas money has been invested in supplements which I started taking  3 weeks ago. I am supposed...
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  • Sarahwineglass
    Sarahwineglass says #
    Good luck this year it must be really hard, congratulations for getting this far, the ups and downs are difficult to contend with.
  • Maff
    Maff says #
    You will get there Sarah. Great that you are so positive! I have been free from reactions for over 5 years now The studying is
  • Sarahwineglass
    Sarahwineglass says #
    Thanks Maff, Ever hopeful of a positive outcome! Hows the studying going?
24
Jan
0
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Book Review: The Relaxation Response

I've always viewed meditation as something I would like to do, but thus far have struggled to get motivated to do it. It's odd, and difficult to rationalise, but for some reason it doesn't come easy wanting to learn to relax. Perhaps this is a hangup of western culture in general, and the need to always be 'switched on'. Delving into the world of meditation can be daunting. There's mindfullness, transcendental, vibrational, zen etc and within that further deviations in technique and style. Involvement can range from a quick 4 point 5 minute breathing exercise to lifelong practise and teachings of all aspects of the meditation and culture. Naturally I didn't want to delve too deep into anything, particularly as my foggy brain would struggle with anything moderately weighty. After browsing amazon for all of 15 minutes, I settled on 'The Relaxation Response'. The book is slim, akin to myself,...
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22
Jan
0
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The work of The European Society for ME

European Society for ME - Research & Knowledge
 I received an email update this week on the work of the European Society for ME (ESME) that I thought you may be interested in. ESME is a Think Tank of top scientists in fields relevant to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) where the latest research and knowledge on the illness can be discussed and efforts made to propogate this to the medical profession to improve care for patients. ESME was founded just last year and had its launch meeting on June 13th, in Stavanger, Norway. The launch was well covered by the mainstream media and the following are summaries of this coverage with links to full articles and videos.   ESME Press Summary 2009 SKY NEWS - UK In connection with ESME's Think Tank meeting in Norway, Sky News aired a story on the 13th of June with the heading, "Could a Cure for ME be Near?" In the piece,...
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19
Jan
2
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Coming Home: My Adrenal Rejuvination Plan

With all the prolonged profound stress of the last decade my Adrenal Glands officially raised the white flag--some time ago. More recently, after the fire and through the sprains and facial fractures, they have sent me a series of increasingly louder signals that have brought me to my knees. From my knees, honoring the symptoms, ready to listen now... Thank you. I am finally ready to let my adrenals (and the rest of my body) guide me onto a path of taking better care of my whole being--or at least this little piece of the physical universe that I that I happen to wake up inside of every morning. Below is the start my "doctor heal thyself adrenal health plan". I offer it as a starting place for anyone considering their own need for deep rejuvenation from stress and adrenal fatigue. FOR THE MIND Holding the self in high esteem....
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  • Maff
    Maff says #
    I couldn't agree more - an excellent list of tips for the mind that everyone could benefit by living (or at least striving to) phy
  • konnor
    konnor says #
    Wowzers great list there. I wish you all the best on your journey. I myself am also dealing with AF and would be keen on keeping
08
Jan
0
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Neither herbal or pharmaceutical antidepressants help in irritable bowel syndrome

A study conducted at the Mayo Clinic and published this week in the January issue of The American Journal of Gastroenterology has found that the popular antidepressant herbal supplement St. John's wort is unhelpful for those suffering from irritable bowel syndrome (IBS). In a press release the lead researcher on the study, Yuri Saito, M.D., M.P.H., said that "Several of the chemical neurotransmitters that are in the brain are also in the colon. Therefore, it's been thought that antidepressants may affect sensation in the colon in a similar way to how they affect sensation in the brain. Our goal was to evaluate the usefulness of St John's wort in treating IBS." In discussing the outcome of the study Saito said "Because people tend to struggle with IBS for several years, patients are really looking for inexpensive, over-the-counter treatments such as St. John's wort. Unfortunately, our study showed that St. John's...
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08
Jan
1
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Hi!

hi so i'm new here at EiR though i have been to this website doing research ;) ok so about me: i'm 22 years old (just turned  decembre 26th ;P) and i love Art! my profile picture is my own work and my gallery is at www.laesdaw.deviantart.com (+1 for self promotion hahaha). i live with my twin sister and our two cats Mokona(Moko for short) and Kiki :)in an apartment in Ontario Canada in a very polluted city. I have been sensitive to perfumes for most of my life.  i first noticed when i was in highschool and the axe deodorant came out and i got such horrible headaches!. i apparently have had headaches my whole life according to my mom. recently(in the last year) i've been having most all the other symptoms of MCS. i haven't been diagnosed with it but i'm still waiting to get the questionnaire to...
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  • Maff
    Maff says #
    Hi Rachelle, Welcome to EIR and thanks for taking the time to share your experiences in the blog I think most of us who have s
06
Jan
0
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Stomach ulcer and Christmas hangover.

Going through a particularly tough time at the moment which could be due to a number of things. I unfortunately ended up binging on Christmas day, feasting on fruits, starches, stuffing, turkey glazed in who knows what, a bit of chocolate and lots of cashews. I was also constipated on the day itself, which wasn’t very pleasant and have had trouble with regular BM’s for a while now. I’m once again struggling with sleep, often only getting a few hours when I’m most backed up. This tends to ramp up the brain fog and anxiety. I suspect this could all be a prolonged hangover from indulging in too many treats at Christmas. Not much else has changed in my routine. I’ve also picked up what I believe to be a stomach ulcer, as it aches most when I don’t have food in the stomach. To address this I’ve decided to...
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06
Jan
0
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Aircraft Cabin Air Quality Survey

European Aviation Safety Agency (EASA)
Today I received an email from the Aerotoxic Association which campaigns for recognition of the health damaging effects of toxic cabin air on passenger aircraft. The email was a reminder that the deadline for the European Aviation Safety Agency (EASA) survey. If you have been affected by toxic fumes in aircraft cabin air please complete this important survey. The text of the Aerotoxic Association email is as below: There are only two days left until the deadline for the European Aviation Safety Agency (EASA) survey, and if you haven't completed the questionnaire, we would like to urge you to fill it in online now and email any supporting evidence. We appreciate some of the questions on the form may not fit in with your experience of this subject, and we appreciate you may have had several reminders from other sources, but it is vital EASA have as much data as...
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  • adminv15
    adminv15 says #
    So far all the aviation regulating authorities have been doing what they can to deny a link between contaminated cabin air and chr
31
Dec
1
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Films on health and nutrition

  I've stumbled across a few gems that I'd thought I would share. Supersize me Probably one of the more well known films about the fast food industry and it's impact on health. The premise I think is somewhat flawed, as not many people get close to eating fast food for every single meal. The results are bound to be bad. However as poor nutrition often degrades health over a long period of time, watching this accelerated experiment unfold gives us a very useful insight into what can happen with a high refined carb and fat diet. The highlights of the film for me are not the focus of the main character, Kevin Spurlock, but in broader areas of food such as school meals and the profiteering of the grocery industry. Overall: 7/10 http://www.imdb.com/title/tt0390521/   All Jacked Up This was an independent film I stumbled across quite recently that focuses...
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  • Maff
    Maff says #
    Hi Matt, Great post! You actually beat me too it as I was sent a copy of Food Matters on DVD before Christmas but haven't had cha
30
Dec
1
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New year, new focus

As another year draws to a close I’m strangely looking forward to the year ahead.   Last year for me was mainly spent acquiring knowledge and bumbling a little bit as I got to grips with my health problems. I laid allot of foundations, but at times had a hard time executing them, whether it’s a dietary and supplement plan, regular meditation or sticking to Spanish revision. That said I’ve learned allot about myself, about the deception of food and pharmaceutical companies and good all round green living. I feel empowered to use natural, raw, organic foods and products that are closer to what nature intended and of more benefit to the suppliers. Whilst never being a ‘crusader’, my own experience has left me eventually wanting to help others when in a fit and able state to do so. The success stories of people within these communities acts as inspiration...
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  • Abi75
    Abi75 says #
    Good for you, Matt. I've been thinking along very similar lines: no more discecting everything to death, stop researching this con
20
Dec
0
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Intolerant, allergic, sensitive or addicted?

There are quite a few terms to describe how one reacts to food. It's such a common symptom of environmental illness yet the causes and manifestation of symptoms vary greatly from person to person. I've had many fun experiences with food over the years I have been ill. Sugar and refined carb addiction was the first to strike and an upbringing of processed flavours from sauces, marinades and dressings. I rarely was able to eat any sort of food, whether it was salad, vegetables, or meat without ketchup, salad cream, brown sauce or similar. These two dietary faux pa's I believe blunted my natural repsonse to flavour from food. When I became ill, dairy was very high in my diet. As a source of protein and fat it served a purpose to smooth out my blood sugar response in the early stages of hypoglycemia, and is still widely promoted as...
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19
Dec
0
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The Loneliness of the long distance Hypothyroid Butterfly

Well it all began, what seems like an eternity ago, we had just come back from the most wonderful holiday, I was oh so much in love. I had to pinch myself I was so happy! He loves running so I thought I'd join him, but I couldn't keep up, it was like my fuel tank was empty, I knew something was wrong! All my life I've been what can only be described as hyper, I never could sit down, was forever hungry and never put on an ounce. It hit me like a ton of bricks, if I'd been a horse they would have shot me, put me out of my misery! Can you imagine the worst flu you have ever had, well times this by two and you might still not feel as bad as I was feeling! I put on three stone and I was starving myself,...
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18
Dec
5
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Zhu Zhu Pets Go Go Hamsters and Toy Safety At Christmas

Mr Squiggles Go Go Hamster
If there are two words that should surely not lay in close proximity to each other, "toxic" and "toys" are they. Yet headlines including the words "toxic toys" have been everywhere for the past few weeks triggered by an independent investigation in the US that claimed to have found high levels of the toxic metal antimony in not just any toy, but the Mr Squiggles version of the Zhu Zhu Pets Go Go Hamster toy, set to become the biggest selling Christmas toy ever with some stores having already sold out weeks ago in the US, UK and other countries. The consumer watch group GoodGuide tested the Mr Squiggles version of the cute little Go Go Hamster toy and found antimony at levels of 93ppm (parts per million) in its fur and 103ppm in its nose. In the US the Federal legal limit for antimony is 60ppm. Co-founder of GoodGuide and associate professor of environmental science at...
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  • DeniseB
    DeniseB says #
    Yes, I learnt so much last year. Like sometimes you have to let go of the one you love, just to see if they love you enough to com
  • Maff
    Maff says #
    Great to hear things are going well and you're so positive about the year ahead Denise! I hope you'll continue to visit us here an
  • DeniseB
    DeniseB says #
    Hi Matt, the weather may be cold but I'm feel warm inside, the sun is mostly shinning in my world. I am so much better this year t
08
Dec
2
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Choosing a practitioner

With my ASI test results imminant, I've narrowed down who I'm likely to approach as a practitioner to 2 options. Chronicfatigue.org is a non profit CFS center based purely on the approach that treating the adrenals will help with CFS. They have a couple of books I would love to get hold of as and the shipping looks reasonable. Had a brief email exchange with the N.D there, and I was impressed with there knowledge of interpreting and treating the different stages to the ASI. He also seemed aware of the potential paradoxical and stimulatory problems that can crop up as a result of ones individual response to treatment, making me feel like I wouldn't simply get a shotgun of nutrients that will only go towards making me feel worse. The cost is likely to be low as well, charging per minute. The UK practitioner Dr Peatman is my second...
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  • konnor
    konnor says #
    Hi Abi, It was a bit of a random find during my many hours researching. Appealed to me being non profit and focused almost enti
  • Abi75
    Abi75 says #
    Hi Matt - just looked at the chronicfatigue.org website. Apart from the eye-soar of a background pattern, it sounds interesting. H
02
Dec
2
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My Cocoa emergency

Continuing the theme of a fairly rocky few weeks, last night culminated in an extremely distressing situation.  Cocoa is an interesting food. Some people sware by its antioxidant and magnesium rich properties whereas others report shot adrenals,  stimulation and a general worsening of energy levels and symptoms. Broadly speaking its a significant step in the right direction when compared to your average western chocolate bar, which is mainly made up sugar, fat and cheap fillers. Proper chocolate is predominantly cocoa mass and cocoa butter, and some sugar depending on the percentage. It's simple logic regarding healthier foods - The fewer, purer ingredients it contains, the better it generally is for your body. So I decided to experiment with a reasonable amount of cocoa, making sure to balance the intake with other protein and veg. The good news initially was it didn't taste addictive, or seem to swing my blood sugar........
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  • konnor
    konnor says #
    I have developed a taste for redbush lately too! ...........
  • Maff
    Maff says #
    Wow that was a pretty severe reaction you had there konnor, glad it didn't last too long. Sounds like you're hypersensitive to the
  • adminv15
    adminv15 says #
    No snowman soup for you this year then! Just bought a great apple and cinnamon herbal tea from Holland and Barrett, smells like Ch
27
Nov
4
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Chronic Illness and the Holidays: Finding the Positives

Chronic Illness and the Holidays: Finding the Positives
 For those of us suffering from environmental illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple chemical sensitivity (MCS) and gut problems including irritable bowel syndrome (IBS), leaky gut syndrome (LGS) and Candida it can be hard to stay positive and enjoy life at any time of year but the holidays can be particularly difficult. Just when the generally healthy majority are taking time out, indulging and letting their hair down us 'canaries' can often find life even more of a struggle than normal. At Christmas people are told to "eat, drink and be merry" - and most people happily comply but this poses a problem for us unfortunates. First of all there is the eating. Most of us will have some kind of dietary restriction whether our own bodies have told us to avoid certain foods, we've discovered the "baddies" through our own research, or we've been put on a...
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  • adminv15
    adminv15 says #
    Thank you all so much for sharing this. Just when I was starting to feel the dread of the holidays, you've given me back the jolt
  • konnor
    konnor says #
    Fantastic news Nicole. Lionel would be proud! Getting a regular nights sleep is such a core component to good health that I'm sur
  • adminv15
    adminv15 says #
    Slept through the whole night last night for the first time in 6 months..woo hoo! It might seem like a really small thing but to m
27
Nov
0
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fibro and cold weather

hi, i am new here. i have fibro and cfs since 2000. i live in a cold climate(very cold). does anyone have the experience of moving to a warm climate and it helps the fibro??...
Tagged in: CFS FMS
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  • adminv15
    adminv15 says #
    Hi cinny I have had CFS for more than 10 years and moved so Arizona a few years ago. I have to say I do feel quite a bit better l
24
Nov
3
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My old diet. Read at risk!

Thought I'd post this, to provide some shock value.   Pretty much my complete diet from when I was a child to 2 years ago (roughly age 5-22) consisted of the foods below. I've gone in and colour coded items, red for very bad, orange for bad and green for good.   Instant noodles, coco pops, corn flakes, rice crispies, sugar puffs, cheerios, golden grahams, weetabix, shreddies, wheetos, special K, milk, cheese, eggs, dolmio, white pasta, pastries, chicken pies, chicken kievs, mushy peas, crisps, tortillas, snack a jacks, golden syrup, chocolate, powerade, lucozade, red bull, Ribena, Vimto, Blackcurrant, instant coffee, tea, frozen vegetables, smoothies, baked potatoes, tinned beans, tinned chilli con carnie, pre packed sandwiches, mayonnaise, ketchup, salad cream, ham, cooked chicken breast (prepacked), turkey breast (prepacked), salad, crusty bread, porked pies, scotch eggs, salami, Cornish pasties, corned beef, takeaways - McDonalds, Burger King, kebabs, Indian, Chinese, subway, pizza, ready...
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  • Maff
    Maff says #
    Hi Nicole, A long course of anti-malarials without concurrent use of probiotics to maintain your gut flora could certainly have t
  • adminv15
    adminv15 says #
    I suppose that's a godsend I do have as far as self-diagnosis is concerned. I can trace the start of my illness directly to the po
  • konnor
    konnor says #
    Cheers fella. Anyone would think your studying in this area..... Your probably right about genetic susceptibility and medication
21
Nov
1
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Oh dear...

Unfortunately continuing the negative trend of blog entries. So about half an hour ago, I ate the equiverlant of a whopping 200 grams of sugar. Short of putting a bullet in my brain, this is quite possibly the worst thing for someone with my health troubles to do. It was fuelled by an insatiable craving, and what were christmas presents for friends soon became presents for the evils populating my gut. Naturally I'm fuming about it. I've not fallen off the wagon this much for over a year. I stared longingly at the packet for a good few seconds and reminded myself 'you have a choice' but still couldn't control the urge. This is the second time in as many months that I've succumed to eating gifts I'd plan to give to others. The first occasion wasn't quite so severe, gorging 2 agave nector based cocao bars from a health...
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  • Maff
    Maff says #
    konnor - I can certainly relate to the cravings and would be lying if I said I hadn't done exactly the same as what you describe o
  • adminv15
    adminv15 says #
    I think the isolation is the hardest part for me. My colleagues and friends have been semi-understanding as far as this ridiculous
20
Nov
0
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Facebook for Environmental Illness and Unexplained Chronic Illness Sufferers

Facebook and Environmental Illness Support
 Once upon a time Facebook was the domain of students who used the social networking site to keep track of friends and share their academic and non-academic exploits. However, since Facebook opened its cyber-doors to the the online community at large it has grown into much more and believe it or not it now has much to offer people who are struggling with what we call 'environmental illnesses' on this site, but may also be termed 'unexplained chronic illnesses' or 'invisible illnesses'. We're talking chronic fatigue syndrome (ME/CFS), fibromyalgia, multiple chemical sensitivity (MCS), irritable bowel syndrome (IBS) and others. On Facebook you will now find a multitude of interactive pages and groups devoted to these illnesses that both provide information and act as support and advocacy groups. Since many suffering from these illnesses are housebound these are ideal as an alternative to support groups in the real world where you might...
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  • Maff
    Maff says #
    Thanks for your suggestions guys. I have joined the adrenal fatigue group which seems to be a very active and useful group. I also
  • adminv15
    adminv15 says #
    I have MCS but before I was diagnosed I started this group Creation of a Scent Free Envirnoment http://www.facebook.com/group.php?
  • konnor
    konnor says #
    There's a relatively small but growing group for adrenal fatigue here... http://www.facebook.com/#/group.php?gid=6057629851&ref=m
13
Nov
0
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CDSA Interpretation - Microbiology

CDSA Report - Microbiology
Continuing my series on interpreting the sometimes confusing results of the Comprehensive Digestive Stool Analysis (CDSA) today we're going to look at the Microbiology section.   Beneficial Bacteria By now almost everyone has heard of so called "beneficial" or "friendly" bacteria, thanks mainly to probiotic yoghurt advertising that seems to be everywhere these days. Beneficial bacteria are in basic terms seen as the good guys within a huge community of bugs that inhabit our gastrointestinal (GI) tract. A lot of research has gone into understanding their role over the past few decades. Some of their benefits include: - Physical crowding out of less desirable microorganisms - Production of antimicrobial substances to keep pathogens at bay - Breaking down bacterial toxins - Production of short-chain fatty acids (SCFAs) which keep GI tract cells healthy, provide a source of energy and help to maintain a healthy GI tract pH. - Digestion of proteins -...
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08
Nov
9
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More intolerances

It looks like I have more food allergies going on, to accompany a slowly declining state of health. I'm certain chronically high insuling levels are really causing me some problems, along with the intolerances. So, I'm stood at a crossroads with about 5 routes to choose from! - I've done all that I can to control hypogylcemia over the past year yet still feel insulin is high and blood sugar continues to drop regardless what i eat. - I've been taking all the nutrients and lifestyle tip suggestions for adrenal fatigue, and not noticed the slightest bit of improvement over the past few months. I still think this is a factor as occasionally when my blood sugar is low and I wait it out a bit, it begins to stabilise, suggesting an adrenalin response. If I had the money to, I would approach Dr Lam with my case. - Liver...
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  • adminv15
    adminv15 says #
    Now that I'm a social pariah, really don't have much else to do! LOL! Hey don't you have another blog somewhere? Under a different
  • konnor
    konnor says #
    Not a problem Nicole. I did try to convey the truth of the situation in the 'day in the life of' post rather than just a negative
  • adminv15
    adminv15 says #
    Inspiring? No, it wasn't :-)...but I think many people find it hard to put into words how this kind of thing makes us feel and how
06
Nov
2
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Low Stomach Acid Test: Home and Lab Methods

Low Stomach Acid Test
 Low stomach acid, or hypochlorhydria, occurs when the the parietal cells lining the stomach are unable to produce enough acid (HCl) for whatever reason. Low stomach acid can be a significant problem since sufficient amounts are required for a number of purposes. Firstly stomach acid is required for the digestion of proteins. High acidity breaks down the bonds between protein fibres allowing proteolytic (protein digesting) enzymes to go to work to further digest protein in the small intestine. Secondly, stomach acid is needed to liberate essential minerals from food so they are present in their unbound ionic forms which can then be absorbed. This is true for important nutrient minerals including calcium, magnesium, zinc, copper, iron and selenium. Stomach acid is also required to liberate vitamin B12 from meat, its main dietary source. Finally, acid acts to sterilise the stomach, killing bacteria, yeast and parasites that may be ingested. The symptoms of low stomach acid can mimic those of...
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  • adminv15
    adminv15 says #
    The simplest and most effective test for gastric HCl is a Kinesiological Test. Arms stretcged out in front of you with back of the
  • adminv15
    adminv15 says #
    You do not want to take neem, or any other drug, to reduce stomach acid until you have determined for certain that you are making
  • adminv15
    adminv15 says #
    Hi, thanks Sarah, i checked out www.ayurveda-yoga.co.uk and Neem was buy one get one free! Lets hope it works!
30
Oct
3
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Halloween - Allergies and Chemicals Make it a Scary Night for Kids and Parents

Halloween: Allergies and Chemicals Make it a Scary Night for Kids and Parents
 Without going into the history and traditional meaning of Halloween, these days October 31st is seen simply as a night for kids to dress up and have fun with the added bonus of treats a plenty being dished out. However, there is a darker side to halloween and it doesn't involve any real life witch craft, ghouls or ghosts - it comes in the form of allergies and more menacingly the toxic chemicals used in Halloween costumes. For families with kids that suffer from allergies, Halloween can be a 'tricky' time indeed. Without careful supervision and precautions kids can end up eating foods to which they are allergic, particularly hidden allergens such as unexpected food additives. Even the vigilant can be caught out by cross contamination as safe treats come into contact with allergenic treats in bags and containers and kids share between themselves. It's not only foods that can be allergens. Make up,...
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  • DeniseB
    DeniseB says #
    Thanks Maff, I've have a new bed coming next week, I will be sure to open the windows as you suggest. Denise
  • Maff
    Maff says #
    Hi Denise, Well I'd hate to be called an alarmist but you are probably not far wrong when it comes to many everyday products. Cer
  • DeniseB
    DeniseB says #
    Hi Maff, I've come to the conclusion that just about everything is potentially dangerous these days. I was bought a new silentnig
26
Oct
2
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A Thorough Disagreement to the Theory that Fibromyalgia is simply Psychosomatic

Wondering if there's any truth to Fibromyalgia being a case, or in part a case,  of Psychosomatics.  Everything's connected sure.  But must i read the whole book in order to find out whether it is indeed either caused, or sustained by psychosomatics? The Divided Mind: The Epidemic of Mindbody Disorders by John E. Sarno, M.D. And if it is trauma/stress that effects a weakening of the immune system initially, how could one attribute it to simply mood or the mind?  For instance, if the trauma was physical, that does mean injury happenening to the entire body.  (which does include the blood and also therefore brain.)  (For instance, some shady antibiotics do not and yet some do pass the blood brain barrier.  So who's to say that an antibiotic, for instance, couldn't poison a person directly. . . There sure have been more and more stories coming out about how some...
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  • sparky
    sparky says #
    Hi Eireann Just read your article, I think we've been reading the same books!!! I have read Dr sarnos books, and while they anno
  • Maff
    Maff says #
    Hi Eireann, Welcome to the site and thanks for such an informative and thought-provoking first post! You've provided links to som
25
Oct
0
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Fullness and sleep

 I've started to notice a shift in some of my symptoms which may be good or may be bad. The first is I'm waking up less in the night and able to sleep in longer. Waking up in less in the night must be a good thing, and naturally sleeping in longer I guess could work both ways.  I'm still yet to get tired before 12 which is the main aim and will need to think about ways to achieve this. The other symtpom which actually changed a few months ago is the food, stomach, potential blood sugar problem. To sum it up, after I eat my stomach has that emptiness feeling soon after, from 1 hour onwards. I don't feel hungry in the sense I want to eat and I don't think my blood sugar is at fault. Even the most severe hypoglycemics I doubt would drop after 1...
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23
Oct
1
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Swine Flu Vaccine Worrying Many Natural Health Experts

Swine Flu Vaccine Worrying Many Natural Health Experts
Since the first reported cases of swine flu, or influenza H1N1, were reported in Mexico in the early months of this year the subject has hardly been out of the media. Much of the coverage has been sensationalist and misleading and has led to what many natural health experts are saying is unnecessary public panic over the disease. In a Special Swine Flu Update published on the highly popular Mercola.com earlier this week Dr. Joseph Mercola brings our attention to a study published in the the British Medical Journal:   'A thorough , comparative analysis of several flu pandemics has been published in the prestigious British Medical Journal, that gives evidence that the H1N1 swine flu is of "the same subtype as seasonal H1N1 that has been circulating since 1977." The author points out the substantial confusion between the high public attention the present H1N1 scare is receiving and the very...
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  • The Vaccinator
    The Vaccinator says #
    This 'flu' was engineered in a lab so the only way that you would know if you had it would be a dna sequence of recovered virus, b
22
Oct
1
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Depression questions

I have always wondered how bad depression could get when you're a teen in high school. Could it be controlled? Or could you make it stop?This is one thing I want the answer to. How many levels are there?...
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  • Maff
    Maff says #
    Hi, There are many degrees of depression and it can be a very serious illness. Age doesn't matter and as a teenager there is no d
16
Oct
0
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Is a Cure for Chronic Fatigue Syndrome Really a Big Step Closer?

Since Thursday of last week when news of research linking the XMRV retrovirus  to chronic fatigue syndrome hit the headlines many patients (and I suspect their doctors) have been wondering what exactly this finding means. The amount of media attention this discovery by the Whittemore-Peterson Institute for Neuro-Immune Disease (WPI) generated in the press was unprecedented. After having the WPI press release delivered to my email inbox, the next day my mum handed me a copy of The Independent (one of the major "serious" national newspapers in the UK) with a front page article asking 'Has science found the cause of ME?' There was also an editorial piece coming down squarely on the side of us much maligned chronic fatigue syndrome (ME/CFS) patients and concluding that it was about time we were taken seriously. It is rare to find any ME/CFS news in the mainstream media but the story was the same across...
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  • adminv15
    adminv15 says #
    Good-day every one, my name is Mike Clinton, i want to share my experience with the general public on how i got my hiv aids cured,
  • adminv15
    adminv15 says #
    By ALISON YOUNG-The Atlanta Journal-Constitution Sunday, April 26, 2009 http://www.ajc.com/metro/content/metro/stories/2009/04/26/
  • adminv15
    adminv15 says #
    from Hillary Johnson’s blog at http://www.oslersweb.com (I love that woman’s writing and detective skills!). Ms. Joh
11
Oct
0
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Television blues

The good news this week was I managed to shake off a virus which had troubled me for almost a week. It's possible it was swine flu, however whilst I felt like garbage, I could still function relatively well. I managed to get into work but they were a few of the worst days I've ever experienced. I'd had about 3 hours sleep between 2 nights.  It's the first time I've experienced flu since becoming noticeably sick just over a year ago, and it took some determination not to reach for the ibuprofen or paracetamol. Instead I opted to increase my vitamin C intake and take colloidal silver. I was noticeably better after a couple of days however I can't be sure whether it was my bodies natural defences or the supplements. Perhaps a bit of both.   A good weekend with my friends and a lazy day in front of...
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06
Oct
1
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Mineral analysis results

I have had the results of mineral analysis. I have yet to have nutrioninst follow up this will be Friday. Initial results low Mg. K(None), Cu, Mn  and probably zinc. "probably zinc?" Not very scietific I know but Its in my shampoo so therefore accurate measurements cannot be taken. I am a slow metaboliser. I have had the dietry restriction of a slow metaboliser for 18 months or so other factors have to be involved. I will speak to my GP to see if they show any interest in these test of following them up.  The detox diet has made a huge difference to my day to day well being and generally on the up (excluding chemical exposure) but have just been knocked sideways by a huge bout of depression following mineral supplement and very small chemical exposure over the last 2-3 days. Sensitivities are back to where they were...
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  • Maff
    Maff says #
    Hi Sarah, No problem regarding the supplements I recommended. But yes, do discuss them with your nutritionist. I hate to say it
03
Oct
1
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Virus takes hold

Well it was to be expected really. There is so much going round at the moment that all it probably takes is walking into air that has been freshly coughed into. So I picked up a virus. Couldve been swine flu or something more generic, I can't tell. In anycase the past week has been horrible. I'm about 60% better after feeling my worst around tuesday/wednesday time. I've kept on my supplements, increasing the vitamin C by 2g to 8g daily, and I've felt this has helped significantly. I'm also trialling some 10ppm colloidal silver, 3 tablespoons daily for a couple of days to see what happens. Alot of people claim this can clear up viruses fast. When I'm feeling a little better and get round to it, the original plan for the silver was as a nasal rinse for my post nasal drip. I plan to mix it with...
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  • Maff
    Maff says #
    Hi Konnor, Glad you seem to be getting over your virus. I'm sure the extra vitamin C helped as it has many functions in the immun
29
Sep
3
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Booze and Bagel

So much for the steady week! After a good week and a reasonable schedule of events lined up over the weekend, things were looking good. Unfortunately being surrounded by a thousand university students in the union club led me to break my 1 year and 2 month restriction on alcohol. Not only did I falter but I faltered in style, swiftly downing 2 double vodka's and 2 double gin's on an empty stomach. Surprisingly the rest of the evening didn't go horribly. My blood sugar didn't swing nor did I feel anything hugely abnormal from the usual experience of 4 double shots in a row.  However it's now the early hours of Tuesday morning from that Saturday night out and I feel like death.   Since I was in the mood for breaking restrictions, I thought I'd also go for a McDonalds breakfast on Sunday morning. This was the real...
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  • dianemarie
    dianemarie says #
    Oh I see. Sorry about your flu! Could be die off too though, expecially if you are on antifungals. What about anxiety - I sudde
  • konnor
    konnor says #
    Well it looks like I may have flu, potentially of the swine variety. Usually my die off symptoms are mild flu like symptoms. More
  • dianemarie
    dianemarie says #
    Well I am only now at your most recent writing. Can you please tell me what type of reactions you get from die-off? Mine are alm