Hi Jodie,

Thanks for that

I just did a search on Mast Cell Disorder and I cant believe how many of those symptoms i have. I have mentioned them to doctors so many times, they just seem mystified! the flushing was almost constant each time I reacted to antibiotics, nausea was really severe, I struggled to eat, I was skin and bones and my hair came out, diarrhoea, brain fog, itchy/rashes etc. Also, my blood pressure is always so low, systolic hardly ever over 100. Because of arrhythmias I was given a 72-hour heart monitor, it proved long runs of ectopic beats and my heart reached a spell of 190bpm whilst asleep at 2am, cardiologist said if it continued I should consider a pacemaker. I also get lightheaded, I have fainted, once on a quarry tile floor and broke my jaw.

I think it would be worth checking for MCD, do regular doctors do these tests and do you have to actually be reacting at the time of test?

Hi Tamie,

"I now think if the material is compatible, any dentist, holistic, private or NHS, can place it."
I think you're absolutely right on that point. The NHS can be hit and miss; I've had lovely GPs and specialists who've accepted all of my conditions and even been interested to learn from me. I've also, of course had the exact opposite as I think we all have!

I've always enjoyed a trip out to Scarborough - grew up on the outskirts of Leeds towards the Dales so the seaside was a treat. Having it on the doorstep is one of the pleasures of now living in the North East; I can't wait for my baby daughter to be a bit older and enjoy the beach as much as our Labrador does!

I'll leave you in Jodie's knowledgeable hands (and any others) for advice on this specific subject.
Good luck once again and best wishes,
Maff

Hi tamie, it hasn't really got down to GP level yet, we have a charity set up to do exactly that. The right specialist will be very clued up tho. As for tests, each specialist has their own preferred way to dx it, some tests have only recently come on stream for NHS. They have to be handled extremely carefully and are not 100% accurate. MCAS is often a diagnosis of exclusion - basically everything else has been ruled out/symptoms fit/ some of the meds work.. it all adds up. This is how I was dx'd , my specialist didn't think much of the tests back in 2014. If you have a google you'll find loads of info, or look for my previous thread "MCS as mast cell activation disorder". If you are on FB you are welcome to join us! You'll find a specialist list and much more info in the files section of the group..www.facebook.com/groups/368740546663534/

Congrats on your new daughter Maff! I was wondering how you were getting on, it's a big upheaval right ? btw how good are you at interpreting organix urine acid tests, I might have a few customers for you

Thanks Jodie! A big upheaval is an understatement; at least you do get the pleasure of seeing them smile, laugh, and achieve the little milestones... to go along with the exhaustion and anxiety!!

Re: Organix Urine Tests - I've always believed organic acid urine tests are one of the best for getting an overall picture of a patient's health in Functional Medicine. I'd be happy to review for a reasonable fee (simply for my time) if you know some patients requiring a thorough interpretation. I now have access to some very useful professional databases to keep my knowledge current and provide additional info.
FYI I'm happy to look at other test results as well, from either functional or conventional medicine; I have education and training looking at a broad spectrum and am particularly interested in unraveling hormonal / endocrine mysteries!

Please just ask people to get in touch at the main site email address Jodie i.e. support@.....
Thanks!

I don't think I have that addie Maff? Theres one on your profile: Maff@ .. and I've got your 23 hotmail one. Maybe email me and let me know which is best for ppl to contact you on..