one week post transplant--ACNE! is this normal?

Discussion started by True 9 years ago

One week post my series of five HPIs and now I have acne everywhere in places I havent before.  Anyone experience this or have read about it post HPI? My donor does have occassional mild acne but not this.

 

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Maff
Maff
Yes, I think we're the guinea pigs here people! We certainly don't have any trials to go on, just a few anecdotal reports from clinics and individuals. Not how I'd prefer things to be but that's unfortunately the situation at present!

When do you plan to start the faecal transplants Bushi?
9 years ago
Bushi
Bushi
You're right Tracy, there doesn't seem to be that much focus for FTT for treatment of IBS and there doesn't seem to be that many people trying FTT for IBS as a home protocol. I guess I'll be one of those guinea pigs you mentioned.
9 years ago
Tracy Mac
Tracy Mac
Hi True. As far as I can tell, WE will be the ones reporting results at 3 months! We are the guinea pigs, the ones experimenting at the forefront of science. Use of HPI to treat clostridium difficile is being widely reported but no one seems to be doing any research on HPI to treat generalised IBS. Even the CDD in Sydney Australia who are a world leaders seem to just tack on IBS to their Crohns & UC practice. The problem with IBS is that it's so broad. Every one is different and it depends what is overgrown/undergrown and where.
9 years ago
True
True
Thanks Maff! I was wondering if anyone had links to those reporting results around three months or longer? It would be encouraging to read more.

After four days on the anti-parasite cleanse I broke out with about 6 cysts, I wondering if I killed off some of the good guys I got from the transplant. It was so nice to have clear skin. I will probably try another series if this continues.

9 years ago
Maff
Maff
Good to read an update on how things have progressed for you True. I agree with Tracy that this is probably a process that will take months to play out. Interesting that you have noticed changes in blood sugar-related symptoms. The gut microflora do play a role in energy metabolism via their byproducts so there could certainly be a connection. Good news about the improvement acne!

9 years ago
True
True
Thanks Tracy,
I will keep holding out hope. I am doing a parasite cleanse and will be starting metal chelation soon.
9 years ago
Tracy Mac
Tracy Mac
Hi True. CDD says up to 3 months to pass judgement on the results and that some people are still seeing results after a year. My theory is that when you are a chronic long term sufferer you need to use multiple treatments, including a series of HPIs. For myself I feel if I can generate sufficient improvement to get off anti-bitoics and tolerate pro-biotics, then I will be able to start the long journey out. It sounds like you are heading forwards which is the main thing. The question is what next?
9 years ago
True
True
Hi Maff,

I was just thinking of posting an update. Its been a month since my implant.

The initial acne outbreak cleared up after a week. I started to get really bad low blood sugar episodes after that. These lasted for two weeks and caused my insomnia to get worse as I was waking up from the low blood sugar all night long.

The results I have seen from the transplant are less cystic acne and firmer stools. I used to get about a cyst or two a week when my blood sugar went low and they would take a few weeks and sometimes months to clear up. I have only got two cysts since the transplant and they did not last long.
Firmer stools are positive for sure but I have not noticed a change in my energy or sleep which is what I was really hoping for.

Could it take longer to see results in energy and sleep?

I am not sure where to go from here. A little discouraged.
9 years ago
Maff
Maff
Hi True,

Haven't heard from you for a while. I hope you're ok. How are you getting on? Has the HPI had any beneficial effects? I am now on day 2 of mine!
9 years ago
Maff
Maff
Glad the acne cleared up quickly True. Hard to explain what may have caused it as there are so many possibilities. We know that gut microbes interact with the immune, nervous and endocrine systems and changes in any of those could contribute to acne. Of course it has also been suggested the effects of HPI are due not just to the microbes but other things transferred from the donor's stool...e.g. immunological factors. The important thing is that the acne cleared up!

I hope you start to see some positive effects soon. Keep us updated.
9 years ago
True
True
Maff,
I am doubting it was a reaction to my husbands food because I can cheat on my diet and not get acne like I got.. I had acne on my chest back, neck and scalp along with oily skin everywhere even on my feet. I think my insulin resistance went down and this was a high insulin reaction which I have experienced before when I tried injectable insulin for my blood sugar. Anyway the acne cleared super quick so I dont know what to think now.

Not noticing any positive health improvements only stools have been firmer than usual but not what I would call normal. I am still holding out hope..
9 years ago
Maff
Maff
True, I think the most likely explanation is that you react badly to those foods in your husband's diet (food sensitivties perhaps?) and there was bound to be transfer of food particles along with the microbes in your husband's stool. If that is the explanation I'd expect the acne to clear up pretty quickly...so hope it is! Have you started to notice any other effects (good or bad)?

Bushi, I too become very skinny on Candida and Paleo diets but don't really have much choice but to stick to them. Like you I still manage to ferment anything that is not meat!
9 years ago
Tracy Mac
Tracy Mac
It sounds like your gut is not strong enough yet to withstand your husband's diet! Interesting.
9 years ago
Bushi
Bushi
Well I noticed my acne clearing up after about 10 days.
As Tracy said: "reduce your intake of sugar, yeast, bread and white flour "

I try to have a sugar free and yeast free diet. The only sugars I eat which I shouldn't are from brown rice and sweet potato. Otherwise it's just meats, root vegetables, certain nuts, lots' of oils (olive and coconut). No cheese, no chocolates, no beer.. etc...

Well that's the theory anyway. I do drink occasionally (and pay for it) and eat junk food....but even when I stick to the candida diet my symptoms still aren't right so you can imagine what it's like when I'm not being strict!!

YOu could also google 'Paleo diet' which is like the caveman diet and is even stricter than the candida diet. I find it too difficult to do. I also lose too much weight on these diets.
9 years ago
True
True
Thanks Tracy.
I hope that along with the acne I acquire some gains. My diet is void of sugar, white flour, and yeast on a regular basis, although my husbands during implant was not. My normal acne does get worse when I eat those things.
9 years ago
Tracy Mac
Tracy Mac
It seems to me that the whole sugar intolerance thrush thing is intertwined. I have both candida and short chain carbohydrate malabsorption which means I can't tolerate simple sugars at all, including fruit and pre-biotics like FOS. Within 2-3 days of having so much as a piece of fruit I get thrush and acne and general unwellness. Fluconozole will knock if for a few days but it always comes back without a modified diet. Sometimes the gut tests show yeast, sometimes they don't.
True I think your husband probably has a gut-related predisposition to acne that you have picked up. Yours will be worse as your gut is more vulnerable to whatever the bug is that's causing it. I suspect if you both reduce your intake of sugar, yeast, bread and white flour your acne will clear up. I'm beginning to suspect there is no perfect donor poo out there so if the worst you pick up is acne, you're probably still streets ahead!
9 years ago
True
True
Thanks for the comments guys. I guess I can see how acne could flare post HPI, but I would more expect it to clear which was what I was hoping for.

Tracy how do you know when you have candida growth that precedes/coincides with the acne?

I think possibly my insulin resistance has been reduced while my high insulin has not yet readjusted. I am having symptoms of hypoglycemia more often now even though my diet has not changed. Hopefully this is the case.
I have read about lowered insulin resistance post transplant though not sure if its permanent.

I totally believe that the gut bacteria is involved in blood sugar metabolism. Every round of antibiotics has worsened my tendency towards hypoglycemia.
9 years ago
Tracy Mac
Tracy Mac
I always get acne with yeast/candida growth, like clockwork.
9 years ago
Redozipous
Redozipous
I can't remember the source, but I do remember reading that in the first time after a HPI the inflammation may go up.

Many do think acne and gut flora are related. See this for example:
www.ncbi.nlm.nih.gov/pmc/articles/PMC3038963/figure/F1/… think this will be a transient thing. I think it's because of the increased inflammation in the time following a HPI.

I got a huge acne flare following my last relapse/set back (some months ago).
9 years ago
True
True
I think I gained some candida from my donor. Just a hunch. I just started wheatgrass powder this past week, but I have always drank a lot of green smoothies before and never had this effect.

Would wheatgrass cause acne? what is your candida diet and how long did it take to clear acne?
thanks Bushi
9 years ago
Bushi
Bushi
Have you changed your diet since your HPI treatment? Are you eating more of something such as fried foods? Dairy products etc......

From all my reading about FTT I haven't heard of anybody getting acne as a result. Perhaps it is something you have adopted from your donor.

I used to get acne on my back and forehead. Since I started the candida diet it has all cleared up for the first time ever!!
9 years ago