Hi all,

Leaving no stone unturned I'm having a bone marrow biopsy for Mastocytosis in a couple of weeks (even tho tryptase is normal, its the only way to be 100% sure) + ultrasounds for possible cysts or benign tumours on liver, kidney, spleen, which might be interefering with my body's ability to detox.   I also just had my haemotologist on the phone to say he's had an odd result for a urine test I just had for porphyria - 2 results were normal and 1 wasn't ..all from the same sample, I'm not quite sure what he was looking at.. however he says he's never seen this before, they are going to do a restest.

I guess this is a question for Maff then, reading about your possible porphyria link with MCS (http://www.ei-resource.org/illness-information/environmental-illnesses/multiple-chemical-sensitivity-(mcs)/) - do you have an reference papers I can show this guy when I see him?  He doesn't know much about MCS but is very bright and very open to all possibilities, however I need to give him some solid info, quite possibly we are onto something here.   If anyone else knows of any solid research into the connection, I'd be grateful!

Thanks!

Jodie