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Ongoing Struggle

I would be interested to hear from anyone who has experienced or is experiencing similar health issues like myself and suggestions/advice would be most welcome!

I have type one diabetes controlled by insulin pump therapy. I was diagnosed with this when I was 15 despite no-one in my family having had any history of type 1 or type 2 diabetes. Throughout my late teens and twenties I have experienced a range of illnesses such as constant urinary tract infections, IBS and two years ago Adrenal Insufficiency. Consultants/Doctors often blamed my illness on the lack of apparent control of my diabetes despite my protests that something else was wrong. When my adrenal glands were not producing the right amount of cortisol I started hydrocortisone steroids which appeared to make no difference to the fatigue I was experiencing. I began to get the side effects of steroids - moon face and fluid retention. I gradually reduced my dose and finally came off them altogether.

For the past year and a half I entered a relatively good phase with my physical health although I experienced a series of migranes which resulted in hospital admissions and the doctor prescribing me medication to try and help. I was working full time in a demanding field of work - Substance Misuse. Controlling my diabetes was still a problem despite the reported benefits of insulin pump therapy and close monitoring of blood glucose levels.

In december 2009 I began to experience severe fatigue and was struggling to meet the demands of my job. My muscles started to ache and my skin became red, blotchy and at times tingly and sensitive. I revisted my consultant fearing there was a problem again with my adrenal glands. Indeed there was and I began taking hydrocortisone again. Unfortunately, my symptoms did not disappear and have progressed since then.

I am unable to get out of bed some days with painful muscle aches particularly in my neck, shoulders and legs. Small everyday tasks have become exhausting. I am being investigated for M.E/CFS and Lupus. I am currently unable to work and this having a huge impact on my life in general.