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Surviving Multiple Chemical Sensitivity!

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  • kimberly Surviving Multiple Chemical Sensitivity!
    6 years ago

    Is no one a part of this group anymore?

    kimberly No. But I think this site is incredibly confusing! It hasn't been of any use to me, really. But tell me what you think about it.
    6 years ago
  • Sandy replied to Do carbon/charcoal filter masks help your MCS?
    7 years ago
    I used charcoal mask from the hardware store a few different kinds and then graduated to a half mask respirator p100 mixed filter. That seemed to...
  • Ardyth Surviving Multiple Chemical Sensitivity!
    7 years ago

    I am new here. I read that "detoxing" may help an attack. I am in a bad one. Had to cancel nearly all my plans this week. How do I go about detoxing? All help is much appreciated!

  • paimapi replied to Do carbon/charcoal filter masks help your MCS?
    7 years ago
    Thanks for starting this thread (5 years ago!) I have used the I can Breathe mask for several years, but I'm actually sensitive to the charcoal...
  • CazNZ replied to Cures for MCS
    8 years ago
    I have been cured of MCS - it is not what many would expect. https://www.youtube.com/watch?v=hwTVd-Kle7I
  • Robyn_WC88 replied to MCS Questions and Recovery Stories
    8 years ago
    Thanks for the encouragement, Maff! I do have an "I Can Breathe" mask that I use in crowded situations. I had the "Protection Plus Nasal Filters"...
  • Maff replied to MCS Questions and Recovery Stories
    8 years ago
    Hi Robyn, thank you for sharing your story with us. As EiR Founder I certainly hope you find both empathy and useful information here! The former...
  • Robyn_WC88 replied to MCS Questions and Recovery Stories
    8 years ago
    Hello. I'm Robyn, and have only been chemically sensitive for the last 3 years, as a result of working at a big office building. This past year...
  • Maff posted a new announcement

    8 years ago

  • Maff Surviving Multiple Chemical Sensitivity!
    8 years ago

    I have an important announcement to follow but first I would like to welcome all our new group members who have joined in the past month or so. You'll find a huge amount of MCS information within the group (and on the EiR site as a whole) along with many friendly and well informed members willing to offer knowledge and support. As Founder I offer a very warm and understanding welcome to you all!

  • Jodie replied to Make your own suncream!
    8 years ago
    Bump!
  • Maff replied to Cures for MCS
    8 years ago
    Mari, it is wise not to trust anything that says 'Natural' or 'Eco-Friendly' as being ok if you are chemically sensitive and suffer from MCS/EI....
  • Jodie replied to Cures for MCS
    9 years ago
    noodor.com uses 'smelleze' which pumps out some sort of gas, I think it was ethanol- someone was trying to sell smelleze on here & I commented on...
  • Mari replied to Cures for MCS
    9 years ago
    Jodie and Maff, thanks for your thoughts and information. Here is a link on How One Simple Breathing Technique Can Induce Better Health...
  • Maff replied to Cures for MCS
    9 years ago
    Mari, I agree with Jodie. It sounds like if it were used regularly it would provide similar effects on the brain as the brain retraining systems...
  • Jodie replied to Cures for MCS
    9 years ago
    Hi Mari, it seems to be a de-stressing programme & may work in the same way as Ashok Gupta or Annie Hopper's programmes which you can use at home &...
  • Mari replied to Cures for MCS
    9 years ago
    I have been reading about "LIFE VESSEL" as a treatment for MCS. Does anyone in this group have any experience with this treatment? Here is a site...
  • Maff replied to Cures for MCS
    9 years ago
    Mari, if a doctor really knows about MCS/EI and how to effectively treat patients affected by them they would have a fragrance-free policy in their...
  • Mari replied to Cures for MCS
    9 years ago
    Matt, I would like to feel that MCS can be cured. I've had MCS for years & feel that I'm really going down hill the last 4 months. I've been to...
  • Maff replied to Cures for MCS
    9 years ago
    I would also add that I found sunshine really helped as well. I think it was the extra serotonin light exposure produces as my reactions to...
  • Maff replied to Cures for MCS
    9 years ago
    marcus (and all MCSers) - I am of the opinion that MCS CAN be cured. I base this on the fact I suffered acutely for 5+ years with the condition,...
  • jason34 replied to How to beat Formaldehyde?
    9 years ago
    Good that you find a way of more controlling the products you are using. Good luck with your battle Dawndy! Maff, i have looked at my blood results...
  • dawndy replied to How to beat Formaldehyde?
    9 years ago
    Hi Jason34, Well, I had to quit working in the salons but I now do hair for photo shoots instead, where I have more control over the products being...
  • jason34 replied to How to beat Formaldehyde?
    9 years ago
    Hi all, Thanks again PDZ for the informative post, i will look into the Scandinavian Formulas shark liver oil and will give an update on this...
  • dawndy replied to How to beat Formaldehyde?
    9 years ago
    Hi Jason34, To answer your question, I currently have a lot of bamboo plants, aloe, spider plants, golden pothos and red edged dracaena plants. I...
A group where those suffering from multiple chemical sensitivity (MCS) can support each other in liviing day-to-day with this extremely difficult and disabling condition.
Category
Multiple Chemical Sensitivity
Created
Monday, 13 June 2011
Group Admin
Maff
  • Maff
    Do carbon/charcoal filter masks help your MCS?
    Started by Maff Monday, 13 June 2011 11 Replies
    Sandy

    I used charcoal mask from the hardware store a few different kinds and then graduated to a half mask respirator p100 mixed filter. That seemed to work but I could not find new filters and can't buy the upgrade to the gas protector filters where I bought the mask they don't have any in stock tried to buy the upgraded gas filters online but they won't sell them.. guess they are only for firemen and terrorists... bet they can find them. This one failed me when needing to take a cab filled with febreze... the driver showed me the can he opened all the windows and I put my head out but it was too late I am still trying to recover. I have bought two 3m respirators filters easy to get... P100 NIOSH filter... bit leary now of how well it will actually work.... What can stop febreze? Anything?

    Last replied by Sandy on Thursday, 08 December 2016
  • marcus
    Cures for MCS
    Started by marcus Thursday, 21 August 2014 13 Replies
    CazNZ

    I have been cured of MCS - it is not what many would expect. https://www.youtube.com/watch?v=hwTVd-Kle7I

    Last replied by CazNZ on Tuesday, 01 December 2015
  • Maff
    MCS Questions and Recovery Stories
    Started by Maff Thursday, 03 July 2014 41 Replies
    Robyn_WC88

    Thanks for the encouragement, Maff! I do have an "I Can Breathe" mask that I use in crowded situations. I had the "Protection Plus Nasal Filters" for a year while I was still trudging around the office. Do you think if we wear a mask around public places as much as possible, it might help recovery time? Did you have to get toxicity testing routinely while you recovered? For myself, the worst part is feeling intoxicated, anxious, irritable and untreatable headaches. In the interest of focusing and moving forward, I'm going to look for some counselling, and medical treatment for my digestion issues. I can't help but wonder which came first, but possibly: Food allergy->Candidiasis->New job and MCS. Candidiasis recurs every few months so is the most draining on my energies. I'll check out the links and other posts shared, it's all very encouraging! Cheers, Robyn_WC88

    Last replied by Robyn_WC88 on Wednesday, 14 October 2015
  • Jodie
    Make your own suncream!
    Started by Jodie Monday, 02 April 2012 16 Replies
    Jodie

    Bump!

    Last replied by Jodie on Sunday, 10 May 2015
  • jason34
    How to beat Formaldehyde?
    Started by jason34 Sunday, 25 January 2015 10 Replies
    jason34

    Good that you find a way of more controlling the products you are using. Good luck with your battle Dawndy! Maff, i have looked at my blood results from a few months ago and i have noticed that my Molybdenum is very low. After reading your article it makes more sense to me know! (www.ei-resource.org/articles/candida-and-gut-dysbiosis-articles/the-candida-aldehyde-detox-pathway-and-the-molybdenum-connection/) I will start supplementing molybdenum along with Pantethine to break down the toxic waste products of the candida.

    Last replied by jason34 on Friday, 30 January 2015
  • Jodie
    Chem Trails in the UK
    Started by Jodie Tuesday, 15 July 2014 1 Reply
    Maff

    Interesting document Jodie! It seems the UK government is very keen to discuss the issues raised they relate to Climate Change but dismiss entirely all of the specific questions regarding chemtrails and potential environmental and health consequences thereof. A typical response I suspect!

    Last replied by Maff on Wednesday, 16 July 2014
  • Maff
    Any success with brain retraining?
    Started by Maff Saturday, 25 August 2012 14 Replies
    CazNZ

    October last year my TSH was 4.3. As of today it is 3.8 !!!!!! Yah. Success. So yes, for me the Gupta programme is reducing the stress in my body. I sweat now, which I didn't before and my gut operates normally. Sensitivity and symptoms are still getting less and less. Obviously my body is in healing mode.

    Last replied by CazNZ on Saturday, 16 February 2013
  • Maff
    Martin Pall Response to Baseless Wessely "MCS Sufferers are Hermits" Paper
    Started by Maff Saturday, 02 February 2013 4 Replies
    novembersong

    I am with CazNZ in asking who indeed has paid for this so called information-study-paper? He who pays the piper calls the tune, something we are all too sadly aware of. Speaking personally, I find this a great worry as it was not that long ago that early papers written by Simon Wessley discrediting CFS/ME and Gulf War Syndrome as being a personality disorder rather than having an organic cause had been put into archives far away from the public gaze. Hardly surprising as diagnostic procedures have advanced considerably and proved him WRONG. Has he learned nothing, or is he being paid so much he simply could not turn it down? The mind boggles. Sir Simon is clearly unwell.

    Last replied by novembersong on Monday, 01 July 2013
  • ethansmom
    Jobs for people with MCS??
    Started by ethansmom Friday, 07 December 2012 21 Replies
    Maff

    Oh and Jodie, yes the discussion Caz referred to is directly below this one in the list of discussions at the link you posted (group homepage) on my computer. I have no idea why it would not be the same on yours! Hopefully something else that will clear up with updated site software ;)

    Last replied by Maff on Tuesday, 11 December 2012
  • Maff
    Which treatments might help MCS?
    Started by Maff Wednesday, 18 January 2012 6 Replies
    CazNZ

    I'm eliminating coffee, tea and sugars etc because it is recommended when taking the Pall supplements and doing the Gupta Program. I'm hitting this "nasty" cycle from both ends. Like Maff I don't think there is a "magic" pill. When I last posted I thought the "firing" pain had stopped. In fact, it can still come but it takes a lot longer for my body to respond. Nevertheless, I can now "stick" my nose right onto something that I have a severe reaction to, get the full-blown reaction and then manage the reaction. Within 10 minutes 60% gone and after 30 minutes at least 85% of the reaction can be managed with the Gupta exercises. I am still wearing my mask when out and about though because it takes a lot of effort and time on my own to stop my body responding. The best thing to eliminate is not necessarily in the diet but in the head . . . negative thoughts and feelings that make everything even worse. We should all eat well (with minimal chemicals), be kind, accepting and loving to ourselves and realise we are on a journey.

    Last replied by CazNZ on Thursday, 22 November 2012
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