Psychological Symptoms of Dysbiosis related CFS
I've started a new thread to give the psychological symptoms of dysbiosis related CFS the attention they deserve.
Maff quotes Winston Churchill at the end of his posts “If you are going through hell, keep going”. The psychological symptoms are the worst as they destroy your motivation to keep on going. The single most valuable thing I’ve done is get the psychological symptoms under control (not great but under control) so that I can keep moving through hell. But you need something to keep going for and without your feelings you can’t enjoy what makes you human.
My experience is that the anxiety, depression and loss of feeling that goes with this condition arises from the serotonin/histamine imbalance caused by amine producing bacteria in the gut and I have written about my theory of how this happens.
What experiences have other people had with the mental effects of this condition?
For noetic science see noetic.org
I became ill aged 11 and being of scientific mind and having had a non-religious upbringing when doctors told me that ME/CFS was untreatable I simply took that as fact and proceeded to ignore the genuine fact that I was ill...pushing my body harder and harder to keep up with what I expected from it and from life. I kept this up through my teens, it worked at first but ultimately resulted in me being bedridden. It appears there is only so much the body can take!
Subsequently, I became desperate and started to listen to my mother who was more open to alternative medical options. I saw a well-known spiritual healer in the area and can only say it was the beginning of a spiritual awakening for me. I was sat in the middle of a large room on a simple wooden chair while the aged healer sat behind his large desk in the corner of the room. He asked me a few questions about my symptoms, told me ME/CFS didn't exist (which annoyed me greatly!) and then we both sat in silence for 20 minutes. I quickly began to experience an upwelling of positive emotion, energy and an amazing sense of well-being. It was like I had been given a potent recreational drug yet the healer hadn't moved from behind his desk or spoken a word. I also experienced what is often referred to as a feeling of "oneness" with my environment and a higher power. Suffice it to say my experience with this healer didn't cure me, the positive results lasted only days. It did open my mind to a greater reality however. I obviously have no proof but I took my experience to suggest it is possible to transfer some kind of so far unidentified "vital energy" or "life force" from one human being to another, without even the need for physical contact. I did much reading on parapsychology, metaphysics and the like after this and became further convinced. I am now deeply interested in noetic science which seeks to tie intuitive knowledge with scientific knowledge.
I think a lot of information on spirituality is conflicting Tracy. My feeling is that we need to develop our own individual spirituality. I certainly agree that anything that suggests we are to blame for our illness or powerless to do anything about it or live a full life in spite of it is completel counter-productive. To me spirituality is about increasing our awareness of our own divinity and power to steer our own ship so to speak.
Told you I would go on a bit...I should probably create a group devoted to discussion of spirituality and spiritual healing! Hope my babbling has been of some help.
Thanks for posting the link to the movie. Some great images and inspiring words. Gave me a needed boost
After I started taking copper I went from sleeping two hours per night to 4-6. Pure miracle for me-heaven!
From what I have read blood tests are often incorrect for minerals. For instance I had an iron deficiency that was not detected by blood iron levels (they were normal) but my ferritin level was almost zero. Increasing my iron capsules raised my ferritin levels and made a huge difference in my wound healing and hair fall out levels. My nails are also less grooved.
I guess what I am getting at is test the markers for these minerals and not the actual blood levels.
Through tedious note taking of my reactions to various minerals I was able to manipulate my way out of lot of my health symptoms and consider myself blessed to be able to have these in times of crisis.
Any how...through experimentation I discovered that I become numb and without emotions if my calcium levels are too high (or if I am too low in potassium or magnesium which balance calcium, or if I am taking a mineral that is blocking either of these minerals).
Perhaps you have read about the "calcium shell"?www.drlwilson.com/articles/… SHELL.htm
I had never even noticed the lack of feeling "thing" until I started to take notes. Now if I ever start to feel that way I lower my calcium intake and increase my greens. Green are the way to those happy feelings for a lot of people.
Tracy have you tried eating lots of greens when you crave sunshine? Chlorophyll is the green pigment in plants that harnesses the sun's energy in photosynthesis.
It's so important psychologically and financially to stay at work. The challenge is to develop strategies to deal with the cognitive things which as you say, render you "incapable of thinking of the simplest words during conversations, walking into rooms and forgetting why etc." I have just had to develop strategies like glossing over these infractions at work when they are noticed, faking it and of course keeping lists upon lists and reminders on my computer. However when I was at rock bottom earlier in the year and thought I would have to resign, it was the anti-biotics that saved my job.
That's a very interesting article at Body Ecologie.
The serotonin/histamine imbalance is certainly one factor that could contribute. This also impacts melatonin since this hormone is the next step on the biochemical pathway from serotonin - this can explain seasonal and weather-related mood fluctuations and SAD. There are many, many more mechanisms by which gut dysbiosis could cause psychological symptoms however. Some examples would be the production of alcohols, aldehydes, ammonia and hydrogen sulphide by gut microbes, all of which are neurotoxins. Then we have the potential for dysbiotic gut microbes to convert the amino acid building blocks of neurotransmitters into alternative molecules. For example, they "steal tryptophan and turn it into toxic metabolites rather than allowing the body to convert it into serotonin. Another factor of course is that dysbiosis results in nutritional deficiencies, particularly of B vitamins including B12 and folate - this causes methylation cycle issues - and the body then struggles to synthesise neurotransmitters including serotonin and dopamine. These are just off the top of my head but there are many more mechanisms for dysbiosis causing psychological symptoms I am sure. I have just published a Body Ecology article that discusses this subject (in general, not CFS-specific) and offers more explanations - www.ei-resource.org/expert-columns/body-ecology-diet/why-fermented-foods-may-be-the-next-big-antidepressant/
The only thing which have (somewhat) alleviated the complete loss of feelings symptom is antibiotics (which only worked the /very first days/, before I slid back to not feeling anything again).
I've also got some symptoms I guess you could call autism like, which involves uncomfort socializing which goes beyond the brain fog, orienting problems and memory problems etc.
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