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TOPIC: The 'Die Off'

Re: The 'Die Off' 10 years 7 months ago #7

  • jamison
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Hi Curly,

Well I'm glad to hear you've had those tests done. I think its important to illuminate complex medical problems as much as possible. It would be awful to make things worse by guessing...

It certainly looks as if candida is an issue for you. However, it sounds like a strong reaction you're having to just the diet alone. I can't help but wonder if there is something else going on. 5 weeks seems like a long time to wait to see your nutritionist when you're feeling like this. I would be inclined to go and see him/her sooner if possible to see what they think.

Now this is complete conjecture on my part so take what I say with a pinch of salt but I wonder if allergy is playing a role here. Your new diet has removed some of the major food groups that people are allergic to. It is possible that removing exposure to these allergies has allowed:
1) you to detox more easily hence you feeling crappy.
2) your immune system to kick in and start clearing out latent infections - in your case not only the candida but the EBV too. Indeed, EBV is quite a clever virus. I don't mean to get too tecnical here but EBV deliberately manipulates the immune system to cause allergies in the host to ensure its own survival. You don't need to know this but it does this by producing a homologue similar to interleukin 10 which induces a Th2 (allergic) immune response whilst the Th1 (anti viral/ bacterial arm of the immune system) becomes suppressed. In essence, the immune system becomes imbalanced: you develop allergies whilst opportunistic infections like candida occur.

It is possible that by removing allergies, you have in effect taken weights away from your immune system and this has allowed the Th1 arm (viral/bacterial arm) to kick back in again i.e. your immune system has rebalanced. Hence you are getting die off from the EBV as well as the candida.

This is only a theory but is based on the work of a prominent CFS/ME doctor called Dr Paul Cheney so it is not complete hocus pocus. But it is impossible to remotely diagnose what's going on so I would urge you to get a medical professional on board. It sounds like your picture is quite complex so I would consider seeing a doctor/ getting a professional second opinion.

If heavy metal toxicity is a real problem then chelation therapy and/or phospholipid exchange may be worth looking in to. If you are using Biolab, I take it you are based in the UK? In which case I would be happy to recommend some doctors who specialise in post viral fatigue syndrome, gut dysbiosis issues and heavy metal toxicity. It depends how far you want to go and how ill/well you feel normally whilst not on any treatments?

I'm sorry if this post is a little long winded and difficult to absorb (it is much longer and more involved than I originally intended!!).

Good luck!
Last Edit: 10 years 7 months ago by jamison.
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Re: The 'Die Off' 10 years 7 months ago #8

Hello

Thank you SO much for all of this information. It's really kind and much appreciated. I haven't look in to the EBV much as have been mostly researching the candida but I will look more in to it now.

Yes I'm located in London so yes please those doctor contacts would be welcomed. I sort of gave up on doctors to be honest, as my own GP and another private doctor I saw just kept telling me that there's 'nothing wrong with me' and I became rather frustrated with that. I think I was so relieved to have this nutritionist say 'yes you have this problem etc' that I didn't think to get any other opinions, but it does make sense to.

I did forget to mention that she also put me on the following until I see her again:
- Beta TCP (liver support)
- Adrenal rebuilder
- Thyroid natural glandular (i am hypothyroid)
- Pro EPA lemon (omeda fish oil)
- Ultra probioplex (probiotic)

I do feel ever so slightly better today and able to get myself to work which is good.

Look forward to hearing from you

Curly
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Re: The 'Die Off' 10 years 7 months ago #9

  • jamison
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Hi Curly,

I'm glad you're feeling a bit better today and able to make it into work. I totally relate to what you're saying about GPs. I was in a not too dissimilar situation to you and was told there was nothing wrong with me. I pushed on through and 2 years later was in bed with bad CFS/ME. I'm not saying this is necessarily going to happen to you because you're taking decisive action early on which is great. The earlier you act, the more chance you have a rapid, full resolution.

It sounds as if you are working with a good nutritionist who is covering many of the bases. Indeed, the fact you are taking a probiotic could perhaps result in some die off and some of the symptoms you are experiencing. However, there seem to be several threads to your ill health:
1) endocrine issues - low thyroid and adrenals
2) heavy metal toxicity
3) unresolved EBV virus
4)candida/ dysbiosis

To be totally honest, knowing what I now know and having been through a lot, I would err on the side of safety and see a doctor to complement the work you are doing with your nutritionist. It's true what they say: your health really is the most important thing as I'm sure lots of people on this website will testify to!

There is a group of doctors who specialise in the type of issues you are dealing with who belong to a society called The British Society of Ecological Medicine (you can visit their website). Belonging to this society I have seen 2 doctors who are particularly good:
1) Dr pouria at the Banstead clinic - an excellent doctor who is very methodical, leaving nothing to chance and who gets great results. The only problem is this approach is expensive - lots of tests and she administers much of her medicine intravenously which is expensive but very effective.
2) Dr Myhill - a wonderful doctor and a lovely person who both Maff and I have seen. She doesn't use IVs and so this is a less expensive route forward but unfortunately she is based in rural Wales and is difficult to get to see as she is oversubscribed with patients. Both have websites you can check out.
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Re: The 'Die Off' 10 years 7 months ago #10

Hello

Thanks for your information.

Yes looks expensive, but that really doesn't phase me. I'm lucky enough to be working, and am back living at home with the folks so spending money on my health is fine! Getting a backup opinion is a good idea and I'm definitely going to go and see Dr Pouria so thanks again for that.

I was actually much worse nearly 3 yrs ago when this all started. I started a new job after getting back from a year travelling and within a week i couldnt get out of bed for being so fatigued. A blood test showed the hypothyroid, i was given pills and sent back off to work after I got a bit of stength back. But the fatigue never went away and stress really set in until eventually i was so ill i was back bed bound for a few months. I managed to combat the stress part by going on 'The Lightning Process' course, which teaches you to coach your mind out of negative thoughts. It helped, and eventually went back to work, although with the fatigue still a problem.

Anyway, i won't blab on. Thanks again for the info

Curly :)
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Re: The 'Die Off' 10 years 7 months ago #11

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Heya,

No problem at all.

Even if you don't decide to proceed with the IVs, you can still get a good batch of tests done and make sure no stones are left unturned which is an excellent foundation from which to progress from...

It sounds like a you've been through the wars a bit so I'm glad you're in a position to focus on your health a bit. That's great!!

If you need any more info, just shout!

Good Luck!
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