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TOPIC: Is anyone out there like me?

Re:Is anyone out there like me? 12 years 7 months ago #7

I read over your problems and see some similarity with my problems. I have fibromyalgia (FMS)and some of the sympotms are very similar. The \"mind fog\" is very similar, although yours sounds more severe. The pain in your chest sounds similar to one that I experience if I have \"overdone\". I have become lactose intolerant and cannot consume dairy products anymore. That sounds similar to your symptoms. I do not like to eat beef anymore. I have problems digesting it. I think that it could be the fat content. Although I do have problems with even lean beef. I stick to fish, poultry and wild meat when I can get it. I find eating barley is helpful. It is very good made with turkey. I eat it at least 3 times a week. Hopefully you can tolerate that particular grain.

I have problems with fresh fruit and vegetables as well. Except for ripe bananas and mandarine oranges, I eat them cooked; steamed or boiled. I can tolerate soy products and goat cheese well.

I am glad that you are improving. I have improved over the years as well. I do not know if the symptoms themselves that :) have improved; maybe I am just learning to live with them.

I do manage to live a very active life and am able to paint and that is all I ask. That is all that I have to tell and I wish you all the best.
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Re:Is anyone out there like me? 12 years 7 months ago #8

  • aaronify
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Thank you Ena and yayaba08, I appreciate your responses. yaya, the web site didn't seem to open for me; is there possibly an error with the link? I'm definitely interested in looking into what has been working for you.

Ena, sorry it's taken me so long to get back to you here. I've been incredibly busy and distracted lately ;(

It's interesting that you mention that about the food families because I was coming to a similar conclusion myself, actually. I realized that I had a reaction to not only beef, but red meat in general (veal, bison, etc.) The only meat per se that I can eat nowadays is \"the other white meat,\" pork (with of course poultry and fish). What you mentioned definitely falls in line with what seems to be happening!

I also want to mention to everyone here that I recently was admitted to the hospital for what was suspected to be appendicitis. I had severe, sharp but radiating pain in my lower abdomen. I went to the ER on a sunday night and was scheduled for appendectomy surgery for the next morning. I awoke to my surgeon in my room ready to give his consult. After a little detecting, he concluded that in actuality I did NOT have appendicitis and wouldn't need surgery. He said my CT scan instead showed an \"impressive\" amount of \"backup\" in my colon (large intestine) and effectively I was severely constipated.

After talking with him and relating to him the symptoms I mentioned in my first post as well as realizing that I almost constantly feel \"backed up\" despite regular bowel movements, he actually had an allopathic theory. At this point it is still a theory as I need to go see a specialist and get some tests run, but he susptects that I have a bowel motility problem (which I didn't know even existed). It seems to make a lot of sense in a lot of ways, though it doesn't explain everything. It makes sense why when I take \"liver cleansing\" herbal supplements my body seems so energetic and clean compared to normal. One of the things that it doesn't explain happened a few days later.

A few days after leaving the hospital (and being put on a high-dose stool softener which I take twice daily for who knows how long) I sort of put two and two together after having a stray memory come back to me. On a hunch I stopped eating wheat once again, and INSTANTLY (less than one day later) I had already lost 6 pounds (sorry, I'm from the U.S.!) of weight and continued to lose almost a pound a day since then. Not only that but my tendency to dwell on issues that come up in my life reduced dramatically, and I started to take pleasure in things that I didn't realize I wasn't taking pleasure in (the little things in life). I also regained my talkativeness which were all personality traits that I had when I was not eating wheat last time, before my treatment for my \"wheat allergy.\"

I guess the symptoms, though muted and much more mild after my applied kinesiology and N.A.E.T treatments, were still there. This realization has both brought me great joy and great sorrow. I now largely feel healthy and energetic, but I am saddened that the treatment I thought worked turned out to only mask the problem underneath. I'm also saddened because, of course, that means I'm off of wheat now too.

So it's sort of interesting that as soon as I stop eating wheat I lose weight, my bowels begin to move correctly (the softener wasn't really helping that much until I went off wheat) and a mild depression that had been on me since last time (that I didn't even know was there!) lifted.

Is there anything you can think of that might cause those effects from the consumption of wheat? I guess this is still similar to my original post, but I think the realization that my body is actually being physically affected (bowel immotility and seeming liver deficiency and weight gain) might change things.

Once again, thank you all for takign the time to read my very long post. I hope that this thread may be useful to someone else. I will continue to update you here as I progress along and hopefully move towards a diagnosis!


P.S. I also wanted to post a little info that just came out in the science journals about fibromyalgia:
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Re:Is anyone out there like me? 12 years 7 months ago #9

  • aaronify
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Oops, I just noticed that there was a second page to this thread now =D

That's interesting because bananas are usually my go-to fresh fruit also. I wonder what it is about them...

Do you know where FMS comes from? Is it a genetic thing? I would actually be very interested to see your response to the post that I just made (the long one) about the bowel issues and see if there are any similarities.

Thanks for responding =)
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Re:Is anyone out there like me? 12 years 7 months ago #10

  • yayaba08
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The websites are www.hacres.com and www.oenskincare.com.

Another site that is helpful regarding nutrition and M.S. is www.drmcdougall.com/stars/050812tasic.html and www.drmcdougall.com/med_ms.html or for Fibromyalgia is www.drmcdougall.com/stars/star13_cheryl_lambert.html . He makes reference to a Dr. Swank who has done exstensive studies on M.S. (www.drmcdougall.com/med_ms.html).

These are all helpful resources in finding what works best for each of us individually. My next step is to eliminate wheat. I wanted to be successful first at eliminating dairy and meat and eating a more raw form vs. cooked.

Good luck to you!<br /><br />Post edited by: yayaba08, at: 2008/11/05 23:39
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Re:Is anyone out there like me? 12 years 7 months ago #11

Hi Aaron,
Bananas have high levels of neurotransmitters - maybe that's why you like them? My boyfriend eats a ton of them to help manage his symptoms. Just be careful about candida if you eat high-sugar fruits like that!

Your comment about autism and also about wheat and casein allergies made me think you might have high levels of mercury. It's common for those with mercury poisoning to have an intolerance for milk products, wheat and gluten. That's what happened to me...haven't been able to eat milk products in about ten years and have stayed off gluten too.

Have you been tested for mercury levels? Here is a good website with lots of info on that http://home.earthlink.net/~moriam/. Not sure if this is related to your problem but thought I would mention it as it's very easy to have heavy metal issues in this country. They are in the air, soil, food, home products, etc. Wishing you all the best!

an online meeting place for people recovering from environmentally based illness<br /><br />Post edited by: earthwalker, at: 2008/11/13 09:15
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Re:Is anyone out there like me? 12 years 7 months ago #12

Hi Aaron,
I know how you feel. When I started getting terribly sick, none of the doctors could say why. But keep looking. There will be someone out there who will be able to help you! :D

Where do you live? If we know your country and province/state, we may be able to suggest places you could look.

I have a diagnosis of Multiple Chemical Sensitivities and feel that I probably have chronic fatigue syndrome as well. I know that disconnected feeling quite well.

I used to go to the grocery store, walk in, and immediately get terribly confused. I would have to look at my list constantly to remind myself what I had come to get. I would try to walk directly to the item(s) I needed, and would talk to myself to try to keep my focus.

You mention that you have had some success with NAET. I took NAET treatments for 3 years and that helped bring me to the relative health I now enjoy. My practitioner combined it with NMT (neuro-modulation technique).

Naturopaths can often help with these dietary troubles better than allopaths can. Perhaps you, like me, would do better to visit a naturopath. It was a naturopath who originally diagnosed me, sent me to NAET, improved my gut, and headed me in the right direction. Eventually my GP followed her lead.

So... where do you live? (in general)
Lady Itchalot
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