As Founder of The Environmental Illness Resource I have been working closely with another MCS Survivor (Mike Badolato - Founder of the MCS Etiology...

Surviving Multiple Chemical Sensitivity!

- Category
- Multiple Chemical Sensitivity
- Created
- Monday, 13 June 2011
- Group Admin
- Maff
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kimberly ➜ Surviving Multiple Chemical Sensitivity! Is no one a part of this group anymore?
kimberly No. But I think this site is incredibly confusing! It hasn't been of any use to me, really. But tell me what you think about it.6 years ago -
Sandy replied to Do carbon/charcoal filter masks help your MCS? I used charcoal mask from the hardware store a few different kinds and then graduated to a half mask respirator p100 mixed filter. That seemed to... -
Ardyth ➜ Surviving Multiple Chemical Sensitivity! I am new here. I read that "detoxing" may help an attack. I am in a bad one. Had to cancel nearly all my plans this week. How do I go about detoxing? All help is much appreciated!
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paimapi replied to Do carbon/charcoal filter masks help your MCS? Thanks for starting this thread (5 years ago!) I have used the I can Breathe mask for several years, but I'm actually sensitive to the charcoal... -
CazNZ replied to Cures for MCS I have been cured of MCS - it is not what many would expect. https://www.youtube.com/watch?v=hwTVd-Kle7I -
Robyn_WC88 replied to MCS Questions and Recovery Stories Thanks for the encouragement, Maff! I do have an "I Can Breathe" mask that I use in crowded situations. I had the "Protection Plus Nasal Filters"... -
Maff replied to MCS Questions and Recovery Stories Hi Robyn, thank you for sharing your story with us. As EiR Founder I certainly hope you find both empathy and useful information here! The former... -
Robyn_WC88 replied to MCS Questions and Recovery Stories Hello. I'm Robyn, and have only been chemically sensitive for the last 3 years, as a result of working at a big office building. This past year... -
Maff posted a new announcement New 2015 Diagnostic Criteria and Test for Multiple Chemical Sensitivity (MCS) Surviving Multiple Chemical Sensitivity! -
Maff ➜ Surviving Multiple Chemical Sensitivity! I have an important announcement to follow but first I would like to welcome all our new group members who have joined in the past month or so. You'll find a huge amount of MCS information within the group (and on the EiR site as a whole) along with many friendly and well informed members willing to offer knowledge and support. As Founder I offer a very warm and understanding welcome to you all!
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Maff replied to Cures for MCS Mari, it is wise not to trust anything that says 'Natural' or 'Eco-Friendly' as being ok if you are chemically sensitive and suffer from MCS/EI.... -
Jodie replied to Cures for MCS noodor.com uses 'smelleze' which pumps out some sort of gas, I think it was ethanol- someone was trying to sell smelleze on here & I commented on... -
Mari replied to Cures for MCS Jodie and Maff, thanks for your thoughts and information. Here is a link on How One Simple Breathing Technique Can Induce Better Health... -
Maff replied to Cures for MCS Mari, I agree with Jodie. It sounds like if it were used regularly it would provide similar effects on the brain as the brain retraining systems... -
Jodie replied to Cures for MCS Hi Mari, it seems to be a de-stressing programme & may work in the same way as Ashok Gupta or Annie Hopper's programmes which you can use at home &... -
Mari replied to Cures for MCS I have been reading about "LIFE VESSEL" as a treatment for MCS. Does anyone in this group have any experience with this treatment? Here is a site... -
Maff replied to Cures for MCS Mari, if a doctor really knows about MCS/EI and how to effectively treat patients affected by them they would have a fragrance-free policy in their... -
Mari replied to Cures for MCS Matt, I would like to feel that MCS can be cured. I've had MCS for years & feel that I'm really going down hill the last 4 months. I've been to... -
Maff replied to Cures for MCS I would also add that I found sunshine really helped as well. I think it was the extra serotonin light exposure produces as my reactions to... -
Maff replied to Cures for MCS marcus (and all MCSers) - I am of the opinion that MCS CAN be cured. I base this on the fact I suffered acutely for 5+ years with the condition,... -
jason34 replied to How to beat Formaldehyde? Good that you find a way of more controlling the products you are using. Good luck with your battle Dawndy! Maff, i have looked at my blood results... -
dawndy replied to How to beat Formaldehyde? Hi Jason34, Well, I had to quit working in the salons but I now do hair for photo shoots instead, where I have more control over the products being... -
jason34 replied to How to beat Formaldehyde? Hi all, Thanks again PDZ for the informative post, i will look into the Scandinavian Formulas shark liver oil and will give an update on this... -
dawndy replied to How to beat Formaldehyde? Hi Jason34, To answer your question, I currently have a lot of bamboo plants, aloe, spider plants, golden pothos and red edged dracaena plants. I...
- Category
- Multiple Chemical Sensitivity
- Created
- Monday, 13 June 2011
- Group Admin
- Maff
-
Do carbon/charcoal filter masks help your MCS?
I used charcoal mask from the hardware store a few different kinds and then graduated to a half mask respirator p100 mixed filter. That seemed to work but I could not find new filters and can't buy the upgrade to the gas protector filters where I bought the mask they don't have any in stock tried to buy the upgraded gas filters online but they won't sell them.. guess they are only for firemen and terrorists... bet they can find them. This one failed me when needing to take a cab filled with febreze... the driver showed me the can he opened all the windows and I put my head out but it was too late I am still trying to recover. I have bought two 3m respirators filters easy to get... P100 NIOSH filter... bit leary now of how well it will actually work.... What can stop febreze? Anything?
Last replied by Sandy on Thursday, 08 December 2016 -
Cures for MCS
I have been cured of MCS - it is not what many would expect. https://www.youtube.com/watch?v=hwTVd-Kle7I
Last replied by CazNZ on Tuesday, 01 December 2015 -
MCS Questions and Recovery Stories
Thanks for the encouragement, Maff! I do have an "I Can Breathe" mask that I use in crowded situations. I had the "Protection Plus Nasal Filters" for a year while I was still trudging around the office. Do you think if we wear a mask around public places as much as possible, it might help recovery time? Did you have to get toxicity testing routinely while you recovered? For myself, the worst part is feeling intoxicated, anxious, irritable and untreatable headaches. In the interest of focusing and moving forward, I'm going to look for some counselling, and medical treatment for my digestion issues. I can't help but wonder which came first, but possibly: Food allergy->Candidiasis->New job and MCS. Candidiasis recurs every few months so is the most draining on my energies. I'll check out the links and other posts shared, it's all very encouraging! Cheers, Robyn_WC88
Last replied by Robyn_WC88 on Wednesday, 14 October 2015 -
Make your own suncream!Last replied by Jodie on Sunday, 10 May 2015
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How to beat Formaldehyde?
Good that you find a way of more controlling the products you are using. Good luck with your battle Dawndy! Maff, i have looked at my blood results from a few months ago and i have noticed that my Molybdenum is very low. After reading your article it makes more sense to me know! (www.ei-resource.org/articles/candida-and-gut-dysbiosis-articles/the-candida-aldehyde-detox-pathway-and-the-molybdenum-connection/) I will start supplementing molybdenum along with Pantethine to break down the toxic waste products of the candida.
Last replied by jason34 on Friday, 30 January 2015 -
Chem Trails in the UK
Interesting document Jodie! It seems the UK government is very keen to discuss the issues raised they relate to Climate Change but dismiss entirely all of the specific questions regarding chemtrails and potential environmental and health consequences thereof. A typical response I suspect!
Last replied by Maff on Wednesday, 16 July 2014 -
Any success with brain retraining?
October last year my TSH was 4.3. As of today it is 3.8 !!!!!! Yah. Success. So yes, for me the Gupta programme is reducing the stress in my body. I sweat now, which I didn't before and my gut operates normally. Sensitivity and symptoms are still getting less and less. Obviously my body is in healing mode.
Last replied by CazNZ on Saturday, 16 February 2013 -
Martin Pall Response to Baseless Wessely "MCS Sufferers are Hermits" Paper
I am with CazNZ in asking who indeed has paid for this so called information-study-paper? He who pays the piper calls the tune, something we are all too sadly aware of. Speaking personally, I find this a great worry as it was not that long ago that early papers written by Simon Wessley discrediting CFS/ME and Gulf War Syndrome as being a personality disorder rather than having an organic cause had been put into archives far away from the public gaze. Hardly surprising as diagnostic procedures have advanced considerably and proved him WRONG. Has he learned nothing, or is he being paid so much he simply could not turn it down? The mind boggles. Sir Simon is clearly unwell.
Last replied by novembersong on Monday, 01 July 2013 -
Jobs for people with MCS??
Oh and Jodie, yes the discussion Caz referred to is directly below this one in the list of discussions at the link you posted (group homepage) on my computer. I have no idea why it would not be the same on yours! Hopefully something else that will clear up with updated site software ;)
Last replied by Maff on Tuesday, 11 December 2012 -
Which treatments might help MCS?
I'm eliminating coffee, tea and sugars etc because it is recommended when taking the Pall supplements and doing the Gupta Program. I'm hitting this "nasty" cycle from both ends. Like Maff I don't think there is a "magic" pill. When I last posted I thought the "firing" pain had stopped. In fact, it can still come but it takes a lot longer for my body to respond. Nevertheless, I can now "stick" my nose right onto something that I have a severe reaction to, get the full-blown reaction and then manage the reaction. Within 10 minutes 60% gone and after 30 minutes at least 85% of the reaction can be managed with the Gupta exercises. I am still wearing my mask when out and about though because it takes a lot of effort and time on my own to stop my body responding. The best thing to eliminate is not necessarily in the diet but in the head . . . negative thoughts and feelings that make everything even worse. We should all eat well (with minimal chemicals), be kind, accepting and loving to ourselves and realise we are on a journey.
Last replied by CazNZ on Thursday, 22 November 2012