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TOPIC: New Research Blog - we would love your help

New Research Blog - we would love your help 13 years 4 months ago #1

Chronic Fatigue Syndrome and Myalgic Encephalomyelitis - The Patients Voice has a new Research Blog for you.

Dear Friends,

Please visit the newest blog from The Patients Voice. In this blog we are very keen to explore your thoughts and ideas about the experience of suffering from Chronic Fatigue Syndrome or Myalgic Encephalomyelitis.

We would therefore like to invite you to participate in the blog. Firstly by having a look at the blog and secondly by participating yourself by leaving a comment on your CFS or ME experience. It is a great opportunity to share experiences and information about CFS or ME.

To visit the blog please go to

http://www.thepatientsvoice.org/Chronic_Fatigue_Syndrome/

Blogs are a wonderful way for our members to connect with each other. But not just that they are a great way to disseminate information with people who suffer from CFS or ME.
This is a great opportunity for you to share with other members and enrich all our knowledge.

Feel free to share this blog with anyone you know might be interested.


Best wishes

Belinda<br /><br />Post edited by: Maff, at: 2009/04/16 23:35
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Re:New Research Blog - we would love your help 13 years 4 months ago #2

  • ataraxy
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Belinda,

According the About page on The Patients [sic] Voice web site, The Patients Voice is a research company.

Could you please tell us who The Patients Voice is working for and how our information will be used.

Also, I can't find a Privacy Policy. Why not? Don't you care about our privacy?

As you will be making money out of any information that is gathered, will you be making a donation to EIR and the various CFS/ME charities?
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