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TOPIC: MCS new and I don´t know where to start

MCS new and I don´t know where to start 5 years 2 weeks ago #7

  • Jodie
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Hi folks, if you are in the US I've just had a recommendation for this practitioner annmccampbell.com - she will do phone consultations which will be a lot cheaper and easier than having to travel long distances, and obviously is knowledgable since she has had MCS herself.
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MCS new and I don´t know where to start 5 years 2 weeks ago #8

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For anyone who wants to learn more about genetic influences on MCS (genes to do with detoxing can be damaged amongst other things) there's a lot of info in this recent thread

groups.yahoo.com/neo/groups/GreenCanary/...sations/topics/33942

+ how to get yourself tested.

You'll have to expand the thread (there are a lot of replies). Also some good info on the connection between Mast Cell disorders and MCS.
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MCS new and I don´t know where to start 4 years 9 months ago #9

  • Sinilind00
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Maybe it will come as a surprice that I say it as a co-sufferer, but I think that at least in my case the ilness in psychological cause. There are all kind of sensitivities that I have and scientifically it does not make sence to be sensitive to almost everything new

In addition to add medications the condition calmes down. The only thing I can´t take narcotic sedatives on a regular basis and these seem to help and not cause any additional sice effects.
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MCS new and I don´t know where to start 4 years 9 months ago #10

  • Maff
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I think you might start a debate with your perspective Sini but we're all about free speech and open to all ideas here at EiR!

Personally I think the multiple sensitivities do actually add up scientifically and can be explained by the 'central sensitization' theory (of the brain and CNS) and limbic system sensitization which are gaining a lot of traction in the research community with regards to MCS, ME/CFS, fibromyalgia and other 'invisible illnesses'. They also underpin the brain retraining systems that many members here have had excellent results with.

I am a recovered MCSer myself (5 years acute illness - 11 years recovered) and like you I also found relief using medications, particularly benzodiazepines - which I'm sure many others suffering with MCS will be shocked by! This too fits with the central sensitization hypothesis perfectly however as these drugs reduce/calm the overactive brain and in my case at least reduced the severity of reactions.

I believe my recovery however was down to avoiding all other chemical exposures over a period of years and addressing adrenal fatigue with DHEA and hydrocortisone replacement along with various nutrients and herbs. I did a lot to address detoxification pathway impairments also.

So I'm certainly not shocked by you getting relief using medications but I guess I am surprised you feel your illness is psychological. It's a personal subject so I completely understand if you'd rather not say - but was stress a major factor at the start of your illness and do you have other conditions that are clearly defined as psychological?
If you are going through hell, keep going - Winston Churchill
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MCS new and I don´t know where to start 4 years 8 months ago #11

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Jodie wrote:
Hi folks, if you are in the US I've just had a recommendation for this practitioner annmccampbell.com - she will do phone consultations which will be a lot cheaper and easier than having to travel long distances, and obviously is knowledgable since she has had MCS herself.

That's great!
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MCS new and I don´t know where to start 4 years 8 months ago #12

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Maff wrote:
I believe my recovery however was down to avoiding all other chemical exposures over a period of years and addressing adrenal fatigue with DHEA and hydrocortisone replacement along with various nutrients and herbs. I did a lot to address detoxification pathway impairments also.

Matt, i think i have also some detoxification pathway impairments and i am looking for more information about this subject. Did you made an article or blog about your journey on this?
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