EiR Blog

A Blog For Those Affected By Environmental And Invisible Illnesses Written By Fellow Survivors

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07
Feb
1
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Genetic and Environmental Factors in Health and Illness

I am lucky enough to be spending two weeks in California having arrived on Wednesday of this week.  So as a UK resident I had planned to write a blog entry about how the extra daylight hours and sunshine had improved my mood and energy levels as they always do when I visit at this time of year.  ....the only problem being that as soon as I arrived a major storm system also did so! After weeks of 80 degree temperatures and wall to wall sunshine in California I am yet to see more than a glimpse of the sun. Typical! So with little time to come up with other blog ideas I thought I'd discuss a subject that I believe is important not just in environmental illnesses but in illness in general. As part of my degree in nutritional therapy I recently heard a lecture by Khush Mark, Ph.D. Khush is...
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  • Maff
    Maff says #
    Thanks for the welcome Bill. It's still raining (and hailing) up here in LA so I guess my plan for some winter sun hasn't paid off
30
Jan
3
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Symptoms and Progression of Multiple Chemical Sensitivity

This week I thought I'd try to get all you multiple chemical sensitivity (MCS) sufferers involved and conduct a kind of survey so we can see the most common symptoms of the condition and how it develops in different people. I hope this is an idea that interests you and you'll get involved by leaving comments below. First of all I'd like to discuss my personal feeling on what MCS actually is. There has been a lot of confusion among both doctors and patients about whether MCS is an allergic condition or a neurological condition. My personal feeling through experience of the illness and reveiwing the available scientific literature is that it is most definitely a neurological disease caused by neurotoxicity (toxic damage to the brain).  A leading theory which I believe to be along the right lines involves a process called 'limbic sensitization'. The idea is that either acute or chronic...
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  • Maff
    Maff says #
    ...If addressing Th1/Th2 balance has helped you in the past you might want to look into low-dose naltrexone (LDN) with your doctor
  • Maff
    Maff says #
    Hi Samantha, Sorry to hear you have now developed MCS along with your already debilitating conditions. We do sound very similar a
  • adminv15
    adminv15 says #
    Hi maff, the sensitivities you had sound a great deal like the ones Im suffering with now. I am currently sat here writing this wi
23
Jan
12
Posted by Posted on in EirBlog
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High Dose Vitamin D Therapy for Seasonal Affective Disorder (S.A.D.)

Vitamin D Injections
As part of my illness I have suffered greatly with Seasonal Affective Disorder, known also by its appropriate acronym - SAD. I notice large seasonal variations in my mood, energy levels and other symptoms and also day to day variations depending on the weather. Even a cloudy or rainy day in summer can make me feel depressed and sluggish. I have recently tried high dose vitamin D treatment after seeing studies that showed very positive results and wanted to tell you about what it has done for me. First though I want to talk a bit about my experience with SAD. There was a time before I knew about SAD and realised I had it when I felt suicidal each year from October to March. All I felt was total despair and spent most of my time in bed. If I hadn't still been living at home with my parents...
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  • Maff
    Maff says #
    Hi perihelion, Sorry to hear you are also a SAD sufferer. I too get to the point of things being life-threatening with it if I do
  • adminv15
    adminv15 says #
    Hi Maff, I read this article with interest, as I am a lifelong sufferer of SAD, which can be life-threatening severe for me if un
  • adminv15
    adminv15 says #
    Thanks! Have a great day!
20
Jan
5
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My battle for health.

Trying to put it in a nutshell for my forst blog post. All comments will be warmly received. I have had Fibromyalgia and Chronic Fatigue Syndrome for a few years but it has I feel slowly crept up on me. I didn't happen overnight. I no longer work. I used to be a Senior Clinical nurse in General and Mental Health. I have Irritable bowel Syndrome, Ulcerative Colitis, Chronic back problems due to old car accidents and work injuries. Other things I experience are chemical/light/noise/skin/food sensitivities. I also have Depression and anxiety. Along with this I get facial nerve pain, sinisitus, waxy ears, sleep problems, fatigue, brain fog, jaw pain, flue and arthritic like symptoms After a few years dealing with insurance companies, social security, specialists and doctors, alternative therapists , tests etc etc, I am now fairly well. I had chronic systemic candida treated, discovered my food sensitivities, sorted the sleep...
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  • DeniseB
    DeniseB says #
    I never knew it was so difficult to get proper medical care until I got ill. I think we are all on a learning roller coaster and I
  • MissyG
    MissyG says #
    Thanks Carole for the above info. I have been treated by an holistic doctor and have had urine, blood an foeces tests, which confi
  • adminv15
    adminv15 says #
    Hi Missy, You are experiencing the same illness that I have had for several years and I am close to being healed, so I'll share th
16
Jan
6
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SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient Brain

SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient Brain
Hi everyone, my name is Jason and I am a multiple chemical sensitivity (MCS) sufferer. Like anyone who has MCS I have had a hard time convincing anyone (friends, family, doctors) that I am actually sick. Recently I managed to get a SPECT scan of my brain carried out which has given me visible proof that I am actually sick. I thought many of you here would be interested to see the scans so wanted to post this blog.  Just so you understand the scan more clearly- it is the scan and function of 'my' brain overlapping the 'Normal' healthy functioning image of an adult brain.  I try to point out the graphing system used on the side with my finger.  If my scan was functioning within the normal range there wouldn't be any color deviation away from the color 'gray'.  Where it is gray colored is where my brain's functioning (cerebral blood flow) is...
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  • javan999
    javan999 says #
    Hello- this is 'my' scan posted online. For ONLY those seeking more information, you may contact me, otherwise, NO commercial con
  • adminv15
    adminv15 says #
    This blog has been written about SPECT Scan of Multiple Chemical Sensitivity (MCS) Patient Brain. The guidelines you shared here a
  • 3clicks
    3clicks says #
    Has anyone heard of any specialist doing the SPECT scans in Canada? I am very interested in this test, also saw Dr. Amen speak o
19
Dec
1
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Allergy-free Christmas Tips

Christmas Pudding
 Christmas is obviously a time for celebration and partying but for those with allergies it can be like a minefield! While most people  generally eat and snack with abandon the millions who suffer from some form of food allergy, sensitivity, or intolerance must be extra wary. It may be easy to tell which foods contain common allergens such as wheat, dairy and eggs when eating the main Christmas dinner but when it comes to snacks and party buffets with lots of pre-packaged foods things get a little trickier. If you are planning your own party you can obviously check labels to make sure the foods you buy don't contain ingredients that you, your family members, or your guests are allergic to. If you are cooking or baking yourself there are also a large number of alternative ingredients to the common allergens that can be substituted. The most common allergens include:...
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  • MissyG
    MissyG says #
    Yes I agree, shopping is a nightmare, as is eating out and trying not to sound like a pathetic hypochondriac !. It is easier now t
12
Dec
1
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Hypoglycemia and Sugar Sensitivity

Hypoglycemia, or low blood sugar, is a very common problem and cause of symptoms in those with environmental illness. Blood sugar levels are usually carefully controlled by the hypothalamus in the brain (a major control centre) which through a series of steps causes the release of two hormones from the pancreas; insulin, which lowers blood sugar by increasing uptake by cells, and glucagon, which increases blood sugar by releasing stored glucose (as glycogen) in the liver and increasing the generation of new glucose from substances such as amino acids (the building blocks of protein). Unfortunately for those of us who experience hypoglycemia this intricate system of balance is disrupted so blood sugar levels vary more than they should and often dip too low. It is well known in chronic fatigue syndrome (ME/CFS) for example that the hypothalamus which controls the whole system does not function correctly. This results in hypoglycemia and a whole host of...
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  • adminv15
    adminv15 says #
    I have hypoglycemia which is on the virge of turning into Diabetes. Along with that I am also allergic to just about all food addi
  • MissyG
    MissyG says #
    Anothe excellent, easy to read and understand article Maff. I had chronic systemic Candida. The treatment which eventually cleared
05
Dec
1
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New chronic fatigue syndrome research initiative includes gut dysbiosis & leaky gut syndrome

I was delighted to learn this week of funding for research into the link between chronic fatigue syndrome, disturbed gut flora and leaky gut syndrome.   The CFIDS association of America launched their 'Accelerate CFS Research Initiative' - the largest chronic fatigue syndrome (ME/CFS) research initiative to date. After a sustained year long fundraising campaign the association allocated over $600,000 of an estimated $1 million kitty to six research groups in the US and Canada. This is fantastic news for anyone suffering from this life altering illness and their families. ME/CFS has for too long been shunned by both medical researchers and sources of funding including governments, charitable bodies, and pharmaceutical/biotech firms. This despite the fact that ME/CFS is estimated to affect around 2% of the population in countries including the US, Canada and UK. People including myself who have been affected by this highly debilitating illness suffer greatly and are provided...
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  • adminv15
    adminv15 says #
    The following article suggests that investigating the consequences of intestinal hyper-permeability, i.e. leaky gut syndrome, is t
  • MissyG
    MissyG says #
    This is really good news Maff ! It seems Fibromyalgia and Chronic fatigue Syndrome and all its accompanying variables, (most of wh
21
Nov
0
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Stress Management & Pacing Yourself When You Have Chronic Fatigue Syndrome

As someone who became ill with chronic fatigue syndrome at the age of 11 I have spent my entire adolescence and adult life struggling with the condition. My personality is one that could be classed as predominantly type A and I like to "burn the candle at both ends" as the saying goes. After being diagnosed with ME/CFS and discovering there was no treatment or cure available this led me to ignore my illness and push even harder during my teens. I continued full-time at school, took part in physical education (P.E.) classes, played soccer with my friends after school and went to parties. For a while this seemed to work as I was very happy which obviously makes you feel better anyway. Inevitably however things began to go down hill in my late teens and my life eventually came to an abrupt halt after a two semesters of university. I was then virtually bedridden...
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14
Nov
0
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Allergies have a silver lining - cancer prevention!

For those of us who suffer from the irritating and uncomfortable symptoms of allergies such as sneezing, itching, watery eyes, blocked noses, and coughing there may not seem like there could ever be a brightside to the affliction but researchers say there might well be - and it's a biggie - a reduced risk of cancer. So before you swallow another antihistamine pill or continue to use your natural allergy remedies you might want to read on..... Researchers from Cornell University in the US looked at 646 studies on allergies and cancers published in medical journals over the past 50 years; ending up with the most comprehensive database yet available on allergies and cancer. Professor of neurobiology and behaviour Paul Sherman and his team found that the number of studies concluding that allergies reduced the risk of cancer were double the number suggesting an increased risk. The types of cancer...
Tagged in: allergies Asthma cancer
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13
Nov
2
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Body odor.

What is body odor? What makes someone smell clean? In our society, we equate a perfume-y, fragranced smell with clean and normal body odor as dirty. My boyfriend has not washed with soap in five years. He was nervous when we first met that I would think he smelled bad. On the contrary, I actually really loved his smell. That's because his diet is pure and he has minimal exposure to toxins in personal care and other types of products. So there is no bad smelly stuff to sweat out. Just normal human smell. I much prefer it to nasty chemicals in fragrances that are just masking over dirt. If you smell bad enough to want to use perfume, take a good look at your diet and lifestyle and start cleaning those up before you reach for the carcinogenic chemicals in fragranced products.   reposted from http://planetthrive.com/members/blog/earthwalker

 

Body odor.Dynamic Neural Retraining Program (DNRS)

 

...
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  • earthwalker
    earthwalker says #
    Same here...I use a fragrance free shampoo and sometimes an olive oil soap and the occasional mineral salt deodorant for special o
  • Maff
    Maff says #
    Thanks for posting this...very interesting subject! Since developing MCS 7 years ago I have used only unfragranced soaps and usual
  • adminv15
    adminv15 says #
    I stopped having any body odor after I quit eating dairy. Gentle soap helps remove bacteria after sweating, but deodorant is no lo
13
Nov
3
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so this is how it is.

This is a post from my Planet Thrive blog from last month. Thought it would be good to share here so people can see how others are living with MCS.   Not sure how my life came to this. I have 3 outfits, all thin and worn, ripped and stain, unwashed for 4 months, not warm enough for winter. I have no bedding except 1 thin and narrow shawl that does very little to keep me warm. I sleep on a 1" thick chair mat on the cold tiled floor. My pillowcase is stained brown from not being washed for months and months. I don't tolerate the water in my home. I have to go to a friend's house to get drinking water, 1 gallon a day. I get filtered water from the local stinky supermarket, then heat it on a hot plate and wash my hair in the tub...
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  • earthwalker
    earthwalker says #
    Thanks Maff. Unfortunately, carbon is a big trigger for me. I cannot do masks or air purifiers with carbon. ;-( Even cotton and si
  • Maff
    Maff says #
    Wow it sounds like you have really had to go to extremes to be somewhat comfortable with your chemical sensitivities. Do you use a
  • earthwalker
    earthwalker says #
    Update: I stayed off the PC for a few weeks and really enjoyed the break. But now I am back on to try to find a balance between re
07
Nov
1
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Banana Plant Extract for IBS and other Digestive Disorders

As I suffer from IBS and gut dysbiosis that give me quite a few troublesome gastrointestinal symptoms a close relative recently recommended I try a supplement containing an extract from the plaintain banana plant. Plaintains are large bananas found in the tropics which have to be cooked before being eating.  I have to admit I had never even heard of this supplement but my relative has had quite severe digestive upsets for most of her life and now swears by it, saying it's the most effective treatment she's ever found. So, before trying it for myself I thought I'd use this week's blog to explore this banana plant extract and the rationale for its use in digestive disorders. The extract is made from the non-fruiting stem of the plaintain banana plant and if you look at medical studies it might be referred to by its botanical name, Musa paradisiaca, or as dried...
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  • Maff
    Maff says #
    The product is called Acitan Extract and is manufactured by Tigon. It doesn't appear to be sold widely but I've found the followin
  • adminv15
    adminv15 says #
    Do you remember the name of the supplement your relative took? I have tried everything for my IBS with no luck; who knows . . . ma
24
Oct
1
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Placebo pills for fibromyalgia and other hard to treat conditions

An article on WebMD this week addressed a very interesting issue. Should doctors give patients placebo (non-active) pills in any circumstances. It turns out this is a surprisingly common practice when doctors are faced with poorly understood chronic conditions such as fibromyalgia. A recent survey revealed that more than half of doctors give out fake prescriptions to patients and that the majority of doctors feel this practice is OK. Scientists questionned  679 internists and rheumatologists; doctors working in specialties where they often see patients with chronic illnesses or chronic pain syndromes including fibromyalgia that are difficult, and in many cases imposible, to cure. It was revealed that doctors find that placebos often provide significant benefit to such patients. The placebo effect is something that has been known of for a long time and is in fact an integral part of scientific research. It is central to the gold standard of medical...
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  • adminv15
    adminv15 says #
    As for diabetes and life threatening illnesses, it is not suitable to give a placebo. And the docs won't give a placebo because li
  • adminv15
    adminv15 says #
    To be honest, I agree completely with a doctor giving out a placebo. For the simple fact, if there is any chance a patient truly d
  • adminv15
    adminv15 says #
    This smacks of the salem witch trials. Guilty until proven innocent. Flawed weighted and often inadequate research, competitive an
17
Oct
2
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Vaccinations in Chronic Fatigue Syndrome and Fibromyalgia

Vaccinations in Chronic Fatigue Syndrome and Fibromyalgia
 At this time of year many people (in the US especially) are getting, or at least thinking about getting, flu shots. So I thought this would be an ideal time to talk about flu shots, and vaccinations in general, particularly in relation to those of us who suffer from chronic fatigue syndrome (ME/CFS) and fibromyalgia. First of all the flu vaccine is one of the most controversial in terms of its use, efficacy and safety. Of the commonly used vaccines perhaps only MMR is more controversial due to the media circus generated by the work of Dr. Andrew Wakefield in the UK around 10 years ago. One of the main problems with the flu vaccine is that the selection of the particular virus that is put into vaccines involves a large amount of guesswork with the end result being that the actual strain causing people to get flu in a particular year is often...
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  • adminv15
    adminv15 says #
    I have hypothyroidism and fibromyalgia. I think a Tdap vaccine caused my fibro. I had the vaccine in January of 2011. A couple
  • adminv15
    adminv15 says #
    I have hypothyroidism and fibromyalgia. I do think that vaccines either give you fibromyalgia or at least make the condition wors
  • adminv15
    adminv15 says #
    I have had fibro/cfs for 22 years. I have never received a flu shot during this time as my doctor who diagnosed me, said that giv
10
Oct
2
Posted by Posted on in EirBlog
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Powerful Environmental Illness Awareness Video

Yesterday I received an email from Steve Johnston at Liverpool Court Studios, an audio/video production house in Canada. Steve had stumbled across The Environmental Illness Resource and kindly attached a video he had made about EI for a client some time ago. The video is a short environmental illness awareness piece. It talks about environmental illness in very broad terms by pointing out that chemicals that surround us in our daily lives can have serious consequences for our health and that of those we love. Steve kindly said I could post the video on the site so here it is: http://www.ei-resource.org/index.php?option=com_seyret&Itemid=32&task=videodirectlink&id=32   The video was only made as an example on a shoestring budget but I found it extremely powerful. The storyline, visual effects and soundtrack that are used make it highly emotive and ensure it has an impact on the viewer. I'm sure the video would make many people stop for a minute to...
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  • adminv15
    adminv15 says #
    I found it to be very powerful - sometimes short and to the point can have a more profound impact. I put it on my blog to share as
  • Maff
    Maff says #
    Hi Soph, Thanks for your thoughts. I agree that perhaps the video is perhaps a bit forceful with its message without backing this
  • Soph
    Soph says #
    Yes, it's very powerful. And to someone sympathetic to environmental illness it's both incredibly moving and thought provoking.
03
Oct
0
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Food Allergy, Sensitivity & Intolerance: Eating in Restaurants

This week I was contacted by the producer of The Restaurant; a reality TV show made by the BBC here in the UK. For those who don't know, the premise of the show is that couples compete over the series/season to prove they have what it takes to run a successful restaurant. Each week they are set different challenges to test different skills required to be restauranteurs. The overall winners are set up in a restaurant of their own; financially backed and personally supported by Raymond Blanc who has a big hand in the show. The reason I was contacted by the shows producer is because in an episode to be aired on October 22nd in the UK the contestants are to be set the challenge of preparing meals for diners with special dietary needs, with a particular focus on those with coeliac/celiac disease. The contestants must therefore prepare a...
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26
Sep
0
Posted by Posted on in EirBlog
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Mindfulness-Based Cognitive Behavioural Therapy (MCBT)

The Mindful Way through Depression
You may have seen in the news media this week that new research suggests antidepressant drugs may damage men's sperm and increase the risk of infertility. Researchers from Cornell Medical Center in New York found that some men given the common SSRI antidepressant paroxetine (Paxil, Seroxat) for four weeks had far higher levels of sperm with damaged DNA. Experts say this does not necessarily mean these men would have more trouble becoming fathers but that it was certainly a cause for concern. So here we have another reason to look for alternatives to the antidepressant drugs which are prescribed to many millions of people every year. Earlier this year it was revealed that drug companies had buried studies showing that these drugs are largely ineffective in all but the most severe cases of depression. Before that paroxetine was linked to an increased risk of suicide. In a previous blog I...
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19
Sep
3
Posted by Posted on in EirBlog
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Psychiatrists still cling to fibromyalgia and chronic fatigue syndrome being purely psychological

I was doing some searching online yesterday for new fibromyalgia and chronic fatigue syndrome (ME/CFS) articles for the site and stumbled across a few blogs and sites maintained by psychiatrists (I will not provide links as I am not one for personal attacks).  These sites and blogs had pages dedicated to fibromyalgia and ME/CFS and I was disappointed (but not surprised) that these individuals and the speciality of psychiatry as a whole still dismiss an organic basis for these illnesses almost out of hand. If I were a cynic I might say it is almost like they are trying to hang on to patients who would be better served by other professionals and forms of treatment. One psychiatrist writing on fibromyalgia seemed to have a fondness for pointing out there are NO (his emphasis) lab tests to diagnose the condition. He used this point to bolster his position that fibromyalgia...
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  • Maff
    Maff says #
    Hi Liberty, Yes I have Dr. Pall's book on my bookshelf and also thought that chapter was fantastic. The fact is that he is an ext
  • Liberty
    Liberty says #
    hi Maff, have you read the chapter in Dr. Martin Pall's book that is entirely about how and why doctors of various types still cl
  • Maff
    Maff says #
    Hi Rhonda, I'd advise you to consult a well qualified nutritionist who can work with you and your doctor on alternative ways to l
05
Sep
10
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My Adrenal Stress Index (ASI) Test Results

My Adrenal Stress Index (ASI) Test Results
Last week I conducted an Adrenal Stress Index Test (ASI) which involved filling four little test tubes with saliva at specific times throughout the day (8am, noon, 4pm, and midnight). This is a surprisingly difficult thing to do as you need a good amount of bubble-free saliva in each sample. Your mouth also has to be clean so as not to contaminate the sample with food particles! The ASI measures levels of the adrenal hormones cortisol and DHEA whose levels naturally vary slightly throughout the day. These hormones help us deal with stress and provide energy and a sense of well-being. When levels aren't optimal we feel drained and fatigued and other functions such as blood sugar control and immune system function suffer. Some of the symptoms associated with abnormal levels of adrenal hormones include: - Fatigue - Feeling Drained - Hypoglycaemia/Blood Sugar Imbalance - Dizziness Upon Standing - Insomnia -...
Tagged in: adrenal cortisol DHEA
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  • adminv15
    adminv15 says #
    Maff, Just wondering: have you tried the 7 Keto variation of DHEA? (On iherb, Now Foods 7 Keto is the most reviewed product if y
  • Maff
    Maff says #
    Hi guys, Finn - I tried betaine HCL for a little while but then had a gastrogram which showed my digestive secretions (stomach ac
  • adminv15
    adminv15 says #
    Hi Maff Just in response to your post. I've done very well with iherb.com as a supplier to the UK. Great prices, great delivery
02
Sep
0
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Food As Medicine

dear all: I'm still on 4 MU Nystatin (7 months) and 200 mg Diflucan daily. Diflucan treatment will end soon to conclude a one-month long treatment.  I've taken a better look at food as medicine for allergy, candida, inflammation, depression. chemical sensitivity. Every morning I load up a basin tub full of vegetables - cucumbers, a carrot, kale, spinach, celery, tomato, parsely, jicama, cauliflower, broccoli, dandelion greens - lots of vegetables and JUICE it. i also juice in three garlic cloves and add lemon juice.  ` i heartily recommend this - give your body lots to work with in healing/cleansing.  Too often we are too sick to give ourselves this much healing power every day. Juicing makes it simple and is a powerful burst of healing nutrients. I welcome your comments.  best, clearday

 

Food As MedicineDynamic Neural Retraining Program (DNRS)

 

...
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29
Aug
0
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Be prepared for Seasonal Affective Disorder (SAD)

Lightbox for Seasonal Affective Disorder (SAD)
 We're rapidly approaching September and the end of summer now and it's around this time that the symptoms of seasonal affective disorder, with the approrpiate acronym of S.A.D generally start to make themselves felt. Some suffering from the condition may start to notice them as early as the middle of August. To avoid symptoms becoming unbearable it is best to start proven treatments as soon as possible and for best results it is often a good idea to use different approaches in combination. I myself suffer very badly from S.A.D and until I realised what the problem was I suffered deep despair and suicidal urges through the autumn and winter. Thankfully I discovered things that helped and now I no longer feel a sense of dread as this time of year approaches. So let's take a brief look at what you can do to stave off S.A.D and milder feelings of...
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22
Aug
0
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An Update on Developments at The Environmental Illness Resource

Hi all, I wanted to use my blog this week to give you a quick update on the things I am currently working on on the site and things planned for the future. For those who don't know, The Environmental Illness Resource is essentially a one man show run by myself, Matthew Hogg (Maff). I suffer, or thankfully in some cases have sufferered, from a number of the conditions the site addresses. The pace at which I can work is therefore limited and a site of this size and scope really needs more than one person working on it......unfortunately something outside of a very limited budget at the moment! I hope then that you will have patience while the full potential of the site is realised. For 5 months in summer 2007 I worked non-stop to develop the current version of the site. This version provides for a number of interactive features which...
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15
Aug
0
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Mitochondrial dysfunction, autism and environmental illness

Back in February of this year the US government admitted that in the case of young Hannah Poling, a reaction to vaccinations she received had resulted in her developing autism. This admission sent the media, bloggers and online autism forums into a spin with many seeing it as concrete proof that vaccines are the cause, or at least a cause, of the developmental disorder. Medical experts however maintained that Hannah had an underlying mitochondrial disorder, which they said, was extremely rare and so the same process could not account for a significant number of other cases of autism. It now turns out however, that the medical experts may have been wrong! Results of a new study announced on Monday by the United Mitochondrial Disease Foundation (UMDF) reveal that at least one in 200 healthy humans "harbors a pathogenic mitochondrial mutation that potentially causes disease." The landmark study is published in the current issue of the...
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11
Aug
0
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Healing Process - Get Simple!!

This, from a comprehensive candida healing website: http://www.healingnaturallybybee.com/sitemap.php The candida diet, supplements and other treatments recommended will do a good job of increasing digestion, strengthening the walls of the intestines (mostly with good saturated fats), increasing good motility of the intestines, cleansing the liver, adrenals and gall bladder, increasing kidney function, etc. and will cleanse any area that requires it, even chelating out (getting rid of) heavy metals such as mercury, lead, and aluminum, etc."   *******************************************************************************************************   My personal experience in attempting to eradicate candida for the last six months is: you can't just rely on medications or sporadic candida diet - it's a lifestyle change. There is so much spotty information out there about diet that it seems to adds to the muddle of attempts. Perhaps finding a single source will simplify the healing process and give you (me) an immediate archive of information instead of endlessly searching...
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10
Aug
0
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Candida: a practical approach

Dear all, I've met many chem sensitive sufferers since getting sick six years ago. ALL of them need to erradicate candida in order to heal, regardless of the cause of the illness. You gotta heal the gut. It's tricky, too. The candida diet and herbs are the start. Here's a good website where there is all the info you'll need: http://health.groups.yahoo.com/group/candidasupport/  This site is actually overwhelming. You might want to join and get the daily digest in order to organize the info. I'm currently doing that myself. Well, truth told, I have been a real stubborn case with the diet and went on Nystatin at 4 MU (million units) per day - that's one teaspoon, divided into 3 or more doses - hoping it would do the trick without dieting. I'm finding I'm in a kill - grow- kill - grow cycle by not being strict about the diet. PLUS,...
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10
Aug
0
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Your Body: The FIRST Safe Place

Dear All, It's a stark lifestyle to live, persevere while being chemically sensitive. A safe living place is our quest.  Healing - when your body reaches a new tipping point when recovery gets the upper hand - can happen. It's then that your own body becomes a safe place.  We've all consumed mass amounts of supplements, tried detoxing in many ways, meditated, etc., but, unless you eradicate candida, you will not heal. That's a strong statement. Even stronger is Dr. James Brodsky's statement in the preface of The Yeast Connection, 3rd edition which calls for doctors to WAKE UP! to yeast related illness. Brodsky says that some patients DEVELOP ALLERGY TO CANDIDA. If you are chemically sensitive, this might be one of your big problems. I had read Brodsky's statement and thought of it as referring to the ' universal reactor " diagnosis that I'd received from Dr. Alan Lieberman,...
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10
Aug
0
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Compounded Nystatin

Dear All, Nystatin: best to use compounded pure oral Nystatin rather than the hard pill. The pill will give you indigestion -- I have some of both. Why? Medicare covers the pill and not the compounded powder. I use a pill crusher to break up the hard pill and it seems to help. But, at first, you should definitely use the compunded oral. It tastes pretty awaful, buit you'll get used to it. Nystatin topical powder is different - it has talc in it. Make sure the doctor's order reads "ORAL NYSTATIN" The powder dispersement is much better than one hard little pill stuck up against the stomach wall. Nystatin does not metabolize in the blood, rather, it stays in the digestive corridor, from one end to the other.  Nystatin must be in physical contact with yeast to kill it. You'll need a doctor's prescription in the US. Don't know...
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10
Aug
0
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Azoles/ Die-off

Dear All, The Herxheimer or die-off reaction happens when yeast/fungus is killed off. Stirring those buggers up releases more mycotoxins that cause all sorts of symptoms.  With Nystatin, because it hits the gut so hard, my die-off was bloating, gas, elimination. Because of the seriousness of my GI infestation together with giving up to my constant cravings for dairy and sweets, die-off went on for 5 months. Unless I stop feeding candida, the die-off won't stop. I'll never balance the flora. At 4 months, Dr. Brodsky added itraconazole, an antifungal at 200 mg per day. He wouldn't prescribe the drug until i'd had a liver panel test. I took itraconazole (Sporanox) for one month and, personally, didn't really feel any difference. i increased the dose to 400 mg a day - still didn't feel anything. So what am i trying to get at if I've been on Nystatin for five...
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10
Aug
1
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Get smart on a personal treatment plan

Dear All, I've made the statement that ALL persons who are chemically sensitive should eradicate candida and balance intestinal flora with probiotics.  Dr. James Brodsky, in The Yeast Connection, 3rd edition Preface, says that we are allergic to candida.  You can get allergy immunotherapy shots to treat the candida allergy, but, for chemically sensitive persons, unless we eradicate candida and balance intestinal flora, any shots are pointless. You're spitting in the wind.  Create a timetable of treatment and find a willing physician to follow you on the following: 1. Change your diet. At this site you will find helpful diet and nutritional supplement information; http://www.healingnaturallybybee.com/. Any further sources of information on this are appreciated 2. I'm not an expert on this (yet), but I've been advised by medical professionals to pH balance between 6.5 and 7.0.  3. If constipation or irregularity is an issue, change it. Easier said than done,...
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  • Maff
    Maff says #
    Great summary of what's needed to get on top of Candida ClearDay! I would like to add a couple of things that might be useful reg
10
Aug
0
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Overwhelmed and Frustrated

Dear All, Frequently I get overwhelmed by the course of recovery. I want to live by the rules that made the first half of my life exciting and meaningful! The rules are different for me now, but many times I am frustrated that there are SO MANY RULES i don't know how to start.  I'm really frustrated this morning. I don't even know what to eat for breakfast, honestly!  So, I went here and found some ideas SPELLED OUT for me. Maybe it will help you: http://www.healingnaturallybybee.com/articles/dplan.php

 

Overwhelmed and FrustratedDynamic Neural Retraining Program (DNRS)

 

...
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10
Aug
0
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Diflucan

Dear all, Antifungals (azoles) are effective medications for eliminating yeast/fungus/candida in parts of the body that Nystatin cannot reach. Nystatin is great for the gut, but candida can go everywhere through permeated intestinal walls. The candida, once it settles into the mucousal intesinal lining, grows tenacles called RHIZOIDS. These roots weaken the intestinal wall and leaky gut happens, allowing mycotoxins, undigested particles, toxic by-products like aceltaldehyde and yeast to travel into the body. Yeast colonizes and grows in all soft tissue, joints, glands, etc.  You can eradicate the infestation with diet. But, if you are chemically sensitive, you might want to explore antifungal medication with you doctor. If you take azole medication, you must begin with a liver panel before taking any drugs. Stay under doctor supervision. Recently, my doctor, Dr. James Brodsky, author of the preface to the The Yeast Connection, 3rd edition prescribed Diflucan - fluconazole - at...
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10
Aug
0
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Acidosis

My dentist, Dr. Eugene Sambataro, heard me out about chronic oral pain, terrible dry mouth, painful teeth and tongue. This pain gets very bad sometimes and contributes/causes such a debilitation and headache that I have named them "neurocrashes." It's been going on for a long time. Dr. Sam simply tested me with a sublingual pH test strip and found that I was "off the charts" acidic. My body is not absorbing calcium and, to function, my system is leeching it from bones and teeth. It feels like it. Here are the pH test strips for you to order: https://www.microessentiallab.com/index.php?productID=108 The goal is to alkalize and test between 6.5 and 7.0. Unless I do this, my body will remain host to candida, yeast, fungus, bacteria overgrowth. I will never heal. ************************************************************************************************************* This, from The Wolfe Clinic http://www.thewolfeclinic.com/phbalancearticle.html 'If we were to ask "What is killing us?", the answer might be "ACIDOSIS"! It...
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10
Aug
0
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pH Food Chart

http://www.energiseforlife.com/food_ph.phphttp://www.bestofsupplements.com/ph_chart.htmhttp://www.trans4mind.com/nutrition/pH.html
10
Aug
2
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Green Breakfast

Very important to start alkalizing with the first meal, breakfast. Maybe you're not used to a green breakfast, but if you're as sick as I am, it's really time to switch. Add your favorite green Superfood mix as you please - you might want to check to be sure it's gluten Free. ALKALIZE AND HEAL!!!!! Here are three green smoothies for your blender: LEMONY MINT GREEN SMOOTHIE 1-2 medium apples depending on desired sweetness ½ - 1 lemon, juiced1 head Romaine hearts 1/2 - 1 medium avocados, depending on thickness and richness desired 1 handful mint leaves 2 -4 cups water (distilled) APPLE VEGGY SMOOTHIE 1 granny smith apple, washed, cored but with skin 
4-5 stalks celery, ends & tips removed, use leaves
 2 cups chopped romaine lettuce
½ of a large Haas avocado
½ bunch cilantro or parsley (depending on your preference) stems removed 
3-4 cups filtered water Chop vegetables into...
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  • Maff
    Maff says #
    I enjoy a carrot, apple and ginger smoothie from time to time. Bit of a kick! You could always add celery, flaxseeds, barley gras
  • Abi75
    Abi75 says #
    Hi Clearday, thanks for the smoothie recipes. I've got one to swap with you: 1 apple 1 stick celery Handful or 2 of spinach Handf
10
Aug
0
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ALLERGIC to Candida

Dr. James Brodsky's statement in the preface of The Yeast Connection, 3rd edition calls for doctors to WAKE UP! to yeast related illness. Brodsky says that some patients DEVELOP ALLERGY TO CANDIDA. Dr. Brodsky is currently my doctor. If you are chemically sensitive, ALLERGY to candida might be one of your big problems. A clear indication of just how allergic I was to candida came while I was on my way out of Dr. Alan Lieberman's South Carolina clinic when, in the last days of a month-long detox, I underwent allergy provocation shots - hours and hours of being injected with substances A-Z, including candida. Every symptom was painstakingly recorded in order to create an effective neutraliztion serum. Two days before I left the Charleston, SC clinic, I reported to Dr. Lieberman that I was having a delayed reaction to the candida shot - a large, red, itchy welt had...
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  • adminv15
    adminv15 says #
    To clearday: last may i began an odyssey identical to yours complete with eczema that continued to "grow"... I started allergy dr
  • adminv15
    adminv15 says #
    Try NAET - search for this on the internet. No shots and it works.
10
Aug
0
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Steinemann's study makes it to mainstream media

This is not about candida, but is of general interest. I am truly relieved that this has made mainstream news in the Washington Post. It is the start of the end of being called crazy.   NEW SECTION: News about the Environment About That Clean, Fresh Scent . . . By Sandi Doughton Seattle Times  Tuesday, July 29, 2008; Page HE05~ The fumes that waft from top-selling air fresheners and laundry products contain dozens of chemicals, including several classified as toxic or hazardous, according to a recent University of Washington study. None of the chemicals was listed on product labels, nor does the federal government require companies to disclose ingredients in fragrances, said study author Anne Steinemann. "I was surprised by both the number and the potential toxicity of the chemicals that were found," said Steinemann, a professor of civil and environmental engineering and public affairs. The health effects of...
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10
Aug
0
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Inner Ocean

http://dsc.discovery.com/news/2008/07/29/coral-reefs-glue.html I am researching more on pH to be able to write clearly about acid/alkaline balancing and calcium absorption/malabsorption. This website says it all and will bring you to awareness of the same balancing needs of your inner ocean. clearday

 

Inner OceanDynamic Neural Retraining Program (DNRS)

 

...
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09
Aug
0
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An Alternative Salon for Those With Chemical Sensitivities and Auto-Immune Diseases

Dropping combs, having a hard time hearing my clients and experiencing dizziness led to my diagnosis of Multiple Sclerosis while I was attending cosmetology school. The question that came to me was "Would I be able to continue in this profession?" While on a leave of absence and not around toxins, my Multiple Sclerosis went into remission. On my return to school, my symptoms resurfaced. So, I researched alternative options for salon products from hair care to milk paint, air purifiers to cleaning supplies, which led me to develop PureHues Hair Salon™ (http://www.purehues.com). Now those that have auto-immune diseases, chemical sensitivities or are concerned about their health and our environment have a choice and can benefit from this unique salon. Allergies to perfume(s) affect approximately 12% of the North American population. Preservatives and other chemicals found in typical hair and body care products also cause problems to many individuals. Those...
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08
Aug
10
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Multiple Chemical Sensitivity and Face Masks

Matthew Hogg, multiple chemical sensitivity sufferer, wearing carbon face mask 2003
Those of us severely affected by multiple chemical sensitivity (MCS) often have no option but to resort to wearing face masks containing carbon filters to protect us from volatile organic compounds (VOCs) in the form of perfume, fragranced products, tobacco smoke, diesel fumes and many other sources. For me wearing such a mask was both a blessing and a curse. A blessing because for the first time since developing severe chemical sensitivities I could once again be around people and venture out from the safe haven of my chemical-free home. A curse because clearly, a carbon filter face mask is not the height of fashion and draws much unwanted attention when out in public. A hard thing to deal with when you are a touch on the shy and self-concious side as I am!   Me in the summer of 2003 in Bishop Monkton, near Harrogate, England. When I first developed...
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  • adminv15
    adminv15 says #
    I have had mcs for 15 years now, and am just finally starting to recover from it, so it is possible to recover even after having i
  • adminv15
    adminv15 says #
    I have MCS and it continues to get worse with time. Purchased two air cleaners from Austin Air for chemical removal and became al
  • adminv15
    adminv15 says #
    Hi Maff I just created a post about the good and bad elements of wearing a mask http://the-labyrinth.com/2012/08/07/a-masked-dual
02
Aug
1
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Hi, I'm clearday

Dear All, We face severe problems and incredible challenges. Maff and I exchanged several emails and he encouraged me to journal mine. I think I can help myself and others by doing so, as everyday I seek a way to heal.  Firstly, many congratulations to matt for bringing us all  together in this much needed forum. Matt, I hope your work here helps you heal. This is my first journal entry - please comment as you'd like. Or, just read. i hope it will be worthwhile for you. I have had intestinal candida overgrowth all of my life. When I was 12, i remember my mother surveying my out- of - control acne and saying, 'What's different about you?". We had no way of knowing. By the time it was important to look good in a bathing suit, I couldn't wear one for all the acne and ugly fungy toenails...
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  • Maff
    Maff says #
    Many thanks for starting your blog ClearDay, I have no doubt whatsoever that your posts will bring comfort and encouragement to ot
01
Aug
1
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Study Says Fragrances Are Toxic, Fragrance Industry Says They Are Not

A study that hit the news this past week has caused a bit of a stir in the fragrance industry. Researcher Anne C. Steinemann, PhD, a professor of civil and environmental engineering and public affairs at the University of Washington, Seattle, revealed that common fragranced products such as laundry detergent/fabric softeners and air fresheners emit dozens of different chemicals, some of which are regulated as toxic or hazardous under US law. Not only that but NONE of these chemicals appear on the labels of such products so consumers are completely in the dark about the toxins they may be filling their homes with. Under US law (and in many other countries outside Europe) there is no requirement for manufacturers of fragranced products to list all of the chemicals in a particular product, even if an ingredient if officially classed as hazardous. All manufacturers need to do in such cases is put a warning label on the...
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  • Maff
    Maff says #
    Hi, I'm really glad you appreciated this blog. I'm just happy to see more and more brands are starting to produce more eco-friendl
  • adminv15
    adminv15 says #
    It is refreshing (not only because public spread of this kind of information may help to reduce fragrance-related air pollutants)
18
Jul
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Supplements and Medications to Increase Energy

Fatigue is a symptom which is common and particularly debilitating in environmental illnesses, as well as in many other chronic diseases (e.g. heart disease). Fortunately there are a number of nutritional supplements, herbs, and medications which in many cases can significantly improve your energy levels and therefore improve your ability to function normally so you can enjoy life once again. Fatigue or lack of energy can be the result of a number of factors. Physical fatigue may be the result of mitochondrial dysfunction or a poor supply of oxygen to the cells. The mitochondria are the part of the cell which generate energy aerobically (with oxygen). Fatigue may also be mental. Mental fatigue can often be hard to distinguish from physical fatigue as they more often than not occur together. However, mental fatigue can result from an imbalance in the levels of certain energising neurotransmitters in the brain or may...
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20
Jun
6
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Are sunlight and vitamin D good for chronic fatigue syndrome?

Vitamin D Sources: Sunlight & Foods
Tomorrow is the longest day of the year and the official start of summer in the northern hemisphere (Sorry Aus/NZ etc!). Here in the UK the longer days mean that at least there is more chance of there being periods of clear skies while it is still light! So I thought this would be a good time to discuss sunshine and vitamin D in relation to chronic fatigue syndrome (ME/CFS) as there seems to be some disagreement over  how vitamin D metabolism is affected in patients and whether extra, either from sunlight or supplements, is needed. From a personal perspective, as part of my illness I suffer from seasonal affective disorder (S.A.D.) which is also known as winter depression. For a number of years I would become suicidally depressed during the winter months and then my mood would lift substantially from late March. After a few years of this it became...
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  • adminv15
    adminv15 says #
    This is an old blog now but still relevant. Since first posting on this blog I have used 5000IU vitamin D3 daily for two years. It
  • adminv15
    adminv15 says #
    so pretty.You are a good teacher. Lucky student!,http://www.michaelkorsoutlets.ca
  • adminv15
    adminv15 says #
    I am no Dr but I was diagnosed with CFS about 10 years ago and have just had a Vitamin D3 blood test done by my consultant which s
13
Jun
0
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Multiple Chemical Sensitivity is in the news!

There was a time not so long ago when nobody had even heard of Multiple Chemical Sensitivity (MCS). In fact, when I first developed the condition only 7 years ago I didn't meet anybody who had heard of it, apart from others who were suffering like I was. This lack of awareness only adds to the considerable suffering and feelings of isolation that come with being affected by MCS.  As any MCS sufferer will tell you it's one thing to have a disabling illness and quite another to have nobody believe you have a disabling illness! Thankfully awareness of MCS now seems to be spreading thanks to a steady stream of coverage in the mainstream media. To stay on top of things I receive daily email updates from the Google News website (Google Alerts) on all topics relating to what we cover here at The Environmental Illness Resource. Not long ago there were rarely any...
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  • adminv15
    adminv15 says #
    Hi, Kenneth, I too have a chemical sensitivity to perfumes. I am also a targeted individual. What is happening to your friend s
  • adminv15
    adminv15 says #
    I have a friend who has a perfume and chemical sensitivity who lives in subsidized housing here in the USA in Portland, Oregon and
  • adminv15
    adminv15 says #
    Thanks for the ACC link. I wrote feedback about the quote. It was quite the insult. Though, I am happy that there is an increase i
06
Jun
1
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Probiotic bacteria for allergies and hayfever

Yakult
 If you're like most people you probably associate probiotics with helping to maintain a healthy digestive system and alleviate symptoms such as bloating and stomach aches. You'd be absolutely right in thinking this as studies have shown probiotics to be helpful in Irritable Bowel Syndrome (IBS), Inflammatory Bowel Disease (IBD), and traveller's diarrhea. Companies who produce probiotic yoghurt drinks usually focus on the digestive benefits of their products with their TV ads typically showing women bent over with stomach pain which is relieved by the probiotic drink! What may surprise you is that probiotic bacteria are also extremely important for the health of the immune system. There is a contant dialogue going on between the bacteria in the gut and the immune system and this can have profound consequences for overall health depending on how healthy the balance of your gut bacteria is. Studies have shown that probiotics can be...
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  • adminv15
    adminv15 says #
    I am all in favor of natural remedies to treat allergies. Recent research and advancement in natural therapies have found safe sol
  • Soph
    Soph says #
    This is really interesting stuff - the wonders of probiotics! But what I'm doubly surprised about is that I've always been led to
30
May
2
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My Multiple Chemical Sensitivity Story

I realised the other day that I had never really written about my experiences with multiple chemical sensitivity (MCS). So I thought today I'd give a (relatively!) brief account of my journey through developing MCS, living with it at its most severe, to the point where I am now largely free from symptoms, save for the odd twitch. I had been ill since the age of 11 and was diagnosed with ME/CFS at age 12. Having read a lot about my illness during my late teens I was aware that a large number of ME/CFS patients also suffer from allergies and MCS. I had developed hayfever a few years after being diagnosed with ME/CFS so thought it was a very real possibility that I could develop chemical sensitivities at some point. My fears were realised in late 2002 when I was 23 years old. Ironically, I believe the straw that broke...
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23
May
0
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Chronic Fatigue Syndrome Fair Name Campaign Moves Ahead at Pace

Campaign for a Fair Name - ME/CFS
 Back in November of last year I reported on the efforts of the Fair Name Campaign which has the aim of promoting a name which truly represents the medical and patient reality of the illness currently known as Chronic Fatigue Syndrome in the United States and elsewhere. The majority of patients, as well as some in the medical community (doctors, researchers etc), have felt that the name Chronic Fatigue Syndrome (CFS) trivializes what is a very serious and disabling illness. Not only that but it is medically inaccurate and does nothing to confer the fact that it is an organic illness. This has understandably contributed to much of the public, and to the chagrin of sufferers doctors as well, dismissing the condition as "all in the head". The weight of evidence conclusively demonstrates that CFS is not a psychological illness. Patients, backed by knowledgeable doctors and researchers, have now decided that the...
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16
May
1
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Pet shampoo and flea control products linked to autism

The Daily Telegraph (London) this week reported on another study linking chemicals in common household products to autism. This time the culprit is a group of insecticides commonly found in pet shampoos designed to kill fleas. It seems there is increasing acceptance that an interaction between genetics and environmental triggers (including synthetic chemicals) may be the key to understanding autism which now affects around 1 in 150 children in developed countries. The latest study reported by the Telegraph was carried out by Professor Irva Hertz-Picciotto and colleagues at the University of California, who found that expectant mothers who used pet shampoos containing pyrethrins to kill their pet's fleas were twice as likely to go on to have children with autism. Pyrethrins are a pair of chemicals that act as insecticides by attacking the nervous systems of insects In terms of human health They have been regarded as one of the safest...
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09
May
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The many faces of Chronic Fatigue Syndrome

Many of you will have seen the news this week on this site and elsewhere that seven subtypes of chronic fatigue syndrome (ME/CFS) have been catergorized based on new genetic research. This is fascinating stuff. Not only does it give us a deeper understanding of what is going on in ME/CFS and offer the hope of diagnostic tests and treatments in the not too distant future, but it also puts another (rather large!) nail in the coffin of the idea that the disease is psychological in origin. Let's face it, this idea should have been buried years ago but its proponents (mainly psychiatrists) are a stubburn lot! ME/CFS has always been a highly puzzling illness for researchers because despite obvious commonalities between patients, chronic fatigue being the obvious one, there are also many differences. These can be grouped into different areas of investigation: Illness Onset A proportion of patients can trace...
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  • adminv15
    adminv15 says #
    I for one, am thrilled whenever any new research findings are made public that back up the actual physiological changes which occu
02
May
2
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Thyroid and Adrenal Issues in Chronic Illness

As a chronic fatigue syndrome sufferer I have come to realise just how pivotal healthy thyroid and adrenal gland function are to recovery. If your thyroid or adrenal function is below par effectively treating these issues can make a huge difference to how you feel and your ability to function.   The Thyroid  Research has demonstrated that the function of the thyroid and its hormones in those of us with chronic fatigue syndrome and other chronic illnesses can be adversely affected by a variety of factors and through a variety of different mechanisms. Unfortunately, routine medical examinations and blood tests are woefully inadequate when it comes to detecting thyroid problems. Standard thyroid blood tests typically only look at levels of thyroid stimulating hormone (TSH) and thyroxine (T4). T4 is actually the inactive form of thyroid hormone which has little affect on the cells. The active form known as T3 is rarely...
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  • ELIZABETH
    ELIZABETH says #
    I am about to see an endrocologist in the next couple of weeks in the NHS Hospital close to where I live,after a very long time tr
  • adminv15
    adminv15 says #
    Thanks for a really informative article, Maff, it's great to hear of the progress you have made. I recently came across adrenal
  • adminv15
    adminv15 says #
    I have to say this is music to my ears! I have really suffered with fatigue and joint pains plus lots of other related symptons f
25
Apr
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Chronic fatigue syndrome sufferer wins big on Millionaire show

Who Wants to be a Millionaire?

The story of a contestant on the hit show Who Wants to be a Millionaire? grabbed my attention this week. It's an amazing story that just shows how quickly things can change in life which is something those of us dealing with ME/CFS and other chronic illnesses always need to keep in mind!

Thirty-three year old Marie Chesterfield from Brighton, England suffers from myalgic encephalomyelitis

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23
Apr
2
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Why many people with MCS/EI may be sick all the time.

Hi All, I recently had a conversation with my E/I doctor that made me realize that many MCS/EI people are sick all the time for a very simple reason; they don't have a safe place to sleep. He was telling me that I was lucky because I did have periods of time where I did feel OK. I told him what I am going to tell you now. I got sick in November of 1991. My primary concern over the years since then was to find and maintain a safe place to sleep. My day is about something like walking through a minefield (can you relate?); trying to avoid the perfumes, cells phones, fabric softeners, computers, TV's, etc. that are everywhere. This is not an easy task. My x-wife and I were married for nine years but lived together for only four. This is probably why we stayed together so...
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  • Maff
    Maff says #
    Hi Harry, Many thanks for being the first person to take advantage of the blogging system here on The Environmental Illness Resou
  • Satori
    Satori says #
    Hi Harry, Thank you very much for your post. You make an excellent point about how absolutely essential it is to find a safe plac
18
Apr
0
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Nutritional Supplements - Good or Bad?

This week a major review of scientific research into whether certain antioxidant supplements improve health and extend life caused another debate on the usefullness and safety of nutritional supplements to erupt.

Scientists at Copenhagen University, Denmark, who are part of the respected Cochrane Collaboration looked at 67 studies on beta-carotene, vitamin A, vitamin C, vitamin E, and selenium

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  • adminv15
    adminv15 says #
    Patrick Holford makes money from selling nutritional supplements and is not a state registered dietitian. Some of what he peddles
  • adminv15
    adminv15 says #
    Nice post, thanks for sharing this wonderful and useful information with us. Green Tea Weight Loss
  • adminv15
    adminv15 says #
    Great blog! There’s plenty of useful information and motivation. I’ll definitely be back. Check
11
Apr
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US cities to avoid if you suffer from Spring allergies

Nasaleze

As a hayfever sufferer in the north of England it is the early Summer months of June and July that bring on a sense of dread. In the UK by far

the biggest cause of hayfever is grass pollen whose levels skyrocket at that time of year.

In other countries

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04
Apr
1
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The Environmental Illness Resource Joins MICAGO Initiative

MICAGO MemberI am proud to report this week that The Environmental Illness Resource has joined the MICAGO initiative which is the brainchild of Gordon McHendry, a multiple chemical sensitivity sufferer and founder of the MCS International campaign and website.

MICAGO stands for MCS International Coalition of Allied Groups

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  • Satori
    Satori says #
    Hi Matthew, Thank you for joining our growing international MICAGO Initiative and for your most welcome blog entry on it here on
28
Mar
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Allergies also affect mental health

If you suffer from respiratory allergies such as hayfever I'm sure you know that symptoms aren't limited to the obvious sneezing, itching, runny nose and watering eyes. Of course these are very annoying and often distressing but what those who don't have allergies don't realise is that mood disturbances such as depression, irritability and insomnia are also a common result of allergic reactions and can be equally or more distressing than the obvious allergy symptoms.

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21
Mar
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What's in your drinking water?

Have you ever wondered how clean your drinking water really is? Or maybe it's something you've never given a second thought. A recent investigation by the Associated Press has uncovered the disturbing reality of municipal water supplies.

Would you willingly drink water laced with antibiotics, anti-convulsants, mood stabilizers and sex hormones? According to the AP at least 41

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  • The Vaccinator
    The Vaccinator says #
    Great piece. I learned why things in low doses can be more toxic then taking a bath in pure chemicals. When you study how they m
14
Mar
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Candida link to Chronic Fatigue Syndrome needs proper investigation

New research to be published in the April issue of the Journal of Human Nutrition and Dietetics relating to dietary intervention in Chronic Fatigue Syndrome had me very frustrated this week. The research was supposedly an attempt to determine if an anti-Candida diet is beneficial in those with Chronic Fatigue Syndrome.

The researchers note that Candida has been linked to CFS in many books and anecdotal reports but little scientific evidence exists for such a link. I couldn't agree more, good quality research that really gets to the bottom of this issue is required, unfortunately the research in question here does nothing to further scientific knowledge and to my mind is of very little value.

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07
Mar
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Support for World Trade Center related illness

Ground Zero   For many of those who were in or around the World Trade Center on that fateful day of September 11, 2001, life has never been the same. Not only as a result of the obvious psychological trauma but also because many have been left with a host of physical symptoms and illnesses that the medical profession in many cases is unable to explain or effectively treat.

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  • adminv15
    adminv15 says #
    To all those in 9/11 rest in peace x x x x
  • The Vaccinator
    The Vaccinator says #
    I just found this link when researching for a rebuttal to Nightline march 20, 2008 that said Environmental Illness treatments are
  • adminv15
    adminv15 says #
    For the past 12 yrs I work close to WTC/ground zero and volunteered in the evenings after right after 9/11 working with Family mem
29
Feb
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Natural Alternatives to Antidepressant Medications

Natural Antidepressants There has been a flurry of media activity in the UK this week after researchers from the University of Hull published a study showing that for mild to moderate depression antidepressant drugs show no clinically significant benefit over placebo. In other words they are pretty much useless. It turns out that pharmaceutical companies have been 'selectively reporting' studies on the effectiveness

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22
Feb
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How to avoid wasting money when self-treating environmental illnesses

Whether you suffer from chronic fatigue syndrome (CFS/ME), fibromyalgia, multiple chemical sensitivity, irritable bowel syndrome (IBS), or any other illness which we cover on The Environmental Illness Resource, the treatment options available from conventional medicine are extremely limited or totally non-existent.

When I was diagnosed with ME/CFS in 1990 at the age of 11 I was given two treatment options by my doctor and various hospital specialists.....psychiatric treatment and 'graded exercise'. To cut a long story short, the psychiatric 'treatment' involved a grumpy old man suggesting that the only things wrong with me were that I didn't want to go to school and I had problems at home. Neither of these suggestions was even close to the truth, I loved school and was deeply upset about having to miss days because I was too ill. I also had a very happy home life and have a fantastic family. This is besides the fact that if I had problems at home AND wanted to avoid school, surely I would not have spent the days I had off school....at home in bed!

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15
Feb
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Recovered fibromyalgia sufferer plans hike to raise awareness

I came across an amazing story this week of an ex-fibromyalgia sufferer who is planning to hike 800 miles across the state of Arizona in the United States.  The 'Arizona Trail' stretches from the state's borders with Mexico and Utah and includes terrain from lowland desert to pine forests.

The woman in question is 33 year old Sirena Dufault, who after a slow recovery from

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  • adminv15
    adminv15 says #
    A few months back something changed for me. I accepted my illnesses. I researched my illnesses, the drugs available (which I still
08
Feb
0
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Looking for alternatives to chemical air fresheners

To those of us who have been affected by multiple chemical sensitivity (MCS) and related conditions, fragranced products are a major menace. I feel those products rather amusingly called 'air fresheners' deserve special attention because of the way they are advertised to the public.

Manufacturers of 'air fresheners' make out that these products will make the air in our homes

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01
Feb
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Towards a fair disability test for chronic fatigue syndrome patients

As a chronic fatigue sufferer who has gone through the process of applying for disability benefits I can say without a shadow of a doubt.....the assessment procedures are not set up for conditions such as CFS. I'm sure most CFS patients out there will have come to the same conclusion.

Here in the UK (and I'm sure it's similar in other countries) to apply for any benefits based on you being sick or disabled you must first complete the

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25
Jan
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Dr. Jacob Teitelbaum's Newsletter Content to be Featured on EIR

Dr. Jacob TeitelbaumI'm delighted to let you all know that after interviewing Dr. Jacob Teitelbaum about the use of Lyrica for fibromyalgia the other day (read article), he has graciously given his permission for us to publish his fantastic weekly CFS/FMS newsletter on The Environmental Illness
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  • adminv15
    adminv15 says #
    Publishing news letter is hard work for people with EI/MCS and you guys are doing wonderful job. I thank you for it.
  • adminv15
    adminv15 says #
    i was hit very hard with a racquet ball in my neck 1 year ago and now suffer with a stiff neck constantly. can you suggest some h
18
Jan
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How things are getting better for multiple chemical sensitivity (MCS) and allergy sufferers

As a multiple chemical sensitivity and allergy sufferer myself I can safely say that life hasn't exactly been a walk in the park. This is a sentiment with which I'm sure my fellow "canaries" would agree! However, I am also able to appreciate that things could be much worse for me than they are in 2007. If I had developed MCS in the 1980's for example, I'm sure my life

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11
Jan
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The Challenge of Flying with Environmental Illness

Boeing 787 Dreamliner

Having just returned from a trip overseas at Christmas, which involved a total of four long flights, I thought I would write about the considerable challenge that flying poses for those suffering from environmental illness.

I'm sure most people would agree that travelling by air in itself is a stressful experience. There's checking-in with the long lines and security interrogation and then there's the waiting around before it's time to board the plane.

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  • adminv15
    adminv15 says #
    How true! Actually I never leave my place without the 3M carbon activated mask I use. Not that I leave much either I'll check out
28
Dec
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Could Mold be Causing your Health Problems?

I was watching an episode of 'King of the Hill' the other day in which the Hill family were told they had a mold problem in their home. While the episode was very funny (as always!) it put across the message that mold isn't something that needs to be taken seriously and that anyone suggesting your house has a mold problem is a conman. This attitude is very widespread with the public and even many healthcare providers often dismiss the possibility of mold being at the root of health issues. Unfortunately mold in reality can be the cause of

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21
Dec
1
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Multiple Chemical Sensitivity: A Portrait of the Skeptic

I had intended to write on a completely different subject today, something much more seasonal and light-hearted. Unfortunately I found myself on a website reading a rather heated debate between multiple chemical sensitivity (MCS) sufferers and those who believe (or portain to believe) that MCS is a psychiatric disorder. As a result I felt compelled to write about MCS skeptics and analyse

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  • Maff
    Maff says #
    Thank you all for the nice comments. It makes all the work worth it when I get a reponse like this Zil, I hope your SSI hearing
  • adminv15
    adminv15 says #
    I couldn't agree more! As an MCS sufferer with a sensitive soul, I am profoundly grateful to folks like you who can "take it up" w
  • adminv15
    adminv15 says #
    Thank you! I'm up for my hearing with SSI and I wish I could read this article to the court room. Keep writing.
14
Dec
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Will Ampligen ever be approved for chronic fatigue syndrome?

The antiviral drug Ampligen has supposedly been the big breakthrough in chronic fatigue syndrome (CFS) treatment for 20 years. The long wait for patients looks set to continue and the reason ironically seems to be that clinical trial data submitted by Hemispherx Biopharma Inc., the drugs maker, is too old and doesn't meet new criteria.

Hemispherx submitted a New Drug Application (

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27
Nov
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Allergies: Could your Christmas tree be a trigger?

Christmas Tree

With the holiday season rapidly approaching most of us will be thinking about getting a Christmas tree to bring the festive spirit into our homes. The trees are a source of joy for most but what about people who suffer from allergies?

The

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  • adminv15
    adminv15 says #
    Grew up with artificial trees due to family allergies. Always stored them so they would stay dry and dust-free. 1st 2 years of mar
  • adminv15
    adminv15 says #
    A significant portion of our artificial Christmas tree [url]http://www.santasquartersno.com/artificialchristmastrees.html[/url] cu
22
Nov
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Could Wi-Fi be causing autism?

Wireless Tower

There are currently reports circulating on the internet about a study showing that the electromagnetic radiation from wi-fi routers could contribute to the development of autism.

The study in question was conducted by Dr. George Carlo

Tagged in: autism wi-fi wireless
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  • adminv15
    adminv15 says #
    this ties in beautifully with the massive aerial spraying program that goes on above our heads each and every day http://www.yout
15
Nov
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Celebrities with Chronic Fatigue Syndrome

I came across a story the other day about the Welsh professional golfer Ian Woosnam and his battle with chronic fatigue syndrome (CFS). Woosnam hasn't played a European Tour event since July after being diagnosed with CFS, but plans to launch his senior golf career next March at the Barbados Open.

This story made me curious to find out about other celebrities who are suffering from chronic

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  • adminv15
    adminv15 says #
    I was diagnosed with CFS earlier this year (April 2013). I started to feel ill in March 2012 and presented with symptoms of heart
  • adminv15
    adminv15 says #
    Environmental issues trigger the illness and obviously continued exposure to the trigger problem will continue the illness. It is
  • adminv15
    adminv15 says #
    I'm a sufferer of CFS and live in Australia. Some famous sports people from Australia who have CFS are: * Alistair Lynch, notably
09
Nov
1
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Environmental Health Perspectives (EHP)

In the news this week I discovered that the Environmental Health Perspectives (EHP)  journal is getting a new editor-in-chief so I thought this would be a good opportunity to tell you a little bit about EHP for those who haven't come across it before.

Environmental Health Perspectives is a journal published by the National Institute of Environmental Health Sciences (NIEHS

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01
Nov
1
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New Third Edition of From Fatigued to Fantastic!

From Fatigued to Fantastic!

The third edition of Dr. Joseph Teitelbaum's bestselling book 'From Fatigued to Fantastic!' was released recently. Dr. Teitelbaum is one of the best known chronic catigue syndrome and fibromyalgia specialists and this title is basically all of his knowledge and experience

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26
Oct
2
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Lawmaker looking out for doctor treating Multiple Chemical Sensitivity?

Earlier this week as I was browsing through news updates in my email inbox I came across a story which put a big smile on my face. It seemed that a member of the US House of Representatives was taking a stand against a medical board who were staging a witch hunt for doctors who dare to treat people suffering from multiple chemical sensitivity (MCS).

As someone who has suffered from severe

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  • adminv15
    adminv15 says #
    keep me informed please you keep me hope full ok
  • TK46
    TK46 says #
    AWWW!! I was getting excited there for a minute too. Well, maybe his bringing it up will be a factor in someone else taking an i
19
Oct
4
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My DHEA Conundrum

Around 7 years ago I had a test done called the Adrenal Stress Index (ASI). This test measures levels of the adrenal hormones cortisol and DHEA in saliva samples taken at various points throughout the day. Multiple samples are needed to get an accurate picture of cortisol levels as they vary considerably during the day in everyone.

My ASI results indicated that my cortisol

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  • adminv15
    adminv15 says #
    Higher dosages can be used when by-passing typical hepatic metabolism of dose
  • Maff
    Maff says #
    Hi Charlie, Thanks for you recommendations. I'm glad the sublingual form of DHEA has proved useful to you I completely agree wi
  • adminv15
    adminv15 says #
    I also have liver problems and take DHEA in sublingual form to bypass the liver metabolism. There are also DHEA transdermal cre
05
Oct
3
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Could a widespread fragrance ban happen?

Yesterday I reported on a group of students at Stanislaus State College, California, who are campaigning for a campus ban on fragrances. That story can be read here:

Student Group Pushes for Fragrance Ban on College Campus

As I mentioned in that story,

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  • adminv15
    adminv15 says #
    These kind of people in general are nasty. I have suffeed deliberate sprayings, and other traumas, by these horrible people. They
  • adminv15
    adminv15 says #
    I myself have asthma and perfumes of any kind (and grass) set me off. There have been times it has affected my breathing for a cou
  • adminv15
    adminv15 says #
    @Joseph Wallin: I think if you had to be a bum to your family because fragrances made you too ill to work then you'd want to be a
02
Oct
17
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BSc (Hons) Complementary Therapies (Nutritional Health)

Last week I finally started studying for a bachelor's degree, 10 years after I would have done so if I hadn't been ill.

I am happy to report that I have now moved past feeling anger towards my situation and instead am glad my life has turned out the way it has thus far. I now have a new purpose in life that started with the founding of The Environmental Illness Resource and now continues

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  • Maff
    Maff says #
    Hi Ayla, Don't mention it, happy to share the information with everyone. Thank you for the congratulations! I graduated with fir
  • adminv15
    adminv15 says #
    Hi Maff Having read the above with great interest I must first congratulate you on getting through the degree. Can I ask you how
  • Maff
    Maff says #
    Hi Steve, I have just completed the final essay of my BSc in Nutritional Health from BCNH/University of Greenwich and will gradua
24
Sep
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Natural Trade Show in Harrogate (UK)

Natural Trade Show - Harrogate, UK
Yesterday I was lucky enough to attend the Natural Trade Show and Total CAM Show which are being jointly held at the Harrogate International Centre. I say lucky because I was able to see a number of talks on natural health issues by some great
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  • Maff
    Maff says #
    Hi Sloan, That's a fantastic article by Mike Adams. I'm a frequent visitor to News Target and don't know how he finds the time to
  • adminv15
    adminv15 says #
    Hi, Re soap nuts. If you like them then Mike Adams ("the health ranger") is buying them in serious bulk and he might arrange for s
21
Sep
1
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The new site is here!

After more than 5 months of solid work I am delighted to welcome you to the new version of The Environmental Illness Resource!

When I decided it was time for a new site I really didn't appreciate the work it would involve. The original site which I started in 2004 had grown to a total of 1200 pages which all had to be copy and pasted to the new site once I'd got the design and database

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  • Maff
    Maff says #
    Hi, Welcome to the site. I hope you find the information and resources useful. If your DHEA-S is low that certainly be a possibl
  • adminv15
    adminv15 says #
    Hi maff...I am new here doin my own research since my blood work came back with low dheas and ...my gyn (who specializes in bioden